Advisory Council October 2018 Meeting Presentations: Panel 1

10/19/2018

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Friday, October 19, 2018

Printer Friendly Version in PDF Format (11 PDF pages)

 

Panel 1: When Dementia is Different: Meeting the LTSS Needs of a Heterogeneous Population

Katie Brandt
Cynthia Huling Hummel

When Dementia is Different: Meeting the LTSS Needs of a Heterogeneous Population

A Panel Discussion Facilitated by Cynthia Huling Hummel, BS., MDiv., D.Min. & Katherine Brandt, MM

Gratitude for a Group Effort

  • NAPA Advisory Council on Alzheimer's Research, Care and Services Advisory Council Members
    • Dr. Laura Gitlin, Chair
  • Long Term Services and Supports Subcommittee
    • Debra Cherry, Chair
  • Rohini Khillan, Federal Project Officer
  • Panel Members

Goals of Our Panel Discussion

  • Heterogeneity is Here: Defining Our Differences
  • Knowledge is Power: Learning the Needs of our Entire Community
  • Stronger Together: Inclusion for Everyone
  • Awareness to Action: Steps for Inclusion and Improvement Now

 

Michael Brandt was diagnosed with FTD at the age of 29.

He passed away on April 19, 2012, just over three years from his diagnosis, twenty-one days after our son, Noah, turned four and only months before we might have celebrated a decade of marriage.

Wedding photo of Michael and Katherine Brandt

 

We do not yet have a cure for these devastating diseases, but we do have a cure for the isolation and loneliness that may come with a diagnosis.

Personal photos.

Our Panelists

  • Diana Blackwelder
  • Mary Hogan
  • John Collinge
  • Veronica Cool

 

Advocating in Faith, Hope, & Love

Moderator: Cynthia Huling Hummel

Personal photos.

 

"Every small act of kindness can make a huge difference not just to the recipients - but also to those who serve."

Photo: Faithful Friends Respite Care Ministry: Started by Cynthia Huling Hummel & Diane Edwards 2018

Personal photo.

 

Panel Discussion

Diana Blackwelder, National ES Advisor, Alzheimer's Association
Mary Hogan, Family Advocate
John Collinge, Caregiver
Veronica Cool, CEO & Hispanic Strategist, Cool & Associates LLC

Moderator: Cynthia Huling Hummel

 

Personal photos.

Diana Blackwelder

"My hope is that the medical industry and community service providers increase their awareness of early stage and younger-onset Alzheimer's, in order to expand their reach and tailor their programs to benefit people like me."

 

Heterogeneity and Barriers to Accessing Services

Mary Hogan
Family Advocate
NTG

Everyone has a story... with an ending.

Personal photos.

Struggling with a Neurodegenerative Disorder

From young to older

Personal photos.

"I be a PERSON too."

  • Person Centered Care assumes that you know and value the person and that you address what they need rather than require them to fit into what you have to offer or ignore their needs altogether.
  • The most important part of Healthcare is the Caring.
  • The True Measure of Any Society Can Be Found in How They Treat the Most Vulnerable. (Mahatma Gandhi)
Personal photos.

 

Zandra Iona Flemister

Secret Service Agent,
Foreign Service Officer
Long Term Care Resident
Frontal Temporal Degeneration

Personal photos.

Dementia Attacks Families

Know Warning Signs
Fund Research
Support Long Term Care

Personal photos.

 

Personal photos.

So, I Danced...

Personal photos.

 

Personal photos.

Discussion


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