Advisory Council on Alzheimer's Research, Care, and Services Meetings

01/27/2017

The Advisory Council on Alzheimer's Research, Care, and Services meets quarterly to discuss programs that impact people with Alzheimer's disease and related dementias (AD/ADRD) and their caregivers. Representatives from agency and organizations that work with dementia treatment and care are invited to present information to the Advisory Council. The public is also given time at each meeting to provide first-hand information of their day-to-day experience.

This section provides the information available for each Advisory Council meeting.

Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.


Table of Contents

2017 Meetings

2016 Meetings

2015 Meetings

2014 Meetings

2013 Meetings

2012 Meetings

2011 Meetings

   

Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.


2017 Meetings

February 3, 2017 -- Advisory Council Meeting #23

The meeting will be held on Friday, February 3, 2017 in Washington, DC. The theme of this Advisory Council meeting will be clinical trials for Alzheimer's disease and related dementias and recruitment challenges. Additional presentations in the afternoon will include updates on progress towards a Care and Services Summit, federal workgroup updates, and preparation for the Advisory Council's 2017 Recommendations, due in April 2017.

Agenda

Meeting Announcement

Handouts:

Presentation Slides:

 


2016 Meetings

October 31, 2016 -- Advisory Council Meeting #22

The meeting was held on Monday, October 31, 2016 in Washington, DC. The theme of this Advisory Council meeting was on racial and ethnic disparities in research and care for dementia. Presentations focused on general demographics, gaps and barriers that various groups face in obtaining services, and successful interventions to reduce these gaps. Additional presentations included further discussion of the 2016 Update to the National Plan, updates on progress towards a Care and Services Summit, and federal workgroup updates.

Agenda

Handouts:

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

August 1, 2016 -- Advisory Council Meeting #21

The meeting was held on Monday, August 1, 2016 in Bethesda, Maryland. The Advisory Council heard from a number of CMS's HCIA awardees about their projects and their results. Additional presentations included an overview of the 2016 Update to the National Plan, updates on progress towards a Care and Services Summit, and federal workgroup updates.

Agenda

Meeting Announcement

Meeting Summary

NIH Campus Map

Presentation Slides:

Public Comments

Video Playlist

 

April 29, 2016 -- Advisory Council Meeting #20

The meeting was held on Friday, April 29, 2016 in Washington, D.C. The Advisory Council spent the majority of the April meeting considering recommendations made by each of the three subcommittees for updates to the 2016 National Plan. Additional presentations in the afternoon included an update on the Dementia Friendly America campaign, planning progress towards a Care and Services Summit, and federal workgroup updates.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

January 25, 2016 -- Advisory Council Meeting #19

The meeting was held on Monday, January 25, 2016. The Advisory Council reviewed the process for developing both the recommendations and the National Plan to Address Alzheimer's Disease, discussed updates to work on Goals 2 and 3 of the National Plan, and heard updates on a future summit on care.

NOTE: Due to a snowstorm in the DC area, all government buildings were closed the day of the meeting. A WebEx meeting was set up beforehand to accommodate the discussion, and Listserv members were alerted on how to register.

Agenda

Meeting Announcement

Meeting Summary

NIH Campus Map

Public Comments

Presentation Slides:

 


2015 Meetings

October 26, 2015 -- Advisory Council Meeting #18

The meeting was held on Monday, October 26, 2015 in Washington, D.C. The Advisory Council welcomed its new members and invited them to share their experiences and where they see the Advisory Council going over the length of their terms. The Advisory Council also spent some time discussing the process of developing recommendations and how those recommendations relate to the National Plan. The Advisory Council heard a presentation from a member of the HHS Strategic Planning Team about how the National Plan fits into the greater HHS Strategic Plan.

Agenda

Examples of Federal Advisory Committee Recommendations and Strategic Plans:

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

 

July 27, 2015 -- Advisory Council Meeting #17

The meeting was held on Monday, July 27, 2015 in Washington, D.C. The Advisory Council heard from experts on related dementias, such as Frontotemporal dementia, Lewy Body dementia, and others. Following that session, the Advisory Council held a discussion of the expected bypass budget from NIA, required in the CRomnibus Bill. The Advisory Council also discussed updates to international events on dementia. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Material:

Public Comments

Video Playlist

 

April 28, 2015 -- Advisory Council Meeting #16

The meeting was held on Tuesday, April 28, 2015 in Washington, D.C. The Advisory Council built on the goals of the White House Conference on Aging (WHCOA) through a half-day session with dementia-focused panels on each WHCOA topic area: healthy aging, long-term services and supports, retirement security, and elder justice. Following this session, the Advisory Council held a brief discussion on the 2015 Update to the National Plan, including subcommittee updates, and a discussion of international events on dementia. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Video Playlist

 

January 26, 2015 -- Advisory Council Meeting #15

The meeting was held on Monday, January 26, 2015 in Washington, D.C. The Advisory Council heard a presentation on IOM's final expert panel on Advanced Dementia, which will provide additional recommendations for the Council to consider. The Advisory Council spent the majority of the meeting reviewing the work accomplished thus far towards the 2025 goals, and heard presentations from the subcommittees (Research, Clinical Care, Long-Term Services and Supports, and Ethics) for updates to the 2015 National Plan. The Council also discussed the process for developing recommendations for the 2015 update for the National Plan. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Video Playlist

 


2014 Meetings

October 27, 2014 -- Advisory Council Meeting #14

The meeting was held on Monday, October 27, 2014 in Washington, DC. The Advisory Council heard presentations on the basics of long-term care, including presentations on programs, settings, and payers. The Council used a portion of the meeting to review the work accomplished thus far towards the 2025 goals, and then discussed the process for developing recommendations for the 2015 update to the National Plan. The Council will also hear presentations from the subcommittees (Research, Clinical Care, Long-Term Services and Supports, and Ethics). Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

July 21, 2014 -- Advisory Council Meeting #13

The meeting was held on Monday, July 21, 2014 in Washington, D.C. 20201. The Advisory Council reviewed and discussed its recommendations on informal caregiving, heard presentations on statistics about caregivers and existing programs to provide them with help, and heard presentations from the subcommittees (Research, Clinical Care, Long-Term Services and Supports, and Ethics). The Advisory Council also discussed the G7 Dementia Summit held on June 19 in the United Kingdom. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Video Playlist

 

April 29, 2014 -- Advisory Council Meeting #12

The meeting was held on Tuesday, April 29, 2014 in Washington, DC. The Advisory Council heard presentations from the subcommittees (Research, Clinical Care, and Long-Term Services and Supports) to inform the 2014 Recommendations. The Advisory Council also heard updates to the 2014 National Plan, as well as state and local plans to address dementia. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Video Playlist

 

February 3, 2014 -- Advisory Council Meeting #11

The meeting was held on Monday, February 3, 2014 in Washington, DC. The Advisory Council heard presentations from the subcommittees (Research, Clinical Care, and Long-Term Services and Supports) to inform the 2014 Recommendations. The Advisory Council also discussed the G8 Dementia Summit that was held on December 11, 2013. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Recommendations:

Videos:

 


2013 Meetings

December 2, 2013 -- Advisory Council Meeting #10

The meeting was held on Monday, December 2, 2013 in Bethesda, Maryland. The Advisory Council welcomed new members and discussed the timeline for the 2014 recommendations. The subcommittees will discuss priorities and areas for recommendations. The Advisory Council will hear presentations on work underway to harness "big data" to address Alzheimer's research. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

July 19, 2013 -- Advisory Council Meeting #9

The meeting was held on Friday, July 19, 2013 in Washington, DC. The Advisory Council discussed the National Plan to Address Alzheimer's Disease: 2013 Update, and the 2013 recommendations. There was also presentations on international activities related to Alzheimer's disease since the April meeting, as well as issues related to long-term care financing. Material from this Advisory Council meeting is available, and listed below.

Agenda

Handouts:

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 

April 29, 2013 -- Advisory Council Meeting #8

The meeting was held on Monday, April 29, 2013 in Washington, DC. The Advisory Council will hear presentations from international partners on their efforts to address Alzheimer's disease. There will also be a presentation on the priorities set during the May 2012 research summit and the milestones for achieving the 2025 goal. The federal partners will provide an update on the progress of implementing the National Plan to Address Alzheimer's Disease, and will discuss highlights of the 2013 National Plan Update. Material from this Advisory Council meeting is available, and listed below.

Agenda

Handouts:

Meeting Announcement

Meeting Summary

Presentation Slides

Public Comments

Videos:

 

January 14, 2013 -- Advisory Council Meeting #7

The meeting was held on Monday, January 14, 2013 in Washington, DC. The Advisory Council heard updates from the three subgroups on the implementation of the National Plan, as well as a presentation on work underway by the U.S. Department of Veterans Affairs to support Veterans with Alzheimer's disease and their caregivers. Subcommittee chairs presented recommendations for adoption by the Advisory Council which were voted on as formal recommendations to the Secretary of HHS and Congress. The Advisory Council allowed an open public session to address issues or topics. Material from this Advisory Council meeting is available, and listed below.

Agenda

Handouts:

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Recommendations:

Videos:

 


2012 Meetings

October 15, 2012 -- Advisory Council Meeting #6

The meeting was held on Monday, October 15, 2012 in Washington, DC. The Advisory Council discussed the recommendations made in May, as well as ideas and topics for future recommendations. The Advisory Council allowed an open public session to address issues or topics. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides

Public Comments

Videos:

 

July 23, 2012 -- Advisory Council Meeting #5

The meeting was held on Monday, July 23, 2012 in Washington, DC. A representative from HHS discussed feedback on the National Plan. Then the Advisory Council heard and discussed three presentations on implementation of the Plan. The presentations were related to research, clinical services, and long-term services and supports. The Advisory Council also discussed priorities for public/private partnerships to implement the Plan and next steps related to developing recommendations. The Advisory Council allowed an open public session to address issues or topics. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides

Public Comments

Videos:

 

April 17, 2012 -- Advisory Council Meeting #4

The meeting was held on Tuesday, April 17, 2012 in Washington, DC. A representative from HHS presented an overview of the Draft National Plan. The Advisory Council then discussed and, as appropriate, voted upon recommendations to the Secretary of HHS. The Advisory Council allowed an open public session to address issues or topics that should be addressed in the National Plan. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides

Public Comments

Recommendations:

Videos:

 

March 14, 2012 -- Advisory Council Meeting #3

The meeting was a teleconference held on Wednesday, March 14, 2012. The chairs of the subcommittees (Research, Clinical Care, Long-Term Services and Supports) summarized feedback from their subcommittees on the Draft National Plan. This feedback was discussed among the full Advisory Council, and an open public session addressed issues or topics that should be addressed in the National Plan. Material from this Advisory Council meeting is available, and listed below.

Handouts:

Meeting Announcement

Meeting Summary

Presentation Slides

Public Comments

 

January 17-18, 2012 -- Advisory Council Meeting #2

The meeting was held on Tuesday, January 17, 2012 and Wednesday, January 18, 2012, in Washington, D.C. The Advisory Council heard an overview of the Draft National Plan to Address Alzheimer's Disease. The chairs of the subcommittee also summarized the feedback from their subcommittees on the draft plan, and suggested recommendations for discussion. The Advisory Council discussed and voted upon recommendations to the Secretary of HHS on the Draft National Plan. A discussion on how to engage stakeholders outside of the Federal Government in the writing and implementation of the National Plan. Material from this Advisory Council meeting is available, and listed below.

Agenda

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

Videos:

 


2011 Meetings

September 27, 2011 -- Advisory Council Meeting #1

The meeting was held on Tuesday, September 27, 2011, in Washington, D.C. The Advisory Council heard presentations and provided feedback on inventories of federal activities to address Alzheimer's disease and related dementias, gaps that can be addressed, and opportunities for collaboration. The National Plan to address Alzheimer's disease and related dementias was also discussed.Material from this Advisory Council meeting is available, and listed below.

Meeting Announcement

Meeting Summary

Presentation Slides:

Public Comments

 


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