Friday, January 26, 2018
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Long-Term Services and Supports Committee Update
Administration for Community Living
- ACL Alzheimer's Dementia Programs
- 2017 Alzheimer's Disease Supportive Service Programs (ADSSP) grant implementation. (States)
- 2017 Alzheimer's Disease Initiative - Specialized Supportive Services Programs (ADI-SSS) grant implementation. (HCBS Providers)
- Grantees include:
- States, Universities, City/County Governments, Senior Centers, Hospitals/Health Systems, Community Based Home and Community Based Service Providers (AAAs, JFS, United Way)
- National Alzheimer's and Dementia Resource Center (NADRC) Webinar
- January 16, 2018
- Frontotemporal Degeneration: The Importance of Knowledge, Advocacy and Support to Advance Quality Care
- Presenters: Sharon Denny, Brandt and Marie Henderson
- https://www.nadrc.acl.gov
- National Alzheimer's and Dementia Resource Center (NADRC) UPCOMING Webinar
- January 30, 2018
- International Perspectives on Supporting People with Dementia and Their Caregivers
- Presenters: Nicole Batsch, Michelle Miller
- Registration: http://asaging.org/web-seminars/international-perspectives-supporting-people-dementia-and-caregivers
- https://www.nadrc.acl.gov
- Office for American Indian, Alaskan Native and Native Hawaiian Programs Title VI Webinar Series
- November 8, 2017
- Alzheimer's Disease and Related Dementia in Indian Country: What do we need to know and share with others?
- Presenters: Cynthia LaCounte, Erin Long
- https://olderindians.acl.gov/title-vi-webinars
CDC's Public Health Road Map
- The Public Health Road Map for State and National Partnerships 2013-2018
- 35 action items for public health officials to:
- Promote cognitive functioning
- Address cognitive impairment and Alzheimer's disease
- Meet the needs of caregivers
- 35 action items for public health officials to:
- The Public Health Road Map for State and National Partnerships 2018-2023
- Leadership Committee
- Robert Egge & Lisa McGuire, Co-chairs
- Patty Blake
- Brian Bowden
- Susan Engels
- K. Lynn Gallagher
- Rick Greene
- David Hoffman
- Brian Kaskie
- Ian Kremer
- Sarah Lenz Lock
- David Marquez
- Sharon Moffatt
- Judith Monroe
- Jewel Mullen
- Pernessa Seele
- Nora Super
- Blythe Winchester
- Timeline
- June 2017: Kickoff
- June-August: Working Groups
- September: Draft Objectives Submitted
- October-December: Review & Revise Objectives
- Early-2018: Writing, Revising, & Clearance
- Mid-2018: Road Map Release
- Leadership Committee
THANK YOU!
January 26, 2018 -- Advisory Council Meeting #27
The meeting was held on Friday, January 26, 2018, in Washington, DC. The Research Subcommittee took charge of this meeting's theme, focusing on the process from targets to treatments. The Council heard speakers on the preclinical pipeline, the clinical trial pipeline, and the industry perspective. The meeting also included discussion of a driver diagram to guide the Council's future work, updates and a report from the October Care Summit, and federal workgroup updates. Material available from this meeting is listed below and at https://aspe.hhs.gov/advisory-council-alzheimers-research-care-and-services-meetings#Jan2018.
Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.
General Information
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Agenda -- [HTML Version] [PDF Version]
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Meeting Announcement -- [HTML Version] [PDF Version]
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Meeting Summary -- [HTML Version] [PDF Version]
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Public Comments -- [HTML Version]
Handouts
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Care Summit Report Themes -- [PDF Version]
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NAPA Driver Diagram Draft Examples -- [PDF Version]
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Outline for Care Summit Final Report -- [PDF Version]
Presentation Slides
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AbbVie's R&D Vision for Alzheimer's Disease -- [HTML Version] [PDF Version]
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Care Summit Report -- [HTML Version] [PDF Version]
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Clinical Subcommittee Update -- [HTML Version] [PDF Version]
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Initiatives, Partnerships and Collaboration to Help Patients with the Highest Unmet Need: Dominantly Inherited Alzheimer's Disease Trials Unit (DIAN-TU) as a Case Example -- [HTML Version] [PDF Version]
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Long-Term Services and Supports Committee Update -- [HTML Version] [PDF Version]
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NAPA Driver Diagram -- [HTML Version] [PDF Version]
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Overview of the Clinical Trial Pipeline for AD -- [HTML Version] [PDF Version]
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Overview on NIA Preclinical Pipeline -- [HTML Version] [PDF Version]
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Participating in an Alzheimer's Clinical Study: Perspectives on Involvement of a Person Living with Dementia and Her Study Partner -- [HTML Version] [PDF Version]
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Progress Since October -- [HTML Version] [PDF Version]
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Research Progress on Alzheimer's Disease and Related Dementias -- [HTML Version] [PDF Version]
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Research Subcommittee Agenda: The Journey from Targets to Treatments -- [HTML Version] [PDF Version]