This page provides the material available for the Advisory Council meetings held in 2018.
October 19, 2018 - Advisory Council Meeting
This meeting was held on Friday, October 19, 2018, in Washington, DC. During this meeting, the LTSS Subcommittee took charge of the theme. The topics covered included: (1) The experience of people with dementia who have special needs due to issues like diversity, geography, and concurrent disorders; (2) How clinical care can be better integrated with community-based supports and services; and (3) Evidence-based behavioral approaches that mitigate the impact of behavioral symptoms of dementia. The meeting also included updates on work from the previous meetings and federal workgroup updates. Material available from this meeting is listed below:
General Material:
Handouts:
- Alzheimer's Disease-Related Dementias Summit 2016 Prioritized Research Milestones
- Alzheimer's Disease-Related Dementias Summit 2016: National Research Priorities (Neurology 2017; 89:1-11)
- Alzheimer's Disease-Related Dementias Summit 2019: Research Challenges and Opportunities
- Funding Opportunity Announcements & NIH Resources
- Panelist Bios
- Workgroup on Terminology for Cognitive Impairment and Dementia
Presentation Slides:
- Addressing Barriers to Accessing Quality LTSS for People Living with AD/ADRD
- Alzheimer's Disease and Related Dementias Research Update
- Clinical Services Federal Update
- Long-Term Services and Supports Federal Update
- NINDS Role in AD/ADRD Research
- PANEL 1: When Dementia is Different: Meeting the LTSS Needs of a Heterogeneous Population
- PANEL 2: Managing Behavioral Symptoms of AD/ADRD
- PANEL 3: Integrating Clinical and Home and Community-Based Services
- Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer's & Related Dementias Clinical Research
- Updates and Follow-Up from July Meeting
Videos:
- Advisory Council on Alzheimer's Research, Care, and Services Part 1
- Advisory Council on Alzheimer's Research, Care, and Services Part 2
- Advisory Council on Alzheimer's Research, Care, and Services Part 3
- Advisory Council on Alzheimer's Research, Care, and Services Part 4
July 30, 2018 - Advisory Council Meeting
This meeting was held on Monday, July 30, 2018, in Washington, DC. The Advisory Council spent the majority of the July meeting considering recommendations made by each of the three subcommittees to present to the Secretary of HHS and Congress. Additional presentations included a presentation on a recent study by RAND on the health care infrastructure, the CDC/Alzheimer's Association's joint Healthy Brain Initiative Roadmap, federal workgroup updates, and updates on work by the non-federal members. Material available from this meeting is listed below:
General Material:
Handouts:
- Alzheimer's Disease and Healthy Aging Program: Providing Resources to Promote Indepencence and Wellbeing
- California's Dementia Cal MediConnect Project
- Global Council on Brain Health: A Collaborative from AARP
- Healthy Brain Initiative: Making Alzheimer's Our Next Public Health Success Story
- Open Science, Big Data, and You: NIH Bypass Budget Proposal for Fiscal Year 2020
- Subjective Cognitive Decline
Presentation Slides:
- 2018 Draft Recommendations
- AARP Update
- Alzheimer's Disease and Related Dementias Research Update
- Clinical Care Subcommittee Draft Recommendations
- Clinical Services Federal Update
- Dissemination and Next Steps for 2018 Recommendations
- Healthy Brain Initiative
- How Prepared is the U.S. Health Care System for a Future Alzheimer's Treatment?
- Long-Term Services and Supports Committee Update
- LTSS Subcommittee Draft Recommendations
- Non-Federal Member Updates
- Research Subcommittee Draft Recommendations
- Updates and Follow-Up from April Meeting
Recommendations:
Videos:
- Welcome and AARP
- Non-Federal and Federal Updates
- Rand Corp Presentation and Public Comments
- Clinical Care and LTSS Recommendations
- Research Recommendations, Vote, and Dissemination
April 27, 2018 - Advisory Council Meeting
This meeting was held on Friday, April 27, 2018, in Washington, DC. During the meeting, the Clinical Care Subcommittee took charge of the theme, focusing on advancing consensus on dementia care elements to guide new outcomes measurement. The Council heard speakers in two sessions, one focused on developing consensus about dementia care elements, and the second on models that are informing outcomes measurement. The meeting also included updates on work from the previous meetings, a presentation on the final report from the October 2017 Care Summit, and federal workgroup updates. Material available from this meeting is listed below:
General Material:
Handouts:
- Main Summit Recommendations
- National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers: Report to the National Advisory Council on Alzheimer's Research, Care, and Services
Presentation Slides:
- ADRD Research Update
- Advancing Consensus on Dementia Care Elements to Guide New Outcomes Measurement
- Age-Friendly Health Systems
- Building Evidence for Services and Supports Process Report
- Care Planning and Health Information Technology
- Clinical Subcommittee Update
- Comprehensive Primary Care Plus (CPC+)
- Defining Quality Dementia Care
- Final Report to the NAPA Advisory Council
- LTSS Committee Update
- Quality Care from the Perspectives of People Living with Dementia
- Updates and Follow-Up from January Meeting
Videos:
- Introductions and Updates
- Clinical Care Agenda Session 1
- Public Comments
- Clinical Care Agenda Session 2
- Care Summit Final Report
- MEETING WRAP-UP: Final Report to the NAPA Advisory Council
January 26, 2018 - Advisory Council Meeting
This meeting was held on Friday, January 26, 2018, in Washington, DC. The Research Subcommittee took charge of this meeting's theme, focusing on the process from targets to treatments. The Council heard speakers on the preclinical pipeline, the clinical trial pipeline, and the industry perspective. The meeting also included discussion of a driver diagram to guide the Council's future work, updates and a report from the October Care Summit, and federal workgroup updates. Material available from this meeting is listed below:
General Material:
Handouts:
Presentation Slides:
- AbbVie's R&D Vision for Alzheimer's Disease
- Care Summit Report
- Clinical Subcommittee Update
- Initiatives, Partnerships and Collaboration to Help Patients with the Highest Unmet Need
- Journey from Targets to Treatments
- Long-Term Services and Supports Committee Update
- NAPA Driver Diagram
- Overview of the Clinical Trial Pipeline for AD
- Overview on NIA Preclinical Pipeline
- Perspectives on Involvement of a Person Living with Dementia and Her Study Partner
- Progress Since October
- Research Progress on Alzheimer's Disease and Related Dementias
Videos:
- Care Summit Update
- Federal Updates
- NAPA Driver Diagram
- Public Comments
- Research Subcommittee Agenda
- Updates since October meeting
Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.