Advisory Council July 2018 Meeting Presentation: Healthy Brain Initiative

07/30/2018

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Friday, July 30, 2018

Printer Friendly Version in PDF Format (19 PDF pages)

 

HEALTHY BRAIN INITIATIVE

State and Local Partnerships to Address Dementia: The 2018-2023 Road Map

Lisa C. McGuire, PhD
Alzheimer's Disease and Healthy Aging Program
Centers for Disease Control and Prevention

Robert Egge
Chief Public Policy Officer
Alzheimer's Association

Alzheimer's Prevalence and Costs

In Millions of People; In Billions of 2018 Dollars
Bar chart: 2018 ($186, $277, 5.5%); 2020 ($202, $300, 5.8%); 2025 ($239, $357, 6.8%); 2030 ($310, $465, 8.4%); 2035 ($402, $603, 9.9%); 2040 ($506, $763, 11.6%); 2045 ($609, $920, 12.8%); 2050 ($750, $1.14, 13.8%).

Healthy Brain Initiative

  • 2005: Originating Partners
    • Centers for Disease Control and Prevention
    • Alzheimer's Association
  • Purpose
    • Advance cognitive health as an central part of public health practice

History: Healthy Brain Initiative

  • 2005
    • Healthy Brain Initiative
    • Established with Congressional Support
  • 2007
    • A National Public Health Road Map to Maintaining Cognitive Health
    • Published
  • 2010
    • Healthy People 2020
    • Includes "Dementia" Objectives
  • 2011
    • National Alzheimer's Project Act (NAPA)
    • Signed in to Law
    • (Public Law 111-375)
  • 2012
    • National Plan to Address Alzheimer's Disease
    • Published
  • 2013
    • The Public Health Road Map for State and National Partnerships, 2013-2018
    • Published
  • 2018
    • State and Local Public Health Partnerships to Address Dementia, the 2018-2023 Road Map
    • To be published in fall 2018

HBI Road Maps

  • Practical and expert-guided actions for state and local public health leaders
    • Flexible agenda
    • Grounded in public health approaches
Screen shot of A National Public Health Road Map to Maintaining Cognitive Health. Screen shot of The Public Health Road Map for State and National Partnerships, 2013-2018. Screen shot of State and Local Public Health Partnerships to Address Dementia, the 2018-2023 Road Map.

Surveillance Accomplishments

USA Map: 2015 (35 states); 2016 (21 states); 2017 (2 states). USA Map: 2015 (24 states); 2016 (21 states); 2017 (8 states).
Subjective Cognitive Decline
49 states, DC and Puerto Rico (in 2015 or 2016)
Caregiver
47 states, DC and Puerto Rico (in 2015, 2016, or 2017)

Data for Action

https://www.cdc.gov/aging/index.html
Screen shot of Subjective Cognitive Decline Infographic. Screen shot of Public Data Portal on the Health of Older Adults.
Subjective Cognitive Decline Infographic Public Data Portal on the Health of Older Adults
https://alz.org/professionals/public-health-officials
Screen shot of Alzheimer's Association Public Health page. Screen shot of Alzheimer's Association Public Health pages.

Growth in Road Map Implementation Actions

Number of Road Map Actions Implemented
Bar chart: FY15 (19); FY16 (37); FY17 (65); FY18 (102).

State Public Health: Locus of Activity, 2015-17

Bar chart: State (84%); Local (10%); Tribal (4%); Other (2%).

Time for an Update!

  • Road Map Leadership Committee
    • Examine progress with current Road Map
    • Identify leading public health issues for 2018-2023
    • Obtain subject matter, practitioner, and stakeholder expertise on top issues
    • Propose and review actions for next Road Map

Thank You

  • 143 practitioners, subject matter experts, and researchers
  • 5 virtual consultations with stakeholders
  • 5 workgroups established by Leadership Committee

Key Decisions

  • Focus on state and local public health agencies
    • Collaborating partners = aging, health care, academia, and other sectors
  • Keep public health framework
  • Reduce actions, but elevate impact
    • Emphasize policies, systems, and environments
  • Integrate dementia caregiving and generating evidence for action

State and Local Public Health Partnerships to Address Dementia, the 2018-2023 Road Map

Screen shot of State and Local Public Health Partnerships to Address Dementia, the 2018-2023 Road Map.

Framework: Essential Services of Public Health

Circle chart: Outside circle - Promote Health Equity, Collaborate Across Multiple Sectors, Leverage Resources for Sustained Impace; Next Circle - Assure a Competent Workforce, Monitor and Evaluate, Educate and Empower the Nation, Develop Policy and Mobilize Partnerships; Inner circle - Applied Research and Translation.

Life-Course Perspective and Public Health Roles

Semi-circle chart: Birth to Death range; Early Detection and Diagnosis; Risk Reduction, Safety, Quality of Care; Healthy Cognitive Functioning, Pre-Symptomatic, Mild Cognitive Impairment, Dementia.

Core Topic Areas

  • Risk identification and risk reduction
  • Early detection and diagnosis, and quality of care
  • Dementia caregiving
  • Education and training for professionals
  • Data and evidence for action

Priority Actions

  • Educate and Empower
    • Educate the public about brain health and cognitive aging, changes that should be discussed with a health professional, and benefits of early detection and diagnosis. (E-1)
    • Integrate the best available evidence about brain health and cognitive decline risk factors into existing health communications that promote health and chronic condition management for people across the life span. (E-2)
    • Increase messaging that emphasizes both the important role of caregivers in supporting people with dementia and the importance of maintaining caregivers' health and well-being. (E-3)
    • Improve access to and use of evidence-informed interventions, services, and supports for people with dementia and their caregivers to enhance their health, well-being, and independence. (E-7)
  • Develop Policies and Mobilize Partnerships
    • Promote the use of effective interventions and best practices to protect brain health, address cognitive impairment, and help meet the needs of caregivers for people with dementia. (P-1)
    • Support better informed decisions by educating policy makers on the basics of cognitive health and impairment, the impact of dementia on caregivers and communities, and the role of public health in addressing this priority problem. (P-3)
  • Assure a Competent Workforce
    • Educate public health and healthcare professionals on sources of reliable information about brain health and ways to use the information to inform those they serve. (W-1)
    • Educate public health professionals about the best available evidence on dementia (including detection) and dementia caregiving, the role of public health, and sources of information, tools, and assistance to support public health action. (W-3)
    • Foster continuing education to improve healthcare professionals' ability and willingness to support early diagnoses and disclosure of dementia, provide effective care planning at all stages of dementia, offer counseling and referral, and engage caregivers, as appropriate, in care management. (W-4)
  • Monitor and Evaluate
    • Implement the Behavioral Risk Factor Surveillance System (BRFSS) optional module for Cognitive Decline in 2019 or 2020, and the BRFSS optional module for Caregiving in 2021 or 2022. (M-1)
    • Use data gleaned through available surveillance strategies and other sources to inform the public health program and policy response to cognitive health, impairment, and caregiving. (M-3)

Road Map for Indian Country

  • American Indians and Alaska Natives: gains in longevity, but Elders with higher risks for dementia and heart disease
    • Available in Fall 2018
    • Tailored for Tribal and Native health leaders to engage their communities on Alzheimer's and other dementias
    • Suggest public health responses to
      • Reduce risk for cognitive decline
      • Advance early detection
      • Support caregivers
      • Monitor and evaluate

Now --> October Release

  • Get Ready
    • Sharing previews (July-Aug.)
    • Establish marketing partners (July-Sept.)
    • Prepare marketing partners (Sept.-Oct.)
  • Road Map Surge (Oct.-Nov.)
    • Extensive promotion over a week
    • Events in states and at national conferences to mobilize Road Map implementation

What You Can Do

  • Public Health
    • National Organizations
      • Raise awareness
      • Educate your members, constituents
    • State and Local Public Health
      • Review Road Map
      • Prioritize and implement actions
      • Evaluate
      • Share your successes
  • Aging Network
    • National Organizations
      • Raise awareness
      • Educate your members, constituents
    • State and Local Aging and Disability
      • Share Road Map with public health
      • Establish shared goals
      • Partner to implement
  • Other Partners
    • As appropriate:
      • Promote the Road Map
      • Inform policy makers
      • Integrate into existing community benefit and other plans
      • Collaborate on implementation
      • Conduct applied research and translation

Summary

  • New HBI Road Map
    • Helps state and local public health agencies and their partners chart a course for a dementia-prepared future
    • Prioritizes applied research and translation to help advance the field

For More Information

Healthy Brain Initiative

  • Dr. Lisa McGuire,LMcGuire@cdc.gov
  • For more information, contact CDC, 1-800-CDC-INFO (232-4636), TTY: 1-888-232-6348, http://www.cdc.gov
  • The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention.

Alzheimer's Impact Movement

  • Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act
  • (S. 2076/H.R. 4256)

What Makes Alzheimer's a Public Health Concern?

  • The burden is LARGE
  • The impact is MAJOR
  • There are ways to INTERVENE

Senate Sponsors

  • Senator Susan Collins (R-ME)
  • Senator Catherine Cortez Masto (D-NV)
  • Senator Shelley Moore Capito (R-WV)
  • Senator Tim Kaine (D-VA)

House Sponsors

  • Representative Brett Guthrie (R-KY)
  • Representative Paul Tonko (D-NY)
  • Representative Chris Smith (R-NJ)
  • Representative Maxine Waters (D-CA)

BOLD Infrastructure for Alzheimer's Act

  • Establishes Alzheimer's Centers of Excellence
  • Provides funding for public health departments across the country
  • Increases data collection, analysis and timely reporting

The BOLD Infrastructure for Alzheimer's Act Directs CDC to:

  • Establish Alzheimer's Centers of Excellence (CoEs)
    • Increasing education of public health officials, health care professionals & the public on Alzheimer's
    • Implementing strategies to improve early detection and diagnosis, reduce risk, and prevent avoidable hospitalizations
    • * Authorizes $12 million to be appropriated for purposes of establishing the CoEs.
  • Award cooperative agreements to public health departments
    • Helping public health departments implement effective Alzheimer's interventions and strategic action items identified in the Public Health Road Map
    • *Authorizes $20 million to be appropriated for purposes of awarding cooperative agreements.
  • Increase data collection, analysis and timely reporting
    • Data helps stakeholders track public health response progress and identify opportunities for public health interventions
    • Data is collected using tools like Behavioral Risk Factor Surveillance System (BRFSS)
    • *Authorizes $5 million to be appropriated for purposes of data collection, analysis and reporting

Questions?


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