This file shows the progression of work done on each Action included in the National Plan to Address Alzheimer's Disease. Due to formatting changes and changing Actions titles, descriptions that have been updated, and new Actions that have been added, information below has been grouped by Action Description within the Plan's Implementation Milestones chart. Links are provided to the each Plan Goal and Strategy if you are interested in further information.
NOTE: The Goal, Strategy and Action titles listed are those used in the last Plan published.
Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.
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GOAL 1: Prevent and Effectively Treat Alzheimer's Disease and Related Dementias by 2025
Below are the Strategies and Actions that have been listed under Goal 1 since 2012.
| GOAL 1 Narrative Links | |||
| 2019 Goal 1 | 2018 Goal 1 | 2017 Goal 1 | 2016 Goal 1 |
| 2015 Goal 1 | 2014 Goal 1 | 2013 Goal 1 | 2012 Goal 1 |
STRATEGY 1.A: Identify Research Priorities and Milestones
Below are the Actions that have been listed under Strategy 1.A since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 1.A Narrative links | |||
| 2019 Strategy 1.A | 2018 Strategy 1.A | 2017 Strategy 1.A | 2016 Strategy 1.A |
| 2015 Strategy 1.A | 2014 Strategy 1.A | 2013 Strategy 1.A | 2012 Strategy 1.A |
1.A Actions Table of Contents
- Convene a scientific workshop on other dementias in 2013.
- Convene a workshop focused on research needs related to Down syndrome and Alzheimer's disease and related dementias.
- Convene a workshop focused on the research needs related to Down syndrome and Alzheimer's disease.
- Create a timeline with milestones for achieving Goal 1.
- Create and implement a strategic plan for CDMRP PRARP.
- Develop and administer a scientific landscape survey for the CDMRP PRARP.
- Regularly convene a Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers.
- Regularly convene an ADRD Summit to review progress on research recommendations, and refine and add new recommendations as appropriate, based on recent scientific discoveries.
- Regularly convene an Alzheimer's Disease Research Summit to update priorities.
- Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input.
- Solicit diverse community input on Alzheimer's disease research priorities.
- Update research priorities and milestones.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 1.A.1) |
Hold an international Alzheimer's disease research summit to identify priorities, milestones, and a timeline. | NIH/NIA |
May 2012; August 2012. |
| NATIONAL PLAN 2013 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
First Summit 2012; Second Summit August 2015. |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
2012 Summit 2015 Summit |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
2015 Alzheimer's Disease Research Summit |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
2015 Alzheimer's Disease Research Summit |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.1) |
Regularly convene an Alzheimer's Disease Research Summit to update priorities. | NIH/NIA |
2018 Alzheimer's Disease Research Summit |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.1) |
Regularly convene an AD research summit to update priorities. | NIH/NIA |
2018 AD Research Summit |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.A.2) |
Solicit public and private input regarding Alzheimer's disease. | NIH/NIA |
Completed. |
| NATIONAL PLAN 2013 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease research priorities. | NIH/NIA |
Completed. |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease research priorities. | NIH/NIA |
Funder meeting was held in July 2012 at the Alzheimer's Association International Conference to encourage input. Periodic teleconferences of the International Alzheimer's Disease Research Funder Consortium coordinated by the Alzheimer's Association, working with NIA at NIH, facilitate continuing dialogue among funders. The Global CEO Initiative on Alzheimer's Disease held in October 2013 provided additional recommendations. |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease research priorities. | NIH/NIA |
Funder meeting was held in July 2012 at the Alzheimer's Association International Conference to encourage input. International Alzheimer's Disease Research Funder Consortium teleconferences and meetings are ongoing. The Global CEO Initiative on Alzheimer's Disease held in October 2013 provided additional recommendations. |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease and related dementias research priorities. | NIH/NIA |
2015 Alzheimer's Disease Summit Recommendations Updated Alzheimer's Disease Research Implementation Milestones |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease and related dementias research priorities. | NIH/NIA |
2015 Alzheimer's Disease Summit Recommendations 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers Updated Alzheimer's Disease Research Implementation Milestones |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.2) |
Solicit public and private input on Alzheimer's disease research priorities. | NIH/NIA |
2018 Alzheimer's Disease Summit Recommendations 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers.
Updated Alzheimer's Disease Research Implementation Milestones |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.2) |
Solicit diverse community input on AD research priorities. | NIH/NIA |
2018 AD Summit Recommendations 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers
Updated AD Research Implementation Milestones As of July 2019, the Milestone database now includes better tracking of progress including success criteria and specific implementation activities. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 Strategies and action items based on feedback and input. | HHS/ASPE |
June 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.3) |
Regularly update the National Plan and refine Goal 1 strategies and action items based on feedback and input. | HHS/ASPE | |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.A.4) |
Convene a scientific workshop on other dementias in 2013. | NIH |
December 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.A.4) |
Convene a scientific workshop on other dementias in 2013. | NIH/NINDS |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.4) |
Convene a scientific workshop on other dementias in 2013. | NIH/NINDS |
Final Report of the Alzheimer's Disease and Related Dementias Summit |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.4) |
Convene a scientific workshop on other dementias in 2013. | NIH/NINDS |
Final Report of the Alzheimer's Disease and Related Dementias Summit |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.A.5) |
Update research priorities and milestones. | HHS/ASPE |
December 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.A.5) |
Update research priorities and milestones. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.5) |
Update research priorities and milestones. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.5) |
Update research priorities and milestones. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.4) |
Update research priorities and milestones. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.4) |
Update research priorities and milestones. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.4) |
Update research priorities and milestones. | HHS/ASPE | |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.4) |
Update research priorities and milestones. | ASPE | |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 1.A.6) |
Create a timeline for achieving Goal 1. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.A.6) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.6) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA |
The milestones will continue to be updated with the 2015 summit recommendations. |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.5) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA |
Updated Alzheimer's Disease Research Implementation Milestones Developed searchable Alzheimer's Disease and Related Dementias Research Implementation Milestones Database |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.5) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA, NIH/NINDS |
Updated Alzheimer's Disease Research Implementation Milestones: Full set of milestones through 2025 2018 Milestones 2019 Milestones Updated the searchable Alzheimer's Disease and Related Dementias Research Implementation Milestones Database |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.5) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA, NIH/NINDS |
Updated Alzheimer's Disease and Related Dementias Research Implementation Milestones: Full set of milestones through 2025 2018 Milestones 2019 Milestones |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.6) |
Create a timeline with milestones for achieving Goal 1. | NIH/NIA, NIH/NINDS |
Alzheimer's disease and related dementias Research Implementation Milestones comprehensively updated in 2019 to cover progress toward information obtained from AD, ADRD, and Care and Services Summits, including funding initiatives, research programs and resources, and research highlights. Full set of milestones through 2025 2020 Milestones |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 1.A.6) |
Regularly convene an Alzheimer's Disease and Related Dementias Summit to review progress on Alzheimer's disease and related dementias research recommendations and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS |
The updated recommendations from Alzheimer's Disease and Related Dementias 2016 Summit are expected to be approved by NINDS Advisory Council in September 2016 and by the NAPA Council in early 2017. |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.6) |
Regularly convene an Alzheimer's Disease and Related Dementias Summit to review progress on Alzheimer's disease and related dementias research recommendations and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS |
The updated recommendations from Alzheimer's Disease and Related Dementias 2016 Summit were approved by NINDS Advisory Council in September 2016 and presented to the NAPA Council in February 2017. Final recommendations became the Alzheimer's Disease and Related Dementias Summit 2016 Prioritized Research Milestones. |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.6) |
Regularly convene an Alzheimer's Disease and Related Dementias Summit to review progress on Alzheimer's disease and related dementias research recommendations and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS |
Final recommendations from the Alzheimer's Disease and Related Dementias 2016 Summit became the Alzheimer's Disease and Related Dementias Summit 2016 Prioritized Research Milestones. The third Alzheimer's Disease and Related Dementias Summit will be on March 14-15, 2019. |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.6) |
Regularly convene an ADRD Summit to review progress on research recommendations, and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS |
Final recommendations from the ADRD 2016 Summit became the ADRD Summit 2016 Prioritized Research Milestones The third ADRD Summit was on March 14-15, 2019. Final research recommendations from ADRD Summit 2019 have recently been considered and adopted by the NINDS Advisory Council in September 2019, and will be presented to the NAPA Advisory Council for its consideration in early 2020. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.A.7) |
Create milestones for research goals based on the recommendations from the 2013 Alzheimer's disease and related dementia conference. | NIH/NINDS | |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.7) |
Create milestones for research goals based on the recommendations from the 2013 Alzheimer's disease and related dementias conference. | NIH/NINDS |
Recommendations will be posted to the NAPA website in fall 2015. |
| NATIONAL PLAN 2016 UPDATE (Action 1.A.7) |
Convene a workshop focused on research needs related to Down syndrome and Alzheimer's disease and related dementias. | NIH/NIA |
Input solicited on special research priorities related to Down Syndrome Research 10th Meeting of the Down Syndrome Consortium: A Public-Private Partnership NIA and NICHD collaborated to produce and disseminate information for people with Down syndrome and their families on the interplay of these conditions and the importance of participating in research. Efforts include a fact sheet, "Alzheimer's Disease in People with Down Syndrome", and outreach via email and social media. |
| NATIONAL PLAN 2017 UPDATE (Action 1.A.7) |
Convene a workshop focused on research needs related to Down syndrome and Alzheimer's disease and related dementias. | NIH/NIA |
Input solicited on special research priorities related to Down syndrome research. 11th Meeting of the Down Syndrome Consortium: A Public-Private Partnership including several NIH ICs (NICHD, NCI, NHLBI, NHGRI, NIDCR, NIDCD, NIDDK, NIMH, NINDS, NIA, and NIMHD) NIA and NICHD collaborated to produce and disseminate information for people with Down syndrome and their families on the interplay of these conditions and the importance of participating in research. Efforts include a fact sheet, "Alzheimer's Disease in People with Down Syndrome", and outreach via email and social media Alzheimer's Biomarker Consortium-Down Syndrome aims to identify biomarkers that indicate Alzheimer's disease is developing or progressing and track the Alzheimer's disease process in people with Down syndrome. Additionally, the NIA is currently funding a Phase I clinical trial to investigate the safety and tolerability of an immunotherapy vaccine for treatment of Alzheimer's disease in adults with Down syndrome. |
| NATIONAL PLAN 2018 UPDATE (Action 1.A.7) |
Convene a workshop focused on research needs related to Down syndrome and Alzheimer's disease and related dementias. | NIH/NIA |
Input solicited on special research priorities related to Down syndrome research. Sponsorship of a workshop, with NICHD, NIA, NINDS, DSRTF, and RDS: "Advancing Treatments for Alzheimer's Disease in Individuals with Down Syndrome," held April 16-17, 2013. Brought together ~50 stakeholders to discuss partnerships involving the Alzheimer's disease and Down syndrome research community, efforts that have been sustained over the past 4 years. NIA and NICHD collaborated to produce and disseminate information for people with Down syndrome and their families on the interplay of these conditions and the importance of participating in research. Efforts include a fact sheet, "Alzheimer's Disease in People with Down Syndrome", and outreach via email and social media. Alzheimer's Biomarker Consortium--Down Syndrome aims to identify biomarkers that indicate Alzheimer's disease is developing or progressing and track the Alzheimer's disease process in people with Down syndrome. Additionally, NIA is currently funding a Phase I clinical trial to investigate the safety and tolerability of an immunotherapy vaccine for treatment of Alzheimer's disease in adults with Down syndrome. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.A.8) |
Regularly convene an Alzheimer's disease and related dementia Summit to review progress on Alzheimer's disease and related dementia research recommendations and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS | |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.8) |
Regularly convene an Alzheimer's Disease and Related Dementias Summit to review progress on Alzheimer's disease and related dementias research recommendations and refine and add new recommendations as appropriate, based on recent scientific discoveries. | NIH/NINDS | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 1.A.8) |
Regularly convene a Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers. | HHS/ASPE, NIH |
The final Summit report from the 2017 National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers was released in April 2018. |
| NATIONAL PLAN 2019 UPDATE (Action 1.A.7) |
Regularly convene a Research Summit on Care, Services, and Supports for PWD and their Caregivers. | ASPE, NIH |
The 2017 Summit final report was released in April 2018 Following the second Summit in March 2020, research recommendations will be publicly available. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.A.9) |
Convene a workshop focused on the research needs related to Down syndrome and Alzheimer's disease. | NIH/NIA, NIH/NICHD |
Executive Summary |
| NATIONAL PLAN 2015 UPDATE (Action 1.A.9) |
Convene a workshop focused on the research needs related to Down syndrome and Alzheimer's disease. | NIH/NIA, NIH/NICHD |
Executive Summary |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 1.A.8) |
Create and implement a strategic plan for CDMRP PRARP. | DoD |
In 2019, PRARP will release an updated Strategic Plan that identifies the high-impact research goals in the areas of TBIs and Alzheimer's disease and related dementias. The Strategic Plan summarizes research funding and findings through the PRARP program since 2011, identified short, medium, and long-term goals for the program. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 1.A.9) |
Develop and administer a scientific landscape survey for the CDMRP PRARP. | DoD |
The CDMRP PRARP is administering a survey to the general public regarding future research directions for dementia subsequent to TBI. The survey requests input regarding future research directions for: (1) basic and translational science; (2) quality of life and caregiving research; and (3) efforts regarding future pre-clinical and clinical research. |
STRATEGY 1.B: Expand Research Aimed at Preventing and Treating Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 1.B since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 1.B Narrative links | |||
| 2019 Strategy 1.B | 2018 Strategy 1.B | 2017 Strategy 1.B | 2016 Strategy 1.B |
| 2015 Strategy 1.B | 2014 Strategy 1.B | 2013 Strategy 1.B | 2012 Strategy 1.B |
1.B Actions Table of Contents
- Conduct clinical trials on the most promising pharmacologic interventions.
- Continue clinical trials on the most promising lifestyle interventions.
- Convene a workshop on the association of TBI and dementia.
- Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease and related dementias.
- Expand research focused on needs related to the intersection of Down syndrome and Alzheimer's disease and related dementias.
- Expand research for care and support of individuals with cognitive and behavioral symptomatology related to both traumatic brain injury and dementia.
- Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease and related dementias, and translate this information into potential targets for intervention.
- Increase enrollment in clinical trials and other clinical research through community, national, and international outreach.
- Issue a joint VA-NIA career development award for physician scientists new to the area of dementia research.
- Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease, and translate this information into potential targets for intervention. | NIA/NIH |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease, and translate this information into potential targets for intervention. | NIA/NIH |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease, and translate this information into potential targets for intervention. | NIA/NIH |
NIH Request for Application: Interdisciplinary Approach to Identification and Validation of Novel Targets for Alzheimer's Disease (RFA-AG-13-013) led to funding research on promising prevention drugs. |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease, and translate this information into potential targets for intervention. | NIH/NIA |
NIH Request for Application: Interdisciplinary Approach to Identification and Validation of Novel Targets for Alzheimer's Disease (RFA-AG-13-013) led to funding research on promising prevention drugs. Accelerating Medicines Partnership--Alzheimer's Disease and R34 Translational Center Planning Grant Request for Application also available. |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease and related dementias, and translate this information into potential targets for intervention. | NIH/NIA |
Release of NIH Funding Opportunity Announcements:
Accelerating Medicines Partnership--Alzheimer's Disease Activities |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease and related dementias, and translate this information into potential targets for intervention. | NIH/NIA |
Ongoing and newly released NIH Funding Opportunity Announcements:
Accelerating Medicines Partnership--Alzheimer's Disease Activities |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease and related dementias, and translate this information into potential targets for intervention. | NIH/NIA, NIH/NINDS |
Ongoing and newly released NIH Funding Opportunity Announcements:
Accelerating Medicines Partnership--Alzheimer's Disease Activities |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.1) |
Expand research to identify the molecular and cellular mechanisms underlying Alzheimer's disease and related dementias, and translate this information into potential targets for intervention. | NIH/NIA, NIH/NINDS |
Ongoing and newly released NIH FOAs:
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease. | NIH/NIA |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease. | NIH/NIA |
Alzheimer's Disease Sequencing Project--sequenced the whole genomes of more than 580 volunteers and made the data freely accessible to researchers |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease. | NIH/NIA |
Alzheimer's Disease Sequencing Project sequenced the whole genomes of more than 580 volunteers and made the data freely accessible to researchers. |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease and related dementias. | NIH/NIA |
Continue to support efforts through the Alzheimer's Disease Sequencing Project, Alzheimer's Disease Genetics Consortium and NIA Genetics of Alzheimer's Disease Data Storage Site. Data are available for 15,630 subjects (cases, controls and family members) including phenotype and individual-level information. Alzheimer's Disease Sequencing Project Alzheimer's Disease Genetics Consortium NIA Genetics of Alzheimer's Disease Data Storage |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease and related dementias. | NIH/NIA |
Ongoing and newly released Funding Opportunity Announcements:
Continue to support efforts through the Alzheimer's Disease Sequencing Project, Alzheimer's Disease Genetics Consortium and NIA Genetics of Alzheimer's Disease Data Storage. Next generation sequence data are available for 17,588 subjects (cases, controls and family members) including phenotype and individual-level information. Alzheimer's Disease Sequencing Project Genomic Center for Alzheimer's Disease Alzheimer's Disease Genetics Consortium NIA Genetics of Alzheimer's Disease Data Storage |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease and related dementias. | NIH/NIA, NIH/NINDS |
Ongoing and newly released Funding Opportunity Announcements:
Alzheimer's Disease Sequencing Project Genome Center for Alzheimer's Disease Alzheimer's Disease Genetics Consortium NIA Genetics of Alzheimer's Disease Data Storage Northern Manhattan Study Reasons for Geographic and Racial Differences in Stroke |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.2) |
Expand genetic epidemiologic research to identify risk and protective factors for Alzheimer's disease and related dementias. | NIH/NIA, NIH/NINDS |
Ongoing and newly released FOAs:
Continue to support efforts through: ADSP Genome Center for Alzheimer's Disease Alzheimer's Disease Genetics Consortium NOMAS REGARDS NIAGADS |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | FDA, NIH/NIA |
June 2012; August 2012; December 2012. |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
Several HHS agencies collaborated on the Recruiting Older Adults into Research project. Program in 2013 to promote research participation by connecting researchers in the aging and public health networks Alzheimer's Prevention Registry was launched in October 2012 by the Banner Alzheimer's Institute (1 of 27 NIA-funded Alzheimer's disease research centers). An NIA Request for Information sought ideas on how to increase participation in Alzheimer's disease clinical trials. Webinars |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
Several HHS agencies (NIA, ACL, CDC) collaborated on the Recruiting Older Adults into Research project to promote research participation by connecting researchers with the aging and public health networks. In 2014, developed and piloted a customizable toolkit of materials. Recruiting Older Adults into Research Toolkit Alzheimer's Prevention Registry was launched in October 2012 by the Banner Alzheimer's Institute (1 of 27 NIA-funded Alzheimer's disease research centers). An NIA Request for Information sought ideas on how to increase participation in Alzheimer's disease clinical trials. Webinars |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
Alzheimer's Disease Cooperative Study In 2015, the Recruiting Older Adults into Research team continued to promote a toolkit of customizable materials for aging services and public health professionals to use in community settings and social media, and expanded the potential reach by translating materials into Spanish and Chinese. NIA's Alzheimer's Disease Education and Referral Center developed a web mini-portal in 2015 for encouraging participation in Alzheimer's disease research. Alzheimer's Disease Education and Referral Center sends out monthly e-alerts to nearly 35,000 subscribers announcing new recruiting trials and featuring registries and matching services such as the Alzheimer's Prevention Registry and Brain Health Registry. In 2016, NIA is joining collaborative efforts with FDA and the PCORI-funded Alzheimer's and Dementia Patient/Caregiver-Powered Research Network to encourage research participation. |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
In 2016, NIA launched an effort to identify and disseminate effective approaches and best recruitment and retention practices. With facilitation by the Alzheimer's Association and in close collaboration with experts from government, private, and academic sectors, these approaches will be outlined in the still-in-development National Strategy for Recruitment and Participation in Alzheimer's Disease Clinical Studies. NIA continues to promote participation in Alzheimer's disease and related dementias clinical trials, studies, and registries through our Alzheimer's Disease Education and Referral Center website portal; clinical trials listing and monthly e-alert to more than 35,000 subscribers; social media messages through Facebook and Twitter; promotion of the Recruiting Older Adults into Research toolkit of customizable materials for aging services and public health professionals to use in community settings and social media in English, Spanish, and Chinese, and collaboration with ACL, CDC, FDA and the PCORI-funded Alzheimer's Disease and Dementia Patient/Caregiver-Powered Research Network to encourage research participation among older adults. In June 2017, NIH hosted a workshop entitled Inclusion Across the Lifespan, to examine the science of inclusion of various populations in clinical trials and studies. |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
In 2018, NIA gathered feedback on various recruitment strategies through the IdeaScale crowdsourcing platform. The culmination of these efforts will be the forthcoming "National Strategy for Recruitment and Participation in Alzheimer's Disease Clinical Research". NIA continues to promote participation in Alzheimer's disease and related dementias clinical trials, studies, and registries through our Alzheimer's Disease Education and Referral Center website portal; clinical trials listing and monthly e-alert to more than 35,000 subscribers; social media messages through Facebook and Twitter; promotion of the Recruiting Older Adults into Research toolkit of customizable materials for aging services and public health professionals to use in community settings and social media in English, Spanish, and Chinese, and collaboration with ACL, CDC, FDA and the PCORI-funded Alzheimer's and Dementia Patient/Caregiver-Powered Research Network to encourage research participation among older adults.
Newly released Funding Opportunity Announcement:
In 2017, VA and NIA initiated a new research partnership called SPARK--Dementia Research. Through this partnership, in 2018 plans were developed to establish a pilot program to increase veterans' enrollment in 3 NIA-funded clinical trials, leveraging joint resources and infrastructure of VA and NIA. In December 2017, HRSA completed its 16-module Training Curriculum: Alzheimer's Disease and Related Dementias and has been posted. Several of the modules encourage primary care providers to make their patients aware of the importance of clinical trains and research. |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.3) |
Increase enrollment in clinical trials and other clinical research through community, national, and international outreach. | NIH/NIA, ACL, CDC, VA |
Culminating from the efforts of expert working groups, steering committee, and crowdsourced public input, and with facilitation by the Alzheimer's Association, NIA produced the National Strategy for Recruitment and Participation in Alzheimer's Disease and Related Dementias Clinical Research, which was presented to the NAPA Advisory Council in October 2018. Recommendations of the National Strategy Group's Local, Diverse Working Group have been transformed into the Alzheimer's Disease and Related Dementias Clinical Studies Recruitment Planning Guide
In 2019, NIA launched ADORE, an online repository of planning tools, best practices, and materials to support researchers' recruitment and retention efforts. In addition, NIA developed several collateral materials to include in ADORE including a series of testimonial videos and an easy-to-read booklet to promote older adult research participation.
NIA continues to promote participation in Alzheimer's disease and related dementias clinical trials, studies, and registries through our ADEAR website portal; clinical trials listing and monthly e-alert to more than 35,000 subscribers; social media messages through Facebook and Twitter; promotion of the ROAR toolkit of customizable materials for aging services and public health professionals to use in community settings and social media in English, Spanish, and Chinese, and collaboration with federal agencies and advocacy organizations to encourage research participation among older adults.
Ongoing released FOAs:
In 2019, the VA is in the process of operationalizing a pilot program to increase veterans' enrollment in 5 NIA-funded clinical trials, leveraging joint resources and infrastructure of the AD Research Centers of NIA and the Network of Dedicated Enrollment Sites of VA Cooperative Studies Program. The 2019 HRSA GWEP Notice of Funding Opportunity included language to educate and train patients, families, caregivers, direct care workers, health care providers, and health professions students, faculty, residents, and fellows on when it is appropriate to recruit older adults into research. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease studies. | NIH |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease studies. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease studies. | NIH/NIA |
Ongoing webinars on need to enroll racial and ethnic minorities for networks. |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease studies. | NIH/NIA, NIH/NIMHD |
NIH/NIA-funded Resource Centers for Minority Aging Research and Alzheimer's Disease Research Centers held a joint meeting on outreach and education at the GSA annual scientific meeting in 2014 that focused on ways to improve recruitment and retention methods used to encourage diverse volunteers to participate in Alzheimer's disease research studies. |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies. | NIH/NIA, NIH/NIMHD |
Funding Opportunity Announcements:
In 2015, Recruiting Older Adults into Research team continued to promote a toolkit of customizable materials for aging services and public health professionals to use in community settings and social media, and expanded the potential reach by translating materials into Spanish and Chinese. |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies. | NIH/NIA, NIH/NIMHD |
Ongoing and newly released Funding Opportunity Announcements:
In 2016, NIA launched an effort to identify and disseminate effective approaches and best recruitment and retention practices, with a particular focus on reaching diverse communities. In facilitation with the Alzheimer's Association and in close collaboration with experts from government, private, and academic sectors, these approaches will be outlined in the still-in-development National Strategy for Recruitment and Participation in Alzheimer's Disease Clinical Studies. In 2015, the Recruiting Older Adults into Research team continued to promote a toolkit of customizable materials for aging services and public health professionals to use in community settings and social media, and expanded the potential reach by translating materials into Spanish and Chinese. In June 2017, NIH hosted a workshop entitled Inclusion Across the Lifespan, to examine the science of inclusion of various populations in clinical trials and studies. |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies. | NIH/NIA, NIH/NIMHD |
See 1.B.3 for updates regarding the National Strategy for Recruitment and Participation in Alzheimer's Disease Clinical Research that is currently under development. This strategy will include approaches to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies. The new NIA-funded Alzheimer's Clinical Trials Consortium will develop and implement cutting-edge participant recruitment and retention strategies, especially in diverse populations and establish a new minority outreach and recruitment team. Newly released Funding Opportunity Announcement:
|
| NATIONAL PLAN 2019 UPDATE (Action 1.B.4) |
Monitor and identify strategies to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies. | NIH/NIA, NIH/NIMHD |
See 1.B.3 for updates regarding the National Strategy for Recruitment and Participation in AD Clinical Research released in fall 2018. This strategy includes approaches to increase enrollment of racial and ethnic minorities in Alzheimer's disease and related dementias studies outlined in recommendations of the National Strategy Group's Local, Diverse Working Group which have been transformed into the Alzheimer's disease and related dementias Clinical Studies Recruitment Planning Guide.
The NIA-funded ACTC will develop and implement cutting-edge participant recruitment and retention strategies, especially in diverse populations and establish a new minority outreach and recruitment team. Ongoing FOAs:
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
NIA's Alzheimer's Disease Cooperative Study was renewed in 2013 with additional funding to advance studies of interventions that might not otherwise be tested by industry. Alzheimer's Disease Prevention Trials (RFA-AG-13-015) led to funding of 3 new trials to test amyloid clearing treatments. Alzheimer's Disease Phase I Clinical Trials (RFA-AG-13-016) led to funding of 1 new trial to evaluate the safety and tolerability of a natural brain steroid. |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
NIA's Alzheimer's Disease Cooperative Study was renewed in 2013 with additional funding to advance studies of interventions that might not otherwise be tested by industry. Alzheimer's Disease Prevention Trials (RFA-AG-13-015) led to funding of 3 new trials to test amyloid clearing treatments. Alzheimer's Disease Phase I Clinical Trials (RFA-AG-13-016) led to funding of 1 new trial to evaluate the safety and tolerability of a natural brain steroid. Accelerating Medicines Partnership--Alzheimer's Disease (Project A) |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
Funding Opportunity Announcements for clinical trials have been released:
Accelerating Medicines Partnership--Alzheimer's Disease An updated list of NIA-supported clinical trials can be found in the 2014-2015 Alzheimer's Disease Progress Report. Coordination of federal, non-federal, and international Alzheimer's disease and related dementias research, including clinical trials, can be found in the International Alzheimer's Disease Research Portfolio. |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
Funding Opportunity Announcements for clinical trials have been released:
See also Accelerating Medicines Partnership. Part of this initiative seeks to identify biomarkers that can predict clinical outcomes by incorporating selected biomarkers into 2 NIH-funded clinical trials, which include industry support, designed to delay or prevent disease onset. A list of ongoing Alzheimer's disease and related dementias trials and information about enrolling is available as in the FY18 Bypass Budget. A newer update will be available in the upcoming bypass document set for release in the summer of 2017. Coordination of federal, non-federal, and international Alzheimer's disease and related dementias research, including clinical trials, can be found in the International Alzheimer's Disease Research Portfolio. |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
Funding Opportunity Announcements for clinical trials have been released:
Launched in 2017, a new clinical trials consortium funded by NIA is expected to accelerate and expand studies for therapies in Alzheimer's disease and related dementias. Alzheimer's Clinical Trials Consortium is a "next-generation" infrastructure designed to harness best practices and latest methods for Alzheimer's disease trials. Coordination of federal, non-federal, and international Alzheimer's disease and related dementias research, including clinical trials, can be found in the International Alzheimer's Disease Research Portfolio. |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.5) |
Conduct clinical trials on the most promising pharmacologic interventions. | NIH/NIA |
FOAs for clinical trials have been released:
Launched in 2017, a new clinical trials consortium funded by NIA is expected to accelerate and expand studies for therapies in Alzheimer's disease and related dementias. ACTC is a "next-generation" infrastructure designed to harness best practices and latest methods for AD trials. Coordination of federal, non-federal, and international Alzheimer's disease and related dementias research, including clinical trials, can be found in the IADRP |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Plasticity and Mechanisms of Cognitive Remediation in Older Adults (RFA-AG-14-016) studies will test interventions for remediating age-related cognitive decline. |
| NATIONAL PLAN 2015 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Plasticity and Mechanisms of Cognitive Remediation in Older Adults (RFA-AG-14-016) studies will test interventions for remediating age-related cognitive decline. |
| NATIONAL PLAN 2016 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Trials are ongoing and planned; vehicles for inventorying trials are in place. New Funding Opportunity Announcements include:
The annual list of ongoing Alzheimer's disease and related dementias trials is available in the 2014-2015 Alzheimer's Disease Progress Report. Development of the International Alzheimer's Disease Research Portfolio will facilitate tracking research efforts, including treatment studies. |
| NATIONAL PLAN 2017 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Trials are ongoing and planned; vehicles for inventorying trials are in place. NIA has funded the Exercise in Adults with Mild Memory Problems trial to test whether moderate/high aerobic exercise and stretching can slow the progression of mild cognitive impairment to Alzheimer's disease in adults over 65. This 18-month long trial is actively recruiting participants. Ongoing and New Funding Opportunity Announcements include:
A list of ongoing Alzheimer's disease and related dementias trials and information about enrolling is available as in the FY18 Bypass Budget. A newer update will be available in the upcoming bypass document set for release in the summer of 2017. International Alzheimer's Disease Research Portfolio facilitates tracking research efforts, including treatment studies. |
| NATIONAL PLAN 2018 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
Funding Opportunity Announcements for clinical trials have been released:
See 1.B.5 for updates regarding Alzheimer's Clinical Trials Consortium and ongoing clinical trials supported by NIA. Many of the approximately 140 active trials of interventions to enhance cognitive health in older adults and to prevent, treat, or manage Alzheimer's disease and related dementias include testing lifestyle interventions such as diet and exercise.
International Alzheimer's Disease Research Portfolio facilitates tracking research efforts, including treatment studies. |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.6) |
Continue clinical trials on the most promising lifestyle interventions. | NIH/NIA |
FOAs for clinical trials have been released:
See 1.B.5 for updates regarding ACTC and ongoing clinical trials supported by NIA. Many of the approximately 140 active trials of interventions to enhance cognitive health in older adults and to prevent, treat, or manage Alzheimer's disease and related dementias include testing lifestyle interventions such as diet and exercise.
IADRP facilitates tracking research efforts, including treatment studies. In 2019, the VA participated in the SPRINT, a substudy SPRINT MIND trial. The study was completed, and the results were published. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 1.B.7) |
Expand research focused on needs related to the intersection of Down syndrome and Alzheimer's disease and related dementias. | NIH |
INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE project was launched in June 2018. Alzheimer's Disease Biomarker Consortium--Down Syndrome aims to identify biomarkers that indicate Alzheimer's disease is developing or progressing and track the Alzheimer's disease process in people with Down syndrome. NIA is currently funding a Phase I clinical trial to investigate the safety and tolerability of an immunotherapy vaccine for treatment of Alzheimer's disease in adults with Down syndrome. Additionally, NIA and NICHD collaborated to produce and disseminate information for people with Down syndrome and their families on the interplay of these conditions and the importance of participating in research. Efforts include a fact sheet, "Alzheimer's Disease in People with Down Syndrome", and outreach via email and social media. |
| NATIONAL PLAN 2019 UPDATE (Action 1.B.7) |
Expand research focused on needs related to the intersection of Down syndrome and Alzheimer's disease and related dementias. | NIH |
INCLUDE project was launched in June 2018. ACTC-DSN AD Biomarker Consortium--Down Syndrome aims to identify biomarkers that indicate AD is developing or progressing and track the AD process in people with Down syndrome. NIA is currently funding a Phase I clinical trial to investigate the safety and tolerability of an immunotherapy vaccine for treatment of AD in adults with Down syndrome. Additionally, NIA and NICHD collaborated to produce and disseminate information for people with Down syndrome and their families on the interplay of these conditions and the importance of participating in research. Efforts include a fact sheet, Alzheimer's Disease in People with Down Syndrome, and outreach via email and social media. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 1.B.8) |
Convene a workshop on the association of TBI and dementia. | NIH/NIA |
In February 2019, NIA partnered with VA and NINDS to hold a joint workshop to establish a program to increase veterans' participation in Alzheimer's disease and related dementias research, leveraging joint NIH and VA resources. This workshop was convened under the SPARK for Dementia Research. The workshop focused on TBI as a risk factor for Alzheimer's disease and related dementias. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 1.B.9) |
Issue a joint VA-NIA career development award for physician scientists new to the area of dementia research. | VA |
In July 2019, the VA issued a new funding announcement to support early career physician-scientist mentored research in Alzheimer's disease and related dementias. NIA issued a notice for supplemental funding to support the research proposed by the trainee. This initiative is under the SPARK for Dementia Research. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 1.B.10) |
Expand research for care and support of individuals with cognitive and behavioral symptomatology related to both TBI and dementia. | DoD |
The InCASA was offered for the first time for the CDMRP PRARP in 2019. The InCASA supports innovative research that improves the quality of life and care for individuals living with the common symptoms of TBI and/or Alzheimer's disease and related dementias and/or their families and care providers. For this funding opportunity, applicants were encouraged to propose work that should challenge existing research paradigms, or exhibit high levels of creativity. The RPA mechanism was also offered as a multi-partnered funding opportunity. The RPA requires partners from diverse backgrounds to come together and work on a project that neither individual investigator alone could achieve. Applications to this mechanism were required to demonstrate long and short-term benefits of their projects. Applications to the RPA were also required to show how the efforts will ultimately benefit individuals affected by Alzheimer's disease and related dementias, their caregivers, and their families. Copies of the most recent PRARP Program Funding Opportunities available online. |
STRATEGY 1.C: Accelerate Efforts to Identify Early and Presymptomatic Stages of Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 1.C since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 1.C Narrative links | |||
| 2019 Strategy 1.C | 2018 Strategy 1.C | 2017 Strategy 1.C | 2016 Strategy 1.C |
| 2015 Strategy 1.C | 2014 Strategy 1.C | 2013 Strategy 1.C | 2012 Strategy 1.C |
1.C Actions Table of Contents
- Identify imaging and biomarkers to monitor disease progression.
- Maximize collaboration among federal agencies and with the private sector.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
Accelerating Medicines Partnership |
| NATIONAL PLAN 2015 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
Accelerating Medicines Partnership Accelerating Medicines Partnership--Alzheimer's Disease (Project A) |
| NATIONAL PLAN 2016 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
Ongoing reporting and monitoring of Alzheimer's Disease Neuroimaging Initiative activities, continuing on an annual basis, along with provision of research funding on developing and testing diagnostic tools. Alzheimer's Disease Neuroimaging Initiative's activities are and will continue to be monitored and reviewed on an annual basis. Funding Opportunity Announcements include:
|
| NATIONAL PLAN 2017 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA |
Ongoing reporting and monitoring of Alzheimer's Disease Neuroimaging Initiative activities, continuing on an annual basis, along with provision of research funding on developing and testing diagnostic tools. Alzheimer's Disease Neuroimaging Initiative's activities are and will continue to be monitored and reviewed on an annual basis. Accelerating Medicines Partnership--Alzheimer's Disease Ongoing Funding Opportunity Announcements include:
|
| NATIONAL PLAN 2018 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA, NIH/NINDS |
Ongoing reporting and monitoring of Alzheimer's Disease Neuroimaging Initiative activities, continuing on an annual basis, along with provision of research funding on developing and testing diagnostic tools. Alzheimer's Disease Neuroimaging Initiative's activities are and will continue to be monitored and reviewed on an annual basis. Accelerating Medicines Partnership--Alzheimer's Disease Ongoing and newly released Funding Opportunity Announcements include:
|
| NATIONAL PLAN 2019 UPDATE (Action 1.C.1) |
Identify imaging and biomarkers to monitor disease progression. | NIH/NIA, NIH/NINDS |
Ongoing reporting and monitoring of ADNI activities, continuing on an annual basis, along with provision of research funding on developing and testing diagnostic tools. ADNI's activities are and will continue to be monitored and reviewed on an annual basis AMP-AD Ongoing and newly released FOAs include:
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.C.2) |
Maximize collaboration among federal agencies and with the private sector. | NIH/NIA |
August 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA |
Accelerating Medicines Partnership |
| NATIONAL PLAN 2015 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA |
Accelerating Medicines Partnership Accelerating Medicines Partnership--Alzheimer's Disease (Projects A and B) |
| NATIONAL PLAN 2016 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA |
NIH, FDA, 10 biopharmaceutical companies, and multiple non-profit organizations launched an unprecedented public-private partnership in February 2014. One of the main goals of this effort is to identify biomarkers for Alzheimer's disease and related dementias. Accelerating Medicines Partnership Accelerating Medicines Partnership--Alzheimer's Disease (Projects A and B) |
| NATIONAL PLAN 2017 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA |
NIH, FDA, 10 biopharmaceutical companies, and multiple non-profit organizations launched an unprecedented public-private partnership in February 2014. One of the main goals of this effort is to identify biomarkers for Alzheimer's disease and related dementias. Accelerating Medicines Partnership Accelerating Medicines Partnership--Alzheimer's Disease (Projects A and B) Alzheimer's Disease Neuroimaging Initiative is also a public-private partnership between NIH, the Canadian government, and over 20 biopharmaceutical companies and non-profit organizations. |
| NATIONAL PLAN 2018 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and the private sector. | NIH/NIA, NIH/NINDS |
Accelerating Medicines Partnership--Alzheimer's Disease is an NIH-supported precompetitive partnership among government, industry, and non-profit organizations that focuses on discovering novel, clinically relevant therapeutic targets and on developing biomarkers to help validate existing therapeutic targets. The program brings together geneticists, epidemiologists, biologists, data scientists and drug discovery experts across many academic institutions and four pharmaceutical industry organizations. Accelerating Medicines Partnership--Alzheimer's Disease (Projects A and B) Alzheimer's Disease Neuroimaging Initiative is also a public-private partnership between NIH, the Canadian government, and over 20 biopharmaceutical companies and non-profit organizations. Alzheimer's Disease Neuroimaging Initiative is in collaboration with the Alzheimer's Disease Sequencing Project International Alzheimer's Disease Research Portfolio facilitates tracking research efforts in the public and private sector. NIH-funded Tau Center Without Walls is a multi-center, interdisciplinary program that was established in FY16 to investigate the molecular mechanisms of tau toxicity in Frontotemporal Dementia. One of the requirements of this program is to have ongoing collaborative partnerships with non-profit non-governmental organizations and philanthropic entities, such as AFTD, CurePSP, and the Rainwater Charitable Foundation. Funding Opportunity Announcements include:
|
| NATIONAL PLAN 2019 UPDATE (Action 1.C.2) |
Maximize collaboration among federal agencies and with the private sector. | NIH/NIA, NIH/NINDS |
AMP-AD is an NIH-supported precompetitive partnership among government, industry, and non-profit organizations that focuses on discovering novel, clinically relevant therapeutic targets and on developing biomarkers to help validate existing therapeutic targets. The program brings together geneticists, epidemiologists, biologists, data scientists and drug discovery experts across many academic institutions and 4 pharmaceutical industry organizations. AMP-AD (Projects A and B) ADNI is also a public-private partnership between NIH, the Canadian government, and over 20 biopharmaceutical companies and non-profit organizations. ADNI is in collaboration with the ADSP IADRP facilitates tracking research efforts in the public and private sector. NIH-funded Tau CWOW is a multi-center, interdisciplinary program that was established in FY 2016 to investigate the molecular mechanisms of tau toxicity in FTD. One of the requirements of this program is to have ongoing collaborative partnerships with non-profit non-governmental organizations and philanthropic entities, such as AFTD, CurePSP, and the Rainwater Charitable Foundation. |
STRATEGY 1.D: Coordinate Research with International Public and Private Entities
Below are the Actions that have been listed under Strategy 1.D since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 1.D Narrative links | |||
| 2019 Strategy 1.D | 2018 Strategy 1.D | 2017 Strategy 1.D | 2016 Strategy 1.D |
| 2015 Strategy 1.D | 2014 Strategy 1.D | 2013 Strategy 1.D | 2012 Strategy 1.D |
1.D Actions Table of Contents
- Expand international outreach to enhance collaboration.
- Identify research priorities via surveys tracking health conditions and risk factors.
- Inventory Alzheimer's disease and related dementias research investments.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 1.D.1) |
Inventory Alzheimer's disease research investments | NIH/NIA |
May 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease research investments. | NIH/NIA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease research investments. | NIH/NIA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease research investments. | NIH/NIA |
For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease and related dementias research investments. | NIH/NIA |
International Alzheimer's Disease Research Portfolio now includes data from 35 public and private funding organizations across 10 countries. |
| NATIONAL PLAN 2017 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease and related dementias research investments. | NIH/NIA |
International Alzheimer's Disease Research Portfolio now includes data from over 35 public and private funding organizations across 11 countries. The Common Alzheimer's Disease Research Ontology is also undergoing a significant update to the topics and themes that are used to categorize Alzheimer's disease and related dementias funding data. The changes will reflect current research investment as well as highlight emerging areas of science. |
| NATIONAL PLAN 2018 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease and related dementias research investments. | NIH/NIA |
International Alzheimer's Disease Research Portfolio now includes data from over 40 public and private funding organizations across more than 10 countries. In 2018, the International Alzheimer's Disease Research Portfolio database was relaunched with a number of changes to Common Alzheimer's Disease Research Ontology, including greater specificity in the coding of Frontotemporal Dementia, Lewy Body Dementia, and Vascular contributions to Cognitive Impairment and Dementia. |
| NATIONAL PLAN 2019 UPDATE (Action 1.D.1) |
Inventory Alzheimer's disease and related dementias research investments. | NIH/NIA |
IADRP now includes data from over 40 public and private funding organizations across more than 10 countries. In 2018, the IADRP database was relaunched with a number of changes to CADRO, including greater specificity in the coding of FTD, LBD, and VCID. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.D.2) |
Expand international outreach to enhance collaboration | NIH/NIA |
May 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
International Alzheimer's Disease Research Funder Consortium Alzheimer's Association International Conference European Union Joint Programming Initiative on Neurodegenerative Diseases Research New York Academy |
| NATIONAL PLAN 2015 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
International Alzheimer's Disease Research Funder Consortium Alzheimer's Association International Conference European Union Joint Programming Initiative on Neurodegenerative Diseases Research New York Academy |
| NATIONAL PLAN 2016 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
Alzheimer's Disease Funders' meeting held during the 2015 Alzheimer's Association International Conference; quarterly funders calls led by NIA and Alzheimer's Association. Also, International Alzheimer's Disease Research Portfolio which includes data from 35 public and private funding organizations across 10 countries is publicly-available for use. |
| NATIONAL PLAN 2017 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
Alzheimer's Disease Funders' meeting held during the 2016 Alzheimer's Association International Conference; quarterly funders' calls led by NIA and Alzheimer's Association. Also, International Alzheimer's Disease Research Portfolio which includes data from over 35 public and private funding organizations across 11 countries is publicly-available for use. In October 2016, representatives from NIH participated in the 24th Management Board Meeting of the European Union Joint Programme--Neurodegenerative Disease Research and delivered a presentation on the International Alzheimer's Disease Research Portfolio managed by the NIA. Over 30 member countries participated in the meeting; focused on the overall goal of increased international collaboration. |
| NATIONAL PLAN 2018 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
In collaboration with the European Union Joint Programme--Neurodegenerative Disease Research, NIH is participating in the upcoming European Union mapping exercise that invites 20+ countries to submit their recently funded neurodegenerative research (notably Alzheimer's disease and related dementias). In 2017, European Union Joint Programme--Neurodegenerative Disease Research launched a call on "Multinational research projects for Pathway Analysis across Neurodegenerative Diseases". At the same time, NIA released Funding Opportunity Announcement PAS17-028, "Common Mechanisms and Interactions Among Neurodegenerative Diseases (R01)." European Union Joint Programme--Neurodegenerative Disease Research and NIA plan to support cross-cutting activities such as common workshops, data exchange and harmonization among the projects funded by European Union Joint Programme--Neurodegenerative Disease Research and NIA in response to these calls for applications. Alzheimer's Disease Funders' meeting held during the 2017 Alzheimer's Association International Conference; quarterly funders' calls led by NIA and Alzheimer's Association. Also, International Alzheimer's Disease Research Portfolio which includes data from over 40 public and private funding organizations across more than 10 countries is publicly-available for use. |
| NATIONAL PLAN 2019 UPDATE (Action 1.D.2) |
Expand international outreach to enhance collaboration. | NIH/NIA |
In collaboration with the EU JPND, NIH is participating in the upcoming EU mapping exercise that invites 20+ countries to submit their recently funded neurodegenerative research (notably AD and ADRD). The final report for the 2016 mapping exercise was published in July 2018. Alzheimer's Disease Funders' meeting held during the 2019 AAIC; quarterly funders' calls led by NIA and Alzheimer's Association. Also, IADRP which includes data from over 40 public and private funding organizations across more than 10 countries is publicly available for use. HRS: HCAP initiative is being administered in the United States and other developed and developing countries, where HRS-like representative population surveys are conducted, including in China, England, India, Mexico, South Africa, and parts of the EU. https://projectreporter.nih.gov/project_info_description.cfm?aid=9618704&icde=42939202 |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 1.D.3) |
Identify research priorities via surveys tracking health conditions and risk factors. | CDC |
Behavioral Risk Factor Surveillance System is the world's largest, ongoing telephone health survey system, tracking health conditions and risk behaviors in the United States yearly since 1984. It is conducted by all states under the direction of CDC with state public health authorities. Two special optional modules that states can include in their annual surveys are available on the topics of caregiving and cognitive impairment. Collecting and analyzing this data allows the study of burden, impact, and trends and is used by decision makers to decide course of action for research as well as interventions. |
| NATIONAL PLAN 2019 UPDATE (Action 1.D.3) |
Identify research priorities via surveys tracking health conditions and risk factors. | CDC |
BRFSS is the world's largest, ongoing telephone health survey system, tracking health conditions and risk behaviors in the United States yearly since 1984. It is conducted by all states under the direction of CDC with state public health authorities. There are 2 optional modules that states can include in their annual BRFSS survey on the topics of caregiving and cognitive decline. Collecting and analyzing this data allows the study of burden, impact, and trends and is used by decision makers to decide course of action for research as well as interventions. |
STRATEGY 1.E: Facilitate Translation of Findings into Medical Practice and Public Health Programs
Below are the Actions that have been listed under Strategy 1.E since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 1.E Narrative links | |||
| 2019 Strategy 1.E | 2018 Strategy 1.E | 2017 Strategy 1.E | 2016 Strategy 1.E |
| 2015 Strategy 1.E | 2014 Strategy 1.E | 2013 Strategy 1.E | 2012 Strategy 1.E |
1.E Actions Table of Contents
- Continue to promote use of the ADEAR Center to provide evidence-based information on Alzheimer's disease and related dementias to the public and others.
- Expand and disseminate research on co-occurring conditions and dementias.
- Facilitate translation of findings into public health practice.
- Identify ways to compress the time between target identification and release of pharmacological treatments.
- Issue guidance about drugs for early-stage Alzheimer's disease and related dementias.
- Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings.
- Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings.
- Leverage research in areas related to neurodegeneration.
- Provide information to the public on brain health.
- Synthesize evidence on non-pharmacologic interventions to manage behavioral symptoms in people with dementia.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 1.E.1) |
Identify ways to compress the time between target identification and release of pharmacological treatments. | HHS/ASPE, NIH |
September 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 1.E.1) |
Identify ways to compress the time between target identification and release of pharmacological treatments. | HHS/ASPE, NIH |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.E.1) |
Identify ways to compress the time between target identification and release of pharmacological treatments. | HHS/ASPE, NIH | |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.1) |
Identify ways to compress the time between target identification and release of pharmacological treatments. | HHS/ASPE, NIH/NIA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.E.2) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
February 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.E.2) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.E.2) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.2) |
Leverage public-private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians |
| NATIONAL PLAN 2016 UPDATE (Action 1.E.1) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
NIA continues to expand our efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; and other resources. In 2015, NIA developed a mini-portal of resources for professionals, including the clinician quick guides "Assessing Cognitive Impairment in Older Adults" and "Managing Older Patients with Cognitive Impairment." |
| NATIONAL PLAN 2017 UPDATE (Action 1.E.1) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
NIA continues to expand our efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. |
| NATIONAL PLAN 2018 UPDATE (Action 1.E.1) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.1) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | NIH/NIA |
NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. NIA also NIA supports the AMP-AD Target Discovery Project, which has generated a wealth of molecular data from over 3,000 human brain and plasma samples collected in several NIA-supported AD cohorts and brain banks. The project makes these datasets available to the greater research community through the AMP-AD Knowledge Portal. In 2018, these novel target predictions, along with the data and analyses that led to their discovery, were made available via a new AMP-AD data resource, the AGORA platform. This web-based, interactive platform will enable researchers in academia and biotech and pharmaceutical communities to leverage AMP-AD analyses and results to enhance their own work and build on the AMP-AD discoveries. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 1.E.3) |
Educate the public about the latest research findings. | NIH/NIA |
January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 1.E.3) |
Educate the public about the latest research findings. | NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 1.E.3) |
Continue to promote use of Alzheimer's Disease Education and Referral Center to educate the public about the latest research findings. | NIH/NIA |
Alzheimer's Disease Education and Referral Center |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.3) |
Continue to promote use of Alzheimer's Disease Education and Referral Center to educate the public about the latest research findings. | NIH/NIA |
Alzheimer's Disease Education and Referral Center |
| NATIONAL PLAN 2016 UPDATE (Action 1.E.2) |
Continue to promote use of Alzheimer's Disease Education and Referral Center to educate the public about the latest research findings. | NIH/NIA |
NIA routinely disseminates information on Alzheimer's disease and related dementias research findings. Alzheimer's Disease Education and Referral Center 2014-2015 Alzheimer's Disease Progress Report |
| NATIONAL PLAN 2017 UPDATE (Action 1.E.2) |
Continue to promote use of Alzheimer's Disease Education and Referral Center to educate the public about the latest research findings. | NIH/NIA |
NIA routinely disseminates information on Alzheimer's disease and related dementias research findings. Alzheimer's Disease Education and Referral Center Progress in Alzheimer's disease research is also reported in the annual Bypass Budget proposal. |
| NATIONAL PLAN 2018 UPDATE (Action 1.E.2) |
Continue to promote use of Alzheimer's Disease Education and Referral Center to educate the public about the latest research findings. | NIH/NIA |
NIA's Alzheimer's Disease Education and Referral Center routinely disseminates information on Alzheimer's disease and related dementias research findings through our website, regular weekly and monthly email alerts to more than 50,000 subscribers, and social media (Twitter and Facebook). Progress in Alzheimer's disease research is also reported in the annual Bypass Budget proposal. Of the 44 HRSA-funded Geriatrics Workforce Enhancement Program grantees, 14 are co-located and working with Alzheimer's Disease Centers to provide resource materials to health care professionals and the public that include the latest research findings. The remaining 30 grantees are encouraged to work with nearby Alzheimer's Disease Centers. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.2) |
Continue to promote use of the ADEAR Center to provide evidence-based information on Alzheimer's disease and related dementias to the public and others. | NIH/NIA |
NIA's ADEAR Center routinely disseminates information on Alzheimer's disease and related dementias research findings through our website, regular weekly and monthly email alerts to more than 50,000 subscribers, and social media (Twitter and Facebook). Progress in AD research is also reported in the annual Bypass Budget proposal. In 2018, of the 44 HRSA-funded GWEP grantees, 14 are co-located and working with ADCs to provide resource materials to health care professionals and the public that include the latest research findings. The remaining 30 grantees are encouraged to work with nearby ADCs. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 1.E.4) |
Issue guidance about drugs for early stage Alzheimer's disease. | FDA |
December 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 1.E.4) |
Issue guidance about drugs for early stage Alzheimer's disease. | FDA |
Draft Guidance for Industry: Alzheimer's Disease: Developing Drugs for the Treatment of Early Stage Disease |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.4) |
Issue guidance about drugs for early stage Alzheimer's disease. | FDA |
Draft Guidance for Industry: Alzheimer's Disease: Developing Drugs for the Treatment of Early Stage Disease |
| NATIONAL PLAN 2016 UPDATE (Action 1.E.3) |
Issue guidance about drugs for early stage Alzheimer's disease and related dementias. | FDA |
Draft Guidance for Industry: Alzheimer's Disease: Developing Drugs for the Treatment of Early Stage Disease |
| NATIONAL PLAN 2017 UPDATE (Action 1.E.3) |
Issue guidance about drugs for early-stage Alzheimer's disease and related dementias. | FDA |
Draft Guidance for Industry: Alzheimer's Disease: Developing Drugs for the Treatment of Early Stage Disease |
| NATIONAL PLAN 2018 UPDATE (Action 1.E.3) |
Issue guidance about drugs for early-stage Alzheimer's disease and related dementias. | FDA |
Draft Guidance for Industry: Alzheimer's Disease: Developing Drugs for the Treatment of Early Stage Disease |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.3) |
Issue guidance about drugs for early-stage Alzheimer's disease and related dementias. | FDA |
Draft Guidance for Industry: AD: Developing Drugs for the Treatment of Early Stage Disease |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 1.E.5) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC |
Summer 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 1.E.5) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC | |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.5) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC | |
| NATIONAL PLAN 2016 UPDATE (Action 1.E.4) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC |
In January 2016, CDC released the Progress Report of public health Road Map action item accomplishment and next steps. In 2017, the development process will begin on the 3rd Road Map that will identify action items for public health professionals related to cognitive health. |
| NATIONAL PLAN 2017 UPDATE (Action 1.E.4) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC |
In January 2016, CDC released the Progress Report of public health Road Map action item accomplishment and next steps. In 2017, the development process of the 3rd Road Map began that will identify action items for public health professionals related to cognitive health through 2023. The 3rd Road Map will be released in late 2018. |
| NATIONAL PLAN 2018 UPDATE (Action 1.E.4) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC |
In January 2016, CDC released the Progress Report of public health Road Map action item accomplishment and next steps. In 2017, the development process of the 3rd Road Map began that will identify action items for public health professionals related to cognitive health through 2023. The 3rd Road Map will be released in late 2018. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.4) |
Expand and disseminate research on co-occurring conditions and dementias. | CDC |
The third HBI Road Map for State and Local Public Health was released in late 2018 identifying 25 actions for public health professionals related to cognitive health, including cognitive impairment and caregiving for persons with a cognitive impairment, through 2023. In 2019, the first Road Map for Indian Country was released identifying 8 priority actions for Indian Country.
NIA and NINDS jointly produce and disseminate content on Alzheimer's disease and related dementias, including FTD, LBD, and VCID. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.E.6) |
Provide information to the public on brain health. | ACL/AoA, NIH/NIA, CDC | |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.6) |
Provide information to the public on brain health. | ACL/AoA, NIH/NIA, CDC |
Brain Health resource |
| NATIONAL PLAN 2016 UPDATE (Action 1.E.5) |
Provide information to the public on brain health. | ACL/AoA, NIH/NIA, NIH/NINDS, CDC |
On February 2, 2016, NINDS launched a public health campaign on link between hypertension and cognitive decline for integration with the HHS Million Hearts Campaign. The Brain Health Resource, a presentation toolkit on brain health as we age, was developed by ACL with NIH and CDC for use at senior centers and in other community settings. Written in plain language, the evidence-based resource explains what people can do to help keep their brains functioning best. In 2016, the toolkit was expanded to include materials in Spanish and a new brain health module entitled, Medicine, Age, and Your Brain. |
| NATIONAL PLAN 2017 UPDATE (Action 1.E.5) |
Provide information to the public on brain health. | ACL/AoA, NIH/NIA, NIH/NINDS, CDC |
On February 2, 2016, NINDS launched a public health campaign on link between hypertension and cognitive decline for integration with the HHS Million Hearts Campaign. The Brain Health Resource, a presentation toolkit on brain health as we age, was developed by ACL with NIH and CDC for use at senior centers and in other community settings. Written in plain language, the evidence-based resource explains what people can do to help keep their brains functioning best. In 2016, the toolkit was expanded to include materials in Spanish and a new brain health module entitled, Medicine, Age, and your Brain. |
| NATIONAL PLAN 2018 UPDATE (Action 1.E.5) |
Provide information to the public on brain health. | ACL, NIH/NIA, NIH/NINDS, CDC |
On February 2, 2016, NINDS launched a public health campaign on link between hypertension and cognitive decline for integration with the HHS Million Hearts Campaign. The Brain Health Resource, a presentation toolkit on brain health as we age, was developed by ACL with scientific review by NIH and CDC for use at senior centers and in other community settings and was updated in 2018. Written in plain language, the evidence-based resource explains what people can do to help keep their brains functioning best. In 2016, the toolkit was expanded to include materials in Spanish and a new brain health module entitled, Medicine, Age, and your Brain. NIA also maintains a web portal on Cognitive Health and Older Adults. The campaign What is Brain Health? formerly managed by ACL was transferred to NIA in 2017. ACL updated, in 2018, the Brain Health Resource, a presentation toolkit on brain health as we age. The toolkit was developed by ACL with scientific review by NIH and CDC for use at senior centers and in other community settings. All of the 44 HRSA-funded Geriatrics Workforce Enhancement Programs are training and educating the public on brain health including providing resources on brain health. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.5) |
Provide information to the public on brain health. | ACL, NIH/NIA, NIH/NINDS, CDC |
On February 2, 2016, NINDS launched a public health campaign on link between hypertension and cognitive decline for integration with the HHS Million Hearts Campaign. The Brain Health Resource, a presentation toolkit on brain health as we age, was developed by ACL with scientific review by NIH and CDC for use at senior centers and in other community settings and was updated in 2018. Written in plain language, the evidence-based resource explains what people can do to help keep their brains functioning best. In 2016, the toolkit was expanded to include materials in Spanish and a new brain health module entitled, Medicine, Age, and your Brain. NIA also maintains a web portal on Cognitive Health and Older Adults The campaign What is Brain Health? formerly managed by ACL was transferred to NIA in 2017. In 2018, all of the 44 HRSA-funded GWEPs were educating and training the public on brain health including sharing resources. ACL's ADPI grantees embed brain health education in their funded activities. Through partnerships with private non-profit educational entities grantees are bringing a broad range of brain health resources to the communities they serve. ADPI-funded activities include, but are not limited to, brain health educational opportunities as a means to introducing opportunities for ADRD screening/assessments and benefits counseling. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 1.E.6) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | CDC |
CDC is working with the American College of Preventive Medicine. A Curriculum is being developed to increase physician and health care professionals' awareness of brain health as a serious health condition and to increase the number of physician and health care professionals acting to address, diagnose, and refer patients with brain health issues to care and community support programs. Module will be included as an elective in the Lifestyle Medicine Core Competencies Online Program. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.6) |
Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings. | CDC |
CDC in collaboration with the American College of Preventive Medicine developed a Brain Health Continuing Education Course and resource page to increase physician and health care professionals' awareness of brain health as a serious health condition and to increase the number of physicians and health care professionals acting to address, diagnose, and refer patients with brain health issues to care and community support programs. The module was included as an elective in the Lifestyle Medicine Core Competencies Online Program in December 2018. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.E.7) |
Synthesize evidence on non-pharmacologic interventions to manage behavioral symptoms in people with dementia. | AHRQ, NIH/NIA | |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.7) |
Synthesize evidence on non-pharmacologic interventions to manage behavioral symptoms in people with dementia. | AHRQ, NIH/NIA |
Research protocol |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 1.E.7) |
Facilitate translation of findings into public Health Practice. | CDC |
CDC funds the Alzheimer's Association to co-develop the 3rd in a series of Healthy Brain Initiative Road Maps to advance cognitive health as an integral component of public health (see Section IV). This "Healthy Brain Initiative State and Local Public Health Partnerships to Address Dementia, The 2018-2023 Road Map", outlines how state and local public health agencies and their partners can continue to promote cognitive health, address cognitive impairment for people living in the community, and help meet the needs of caregivers. 25 specific actions are proposed in 4 traditional domains of public health: educate and empower, develop policies and mobilize partnerships, assure a competent workforce, and monitor and evaluate. |
| NATIONAL PLAN 2019 UPDATE (Action 1.E.7) |
Facilitate translation of findings into public health practice. | CDC |
CDC provided funds to the Alzheimer's Association to co-develop the third in a series of HBI Road Maps to advance cognitive health as an integral component of public health. This HBI State and Local Public Health Partnerships to Address Dementia, the 2018-2023 Road Map was co-authored by experts in public health and brain health, including scientists at CDC. The Road Map outlines how state and local public health agencies and their partners can continue to promote cognitive health, address cognitive impairment for people living in the community, and help meet the needs of caregivers. 25 specific actions are proposed in 4 traditional domains of public health: educate and empower, develop policies and mobilize partnerships, assure a competent workforce, and monitor and evaluate. Additionally, CDC has developed a series of 5 Issue Maps that highlight specific sets of Road Map actions related to caregiving, risk reduction, early detection of Alzheimer's disease and related dementias, and the education of health professionals. The associated planning tool was developed to guide state and local public health professionals through quick steps in selected Road Map items and getting started with implementation in their jurisdictions. 2 podcasts were also produced discussing the updated Road Map. In 2019, the first Road Map for Indian Country was released identifying 8 priority actions for Indian Country.
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 1.E.8) |
Leverage research in areas related to neurodegeneration. | DoD | |
| NATIONAL PLAN 2015 UPDATE (Action 1.E.8) |
Leverage research in areas related to neurodegeneration. | DoD | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
GOAL 2: Enhance Care Quality and Efficiency
Below are the Strategies and Actions that have been listed under Goal 2 since 2012.
| GOAL 2 Narrative Links | |||
| 2019 Goal 2 | 2018 Goal 2 | 2017 Goal 2 | 2016 Goal 2 |
| 2015 Goal 2 | 2014 Goal 2 | 2013 Goal 2 | 2012 Goal 2 |
STRATEGY 2.A: Build a Workforce with the Skills to Provide High-Quality Care
Below are the Actions that have been listed under Strategy 2.A since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.A Narrative links | |||
| 2019 Strategy 2.A | 2018 Strategy 2.A | 2017 Strategy 2.A | 2016 Strategy 2.A |
| 2015 Strategy 2.A | 2014 Strategy 2.A | 2013 Strategy 2.A | 2012 Strategy 2.A |
2.A Actions Table of Contents
- Collect and disseminate dementia-specific guidelines and curricula for provider groups across the care spectrum.
- Develop a baseline understanding of self-reported competence and confidence of Indian Health Service, Tribal and Urban Indian Health nursing staff in care of individuals with Alzheimer's disease and related dementias.
- Develop and disseminate a unified primary care Alzheimer's disease and related dementias curriculum.
- Disseminate Centers for Medicare and Medicaid Services Hand-in-Hand dementia training materials in Department of Veterans Affairs community living centers.
- Educate health care providers.
- Encourage providers to pursue careers in geriatric specialties.
- Engage the public health workforce on brain health.
- Enhance the ability of long-term care ombudsman to support people with Alzheimer's disease.
- Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease and related dementias.
- Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously underserved populations.
- Improve educational resources for primary care staff in Tribal communities caring for individuals with Alzheimer's disease and related dementias and their family.
- Improve home and community-based services provided through state Medicaid waivers.
- Provide decision support for clinicians in Tribal communities.
- Provide Interdisciplinary Team Training in recognition, assessment, and management of Alzheimer's disease and related dementias in small rural Indian Health facilities.
- Strengthen state aging, public health, and intellectual and developmental disabilities workforces.
- Strengthen states' ability to provide and sustain dementia-capable home and community-based services.
- Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and related dementias and their caregivers.
- Strengthen the direct care workforce.
- Strengthen the long-term care workforce.
- Support state and local Alzheimer's disease strategies.
- Train future public health professionals on Alzheimer's disease and related dementias.
- Understand the impacts of minimum wage increases on nursing homes.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.A.1) |
Educate health care providers | HRSA |
June 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
July 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
NIA produced and disseminated Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians. |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
Progress report for the 1st 6 months of funding. This is an interim report. Between July 1, 2012, and December 31, 2012, the 45 Geriatric Education Centers provided 178 interprofessional continuing education offerings and trained 10,976 participants. Each event trained participants 2-25 different health professions. 248 community partners participated with Geriatric Education Center grantees in providing this training including 28 Quality Improvement Organizations, 15 Alzheimer's Association Chapters, 8 Area Health Education Centers, and 8 Veterans Administration Medical Centers. NIA produced and disseminated Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
HRSA, in collaboration with the HHS/OWH, supported the development of a second Medscape continuing education course on assessing, managing, and treating Alzheimer's disease and related dementias in the context of multiple chronic conditions. This educational offering, titled "Bidirectional Impact of Alzheimer's Disease and Common Comorbid Conditions" was released in September 2016. A total of 7,107 learners accessed the site in the first 6 months. In FY17, HRSA supported 44 Geriatrics Workforce Enhancement Program awardees totaling approximately $38.7 million; $5.978 million was used to provide dementia education and training. NIA continues to expand our efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. NIA produced and disseminated Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
In FY17, HRSA supported 44 Geriatrics Workforce Enhancement Program grantees totaling approximately $38.7 million of which $5.9 million was specifically budgeted to provide dementia education and training. In Academic Year 2016-2017 (latest available data), Geriatrics Workforce Enhancement Program grantees provided 467 Alzheimer's disease and related dementias courses and trained 55,640 health care providers in Alzheimer's disease and related dementias. NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. NIA disseminated Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians. Newly Released Funding Opportunity Announcement:
|
| NATIONAL PLAN 2019 UPDATE (Action 2.A.1) |
Educate health care providers. | HRSA |
In 2018, HRSA supported 44 GWEP grantees totaling approximately $40.7 million of which $3.7 million was specifically budgeted to provide dementia education and training. In Academic Year 2017-2018 (latest available data), GWEP grantees provided 338 Alzheimer's disease and related dementias courses and trained 55,057 health care providers and 26,600 caregivers in Alzheimer's disease and related dementias. In FY 2019, HRSA competed the GWEP and made 48 awards. All GWEP awardees are educating and training the workforce on how to care for persons living with dementia. Of the $35.65 M GWEP budget, $8.68 was for dementia education and training activities. In FY 2019, HRSA also competed the GACA Program and made 26 awards totaling $1.94 M. GACA grant recipients are encouraged to provide dementia education to the workforce. NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. NIA disseminates Assessing Cognitive Impairment in Older Patients: A Quick Guide for Primary Care Physicians and Managing Older Patients with Cognitive Impairment.
Newly Released FOA:
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| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
July 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
18 Comprehensive Geriatric Education Program grants awards were made with a start date of July 1, 2012. Of the 18 awards, 12 include support for 66 advanced practice nursing traineeships with a specialty in care of the older adult. All trainees are receiving a significant amount of education on assessing and caring for the individual with dementia, including consideration of their families and caregivers. 33 faculty members are also receiving training to improve their skills related to the assessment and care of persons with dementia. In addition, 2,462 practicing health care providers, caregivers, and community members received participated in continuing education offerings on Alzheimer's disease and related dementias. Geriatric Training for Physicians, Dentists, and Behavioral and Mental Health Providers programs: 12 grants are currently being funded through the Geriatric Training for Physicians, Dentists, and Behavioral and Mental Health Providers program. Starting July 1, 2012, 54 fellows received didactic and clinical experiences on the diagnosis and management of dementia. In addition, grantees trained an additional 330 learners by involving fellows in outreach and education. For example, 1 grantee involves the fellows in providing community education on dementias, and another is supporting a 2nd year fellow in developing a curriculum for caregivers of persons with dementia. There is a significant level of collaboration among Geriatric Training for Physicians, Dentists, and Behavioral and Mental Health Providers grantees and Geriatric Education Centers and the Alzheimer's Association on continuing education activities. In some instances, fellows attend continuing education programs on dementia, and in others, they are the instructors and presenters for such programs. Several grantees are involving their Geriatric Training for Physicians, Dentists, and Behavioral and Mental Health Providers fellows in educating pre-licensure medical and dental students, using their experiences in managing dementia to provide didactic lectures to students. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
In FY15, Geriatrics Workforce Enhancement Program awardees provided 402 continuing education offerings and trained 43,148 participants on Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
In Academic Year 2016-2017 (latest available data), Geriatrics Workforce Enhancement Program awardees trained 638 individuals in geriatrics fellowships and 136 advanced education nursing students in advanced practice adult-gerontology nursing programs. As part of their training, these individuals receive education in Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.2) |
Encourage providers to pursue careers in geriatric specialties. | HRSA |
In Academic Year 2016-2017 (latest available data), GWEP awardees trained 638 individuals in geriatrics fellowships and 136 advanced education nursing students in advanced practice adult-gerontology nursing programs. As part of their training, these individuals receive education in Alzheimer's disease and related dementias. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.3) |
Collect and disseminate dementia-specific guidelines and curricula for all provider groups across the care spectrum. | HRSA |
July 2012; December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.3) |
Collect and disseminate dementia-specific curricula for provider groups across the care spectrum. | HRSA |
October 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.3) |
Collect and disseminate dementia-specific guidelines and curricula for provider groups across the care spectrum. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.3) |
Collect and disseminate dementia-specific guidelines and curricula for provider groups across the care spectrum. | HRSA |
Links are in the process of being developed and will be posted later in 2015. |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.4) |
Strengthen the direct-care workforce. | CMS |
July 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.4) |
Strengthen the direct care workforce. | CMS |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.4) |
Strengthen the direct care workforce. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.4) |
Strengthen the direct care workforce. | CMS | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.5) |
Strengthen the state aging and public health workforce. | AoA, CDC |
June 2012; December 2012; June 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.5) |
Educate the Aging Services Network staff about Alzheimer's disease. | HRSA |
July 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.5) |
Strengthen state aging, public health, and intellectual and developmental disability workforces. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.5) |
Strengthen state aging, public health, and intellectual and developmental disability workforces. | HRSA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.3) |
Strengthen state aging, public health, and intellectual and developmental disabilities workforces. | HRSA |
HHS will coordinate with states to develop workforces in aging, public health, and intellectual and developmental disabilities that are Alzheimer's disease-capable and culturally-competent. ACL collaborated with HRSA to provide Alzheimer's disease and related dementias training to the Aging Network. One example is the New Jersey Geriatric Education Center, which provided a series of trainings to the Aging Services Network in August/September 2015. Over 2,100 health professional and caregivers from the Area Agencies on Aging participated in the trainings. In addition, HRSA Geriatrics Workforce Enhancement Program awardees are collaborating with 26 Area Agencies on Aging and 13 Quality Improvement Organizations to strengthen state aging, public health, and intellectual and developmental disabilities workforces. AoA has a person-centered counseling program, which includes education about cognitive issues and dementia-capability. Training programs will be pilot-tested in 2016 |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.3) |
Strengthen state aging, public health, and intellectual and developmental disabilities workforces. | ACL/AoA |
HHS will coordinate with states to develop workforces in aging, public health, and intellectual and developmental disabilities that are Alzheimer's disease-capable and culturally-competent. ACL collaborated with HRSA to provide Alzheimer's disease and related dementias training to the Aging Network. One example is the New Jersey Geriatric Education Center, which provided a series of trainings to the Aging Services Network in August/September 2015. Over 2,100 health professional and caregivers from the Area Agencies on Aging participated in the trainings. In addition, HRSA Geriatrics Workforce Enhancement Program awardees are collaborating with 32 Area Agencies on Aging and 15 Quality Improvement Organizations to strengthen state aging, public health, and intellectual and developmental disabilities workforces. HRSA Geriatrics Workforce Enhancement Program awardees are collaborating with 32 Area Agencies on Aging and 15 Quality Improvement Organizations to strengthen state aging, public health, and intellectual and developmental disabilities workforces. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.3) |
Strengthen state aging, public health, and intellectual and developmental disabilities workforces. | ACL |
HHS will coordinate with states to develop workforces trained in aging, public health, and intellectual and developmental disabilities that are Alzheimer's disease-capable and culturally-competent. ACL collaborated with HRSA to provide Alzheimer's disease and related dementias training to the Aging Network. ACL through National Alzheimer's and Dementia Resource Center offers an annual dementia-specific webinar series, attracting as many as 1,300 attendees to a single session. The series targets Alzheimer's disease and related dementias professionals, attracting family caregivers as well, and includes information on related dementias, innovative interventions and a wide variety of caregiving topics. Continuing Education Units are available to attendees, and the webinars are archived on the resource center web page. Each year, in support of paid and unpaid caregivers, the National Alzheimer's and Dementia Resource Center develops tools and issue briefs on dementia-specific topics. New materials developed are disseminated through the ACL grant programs, as well as at professional conferences and the center web page. ACL is constantly adding new tools and issue briefs to its growing library. Topics of materials developed by the National Alzheimer's and Dementia Resource Center include, but are not limited to, advance planning, living alone, compendiums of dementia-specific interventions and outcome measures. In FY17, the 44 HRSA Geriatrics Workforce Enhancement Program grantees collaborated with 32 Area Agencies on Aging and 15 Quality Improvement Organizations to strengthen state aging, public health, and intellectual and developmental disabilities workforces. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.3) |
Strengthen state aging, public health, and IDD workforces. | ACL |
HHS will coordinate with states to develop workforces trained in aging, public health, and IDD that are AD-capable and culturally-competent. ACL collaborated with HRSA to provide Alzheimer's disease and related dementias training to the Aging Network. ACL, through NADRC, offers an annual dementia-specific webinar series, attracting as many as 1300 attendees to a single session. The series targets ADRD professionals, attracting family caregivers as well, and includes information on related dementias, innovative interventions and a wide variety of caregiving topics. CEUs are available to attendees, and the webinars are archived on the resource center web page. Each year, in support of paid and unpaid caregivers, NADRC develops tools and issue briefs on dementia-specific topics. New materials developed are disseminated through the ACL grant programs, as well as at professional conferences and the center web page. ACL is constantly adding new tools and issue briefs to its growing library. Topics of materials developed by NADRC include, but are not limited to, advance planning, living alone, compendiums of dementia-specific interventions and outcome measures. In 2019, NADRC published a new guide entitled IDD: Practical Strategies for Professionals: Practical Strategies for Professionals which provides background and strategies for professionals working with individuals living with IDD and dementia. In 2017, ACL received OMB authority to collect data on professionals trained through ADPI grant funding. In 2019 alone, grantees report training over 32,000 Alzheimer's disease and related dementias professionals on a broad range of topics. In 2018, the 44 HRSA GWEP grantees collaborated with 32 AAAs and 15 QIOs to strengthen state aging, public health, and IDD workforces. In addition, 22 of the HRSA 44 GWEPs collaborated with VA to assist with training on dementia. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.A.7) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease curriculum. | HRSA |
July 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.7) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease curriculum. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.7) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease curriculum. | HRSA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.4) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease and related dementias curriculum. | HRSA | |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.4) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease and related dementias curriculum. | HRSA |
HRSA partnered with federal partners at ACL, CDC, CMS, HHS/OWH, and VA on a contract to develop a Dementia Curriculum for Health Care Professionals. The curriculum is designed to build a workforce with the skills to provide high-quality care, ensure timely and accurate detection and diagnosis, and identify high-quality dementia care guidelines and measures across care settings. The curriculum was available as of July 2017. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.4) |
Develop and disseminate a voluntary unified primary care Alzheimer's disease and related dementias curriculum. | HRSA |
From FY15-FY17, HRSA partnered with federal staff at ACL, CDC, CMS, HHS/OWH, and VA on a contract to develop a Dementia Curriculum for Health Care Professionals and Caregivers. The curriculum is designed to build a workforce with the skills to provide high-quality care, ensure timely and accurate detection and diagnosis, and identify high-quality dementia care guidelines and measures across care settings. The curriculum was first made available as of December 2017. In the first month it was available the site had 8,000 hits. The curriculum is being updated every 6 months. HRSA is partnering with CDC to provide Continuing Education Units to health professionals. HRSA is also partnering with CMS to convert the caregiver modules in the Curriculum to YouTube videos. CMS's Integrated Care Resource Center, which partners with health plans and providers, also offered a 2017 Geriatric-Competent Care Webinar Series designed to help health professionals in all settings and disciplines expand their knowledge and skills in the unique aspects of caring for older adults and in working with their caregivers, with some focus on dementia. The webinars are intended for front line community partners and delivery staff such as care managers, member service representatives, and home care providers. In 2017, topics included promising practices to advance care of Medicare-Medicaid enrollees with dementia, causes of dementia in older adults, diagnosis and treatment of Parkinson's disease. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.4) |
Develop and disseminate a unified primary care Alzheimer's disease and related dementias curriculum. | HRSA |
From FY 2015-2017, HRSA partnered with federal staff at ACL, CDC, CMS, OWH, and VA on a contract to develop a Dementia Curriculum for Health Care Professionals and Caregivers. The curriculum is designed to build a workforce with the skills to provide high-quality care, ensure timely and accurate detection and diagnosis, and identify high-quality dementia care guidelines and measures across care settings. The curriculum was first made available as of December 2017. From December 2017 to August 2019 there was 31,426 page views on the AD curriculum page. CMS's RIC, which partners with health plans and providers, also offers a Geriatric-Competent Care Webinar Series designed to help health professionals in all settings and disciplines expand their knowledge and skills in the unique aspects of caring for older adults and in working with their caregivers, with some focus on dementia. The webinars are intended for front line community partners and delivery staff such as care managers, member service representatives, and home care providers. In 2017, topics included promising practices to advance care of Medicare-Medicaid enrollees with dementia, causes of dementia in older adults, diagnosis and treatment of Parkinson's disease. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.1) |
|||
| NATIONAL PLAN 2013 UPDATE (Action 2.A.8) |
Ensure aging network providers have access to research-based up-to-date information on Alzheimer's disease. | ACL/AoA, NIA/NIH |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.8) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease. | ACL/AoA, NIA/NIH | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.8) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease. | ACL/AoA, NIH/NIA |
Free continuing education is available to professionals who need it when they view recorded webinars. This continuing education is available through 2016. |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.5) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease and related dementias. | ACL/AoA, NIH/NIA |
Free continuing education is available to professionals who need it when they view recorded webinars. This continuing education is available through 2016. The interagency Recruiting Older Adults into Research (NIH, ACL, CDC) group hosted a 4th annual webinar series in 2015 for these professionals on Alzheimer's disease and related dementias and caregiving resources, current research studies, and caregiver support programs that drew record attendance (500+ participants for each of 3 webinars) and offered continuing education credit. For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.5) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease and related dementias. | ACL/AoA, NIH/NIA |
NIH initiated a project involving AHRQ and NASEM, to conduct a systematic review of the evidence on prevention of clinical Alzheimer's disease-type dementia, mild cognitive impairment, and age-related cognitive decline (AHRQ), and to shape these findings into a set of recommendations for public health practice and research (NASEM). The NASEM report, detailing recommendations for public health messaging based on findings were released in June 2017. AHRQ report NASEM report Free continuing education is available to professionals who need it when they view recorded webinars. This continuing education is available through 2016. The interagency Recruiting Older Adults into Research (NIH, ACL, CDC) group hosted an update in the popular webinar series in 2017 for professionals on Alzheimer's disease and related dementias resources that drew 500+ participants and offered continuing education credit. Free continuing education is available to professionals who need it when they view recorded webinars from 2017 and earlier series. This continuing education is available through 2018. For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.5) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease and related dementias. | ACL, NIH/NIA |
NIH initiated a project involving the AHRQ, and NASEM, to conduct a systematic review of the evidence on prevention of clinical Alzheimer's disease-type dementia, mild cognitive impairment, and age-related cognitive decline (AHRQ), and to shape these findings into a set of recommendations for public health practice and research (NASEM). The NASEM report, detailing recommendations for public health messaging based on findings were released in June 2017. AHRQ report NASEM report The interagency Recruiting Older Adults into Research (NIH, ACL, CDC) group hosted an update in the popular webinar series in 2017 for professionals on Alzheimer's disease and related dementias resources that drew 500+ participants and offered continuing education credit. Free continuing education is available to professionals who need it when they view recorded webinars from 2017 and earlier series. This continuing education is available through 2018. NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.5) |
Ensure aging and public health network providers have access to research-based up-to-date information on Alzheimer's disease and related dementias. | ACL, NIH/NIA |
NIH initiated a project involving AHRQ and NASEM, to conduct a systematic review of the evidence on prevention of clinical AD-type dementia, MCI, and age-related cognitive decline (AHRQ), and to shape these findings into a set of recommendations for public health practice and research (NASEM). The NASEM report, detailing recommendations for public health messaging based on findings were released in June 2017. AHRQ report NASEM report https://www.nia.nih.gov/news/2017-alzheimers-and-dementia-webinars-professionals In 2017, the interagency ROAR group (NIH, ACL, and CDC) hosted an update in the popular webinar series for professionals on Alzheimer's disease and related dementias resources and offered CEC. NIA continues to expand its efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.6) |
Support state, Tribal, and local Alzheimer's Strategies. | AoA |
September 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.A.6) |
Support state and local Alzheimer's disease strategies. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.6) |
Support state and local Alzheimer's disease strategies. | ACL/AoA |
ACL/AoA conducted presentations about the ability of the Alzheimer's Disease Supportive Services Program grants to translate caregiver interventions and innovations. A closed grant report is continuously updated. Alzheimer's Disease Supportive Services Program reports include the results of learning collaboratives on identification of persons with dementia, training of dementia care providers, and quality assurance. |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.6) |
Support state and local Alzheimer's disease strategies. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.A.9) |
Engage the public health workforce on brain health. | CDC |
October 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.9) |
Engage the public health workforce on brain health. | CDC |
Healthy Brain Initiative: The Public Health Road Map for State and National Partnership, 2013-2018. |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.9) |
Engage the public health workforce on brain health. | CDC |
Healthy Brain Initiative: The Public Health Road Map for State and National Partnership, 2013-2018. |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.6) |
Engage the public health workforce on brain health. | CDC |
CDC in collaboration with the Healthy Brain Research Network has developed a Scholars Program to assist in the training of graduate-level students in brain health. Students engage in a variety of educational, partnership, and research activities. This program in year 2 of a 5-year funding cycle. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.6) |
Engage the public health workforce on brain health. | CDC |
CDC in collaboration with the Healthy Brain Research Network has developed a Scholars Program to assist in the training of graduate-level students in brain health. Students engage in a variety of educational, partnership, and research activities. This program in year 2 of a 5-year funding cycle. CDC in collaboration with the Alzheimer's Association developed A Public Health Approach to Alzheimer's and Other Dementias. This introductory curriculum describes the role of public health in addressing the epidemic of Alzheimer's disease and related dementias. Its 4 modules each contain a comprehensive faculty guide and slide deck. Whether you're teaching a public health course at an academic institution or delivering health education at the local level, explore how you can adapt this flexible resource to fit your needs. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.6) |
Engage the public health workforce on brain health. | CDC |
CDC in collaboration with the Healthy Brain Research Network has developed a Scholars Program to assist in the training of graduate-level students in brain health. Students engage in a variety of educational, partnership, and research activities. This program in Year 2 of a 5-year funding cycle. CDC in collaboration with the Alzheimer's Association developed "A Public Health Approach to Alzheimer's and Other Dementias". This introductory curriculum describes the role of public health in addressing the epidemic of Alzheimer's disease and related dementias. Its 4 modules each contain a comprehensive faculty guide and slide deck. Whether an entity is teaching a public health course at an academic institution or delivering health education at the local level, the modules explore how to adapt this flexible resource to fit identified needs. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.6) |
Engage the public health workforce on brain health. | CDC |
CDC in collaboration with the HBRN has developed a Scholars Program to assist in the training of undergraduate and graduate-level students in brain health. Students engage in a variety of educational, partnership, and research activities. This program is in Year 5 of a 5-year funding cycle. CDC, in partnership with the Alzheimer's Association, developed "A Public Health Approach to Alzheimer's and Other Dementias". This introductory curriculum describes the role of public health in addressing the epidemic of Alzheimer's disease and related dementias. Its 4 modules each contain a comprehensive faculty guide and slide deck. Whether an entity is you are teaching a public health course at an academic institution or delivering health education at the local level, the modules explore how you can adapt this flexible resource to fit identified your needs. The course is currently being updated; the revised course will be available in late 2019. In December 2018, ACL hosted a webinar during which CDC introduced its newly released Road Map. The webinar included a practical example from the Washington State Department of Social and Health Services in which they described how Washington designed and is implementing a successful program aligned with CDC's HBI. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.A.11) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and their caregivers. | IHS |
May 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.11) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and their caregivers. | IHS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.11) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and their caregivers. | IHS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.7) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and related dementias and their caregivers. | IHS |
Web-based course on Alzheimer's disease and related dementias April-June 2016 IHS Clinical Rounds. On agenda of IHS Nursing Leadership meeting May 17, 2016. Clinical training track in planning on diagnosis and management of Alzheimer's disease and related dementias for ACL/IHS/CMS long-term services and supports conference, November 2016. Banner Alzheimer's Institute National Alzheimer's meeting October 2015. Review of online IHS nurse training resources completed. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.7) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and related dementias and their caregivers. | IHS |
Web-based course on Alzheimer's disease and related dementias April-June 2016 IHS Clinical Rounds. On agenda of IHS Nursing Leadership meeting May 17, 2016. Clinical training on diagnosis and management of Alzheimer's disease and related dementias for ACL/IHS/CMS long-term services and supports conference, November 2016. Banner Alzheimer's Institute National Alzheimer's meeting October 2015. Review of online IHS nurse training resources completed. Exploring use of Extension for Community Healthcare Outcomes Project to support diagnosis and management of Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.7) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and related dementias and their caregivers. | IHS |
Web-based course on Alzheimer's disease and related dementias April-June 2016 IHS Clinical Rounds. Addressed at IHS Nursing Leadership meeting May 17, 2016. Clinical training on diagnosis and management of Alzheimer's disease and related dementias for ACL/IHS/CMS long-term services and supports conference, November 2016. Developing use of Extension for Community Healthcare Outcomes Project to support diagnosis and management of Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.7) |
Strengthen the ability of primary care teams in Indian Country to meet the needs of people with Alzheimer's disease and related dementias and their caregivers. | IHS |
Web-based course on Alzheimer's disease and related dementias April-June 2016 IHS Clinical Rounds. Addressed at IHS Nursing Leadership meeting May 17, 2016. Clinical training on diagnosis and management of Alzheimer's disease and related dementias for ACL/IHS/CMS LTSS conference, November 2016. Inclusion of ADRD content in national Diabetes Conference in 2019. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.A.8) |
Develop a baseline understanding of self-reported competence and confidence of IHS, Tribal and Urban Indian Health nursing staff in care of individuals with dementia. | IHS | |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.8) |
Develop a baseline understanding of self-reported competence and confidence of IHS, Tribal and Urban Indian Health nursing staff in care of individuals with dementia. | IHS |
Survey pilot-tested at 1 Tribal site. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.8) |
Develop a baseline understanding of self-reported competence and confidence of IHS, Tribal and Urban Indian Health nursing staff in care of individuals with Alzheimer's disease and related dementias. | IHS |
Survey pilot-tested at 1 Tribal site. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.8) |
Develop a baseline understanding of self-reported competence and confidence of IHS, Tribal and Urban Indian Health nursing staff in care of individuals with Alzheimer's disease and related dementias. | IHS |
Survey pilot-tested at 1 Tribal site. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.A.10) |
Educate providers about federal programs to address Alzheimer's disease. | HRSA |
October 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.A.10) |
Educate providers about federal programs to address Alzheimer's disease. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.10) |
Educate providers about federal programs to address Alzheimer's disease. | HRSA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.9) |
Improve educational resources for primary care staff caring for individuals with dementia and their family. | IHS |
Pilot-test in 6 sites. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.9) |
Improve educational resources for primary care staff caring for individuals with dementia and their family. | IHS |
Pilot-test in 6 sites when the curriculum is available. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.9) |
Improve educational resources for primary care staff in Tribal communities caring for individuals with Alzheimer's disease and related dementias and their family. | IHS |
Pending completion of the brief, targeted provider-focused curriculum. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.9) |
Improve educational resources for primary care staff in Tribal communities caring for individuals with Alzheimer's disease and related dementias and their families. | IHS |
In process of adding to online nursing educational curriculum. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.A.10) |
Decision support for clinicians. | IHS |
Pilot-test in 6 sites. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.10) |
Decision support for clinicians. | IHS |
In development. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.10) |
Provide decision support for clinicians in Tribal communities. | IHS |
Development of templates to support annual wellness visit (with cognitive assessment) and chronic care management. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.10) |
Provide decision support for clinicians in Tribal communities. | IHS |
Development of templates to support AWV (with cognitive assessment) and CCM. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.1) |
|||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.A.11) |
Interdisciplinary Team Training in recognition, assessment, and management of dementia in small rural Indian Health facilities. | IHS |
20 sites by September 2017. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.11) |
Interdisciplinary Team Training in recognition, assessment, and management of dementia in small rural Indian Health facilities. | IHS |
Eight trainings completed. Two more scheduled as well as training in Alaska in partnership with the Aleutian-Pribilof Islands Association. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.11) |
Provide Interdisciplinary Team Training in recognition, assessment, and management of Alzheimer's disease and related dementias in small rural Indian Health facilities. | IHS |
12 Rural Interdisciplinary Team Trainings completed. Webinars, accredited through Employee Education System and TRAIN for VA and community clinicians: Post-Traumatic Stress Disorder and Memory (January 24, 2018) Geriatric Scholars Toolkits: Dementia |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.11) |
Provide interdisciplinary team training in recognition, assessment, and management of Alzheimer's disease and related dementias in small rural Indian Health facilities. | IHS |
15 RITT Trainings completed. Webinars, accredited through EES and TRAIN for VA and community clinicians: PTSD and Memory (January 24, 2018) Geriatric Scholars Toolkits: Dementia |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.A.12) |
Enhance the ability of long-term care ombudsman to support people with Alzheimer's disease. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.12) |
Enhance the ability of long-term care ombudsman to support people with Alzheimer's disease. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.A.13) |
Strengthen states' ability to provide and sustain dementia-capable home and community-based services. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.13) |
Strengthen states' ability to provide and sustain dementia-capable home and community-based services. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.12) |
Strengthen states' ability to provide and sustain dementia-capable home and community-based services. | ACL/AoA |
Products in 2015 include: Tools for Screening, Identification, Referral, and Care Planning for People with Alzheimer's Disease and Their Caregivers. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.12) |
Strengthen states' ability to provide and sustain dementia-capable home and community-based services. | ACL/AoA |
Products in 2015 include: Tools for Screening, Identification, Referral, and Care Planning for People with Alzheimer's Disease and Their Caregivers. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.12) |
Strengthen states' ability to provide and sustain dementia-capable home and community-based services. | ACL |
Implementation of dementia-capability assessment tool for implementation through the ACL state and community grant program. The tool assess program partners over the course of a grant to measure the improvement in dementia-capability. ACL funds a grant program to states and communities (Alzheimer's Disease Programs Initiative) that is designed to support and promote the development and expansion of dementia-capable home and community-based services. For more information: CMS extended the transition period for states to demonstrate compliance with its home and community-based services settings rule criteria until 2022, an additional 3 years, to ensure compliance activities related to integrated community settings are collaborative, transparent, and timely and assure thoughtful implementation. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.12) |
Strengthen states' ability to provide and sustain dementia-capable HCBS. | ACL |
ACL funds a grant program to states and communities (ADPI) that is designed to support and promote the development and expansion of dementia-capable HCBS. ACL's ADPI program continues to make funds available to states to develop and implement dementia-capable HCBS. Through the ADPI program, states are able to pilot programs in support of persons living with Alzheimer's disease and related dementias and their caregivers in an effort to develop evidence for sustainability post-grant funding. In 2017 ACL rolled out their dementia-capability assessment tool for implementation through the ACL state and community grant program. The tool assesses program partners over the course of a grant to measure the improvement in dementia-capability over time. The tool is available for non-grantees on the NADRC website. CMS extended the transition period for states to demonstrate compliance with its HCBS settings rule criteria until 2022, an additional 3 years, to ensure compliance activities related to integrated community settings are collaborative, transparent, and timely and assure thoughtful implementation. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.A.14) |
Fill service gaps in dementia capable systems by expanding the availability of specialized services and supports to target previously underserved populations. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.14) |
Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously underserved populations. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.13) |
Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously underserved populations. | ACL/AoA |
This is an ongoing project assuming continuing congressional appropriations. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.13) |
Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously under-served populations. | ACL/AoA |
This is an ongoing project assuming continuing congressional appropriations. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.13) |
Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously underserved populations. | ACL |
This is an ongoing project assuming continuing congressional appropriations. In 2017, 11 community programs received funding, bringing the total number of programs funded since 2014 to 43. Programs are active in 28 states and Puerto Rico. In 2018, CMS announced that beginning in 2019, it is expanding the definition of "primarily health-related" supplemental benefits in Medicare Advantage organizations to consider an item or service as a supplemental benefit if it is used to diagnose, compensate for physical impairments, acts to ameliorate the functionality/psychological impact of injuries or health conditions, or reduces avoidable emergency and health care utilization. This permits the plans to offer home and community-based services such as adult day health, environmental modifications, palliative care, etc. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.13) |
Fill service gaps in dementia-capable systems by expanding the availability of specialized services and supports to target previously underserved populations. | ACL |
In 2014, ACL began funding community programs designed to fill service gaps in existing dementia-capable systems. Funded programs are required to target program activities to providing effective supportive services to persons living alone with Alzheimer's disease and related dementias, improving quality and effectiveness of services for individuals aging with IDD and Alzheimer's disease and related dementias or those at high risk and delivery of behavioral symptom management training and expert consultations for family caregivers. In 2018, 19 state and community programs received funding, bringing the total number of programs funded since 2014 to 63. In 2018, CMS announced that beginning in 2019, it is expanding the definition of "primarily health-related" supplemental benefits in Medicare Advantage organizations may consider an item or service as a supplemental benefit if it is used to diagnose, compensate for physical impairments, acts to ameliorate the functionality/psychological impact of injuries or health conditions, or reduces avoidable emergency and health care utilization. This permits the plans to offer HCBS such as adult day health, environmental modifications, palliative care, etc. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.A.15) |
Strengthen the long-term care workforce. | DOL, CMS |
Final Rule issued October 2013. |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.15) |
Strengthen the long-term care workforce. | DoL, CMS |
Final Rule issued October 2013. |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.14) |
Strengthen the long-term care workforce. | DoL, CMS |
Final Rule issued October 2013. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.14) |
Strengthen the long-term care workforce. | DoL, CMS |
Final Rule issued October 2013. |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.A.16) |
Improve home and community-based long-term services and supports provided through state Medicaid waivers. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.A.16) |
Improve home and community-based long-term services and supports provided through state Medicaid waivers. | CMS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.A.15) |
Improve home and community-based services long-term services and supports provided through state Medicaid waivers. | CMS |
The CMS Medicaid Innovation Accelerator Program is supporting state Medicaid agencies in community integration through long-term services and supports. One targeted area of support is helping a select number of Medicaid agencies plan and implement quality and outcome incentives in their community-based long-term services and supports programs. |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.15) |
Improve home and community-based services long-term services and supports provided through state Medicaid waivers. | CMS |
As 1 example, CMS is supporting state Medicaid agencies in community integration through home and community-based services. One targeted area of support is helping a select number of Medicaid agencies plan and implement quality and outcome incentives in their home and community-based services programs. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.14) |
Improve home and community-based services long-term services and supports provided through state Medicaid waivers. | CMS |
As 1 example, CMS is supporting state Medicaid agencies in community integration through home and community-based services. One targeted area of support is helping a select number of Medicaid agencies plan and implement quality and outcome incentives in their home and community-based services programs. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.14) |
Improve HCBS provided through state Medicaid waivers. | CMS |
As one example, CMS is supporting state Medicaid agencies in multiple HCBS topics like electronic visit verification. CMS is also working with its partners at the ACL to address person-centered planning and practice. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.A.16) |
Disseminate CMS Hand-in-Hand dementia training materials in VA community living centers. | VA | |
| NATIONAL PLAN 2017 UPDATE (Action 2.A.16) |
Disseminate CMS Hand-in-Hand dementia training materials in VA community living centers. | VA |
This is an ongoing project. Evaluation activities were underway in 2017. |
| NATIONAL PLAN 2018 UPDATE (Action 2.A.15) |
Disseminate CMS Hand-in-Hand dementia training materials in VA community living centers. | VA |
VA disseminated the CMS Hand-in-Hand Dementia Training Materials to all VA community living centers (formerly known as VA Nursing Home Care Units) in 2015-2016. Orientation calls with community living center leaders were held, and a series of implementation coaching calls were held with community living center staff. A process evaluation is underway. When evaluation activities are complete, VA will share with federal partners a summary report on its implementation and evaluation of the dissemination of these staff training materials. 19 of the HRSA 44 Geriatrics Workforce Enhancement Programs collaborated with the VA. Geriatrics Workforce Enhancement Program grantees are prepared to assist with training in VA community living centers should they be asked to do so. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.15) |
Disseminate CMS Hand-in-Hand dementia training materials in VA CLCs. | VA |
VA disseminated the CMS Hand-in-Hand Dementia Training Materials to all VA CLCs (formerly known as VA Nursing Home Care Units) in 2015-2016. Orientation calls with CLC leaders were held, and a series of implementation coaching calls were held with CLC staff. A process evaluation was conducted, and a summary report is now available on the VA Geriatrics and Extended Care Internet. The report describes the implementation and evaluation of the training. In addition to process evaluation results, the report includes 2 new products that were created by the workgroup for this project: (1) A staff satisfaction with learning survey, addressing specific objectives and added competency questions for each module; and (2) Knowledge test questions with multiple-choice questions on each module, to evaluate employee response at Levels 1 and 2 of the Kirkpatrick educational evaluation model respectively. The training satisfaction survey and knowledge tests may be useful to others in future implementation of this training program. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.1) |
|||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.A.16) |
Training future public health professionals on Alzheimer's disease and related dementias. | CDC |
Public Health Curriculum in partnership with the Alzheimer's Association and Emory University. The Public Health Curriculum is a comprehensive course designed to educate public health students about the growing issues related to Alzheimer's disease and related dementias and is tied to the Core Competencies for Public Health Professionals. It includes slides, teacher notes, and other elements to create a complete course for educators to use in the classroom. The curriculum is also relevant to other audiences for broader reach. |
| NATIONAL PLAN 2019 UPDATE (Action 2.A.16) |
Train future public health professionals on Alzheimer's disease and related dementias. | CDC |
The Public Health Curriculum, developed in partnership with the Alzheimer's Association and Emory University, is a comprehensive course designed to educate public health students about the growing issues related to Alzheimer's disease and related dementias and is tied to the Core Competencies for Public Health Professionals. It includes slides, teacher notes, and other elements to create a complete course for educators to use in the classroom. The curriculum is also relevant to other audiences for broader reach. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 2.A.17) |
Understand the impacts of minimum wage increases on nursing homes. | ASPE |
Project underway. Report expected in early 2020. |
STRATEGY 2.B: Ensure Timely and Accurate Diagnosis
Below are the Actions that have been listed under Strategy 2.B since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.B Narrative links | |||
| 2019 Strategy 2.B | 2018 Strategy 2.B | 2017 Strategy 2.B | 2016 Strategy 2.B |
| 2015 Strategy 2.B | 2014 Strategy 2.B | 2013 Strategy 2.B | 2012 Strategy 2.B |
2.B Actions Table of Contents
- Educate family service providers of persons with intellectual and developmental disabilities about changes that may indicate the onset of dementia.
- Identify and disseminate appropriate assessment tools.
- Increase awareness of Alzheimer's disease and related dementias in Tribal and Urban Indian communities and of the availability of services for individuals with dementia and their families.
- Increase provider awareness of the need for early diagnosis, and provide tools and resources to enable diagnosis and referral.
- Link the public to diagnostic and clinical management services.
- Understand the discordance between reported diagnosis, claims, and functional assessment for people with Alzheimer's disease and related dementias.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.B.1) |
Link the public to diagnostic and clinical management services. | AoA, NIH/NIA |
September 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.B.1) |
Link the public to diagnostic and clinical management services. | ACL, NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.B.1) |
Link the public to diagnostic and clinical management services. | ACL, NIH/NIA |
2012 and 2013 webinars |
| NATIONAL PLAN 2015 UPDATE (Action 2.B.1) |
Link the public to diagnostic and clinical management services. | ACL, NIH/NIA |
Webinars |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.B.2) |
Identify and disseminate appropriate assessment tools. | CMS, NIH/NIA |
June 2012; December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.B.2) |
Identify and disseminate a variety of appropriate assessment tools. | CMS, NIH/NIA |
January 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.B.2) |
Identify and disseminate a variety of appropriate assessment tools. | CMS, NIH/NIA |
Searchable database of assessment tools |
| NATIONAL PLAN 2015 UPDATE (Action 2.B.2) |
Identify and disseminate a variety of appropriate assessment tools. | CMS, NIH/NIA |
Searchable database of assessment tools Updated fact sheet on Annual Wellness Visit to fee-for-service Medicare providers |
| NATIONAL PLAN 2016 UPDATE (Action 2.B.1) |
Identify and disseminate a variety of appropriate assessment tools. | CMS, NIH/NIA |
The CMS Medicaid Innovation Accelerator Program is supporting state Medicaid agencies in community integration through long-term services and supports. One targeted area of support is helping a select number of Medicaid agencies plan and implement quality and outcome incentives in their community-based long-term services and supports programs. Searchable database of assessment tools Updated fact sheet on the annual wellness visit for fee-for-service Medicare providers In 2015, NIA developed a mini-portal of resources for professionals, including the clinician quick guides "Assessing Cognitive Impairment in Older Adults" and "Managing Older Patients with Cognitive Impairment." |
| NATIONAL PLAN 2017 UPDATE (Action 2.B.1) |
Identify and disseminate a variety of appropriate assessment tools. | NIH/NIA |
Searchable database of assessment tools Updated fact sheet on the annual wellness visit for fee-for-service Medicare providers In 2015, NIA developed a mini-portal of resources for professionals, including the clinician quick guides "Assessing Cognitive Impairment in Older Adults" and "Managing Older Patients with Cognitive Impairment". |
| NATIONAL PLAN 2018 UPDATE (Action 2.B.1) |
Identify and disseminate a variety of appropriate assessment tools. | NIH/NIA |
NIA continues to expand our efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. |
| NATIONAL PLAN 2019 UPDATE (Action 2.B.2) |
Identify and disseminate appropriate assessment tools. | NIH/NIA |
NIA continues to expand our efforts to educate clinicians about recent research findings; clinical practice tools for assessment, diagnosis and management of cognitive impairment; training materials; a patient checklist handout in English and Spanish, and other resources, which are available online in a mini-portal of resources for professionals. NIA has also funded 2 new projects that seek to produce Apps capable of measuring cognitive status and change on mobile devices in response to RFA-AG-18-012 Mobile Monitoring of Cognitive Change (U2C).
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.B.3) |
Educate family members of and service providers for persons with intellectual disabilities about changes that may indicate the onset of dementia. | ACL/AIDD | |
| NATIONAL PLAN 2015 UPDATE (Action 2.B.3) |
Educate family members of and service providers for persons with intellectual disabilities about changes that may indicate the onset of dementia. | ACL/AIDD | |
| NATIONAL PLAN 2016 UPDATE (Action 2.B.2) |
Educate family members of and service providers for persons with intellectual and developmental disabilities about changes that may indicate the onset of dementia. | ACL/AIDD |
2 webinars and an issue paper were made available in 2015. Resources: Webinar: Intellectual and Developmental Disabilities and Dementia--California Webinar |
| NATIONAL PLAN 2017 UPDATE (Action 2.B.2) |
Educate family members of and service providers for persons with intellectual and developmental disabilities about changes that may indicate the onset of dementia. | ACL/AIDD |
2 webinars and an issue paper were made available in 2015 Resources: Webinar: Intellectual and Developmental Disabilities and Dementia--California Webinar |
| NATIONAL PLAN 2018 UPDATE (Action 2.B.2) |
Educate family members of and service providers for persons with intellectual and developmental disabilities about changes that may indicate the onset of dementia. | ACL/AIDD |
ACL, through their Alzheimer's disease and related dementias grants to states and communities are providing dementia-capability training to paid and unpaid caregivers of persons living with dementia, including individuals living with intellectual and developmental disabilities and dementia or at risk of developing dementia. For example, through the ACL community grant program, 31 of 43 funded projects (in 22 states and Puerto Rico) include intellectual and developmental disabilities culturally-competent Alzheimer's disease and related dementias education/training activities components. ACL collaborates closely with the NTG with many grantees participating in their education workshops, becoming affiliated trainers and further disseminating education on intellectual and developmental disabilities and dementia, as well as implementation of their NTG Early Detection Screen for Dementia tool. Since 2014, through ACL, Alzheimer's disease and related dementias projects, more than 8,000 paid and unpaid caregivers of individuals living with intellectual and developmental disabilities and dementia have received training. For more information: 2 webinars and an issue paper were made available in 2015: Webinar: Intellectual and Developmental Disabilities and Dementia--California Webinar |
| NATIONAL PLAN 2019 UPDATE (Action 2.B.2) |
Educate family service providers of persons with IDD about changes that may indicate the onset of dementia. | ACL/AIDD |
ACL, through their Alzheimer's disease and related dementias grants to states and communities are providing dementia-capability training to paid and unpaid caregivers of PWD, including individuals living with IDD and dementia or at-risk of developing dementia. For example, in response to a spring 2018 poll of IDD program providers grantees reported training close to 8000 paid and unpaid caregivers in IDD and dementia, through their IDD-specific service gap activities since 2014. ACL collaborates closely with NTG with many grantees participating in their education workshops, becoming affiliated trainers and further disseminating education on IDD and dementia, as well as implementation of their NTG-EDSD tool. ACL consistently offers educational opportunities/resources in support of both paid and unpaid caregivers of those living with IDD and Alzheimer's disease and related dementias or at-risk of developing Alzheimer's disease and related dementias. The Case for Palliative Care for People with IDD. In 2019, NADRC published a new guide entitled IDD and Dementia: Practical Strategies for Professionals: Practical Strategies for Professionals which provides background and strategies for professionals working with individuals living with IDD and dementia. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.B.3) |
Increase awareness of Alzheimer's disease and related dementias in Tribal and Urban Indian Communities and of the availability of services for Individuals with dementia and their families. | IHS | |
| NATIONAL PLAN 2017 UPDATE (Action 2.B.3) |
Increase awareness of Alzheimer's disease and related dementias in Tribal Urban Indian Communities and of the availability of services for Individuals with dementia and their families. | IHS |
The focus of the Resources for Enhancing Alzheimer's Caregiver Health intervention in its final year will be on increasing awareness of Alzheimer's disease and related dementias in those communities served by Resources for Enhancing Alzheimer's Caregiver Health and increasing use of Resources for Enhancing Alzheimer's Caregiver Health caregiver support services. |
| NATIONAL PLAN 2018 UPDATE (Action 2.B.3) |
Increase awareness of Alzheimer's disease and related dementias in Tribal and Urban Indian Communities and of the availability of services for Individuals with dementia and their families. | IHS |
The focus of the Resources for Enhancing Alzheimer's Caregiver Health intervention in its final year was on increasing awareness of Alzheimer's disease and related dementias in those communities served by Resources for Enhancing Alzheimer's Caregiver Health and increasing use of Resources for Enhancing Alzheimer's Caregiver Health caregiver support services. Regular web-based calls with Resources for Enhancing Alzheimer's Caregiver Health Caregiver Coaches aimed at increasing awareness and use of the caregiver support services in Tribal communities. ACL continues to bring awareness to Alzheimer's disease and related dementias in Indian Country through participating in educational opportunities including presentations to attendees of ACL's Title VI annual conference and webinars. |
| NATIONAL PLAN 2019 UPDATE (Action 2.B.3) |
Increase awareness of Alzheimer's disease and related dementias in Tribal and Urban Indian communities and of the availability of services for individuals with dementia and their families. | IHS |
The focus of the REACH intervention in its final year was on increasing awareness of Alzheimer's disease and related dementias in those communities served by REACH and increasing use of REACH caregiver support services. Regular web-based calls with REACH Caregiver Coaches aimed at increasing awareness and use of the caregiver support services in Tribal communities. ACL continues to bring awareness to Alzheimer's disease and related dementias in Indian Country through participating in educational opportunities including presentations to attendees of ACL's Title VI annual conference and webinars. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.B.4) |
Increase Provider Awareness of the need for early diagnosis, and provide tools and resources to enable diagnosis and referral. | CDC |
CDC is working with the American College of Preventive Medicine. A curriculum is being developed to increase physician and health care professionals' awareness of brain health as a serious health condition and to increase the number of physicians and health care professionals acting to address, diagnose, and refer patients with brain health issues to care and community support programs. Module will be included as an elective in the Lifestyle Medicine Core Competencies Online Program. |
| NATIONAL PLAN 2019 UPDATE (Action 2.B.5) |
Increase provider awareness of the need for early diagnosis, and provide tools and resources to enable diagnosis and referral. | CDC |
CDC worked with the American College of Preventive Medicine to develop a curriculum and resource center to increase physician and health care professionals' awareness of brain health as a serious health condition, and to increase the number of physicians and health care professionals acting to address, diagnose, and refer patients with brain health issues to care and community support programs. The new online course has been included as an elective in the Lifestyle Medicine Core Competencies Online Program and can be for CEC (CME/MOC). |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.B.5) |
Understand the discordance between reported diagnosis, claims, and functional assessment for people with Alzheimer's disease and related dementias. | HHS/ASPE |
ASPE is working on a project to better understand discrepancies between patients or proxy-reported, Medicare claims data-reported, and cognitive functioning test results on dementia diagnosis numbers and reporting. The intent is to improve patient awareness of diagnosis and better standardize diagnosis numbers across various data sources. |
| NATIONAL PLAN 2019 UPDATE (Action 2.B.5) |
Understand the discordance between reported diagnosis, claims, and functional assessment for people with Alzheimer's disease and related dementias. | ASPE |
Project ongoing. Issue brief and report will be available in early 2020. |
STRATEGY 2.C: Educate and Support People with Alzheimer's Disease and Related Dementias and Their Families upon Diagnosis
Below are the Actions that have been listed under Strategy 2.C since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.C Narrative links | |||
| 2019 Strategy 2.C | 2018 Strategy 2.C | 2017 Strategy 2.C | 2016 Strategy 2.C |
| 2015 Strategy 2.C | 2014 Strategy 2.C | 2013 Strategy 2.C | 2012 Strategy 2.C |
2.C Actions Table of Contents
- Connect American Indians and Alaska Natives to Alzheimer's disease and related dementias resources.
- Educate physicians and other health care providers about accessing long-term services and supports.
- Enhance assistance for people with Alzheimer's disease and their caregivers to prepare for care needs.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA |
October 2012; May 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | CMS |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA | |
| NATIONAL PLAN 2016 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA |
One barrier to counseling and support is that health care providers are not aware of available services or how to access them. To increase knowledge of these resources among physicians, nurses, and hospitals, HRSA is partnering with federal partners, public and private entities, the health care provider community, and community organizations that provide long-term services and supports to effectively educate physicians and other health care providers, direct services workers, and patients, families, and caregivers about support resources and services available to assist people with Alzheimer's disease and related dementias, as well as their caregivers. These activities will continue as part of the training in Action 2.A.1. |
| NATIONAL PLAN 2017 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA |
One barrier to counseling and support is that health care providers are not aware of available services or how to access them. To increase knowledge of these resources among physicians, nurses, and hospitals, HRSA is partnering with federal partners, public and private entities, the health care provider community, and community organizations that provide long-term services and supports to effectively educate physicians and other health care providers, direct services workers, and patients, families, and caregivers about support resources and services available to assist people with Alzheimer's disease and related dementias, as well as their caregivers. These activities will continue as part of the training in Action 2.A.1. CMS is doing other work through its Innovation Center to facilitate this goal. |
| NATIONAL PLAN 2018 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing long-term services and supports. | HRSA |
One barrier to counseling and support is that health care providers are not aware of available services or how to access them. To increase knowledge of these resources among physicians, nurses, and hospitals, HRSA is partnering with federal partners, public and private entities, the health care provider community, and community organizations that provide long-term services and supports to effectively educate physicians and other health care providers, direct services workers, and patients, families, and caregivers about support resources and services available to assist people with Alzheimer's disease and related dementias, as well as their caregivers. These activities will continue as part of the training in Action 2.A.1. In addition, since 2017, CMS has created a separate payment in Medicare for cognitive assessment and care planning services for individuals with cognitive impairment. A required element of these services is the creation of a care plan, including referral to community resources as needed (e.g., rehabilitation services, adult day programs, support groups), and a requirement that the care plan is shared with the patient and/or caregiver with initial education and support. ACL's state and community Alzheimer's disease and related dementias grant program continues to fund projects that include educational opportunities for physicians and other health care providers. Grantees continue to work toward developing models such as dementia-capable hospitals and federally qualified health centers. |
| NATIONAL PLAN 2019 UPDATE (Action 2.C.1) |
Educate physicians and other health care providers about accessing LTSS. | HRSA |
HRSA is partnering with federal partners, public and private entities, the health care provider community, and community organizations that provide LTSS to effectively educate physicians and other health care providers, direct services workers, and patients, families, and caregivers about support resources and services available to assist people with Alzheimer's disease and related dementias, as well as their caregivers.. In addition, since 2017, CMS has made separate payments in Medicare for cognitive assessment and care planning services for individuals with cognitive impairment. In Medicare, a required element of these services is the creation of a care plan, including requires referral to community resources as needed (e.g., rehabilitation services, adult day programs, support groups), and that the care plan is shared with the patient and/or caregiver with initial education and support. ACL's state and community ADPI program continues to fund projects that include significant focus on the provision of educational opportunities for physicians and other health care providers. Grantees continue to work toward developing models such as dementia-capable hospitals and federally qualified health centers, including educating providers on the importance of dementia-capable care transitions. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.C.2) |
Enhance assistance for people with Alzheimer's disease and their caregivers to prepare for care needs | AoA |
December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.C.2) |
Enhance assistance for people with Alzheimer's disease and their caregivers to prepare for care needs. | ACL/AoA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 2.C.2) |
Enhance assistance for people with Alzheimer's disease and their caregivers to prepare for care needs. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.C.2) |
Enhance assistance for people with Alzheimer's disease and their caregivers to prepare for care needs. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.C.3) |
Connect American Indians and Alaska Natives to Alzheimer's disease resources. | IHS |
June 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 2.C.3) |
Connect American Indians and Alaska Natives to Alzheimer's disease resources. | IHS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.C.3) |
Connect American Indians and Alaska Natives to Alzheimer's disease resources. | IHS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.C.2) |
Connect American Indians and Alaska Natives to Alzheimer's disease and related dementias resources. | IHS |
The focus on increasing support to caregivers has been through spread of Resources for Enhancing Alzheimer's Caregiver Health into Indian Country, with the goal of offering this intervention to those with Alzheimer's disease and related dementias and their families. |
| NATIONAL PLAN 2017 UPDATE (Action 2.C.2) |
Connect American Indians and Alaska Natives to Alzheimer's disease and related dementias resources. | IHS |
The focus on increasing support to caregivers has been through spread of Resources for Enhancing Alzheimer's Caregiver Health into Indian Country, with the goal of offering this intervention to those with Alzheimer's disease and related dementias and their families. |
| NATIONAL PLAN 2018 UPDATE (Action 2.C.2) |
Connect American Indians and Alaska Natives to Alzheimer's disease and related dementias resources. | IHS |
The focus on increasing support to caregivers has been through spread of Resources for Enhancing Alzheimer's Caregiver Health into Indian Country, with the goal of offering this intervention to those with Alzheimer's disease and related dementias and their families. Collaboration with the CDC in the development of the Brain Health public health Road Map designed specifically for Tribal Communities. Tribal communities continue to benefit from ACL's state and community Alzheimer's disease and related dementias grant programs, including development of culturally-competent dementia care specialists, dementia-friendly community education/awareness initiatives and translation of the Music and Memory intervention in Indian Country. |
| NATIONAL PLAN 2019 UPDATE (Action 2.C.2) |
Connect AI/AN to Alzheimer's disease and related dementias resources. | IHS |
The focus on increasing support to caregivers has been through the spread of REACH into Indian Country, with the goal of offering this intervention to those with Alzheimer's disease and related dementias and their families. IHS has collaborated with CDC in the development of the Brain Health Public Health Road Map designed specifically for Tribal Communities. The Road Map for Indian Country, co-branded with the Alzheimer's Association, was released and disseminated to multiple stakeholders and Tribal nations. Additionally, CDC developed an infographic describing subjective cognitive decline and related functional limitations on AI/AN adults in order to educate stakeholders and policy makers on brain health in Indian Country.
Tribal communities continue to benefit from ACL's state and community Alzheimer's disease and related dementias grant programs, including development of culturally-competent dementia care specialists, dementia-friendly community education/awareness initiatives and translation of the Music and Memory intervention in Indian Country. ACL's Title VI program has significantly increased the Alzheimer's disease and related dementias educational offerings at their annual Title VI Training Conference including increasing awareness of CDC's Road Map for Indian Country. |
STRATEGY 2.D: Identify High-Quality Dementia Care Guidelines and Measures Across Care Settings
Below are the Actions that have been listed under Strategy 2.D since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.D Narrative links | |||
| 2019 Strategy 2.D | 2018 Strategy 2.D | 2017 Strategy 2.D | 2016 Strategy 2.D |
| 2015 Strategy 2.D | 2014 Strategy 2.D | 2013 Strategy 2.D | 2012 Strategy 2.D |
2.D Actions Table of Contents
- Clarify and disseminate information on privacy, autonomy, and safety issues for physicians.
- Convene an expert panel on advanced dementia.
- Explore dementia care guidelines measures.
- Identify and review measures of high-quality dementia care.
- Provide improved training resources to IHS staff on person-centered goals and strategies for care improvement.
- Solicit stakeholder input on meaningful outcomes to drive quality measurement.
- Study factors influencing the progression of disability in older adults.
- Understand trends in residential care settings for older adults.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.D.1) |
Explore programmatically relevant dementia care guidelines and measures. | CMS |
July 2012; December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS | |
| NATIONAL PLAN 2017 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS | |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS |
CMS has included dementia-related measures in the Merit-Based Incentives Payment Program for Medicare such as cognitive assessment, management of neuropsychiatric symptoms, etc. CMS is also continuing its work to test and develop measures and measure concepts for home and community-based services. |
| NATIONAL PLAN 2019 UPDATE (Action 2.D.1) |
Explore dementia care guidelines measures. | CMS |
CMS has included dementia-related measures in the MIPS for Medicare such as cognitive assessment, education and support of caregivers, etc. Another area of support is examining and implementing quality and outcome measures and measure concepts for HCBS programs. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.D.2) |
Identify and review measures of high-quality dementia care. | CMS |
September 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.D.2) |
Identify and review measures of high-quality dementia care. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.D.2) |
Identify and review measures of high-quality dementia care. | CMS |
Priority Setting for Healthcare Performance Measurement--Alzheimer's Disease |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.D.4) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.D.4) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.D.2) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS |
Initial target met; continuing work of reviewing literature and guidelines continues to support quality measure development and implementation. |
| NATIONAL PLAN 2017 UPDATE (Action 2.D.2) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS |
Initial target met; continuing work of reviewing literature and guidelines continues to support quality measure development and implementation. |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.2) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS |
Initial target met; continuing work of reviewing literature and guidelines and continues to support quality measure development and implementation. CMS's "Meaningful Measures" framework is a new initiative that identifies the highest priorities for quality measurement and improvement. It involves only assessing those core issues that are the most critical to providing high-quality care and improving individual outcomes. The Meaningful Measure areas serve as the connectors between CMS goals and individual measures/initiatives that demonstrate how high-quality outcomes are being achieved across settings of care. |
| NATIONAL PLAN 2019 UPDATE (Action 2.D.2) |
Solicit stakeholder input on meaningful outcomes to drive quality measurement. | CMS |
CMS's Meaningful Measures framework is a new initiative that identifies the highest priorities for quality measurement and improvement. It involves only assessing those core issues that are the most critical to providing high-quality care and improving individual outcomes. The Meaningful Measure areas serve as the connectors between CMS goals and individual measures/initiatives that demonstrate how high-quality outcomes are being achieved across settings of care. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.D.3) |
Convene an expert panel on advanced dementia. | HHS/ASPE |
March 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.D.3) |
Convene an expert panel on advanced dementia. | HHS/ASPE |
First meeting was held on January 28, 2014. Second meeting is scheduled for July 2014. Third meeting will in January 2015. |
| NATIONAL PLAN 2015 UPDATE (Action 2.D.3) |
Convene an expert panel on advanced dementia. | HHS/ASPE |
Meetings held in January 2014, September 2014, and January 2015. |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.D.5) |
Clarify and disseminate information on privacy, autonomy, and safety issues to physicians. | HHS/ASPE, HRSA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.D.5) |
Clarify and disseminate information on privacy, autonomy, and safety issues to physicians. | HHS/ASPE, HRSA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 2.D.3) |
Clarify and disseminate information on privacy, autonomy, and safety issues for physicians. | HRSA |
HHS will disseminate this information through the trainings provided by Geriatrics Workforce Enhancement Program awardees. |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.3) |
Clarify and disseminate information on privacy, autonomy, and safety issues for physicians. | HRSA |
HHS continues to disseminate this information through the trainings provided by the Geriatrics Workforce Enhancement Program awardees |
| NATIONAL PLAN 2019 UPDATE (Action 2.D.3) |
Clarify and disseminate information on privacy, autonomy, and safety issues for physicians. | HRSA |
HHS continues to disseminate this information through the trainings provided by the GWEP awardees |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.1) |
|||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 2.D.4) |
Training Resources for IHS Staff. | IHS |
IHS collaborated with HRSA to engage the HRSA-funded Geriatrics Workforce Enhancement Programs in strategies to improve recognition and diagnosis of dementia. Currently 8 Geriatrics Workforce Enhancement Programs partner with federally recognized Tribal populations and 1 collaborates with a non-federally recognized Tribal population. The 9 Geriatrics Workforce Enhancement Programs have developed a Native Populations Interest Group in preparation for exchanging training materials. The University of Wyoming is currently developing culturally-relevant dementia training material for Native American people on the Wind River Reservation by creating a pictorial version of the Alzheimer's Association's "Know the 10 Signs: Early Detection Matters". |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.4) |
Provide improved training resources to IHS staff on person-centered goals and strategies for care improvement. | HIS |
IHS collaborated with HRSA to engage the HRSA-funded Geriatrics Workforce Enhancement Programs in strategies to improve recognition and diagnosis of dementia. 8 HRSA Geriatrics Workforce Enhancement Programs are currently partnering with federally recognized Tribal organizations and 1 HRSA Geriatrics Workforce Enhancement Program collaborates with a non-federally recognized Tribal organization. 9 Geriatrics Workforce Enhancement Programs have developed a Native Populations Interest Group in preparation for exchanging training materials. The University of Wyoming is currently pilot-testing culturally-relevant dementia training material for American Indian and Alaska Native people on the Wind River Reservation by creating a pictorial version of the Alzheimer's Association's "Know the 10 Signs: Early Detection Matters". The other members of the Interest Group are discussing how/whether to adopt similar materials. |
| NATIONAL PLAN 2019 UPDATE (Action 2.D.4) |
Provide improved training resources to IHS staff on person-centered goals and strategies for care improvement. | IHS |
IHS collaborated with HRSA to engage the HRSA-funded GWEPs in strategies to improve recognition and diagnosis of dementia. In FY 2018, 8 HRSA GWEPs partnered with federally recognized Tribal organizations and 1 HRSA GWEP collaborated with a non-federally recognized Tribal organization. 9 GWEPs have developed a Native Populations Interest Group in preparation for exchanging training materials. The University of Wyoming, in partnership with members of the Eastern Shoshone and Northern Arapaho tribes, created culturally-relevant dementia training material for AI people on the Wind River Reservation with a pictorial version of the Alzheimer's Association's Know the 10 Signs: Early Detection Matters. The other members of the Interest Group are discussing how/whether to adopt similar materials. This will be disseminated nationally. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 2.D.5) |
Understanding trends in residential care settings for older adults. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.5) |
Understand trends in residential care settings for older adults. | HHS/ASPE |
ASPE's project analyzed trends in residential care, using data at various points in time from several data sources, including the Medicare Current Beneficiary Survey, the National Health and Aging Trends Study, and the National Study of Long-Term Care Places. This project presented the estimates, explained why they would be expected to differ across sources, and analyzed the resulting trends. The sources also contain some information on the characteristics of facilities and residents. Report will be posted in late 2018. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 2.D.6) |
Study factors influencing the progression of disability in older adults. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.D.6) |
Study factors influencing the progression of disability in older adults. | HHS/ASPE |
ASPE's project uses the National Health and Aging Trends Study data from 2011 to 2015 to study the progression of disability and the implications for caregiving needs. Outcomes data are being tabulated each year (death, long-stay nursing home admission, and residential care admission, continued or increased use of informal/paid care). Those who develop dementia after 2011 would be studied, but most cases would already have dementia or symptoms in 2011, and the course of their condition would be followed through 2015. This project was discontinued but portions will be included in future projects to come. |
| NATIONAL PLAN 2019 UPDATE | |||
STRATEGY 2.E: Explore the Effectiveness of New Models of Care for People with Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 2.E since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.E Narrative links | |||
| 2019 Strategy 2.E | 2018 Strategy 2.E | 2017 Strategy 2.E | 2016 Strategy 2.E |
| 2015 Strategy 2.E | 2014 Strategy 2.E | 2013 Strategy 2.E | 2012 Strategy 2.E |
2.E Actions Table of Contents
- Analyze new payment and service options for Medicare-Medicaid dual eligible beneficiaries.
- Analyze reimbursements for high-quality, community-based, ambulatory mental health and substance use disorder services.
- Develop a supported decision making model as an alternative to guardianship.
- Evaluate the effectiveness of relevant Center for Medicare and Medicaid Innovation models for people with Alzheimer's disease and related dementias.
- Evaluate the effectiveness of the Independence at Home Demonstration.
- Share results and lessons learned about new models in the VHA system with federal partners.
- Studying home health utilization.
- Understand the role of certified community behavioral health clinic in providing access to care.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.E.1) |
Evaluate the effectiveness of medical home models for people with Alzheimer's disease. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2013 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of medical home models for people with Alzheimer's disease. | CMS/CMMI |
July 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant Innovation Center models for people with Alzheimer's disease. | CMS/CMMI | |
| NATIONAL PLAN 2015 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant Innovation Center models for people with Alzheimer's disease. | CMS/CMMI | |
| NATIONAL PLAN 2016 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant CMMI models for people with Alzheimer's disease and related dementias. | CMS/CMMI |
At this time CMS has several Health Care Innovation Awards that impact people with Alzheimer's disease and related dementias and their caregivers. The evaluation results were released in May 2016 (see Plan updates). |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant CMMI models for people with Alzheimer's disease and related dementias. | CMS/CMMI |
At this time CMS has several Health Care Innovation Awards that impact people with Alzheimer's disease and related dementias and their caregivers. The evaluation results for the Health Care Innovation Award Round 1 awards were released in March 2017 (see Plan updates). Health Care Innovation Award Round 2 First Annual Evaluation Report was released in August 2016. Third Annual Evaluation Report Released in March 2017. Disease-Specific Complex/High-Risk Patient Targeting Health Care Innovation Award Round 2 First Evaluation Report was released in August 2016 |
| NATIONAL PLAN 2018 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant CMMI models for people with Alzheimer's disease and related dementias. | CMS/CMMI |
Health Care Innovation Awards Round 1 have ended. Information about the evaluation of these projects are available.
Health Care Innovation Awards Round 2 has also ended, and CMS is in the process of completing the evaluation. Latest evaluation report is available; final evaluation results are anticipated to be available at the end of 2019. |
| NATIONAL PLAN 2019 UPDATE (Action 2.E.1) |
Evaluate the effectiveness of relevant CMMI models for people with Alzheimer's disease and related dementias. | CMS/CMMI |
HCIAs Round 1 have ended. Information about the evaluation of these projects can be found at the links below.
HCIA R2 has also ended, and CMS is in the process of completing the evaluation. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2013 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2014 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI | |
| NATIONAL PLAN 2015 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI | |
| NATIONAL PLAN 2016 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI | |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI |
Year 2 Results |
| NATIONAL PLAN 2018 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI |
CMS has released the Year 2 results. |
| NATIONAL PLAN 2019 UPDATE (Action 2.E.2) |
Evaluate the effectiveness of the Independence at Home Demonstration. | CMS/CMMI |
CMS has released the results from Year 4 of the demonstration. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.E.3) |
Share results and lessons learned about new models in the VHA system with federal partners. | VA |
September 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 2.E.3) |
Share results and lessons learned about new models in the VHA system with federal partners. | VA | |
| NATIONAL PLAN 2015 UPDATE (Action 2.E.3) |
Share results and lessons learned about new models in the VHA system with federal partners. | VA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.E.3) |
Develop a supported decision making model as an alternative to guardianship. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.3) |
Develop a supported decision making model as an alternative to guardianship. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 2.E.3) |
Develop a supported decision making model as an alternative to guardianship. | ACL |
For more information: |
| NATIONAL PLAN 2019 UPDATE (Action 2.E.3) |
Develop a SDM model as an alternative to guardianship. | ACL | |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.E.4) |
Analyze new payment and service options for Medicare-Medicaid dual eligible beneficiaries. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.4) |
Analyze new payment and service options for Medicare-Medicaid dual eligible beneficiaries. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.E.4) |
Analyze new payment and service options for Medicare-Medicaid dual eligible beneficiaries. | HHS/ASPE |
ASPE created a project to produce targeted research briefs on options for expanding Program of All-inclusive Care for the Elderly. Program of All-inclusive Care for the Elderly was established as a permanent Medicare and Medicaid benefit by the Balanced Budget Act of 1997, and it attempts to help nursing home eligible older adults avoid institutional care by providing them with an appropriate, tailored mix of coordinated acute care and home and community-based services. Nationally, nearly half (49% comp) of Program of All-inclusive Care for the Elderly participants have been diagnosed with dementia, therefore lessons from the Program of All-inclusive Care for the Elderly model may have strong applicability to the field of dementia care broadly. Reports are expected by December 2018. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.E.5) |
Analyze "quality dementia care" practices across settings. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.5) |
Analyze "quality dementia care" practices across settings. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.E.5) |
Understand the role of certified community behavioral health clinic in providing access to care. | HHS/ASPE |
ASPE is managing a 5 year evaluation of this demonstration to answer research questions on how the certified community behavioral health clinic s improve access to care, whether they implement a full scope of services, how they improve the quality of care, whether the prospective payment system cover the full costs of care, and how the demonstration impacts costs and utilization in Medicaid. Reports to Congress are due annually, and interim reports and a final report will be posted on ASPE's website. |
| NATIONAL PLAN 2019 UPDATE (Action 2.E.4) |
Understand the role of CCBHC in providing access to care. | ASPE |
ASPE is managing a 5-year evaluation of this demonstration. Current reports include: |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.E.6) |
Analyze reimbursements for high-quality, community-based, ambulatory mental health and substance use disorder services. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 2.E.6) |
Analyze reimbursements for high-quality, community-based, ambulatory mental health and substance use disorder services. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.A.1) |
|||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 2.E.7) |
Studying home health utilization. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
STRATEGY 2.F: Ensure that People with Alzheimer's Disease and Related Dementias Experience Safe and Effective Transitions between Care Settings and Systems
Below are the Actions that have been listed under Strategy 2.F since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.F Narrative links | |||
| 2019 Strategy 2.F | 2018 Strategy 2.F | 2017 Strategy 2.F | 2016 Strategy 2.F |
| 2015 Strategy 2.F | 2014 Strategy 2.F | 2013 Strategy 2.F | 2012 Strategy 2.F |
2.F Actions Table of Contents
- Assess the adequacy of Health Information Technology standards to support the exchange of information at times of referrals and transitions in care for persons with Alzheimer's disease and related dementias.
- Enhance understanding of avoidable hospitalizations and emergency department use among people with Alzheimer's disease.
- Explore the effects of new payment models on Alzheimer's disease care and costs.
- Identify and disseminate information on interventions to reduce preventable hospitalizations.
- Identify and promote safer hospital care for persons with Alzheimer's disease.
- Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease and related dementias.
- Understand FIDs from nursing homes
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.F.1) |
Explore the effects of new payment models on Alzheimer's disease care and costs. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2013 UPDATE (Action 2.F.1) |
Explore the effects of new payment models on Alzheimer's disease care and costs. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.F.1) |
Identify and promote safer hospital care for persons with Alzheimer's disease. | CMS/CMMI |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 2.F.1) |
Identify and promote safer hospital care for persons with Alzheimer's disease. | CMS/CMMI |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.F.2) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease. | CMS/CMMI |
June 2012; September 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 2.F.2) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease. | CMS |
October 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.F.2) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease. | CMS | |
| NATIONAL PLAN 2015 UPDATE (Action 2.F.2) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease. | CMS | |
| NATIONAL PLAN 2016 UPDATE (Action 2.F.1) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease and related dementias. | CMS | |
| NATIONAL PLAN 2017 UPDATE (Action 2.F.1) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease and related dementias. | CMS | |
| NATIONAL PLAN 2018 UPDATE (Action 2.F.1) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease and related dementias. | CMS |
CMS's Primary Care Plus Demonstration includes about 6% of beneficiaries with dementia, where providers can engage in opportunities to receive enhanced fees for care coordination and support for dementia. ACL's state dementia system grants are all required to include a care transitions component and all grantees are required to evaluate the effectiveness of their programs. Numerous models of care transitions interventions are presently being implemented through ACL's community project, all of which include collection of outcome data and will include a programmatic evaluation upon completion of the grant period. |
| NATIONAL PLAN 2019 UPDATE (Action 2.F.1) |
Implement and evaluate new care models to support effective care transitions for people with Alzheimer's disease and related dementias. | CMS |
CMS's Primary Care First is a set of voluntary Innovation Center payment model options that reward value and quality by offering innovative payment model structures to support delivery of advanced primary care. One of the Primary Care First payment model options focuses on ensuring that seriously ill patients' care is coordinated and that patients are clinically stabilized. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.F.5) |
Assess the adequacy of Health Information Technology standards to support the exchange of information at times of referrals and transitions in care for persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 2.F.5) |
Assess the adequacy of Health Information Technology standards to support the exchange of information at times of referrals and transitions in care for persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 2.F.2) |
Assess the adequacy of Health Information Technology standards to support the exchange of information at times of referrals and transitions in care for persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.F.2) |
Assess the adequacy of Health Information Technology standards to support the exchange of information at times of referrals and transitions in care for persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.F.3) |
Enhance understanding of avoidable hospitalizations and emergency department use among people with Alzheimer's disease. | HHS/ASPE |
November 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 2.F.3) |
Enhance understanding of avoidable hospitalizations and emergency department use among people with Alzheimer's disease. | HHS/ASPE |
Hospital and Emergency Department Use by People with Alzheimer's Disease and Related Dementias: Final Report |
| NATIONAL PLAN 2015 UPDATE (Action 2.F.3) |
Enhance understanding of avoidable hospitalizations and emergency department use among people with Alzheimer's disease. | HHS/ASPE |
Hospital and Emergency Department Use by People with Alzheimer's Disease and Related Dementias: Final Report |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.F.4) |
Identify and disseminate information on interventions to reduce preventable hospitalizations. | CDC |
December 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 2.F.4) |
Identify and disseminate information on interventions to reduce preventable hospitalizations. | CDC | |
| NATIONAL PLAN 2015 UPDATE (Action 2.F.4) |
Identify and disseminate information on interventions to reduce preventable hospitalizations. | CDC | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 2.F.2) |
Understand FIDs from nursing homes | ASPE |
The research will explore the prevalence of FIDs and whether it has increased over the years; and, differences across all states, types of providers (e.g., for profit vs. non-profit; chain vs. non-chain), types of patients (e.g., AD, PWD, other disabilities, functional levels), payors (i.e., Medicare, Medicaid, Medicare to Medicaid, other), demographic groups, and duality (eligible for both Medicare and Medicaid). The study will be completed at the end of 2020. |
STRATEGY 2.G: Advance Coordinated and Integrated Health and Long-Term Services and Supports for Individuals Living with Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 2.G since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.G Narrative links | |||
| 2019 Strategy 2.G | 2018 Strategy 2.G | 2017 Strategy 2.G | 2016 Strategy 2.G |
| 2015 Strategy 2.G | 2014 Strategy 2.G | 2013 Strategy 2.G | 2012 Strategy 2.G |
2.G Actions Table of Contents
- Analyze pathways of eligibility for dually eligible beneficiaries.
- Analyze maintenance and loss of dual eligibility status.
- Assess the adequacy of Health Information Technology standards to support the needs of persons with Alzheimer's disease and related dementias.
- Compare outcomes for dual eligible beneficiaries in integrated care models.
- Consider test of new payment or delivery model to promote the quality of Alzheimer's disease care while reducing costs.
- Evaluate evidence on care integration.
- Implement and evaluate care coordination models.
- Review evidence on care coordination models for people with Alzheimer's disease.
- Study impacts of managed care on health outcomes and quality.
- Understand issues specific to the "triple-user" population.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.G.1) |
Review evidence on care coordination models for people with Alzheimer's disease. | HHS/ASPE |
October 2012; December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 2.G.1) |
Review evidence on care coordination models for people with Alzheimer's disease. | HHS/ASPE |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 2.G.1) |
Review evidence on care coordination models for people with Alzheimer's disease. | HHS/ASPE |
Care Coordination for People with Alzheimer's Disease and Related Dementias: Literature Review |
| NATIONAL PLAN 2015 UPDATE (Action 2.G.1) |
Review evidence on care coordination models for people with Alzheimer's disease. | HHS/ASPE |
Care Coordination for People with Alzheimer's Disease and Related Dementias: Literature Review |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.G.2) |
Implement and evaluate care coordination models. | CMS |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 2.G.2) |
Implement and evaluate care coordination models. | CMS/CMMI |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 2.G.2) |
Implement and evaluate care coordination models. | CMS/CMMI |
For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 2.G.1) |
Implement and evaluate care coordination models. | CMS/CMMI |
Health Care Innovation Awards Rounds 1 and 2 in process; Medicare and Medicaid Coordination Office demonstration projects started. For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 2.G.1) |
Implement and evaluate care coordination models. | CMS |
Multiple care coordination models and guidance on care coordination continue across CMS. |
| NATIONAL PLAN 2018 UPDATE (Action 2.G.1) |
Implement and evaluate care coordination models. | CMS |
Multiple care coordination models and guidance on care coordination continue across CMS. Care coordination models are a critical component of care in Medicare that contributes to better health outcomes and higher beneficiary satisfaction. Starting in 2017, based on feedback from stakeholders, CMS has made several significant changes to requirements and payment for care coordination models services, including simplified and reduced billing and documentation rules. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.1) |
Implement and evaluate care coordination models. | CMS |
CMS makes payment for care management and coordination services. Care coordination models can be a critical component of care in Medicare that can contribute to better health outcomes and higher beneficiary satisfaction. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.G.2) |
Consider test of new payment or delivery model to promote the quality of Alzheimer's disease care while reducing costs. | CMS/CMMI |
July 2015 |
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 2.G.3) |
Evaluate evidence on care integration. | HHS/ASPE |
March 2015 |
| NATIONAL PLAN 2014 UPDATE (Action 2.G.3) |
Evaluate evidence on care integration. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 2.G.3) |
Evaluate evidence on care integration. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 2.G.2) |
Evaluate evidence on care integration. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.G.2) |
Evaluate evidence on care integration. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.G.4) |
Assess the adequacy of Health Information Technology standards for care plans to support the needs of persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 2.G.4) |
Assess the adequacy of Health Information Technology standards for care plans to support the needs of persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 2.G.3) |
Assess the adequacy of Health Information Technology standards for care plans to support the needs of persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.G.3) |
Assess the adequacy of Health Information Technology standards for care plans to support the needs of persons with Alzheimer's disease and related dementias. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.G.2) |
Assess the adequacy of Health Information Technology standards for care plans to support the needs of persons with Alzheimer's disease and related dementias. | HHS/ASPE |
ASPE continues work with ONC and partners in exploring the feasibility and timing of activities to assess, identify, and fill gaps in accepted Health Information Technology standards for the representation of care plans to represent the health concerns, goals, interventions, and other information identified by individuals, caregivers and family members in caring for individuals receiving long-term services and supports, including those with Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.2) |
Assess the adequacy of HIT standards to support the needs of persons with Alzheimer's disease and related dementias. | ONC |
ONC publishes an annual Inter-operability Standards Advisory to bring public awareness to inter-operability standards and implementation specifications that can be used by industry, including standards that support care plans and transitions in care, among others. Emerging care plan efforts include the eLTSS Initiative, a joint project between CMS and ONC focused on identifying and harmonizing electronic standards for the inter-operable exchange of person-centered service plans used by health care and HCBS providers, payers and the individuals they serve. In September 2019, the standards development organization, HL7, published the eLTSS FHIR standards which are now available for adoption and implementation by HIT vendors, including those that develop dementia care technology platforms. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.G.3) |
Compare outcomes for dual eligible beneficiaries in integrated care models. | HHS/ASPE |
ASPE conducted a project to determine the feasibility of an analysis that compares selected health outcomes and quality measures for Medicare-Medicaid dual eligible beneficiaries participating in managed care models that align Medicare and Medicaid benefits, such as Medicare Advantage Dual Eligible Special Needs Plans, Medicare Advantage Fully Integrated Dual Eligible Special Needs Plans, and Program of All-inclusive Care for the Elderly, to outcomes for dually eligible beneficiaries who are not participating in these models. Reports are forthcoming in September 2019. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.G.4) |
Study impacts of managed care on health outcomes and quality. | HHS/ASPE |
ASPE has a project underway to evaluate the impact of Medicare and Medicaid alignment for individuals eligible for both Medicare and Medicaid on beneficiary outcomes and utilization of acute care services and long-term services and supports. This project is testing the hypothesis that the aligned delivery of Medicare and Medicaid-funded services to full-benefit duals is associated with improved health status and increased efficiency of health care utilization. A report is forthcoming in June 2019. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.3) |
Study impacts of managed care on health outcomes and quality. | ASPE |
Project underway. Final report is expected in 2020. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.G.5) |
Analyze pathways of eligibility for dually eligible beneficiaries. | HHS/ASPE |
ASPE has a project underway to identify the frequency with which the various eligibility pathways to Medicare-Medicaid dual eligible status are utilized and to understand the circumstances and characteristics of individuals surrounding their transition to dual status. A report is forthcoming in December 2018. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.4) |
Analyze pathways of eligibility for dually eligible beneficiaries. | ASPE |
A report is available on the ASPE website. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.G.6) |
Analyze maintenance and loss of dual eligibility status. | HHS/ASPE |
ASPE completed a project to document the frequency of Medicaid coverage loss among newly eligible full-benefit Medicare-Medicaid dual eligible beneficiaries and identify potential causes for coverage loss. This policy brief aimed to identify potential causes for the loss of Medicaid coverage among full-benefit dual eligible beneficiaries and better understand the relationship between states' Medicaid eligibility and enrollment policies and reasons for loss of Medicaid coverage. A report is forthcoming in December 2018. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.5) |
Analyze maintenance and loss of dual eligibility status. | ASPE |
A report is available on the ASPE website. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.G.7) |
Understand issues specific to the "triple-user" population. | HHS/ASPE |
ASPE has a project underway to better understand the demographics, service utilization patterns, health status and policy challenges facing the population that is simultaneously eligible for Medicare, Medicaid, and VHA benefits. This project will explore the demographics and service use patterns of veterans who use multiple systems of care, with a special focus on triple-users, to better understand how these veterans compare to other populations with multiple system use. A report is forthcoming in December 2018. |
| NATIONAL PLAN 2019 UPDATE (Action 2.G.6) |
Understand issues specific to the "triple-user" population. | ASPE |
A report is forthcoming in December 2019. |
STRATEGY 2.H: Improve Care for Populations Disproportionately Affected by Alzheimer's Disease and Related Dementias, and for Populations Facing Care Challenges
Below are the Actions that have been listed under Strategy 2.H since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 2.H Narrative links | |||
| 2019 Strategy 2.H | 2018 Strategy 2.H | 2017 Strategy 2.H | 2016 Strategy 2.H |
| 2015 Strategy 2.H | 2014 Strategy 2.H | 2013 Strategy 2.H | 2012 Strategy 2.H |
2.H Actions Table of Contents
- Compare outcomes for dual eligible beneficiaries in integrated care models.
- Create a task force to improve care for these specific populations.
- Create an opportunity for providers to discuss services for persons with younger-onset dementia.
- Create funding opportunities for organizations to improve care for these specific populations.
- Enhance understanding of models of family support for people with intellectual and developmental disabilities as they age.
- Identify steps to ensure access to long-term services and supports for younger people with Alzheimer's disease.
- Target resources towards the intellectual and developmental disabilities and dementia population.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 2.H.1) |
Create a taskforce to improve care for these specific populations. | HHS/ASPE, ADD |
August 2012; January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 2.H.1) |
Create a taskforce to improve care for these specific populations. | HHS/ASPE, ACL/AIDD |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 2.H.1) |
Create a taskforce to improve care for these specific populations. | HHS/ASPE, ACL/AIDD |
Improving Care for Populations Disproportionately Affected by Alzheimer's Disease and Related Dementias: Report from the Task Force on Specific Populations |
| NATIONAL PLAN 2015 UPDATE (Action 2.H.1) |
Create a task force to improve care for these specific populations. | HHS/ASPE, ACL/AIDD |
Improving Care for Populations Disproportionately Affected by Alzheimer's Disease and Related Dementias: Report from the Task Force on Specific Populations |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.H.1) |
Create funding opportunities for organizations to improve care for these specific populations. | ACL/AoA |
ACL awarded 11 grants in 2015. ACL anticipates awarding 10 new grants in 2016. Note that future grants are contingent on availability of funding. |
| NATIONAL PLAN 2017 UPDATE (Action 2.H.1) |
Create funding opportunities for organizations to improve care for these specific populations. | ACL/AoA |
ACL awarded 11 grants in 2015. ACL anticipates awarding 10 new grants in 2016. Note that future grants are contingent on availability of funding. |
| NATIONAL PLAN 2018 UPDATE (Action 2.H.1) |
Create funding opportunities for organizations to improve care for these specific populations. | ACL |
ACL awarded 11 community-based grants in 2017 for a total of 43 projects in 28 states and Puerto Rico awarded since 2014. ACL anticipates awarding additional grants in 2018. Note that future grants are contingent on availability of funding. |
| NATIONAL PLAN 2019 UPDATE (Action 2.H.1) |
Create funding opportunities for organizations to improve care for these specific populations. | ACL |
In 2018, 19 state and community programs received funding, bringing the total number of programs funded since 2014 to 63. NOTE: future grants are contingent on availability of funding. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 2.H.2) |
Identify steps to ensure access to long-term services and supports for younger people with Alzheimer's disease. | AoA, OD, ADD |
March 2013; July 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 2.H.2) |
Identify steps to ensure access to long-term services and supports for younger people with Alzheimer's disease. | ACL |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 2.H.2) |
Identify steps to ensure access to long-term services and supports for younger people with Alzheimer's disease. | ACL |
Improving Care for Populations Disproportionately Affected by Alzheimer's Disease and Related Dementias: Report from the Task Force on Specific Populations |
| NATIONAL PLAN 2015 UPDATE (Action 2.H.2) |
Identify steps to ensure access to long-term services and supports for younger people with Alzheimer's disease. | ACL/AoA |
Improving Care for Populations Disproportionately Affected by Alzheimer's Disease and Related Dementias: Report from the Task Force on Specific Populations |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.H.4) |
Enhance understanding of models of family support for people with intellectual disabilities as they age. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 2.H.4) |
Enhance understanding of models of family support for people with intellectual disabilities as they age. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 2.H.2) |
Enhance understanding of models of family support for people with intellectual and developmental disabilities as they age. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.H.2) |
Enhance understanding of models of family support for people with intellectual and developmental disabilities as they age. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 2.H.2) |
Enhance understanding of models of family support for people with intellectual and developmental disabilities as they age. | ACL |
This report presents the findings and resources to the community of providers who primarily serve older adults. It provides a broad overview of the services and support system for persons with intellectual and developmental disabilities affected by dementia and their caregivers, examples of cross-network initiatives, and resources for improving dementia care across agencies and organizations that serve this population. This paper presents the current state of services and support system for persons with intellectual and developmental disabilities who have dementia. There is recognition in the aging and intellectual and developmental disabilities networks that states are in a transition period where the future of services will be more person-centered and focused on integration in the community. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 2.H.3) |
Create an opportunity for providers to discuss services for persons with younger-onset dementia. | ACL |
Webinars |
| NATIONAL PLAN 2015 UPDATE (Action 2.H.3) |
Create an opportunity for providers to discuss services for persons with younger-onset dementia. | ACL/AoA |
Webinars |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 2.H.3) |
Compare outcomes for dual eligible beneficiaries in integrated care models. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 2.H.3) |
Compare outcomes for dual eligible beneficiaries in integrated care models. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 2.H.3) |
Target resources towards the intellectual and developmental disabilities and dementia population. | ACL |
ACL, through its Alzheimer's disease and related dementias grant programs and National Alzheimer's and Dementia Resource Center, has targeted program resources to the intellectual and developmental disabilities and dementia issue. At the White House Conference on Aging in July 2015, ACL released their Intellectual and Developmental Disabilities and Dementia Report on the current state of services and support system for persons with intellectual and developmental disabilities living with dementia. The brief provides a broad overview of the services and support system for persons with intellectual and developmental disabilities affected by dementia and their caregivers. Since the 2014 inception of their community grant program, ACL has required that participating grantees develop programs that include "improvement of the quality and effectiveness of program and services dedicated to individuals aging with IDD and ADRD or at high risk of developing ADRD". Each year since 2015, the National Alzheimer's and Dementia Resource Center has included an intellectual and developmental disabilities and dementia-specific webinar in their annual webinar series.
|
| NATIONAL PLAN 2019 UPDATE (Action 2.H.2) |
Target resources towards the IDD and dementia population. | ACL |
Through its Alzheimer's disease and related dementias grant programs and NADRC, ACL continues to target program resources to the IDD and dementia issue. At the White House Conference on Aging in July 2015, ACL released their IDD and Dementia Report on the current state of services and support system for persons with IDD living with dementia. Providing a broad overview of the services and support system for persons with IDD affected by dementia and their caregivers. ACL requires that grantees develop programs that include "improvement of the quality and effectiveness of program and services dedicated to individuals aging with IDD and ADRD or at high risk of developing ADRD". Each year since 2015, NADRC has included an IDD and dementia-specific webinar in their annual webinar series, all of which can be found at: In 2019, NADRC published a new guide entitled IDD and Dementia: Practical Strategies for Professionals: Practical Strategies for Professionals which provides background and strategies for professionals working with individuals living with IDD and dementia. |
GOAL 3: Expand Supports for People with Alzheimer's Disease and Related Dementias and Their Families
Below are the Strategies and Actions that have been listed under Goal 3 since 2012.
| GOAL 3 Narrative Links | |||
| 2019 Goal 3 | 2018 Goal 3 | 2017 Goal 3 | 2016 Goal 3 |
| 2015 Goal 3 | 2014 Goal 3 | 2013 Goal 3 | 2012 Goal 3 |
STRATEGY 3.A: Ensure Receipt of Culturally-Sensitive Education, Training, and Support Materials
Below are the Actions that have been listed under Strategy 3.A since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 3.A Narrative links | |||
| 2019 Strategy 3.A | 2018 Strategy 3.A | 2017 Strategy 3.A | 2016 Strategy 3.A |
| 2015 Strategy 3.A | 2014 Strategy 3.A | 2013 Strategy 3.A | 2012 Strategy 3.A |
3.A Actions Table of Contents
- Distribute federally-developed educational materials.
- Distribute materials to caregivers.
- Identify culturally sensitive materials and training.
- Increase awareness of the importance of brain health for Tribal communities in culturally-sensitive ways.
- Increase awareness of the importance of brain health in culturally-sensitive ways.
- Utilize health information technology for caregivers and persons with Alzheimer's disease and related dementias.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.A.1) |
Identify culturally sensitive materials and training. | ACL |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.A.1) |
Identify culturally sensitive materials and training. | ACL |
Webinars |
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.A.2) |
Distribute materials to caregivers. | AoA |
March 2013; July 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Fact sheets For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.A.1, Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Fact sheets For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Networks serving caregivers have frequent opportunities for webinars, consultation, and grants to better serve caregivers. Fact sheets For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Networks serving caregivers have frequent opportunities for webinars, consultation, and grants to better serve caregivers. Fact sheets NIA's Alzheimer's Disease Education and Referral center continues to offer free information on Alzheimer's disease and related dementias caregiving For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 3.A.2) |
Distribute materials to caregivers. | ACL |
Networks serving caregivers have frequent opportunities for webinars, consultation, and grants to better serve caregivers. National Alzheimer's and Dementia Resource Center Fact sheets NIA's Alzheimer's Disease Education and Referral center continues to offer free information in English and Spanish on Alzheimer's disease and related dementias caregiving in print and online, as well as through our information and referral helpline, a weekly email alert specifically on caregiving issues, and social media (Facebook and Twitter). For more information: |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.A.3) |
Utilize health information technology for caregivers and persons with Alzheimer's disease. | AHRQ |
June 2013; December 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.A.3) |
Utilize health information technology for caregivers and persons with Alzheimer's disease. | AHRQ |
July 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.A.3) |
Utilize health information technology for caregivers and persons with Alzheimer's disease. | AHRQ |
Grant awarded (#1P50 HS 019917) and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Results will be available in 2016. |
| NATIONAL PLAN 2015 UPDATE (Action 3.A.3) |
Utilize health information technology for caregivers and persons with Alzheimer's disease. | AHRQ |
Grant awarded (#1P50 HS 019917) and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Results will be available in 2016. |
| NATIONAL PLAN 2016 UPDATE (Action 3.A.2) |
Utilize health information technology for caregivers and persons with Alzheimer's disease and related dementias. | AHRQ |
Grant awarded (#1P50 HS 019917) and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Recruited 400 people who have used the suite, participants were surveyed. Analysis underway and results will be available by July 2016. Grant awarded (#5R18HS027836) to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2017 UPDATE (Action 3.A.2) |
Utilize health information technology for caregivers and persons with Alzheimer's disease and related dementias. | AHRQ |
Grant #1P50 HS 019917 awarded and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Recruited 400 people who have used the suite, participants were surveyed. Analysis underway and results will be available by July 2016. Grant #5R18HS027836 awarded to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2018 UPDATE (Action 3.A.2) |
Utilize health information technology for caregivers and persons with Alzheimer's disease and related dementias. | AHRQ |
Grant awarded (#1P50 HS 019917) and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Recruited 400 people who have used the suite, participants were surveyed. Analysis underway and results will be available by July 2016. Grant awarded (#5R18HS027836) to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2019 UPDATE (Action 3.A.2) |
Utilize HIT for caregivers and persons with Alzheimer's disease and related dementias. | AHRQ |
Grant awarded (1P50 HS 019917) and used to create Elder Tree, a suite of electronic services to support older adults and their caregivers. The Elder Tree tool is being evaluated. Recruited 400 people who have used the suite, participants were surveyed. Analysis underway and results will be available by July 2016. Grant awarded (5R18HS027836) to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 3.A.3) |
Increase awareness of the importance of brain health in culturally sensitive ways. | CDC |
CDC supported the development of National Brain Health Center for African Americans. The mission of Brain Health Center is to raise awareness of the issues of cognitive health among African Americans by working through networks of faith-based institutions and by establishing partnerships with organizations and individuals dedicated to our mission. The 3 areas of focus of brain health education, mobilization and advocacy, and networking. The Brain Health Center serves as an information hub on the human brain that must be shared throughout all networks that reach and touch approximately 40 million African Americans living in the United States. Memory Sunday: Increasing Awareness of Alzheimer's Disease in Church Congregations. CDC supported the Balm in Gilead to develop and implement Memory Sunday, the Second Sunday in June, as a designated Sunday, within congregations serving African Americans, that provides education on Alzheimer's: prevention, treatment, research studies and caregiving. The purpose of Memory Sunday is to bring national and local attention to the tremendous burden that Alzheimer's disease and related dementias are having on the African American community; to utilize the power and influence of the African American pulpit to bring awareness; to distribute the facts about Alzheimer's disease; to encourage participation in research studies and to support persons living with Alzheimer's disease and their caregivers. |
| NATIONAL PLAN 2018 UPDATE (Action 3.A.3) |
Increase awareness of the importance of brain health in culturally sensitive ways. | CDC |
CDC supported the development of National Brain Health Center for African Americans. The mission of the Brain Health Center is to raise awareness of the issues of cognitive health among African Americans by working through networks of faith-based institutions and by establishing partnerships with organizations and individuals dedicated to the Center's mission. The three areas of focus are brain health education, mobilization and advocacy, and networking. The Brain Health Center serves as an information hub on the human brain that must be shared throughout all networks that reach and touch approximately 40 million African Americans living in the United States. CDC supported The Balm in Gilead to develop and implement Memory Sunday, the second Sunday in June, as a designated Sunday, within congregations serving African Americans, that provides education on Alzheimer's disease: prevention, treatment, research studies and caregiving. The purpose of Memory Sunday is to bring national and local attention to the tremendous burden that Alzheimer's disease and related dementias are having on the African American community; to utilize the power and influence of the African American pulpit to bring awareness; to distribute the facts about Alzheimer's disease; to encourage participation in research studies and to support persons living with Alzheimer's disease and their caregivers. CDC supported the Alzheimer's Association to develop, using Behavioral Risk Factor Surveillance System data, several fact sheets and infographics using the most current data, including a new infographic specifically demonstrating the effect of subjective cognitive decline on the African American population. These resources are made available on the Alzheimer's Association website, and distributed to a national network of state Alzheimer's Association offices, public health professionals, and decision makers. These resources are updated annually, as new data becomes available. By creating easy-to-read, visually appealing materials, uptake of knowledge is facilitated. In 2018, ACL's updated its Brain Health Resource, a presentation toolkit on brain health as we age. The resource was developed by ACL with scientific review by NIH and CDC for use at senior centers and in other community settings. Written in plain language, the evidence-based resource explains what people can do to help keep their brains functioning best. |
| NATIONAL PLAN 2019 UPDATE (Action 3.A.3) |
Increase awareness of the importance of brain health in culturally-sensitive ways. | CDC |
CDC supported the development of NBHCAA. The mission of NBHCAA is to raise awareness of the issues of cognitive health among African Americans by working through networks of faith-based institutions, and by establishing partnerships with organizations and individuals dedicated to the Center's mission. The 3 areas of focus are brain health education, mobilization and advocacy, and networking. NBHCAA serves as an information hub on the human brain that can be shared throughout all networks that reach and touch approximately 40 million African Americans living in the United States. CDC is working on a training program geared towards African American health professionals. Together with the Balm in Gilead, the CDC will train health professionals on issues affecting cognitive health among African Americans via partnerships with the National Black Nurses Association and National Medical Association. CDC supported the Balm in Gilead to develop and implement Memory Sunday, designated as the second Sunday in June, within congregations serving African Americans to provide education on Alzheimer's disease and related dementias: prevention, treatment, research studies and caregiving. The purpose of Memory Sunday is to bring national and local attention to the tremendous burden that Alzheimer's disease and related dementias is having on the African American community; to utilize the power and influence of the African American pulpit to bring awareness; to distribute the facts about Alzheimer's disease and related dementias; to encourage participation in research studies, and to support persons living with Alzheimer's disease and related dementias and their caregivers. CDC supports the Alzheimer's Association to develop, using BRFSS data, several fact sheets using the most current data. These resources are made available on the Alzheimer's Association's website and distributed to a national network of state Alzheimer's Association offices, public health professionals, and decision makers. These resources are updated annually, as new data becomes available. By creating easy-to-read, visually appealing materials, uptake of knowledge is facilitated. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.A.4) |
Increase awareness of the importance of brain health for Tribal communities in culturally sensitive ways. | CDC |
In conjunction with the Alzheimer's Association and other partners, CDC is developing a special edition of the "Public Health Road Map for Tribal Communities: The Healthy Brain Initiative Road Map for Indian Country". The original Road Map focuses on issues pertinent to state and local public health agencies and their partners. A companion Road Map for Indian Country has been designed specifically for public health systems serving American Indians, Alaskan Natives, and Native Hawaiians. CDC supported Association of State and Territorial Health Officials to develop culturally-sensitive materials to educate and empower tribes and Tribal populations about brain health and caregiving. The materials focus on cardiovascular risk factors related to brain health and caregiving issues for Tribal communities. |
| NATIONAL PLAN 2019 UPDATE (Action 3.A.4) |
Increase awareness of the importance of brain health for Tribal communities in culturally-sensitive ways. | CDC |
In conjunction with the Alzheimer's Association and other partners, the Road Map for Indian Country was released and disseminated to multiple stakeholders and Tribal nations. This Road Map for Indian Country has been designed specifically for public health systems serving AI/ANs and Native Hawaiians. Additionally, CDC developed infographics illustrating subjective cognitive decline and related functional limitations in AI/AN adults in order to education stakeholders and policy makers on brain health in Indian Country. CDC supported ASTHO to develop culturally-sensitive materials to educate and empower tribes and Tribal populations about brain health and caregiving. The materials focus on cardiovascular risk factors related to brain health and caregiving issues for Tribal communities.
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.A.1) |
Distribute federally-developed educational materials. | ACL |
ACL's NADRC develops and makes available resources in support of both paid and unpaid caregivers. Examples of such resources includes, but is not limited to:
The library of NARDC and ACL grantee developed resources for persons living with Alzheimer's disease and related dementias and their caregivers. Fact sheets NIA's ADEAR Center continues to update and offer free information in English and Spanish on Alzheimer's disease and related dementias caregiving in print and online, as well as through our information and referral helpline, a weekly email alert specifically on caregiving issues, and social media (Facebook and Twitter). |
STRATEGY 3.B: Enable Family Caregivers to Continue to Provide Care while Maintaining Their Own Health and Well-Being
Below are the Actions that have been listed under Strategy 3.B since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 3.B Narrative links | |||
| 2019 Strategy 3.B | 2018 Strategy 3.B | 2017 Strategy 3.B | 2016 Strategy 3.B |
| 2015 Strategy 3.B | 2014 Strategy 3.B | 2013 Strategy 3.B | 2012 Strategy 3.B |
3.B Actions Table of Contents
- Adapt and implement Resources for Enhancing Alzheimer's Caregiver Health in Tribal Communities.
- Collaborate to share information on long-term services and supports with Tribal providers.
- Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers.
- Determine economic impacts of programs to support informal caregivers.
- Develop a program to support enhanced financial literacy and preparedness of family caregivers.
- Develop and disseminate evidence-based interventions for people with Alzheimer's disease and related dementias and their caregivers.
- Develop and disseminate information to caregivers on Alzheimer's disease and related dementias and caregiving.
- Develop resources to encourage collaboration between VHA and State Lifespan Respite programs.
- Educate family caregivers about how to engage in disaster preparedness planning.
- Enhance understanding of state regulations on residential care and adult day health services.
- Examine technological solutions to support family caregivers.
- Identify and disseminate best practices for caregiver assessment and referral through the long-term services and supports system.
- Identify unmet service needs.
- Make behavioral symptom management education and training available to caregivers.
- Pilot evidence-based interventions for caregivers in Indian Country.
- Provide education on respite for caregivers of people with Alzheimer's disease.
- Provide effective caregiver interventions through Alzheimer's disease and related dementias-capable systems.
- Review the state of the art of evidence-based interventions that can be delivered by community-based organizations.
- Share information on caregiver support services between the Aging Network and VA.
- Share lessons learned through VA caregiver support strategies with federal partners.
- Support caregivers in crisis and emergency situations.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 3.B.1) |
Identify unmet service needs. | HHS/ASPE |
December 2012; February 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.1) |
Identify unmet service needs. | HHS/ASPE |
August 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.1) |
Identify unmet service needs. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.1) |
Identify unmet service needs. | HHS/ASPE |
Reports available |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.4) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and their caregivers. | NIA/NIH, CDC |
January 2013; June 2013; January 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.4) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and their caregivers. | NIA/NIH |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.4) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and their caregivers. | NIA/NIH | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.4) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and their caregivers. | NIH/NIA |
Several new NIA Roybal Centers are developing tools to support caregivers. NIA commissioned papers identified research needs related to Alzheimer's disease caregiving. Support new research to identify vulnerable caregivers and support their needs, including National Study of Caregiving survey. For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.1) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and related dementias and their caregivers. | NIH/NIA |
Release of 2 highly relevant PARs:
NIA staff has had several discussions with AoA staff about interventions that might be ready for dissemination within the AoA network. NIA and AoA have jointly supported a Funding Opportunity Announcement for translation of evidence-based research. NIA staff have participated in numerous meetings with AoA to share information and discuss opportunities to work together on dissemination of interventions within the AoA network. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.1) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and related dementias and their caregivers. | NIH/NIA |
Resources for dissemination NIA's Alzheimer's Disease Education and Referral center continues to offer free information on Alzheimer's disease and related dementias research and interventions Ongoing and newly released Funding Opportunity Announcements:
NIA staff has had several discussions with AoA staff about interventions that might be ready for dissemination within the AoA network. NIA and AoA have jointly supported a Funding Opportunity Announcement for translation of evidence-based research. NIA staff have participated in numerous meetings with AoA to share information and discuss opportunities to work together on dissemination of interventions within the AoA network. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.1) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and related dementias and their caregivers. | NIH/NIA |
ACL's National Alzheimer's and Dementia Resource Center continues to develop resources designed to support the translation and implementation of evidence based interventions in states and communities. ACL's grant programs to states and communities are designed to develop and enhance dementia-capable home and community-based services systems. These dementia-specific grants include the translation of evidence-based interventions into grantee communities. ACL compendium of evidence-based and evidence-informed interventions translated through grants to states and communities ACL-funded SPECIAL EDITION of ASA Generations: Supporting People with Dementia and Their Caregivers in the Community National Alzheimer's and Dementia Resource Center NIA's Alzheimer's Disease Education and Referral center continues to offer free information in English and Spanish on Alzheimer's disease and related dementias caregiving in print and online, as well as through our information and referral helpline, a weekly email alert specifically on caregiving issues, and social media (Facebook and Twitter). Dementia Care Summit Resources for dissemination Ongoing and newly released Funding Opportunity Announcements:
For more information: |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.1) |
Develop and disseminate evidence-based interventions for people with Alzheimer's disease and related dementias and their caregivers. | NIH/NIA |
NIA is supporting a study of care interventions for individuals with dementia and their caregivers. ACL's grant programs to states and communities are designed to develop and enhance dementia-capable HCBS systems. All grantees are required to include evidence-based or evidence-informed interventions in their funded programs. In 2018, 19 state and community programs received funding, bringing the total number of programs funded since 2014 to 63. Subject to appropriations, ACL anticipates continuing the program to increase the availability of evidence-based interventions across the country. ACL's ADPI and the NADRC continue to support the translation and implementation of dementia-specific evidence-based interventions in states and communities across the nation. ACL programs have supported the implementation of 15 evidence-based interventions, preparing some to be taken to scale across the nation. For example, NIA funded the research behind SAVVY Caregiver and ACL-funded provider pilot programs that enabled an estimated 20,000 caregivers to receive the intervention. Grantee-Implemented Evidence-Based and Evidence-Informed Interventions ACL-funded SPECIAL EDITION of ASA Generations: Supporting People with Dementia and Their Caregivers in the Community. NIA's ADEAR Center continues to update and offer free information in English and Spanish on Alzheimer's disease and related dementias caregiving in print and online, as well as through our information and referral helpline, a weekly email alert specifically on caregiving issues, and social media (Facebook and Twitter). The 2017 Dementia Care and Services Summit, sponsored by HHS and private sector organizations, developed national recommendations for research priorities on care and services for PWD and their families. A total of 58 main research recommendations resulted from nearly 700 recommendations submitted by Summit participants. Resources for dissemination Ongoing and newly released FOAs:
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.2) |
Identify and disseminate best practices for caregiver assessment and referral through the long-term services and supports system. | AoA |
December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.2) |
Identify and disseminate best practices for caregiver assessment and referral through the long-term services and supports system. | ACL/AoA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.2) |
Identify and disseminate best practices for caregiver assessment and referral through the long-term services and supports system. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.2) |
Identify and disseminate best practices for caregiver assessment and referral through the long-term services and supports system. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.5) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA |
August 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.5) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.5) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA |
Grants will be awarded September 2014. Closed grant reports. |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.5) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.2) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA |
New grants are awarded each year as funding permits. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.2) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL/AoA |
New grants are awarded each year as funding permits. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.2) |
Provide effective caregiver interventions through Alzheimer's disease-capable systems. | ACL |
New grants to states and communities are awarded each year as funding permits. ACL compendium of evidence-based and evidence-informed interventions translated through grants to states and communities |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.2) |
Provide effective caregiver interventions through Alzheimer's disease and related dementias-capable systems. | ACL |
ACL's grant programs to states and communities are designed to develop and enhance dementia-capable HCBS systems. ACL programs have supported the implementation of 15 evidence-based interventions, preparing some to be taken to scale across the nation. In 2018, 19 state and community programs received funding, bringing the total number of programs funded since 2014 to 63. Subject to appropriations, ACL anticipates continuing the program to increase the availability of evidence-based interventions across the country. Grantee-Implemented Evidence-Based and Evidence-Informed Interventions. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.3) |
Review the state of the art of evidence-based interventions that can be delivered by community-based organizations. | ACL/AoA |
September 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.3) |
Review the state of the art of evidence-based interventions that can be delivered by community-based organizations. | ACL/AoA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.3) |
Review the state of the art of evidence-based interventions that can be delivered by community-based organizations. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.3) |
Review the state of the art of evidence-based interventions that can be delivered by community-based organizations. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.B.9) |
Collaborate to share information on long-term services and supports with Tribal providers. | ACL/AoA |
August 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.9) |
Collaborate to share information on long-term services and supports with Tribal providers. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.9) |
Collaborate to share information on long-term services and supports with tribal providers. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.3) |
Collaborate to share information on long-term services and supports with Tribal providers. | ACL/AoA |
Presentations occur at Indian Country meetings and webinars. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.3) |
Collaborate to share information on long-term services and supports with Tribal providers. | ACL/AoA |
Presentations occur at Indian Country meetings and webinars. November 2016 Tribal long-term services and supports conference in Minneapolis, Minnesota. Ongoing webinar series through the CMS/IHS/ACL long-term services and supports technical assistance website. A CMS-funded baseline survey of Tribal long-term services and supports is in development. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.3) |
Collaborate to share information on long-term services and supports with Tribal providers. | ACL |
Dissemination of dementia-specific information through presentations occur at Indian Country meetings and webinars. |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.3) |
Collaborate to share information on LTSS with Tribal providers. | ACL |
Through its Title VI program ACL disseminates dementia-specific information to LTSS providers in Indian Country. The culturally-appropriate information is presented at meetings, webinars and written materials. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.12) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.12) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.4) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL/AoA |
AoA will continue to contribute funding to this public-private effort, assuming Congressional appropriations continue. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.4) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL/AoA |
AoA will continue to contribute funding to this public-private effort, assuming Congressional appropriations continue. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.4) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL |
ACL continues to contribute funding to this public-private effort. |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.4) |
Continue to promote use of the National Alzheimer's Call Center to provide information, advice, and support to people with dementia or their caregivers. | ACL |
ACL continues to contribute funding to this public-private effort. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.13) |
Make behavioral symptom management education and training available to caregivers. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.13) |
Make behavioral symptom management education and training available to caregivers. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.5) |
Make behavioral symptom management education and training available to caregivers. | ACL/AoA |
2015 grants made and more anticipated in 2016 |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.5) |
Make behavioral symptom management education and training available to caregivers. | ACL/AoA |
2015 grants made and more anticipated in 2016. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.5) |
Make behavioral symptom management education and training available to caregivers. | ACL |
ACL requires that all community grants include behavioral symptom management activities to support caregivers in their programs. |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.5) |
Make behavioral symptom management education and training available to caregivers. | ACL |
ACL continues to expand efforts to develop more dementia-capable LTSS systems designed to meet the needs of Alzheimer's disease and related dementias caregivers. ACL requires that all ADPI community grants include behavioral symptom management and expert consultations to support caregivers in their programs. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.6) |
Share lessons learned through VA caregiver support strategies with federal partners. | VA |
June 2012; November 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.6) |
Share lessons learned through VA caregiver support strategies with federal partners. | VA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.6) |
Share lessons learned through VA caregiver support strategies with federal partners. | VA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.6) |
Share lessons learned through VA caregiver support strategies with federal partners. | VA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.17) |
Examine technological solutions to support family caregivers. | AHRQ | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.17) |
Examine technological solutions to support family caregivers. | AHRQ | |
| NATIONAL PLAN 2016 UPDATE (Action 3.B.6) |
Examine technological solutions to support family caregivers. | AHRQ |
Grant awarded (#5R18HS027836) to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.6) |
Examine technological solutions to support family caregivers. | AHRQ |
Grant #5R18HS027836 awarded to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.6) |
Examine technological solutions to support family caregivers. | AHRQ |
Grant awarded (5R18HS027836) to evaluate use of remote sensory technology to help manage persons with Alzheimer's disease and related dementias and study impact on ability of caregivers to manage family member with Alzheimer's disease and related dementias. Recruited 60 caregivers, systems installed and caregivers trained. The recruitment goal is 100. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.B.7) |
Support caregivers in crisis and emergency situations. | AoA |
April 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.B.7) |
Support caregivers in crisis and emergency situations. | ACL/AoA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.7) |
Support caregivers in crisis and emergency situations. | ACL/AoA |
Webinars |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.7) |
Support caregivers in crisis and emergency situations. | ACL/AoA |
Webinars |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.B.7) |
Adapt and Implement Resources for Enhancing Alzheimer's Caregiver Health in Tribal Communities. | IHS |
Baseline in February 2015 was 3 communities (the Resources for Enhancing Alzheimer's Caregiver Health VA Pilot Sites). Implementation in 50 Tribal communities by February 2018. |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.7) |
Adapt and Implement Resources for Enhancing Alzheimer's Caregiver Health in Tribal Communities. | IHS |
Baseline in February 2015 was 3 communities (the Resources for Enhancing Alzheimer's Caregiver Health-VA Pilot Sites). 47 communities reached as of April 2017. Implementation began in February 2015, with 47 Communities as of December 2016.
Implementation in 50 Tribal communities by February 2018. Focus in final year is on sustainability. |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.7) |
Adapt and implement Resources for Enhancing Alzheimer's Caregiver Health in Tribal Communities. | IHS |
Initial phase completed with 80 Resources for Enhancing Alzheimer's Caregiver Health certified caregiver support coaches in 56 Tribal communities, serving at least 55 caregivers as of February 2018. Second phase of the effort is focused on strategies to increase penetration of Resources for Enhancing Alzheimer's Caregiver Health in the communities where there are certified coaches and on building additional, sustainable options for evidence-based caregiver support services. Developing Extension for Community Healthcare Outcomes project model to support Caregiver Coaches in Tribal Communities. |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.6) |
Adapt and implement REACH in Tribal communities. | IHS |
Initial phase completed with 80 REACH certified caregiver support coaches in 56 Tribal communities, serving at least 55 caregivers as of February 2018. Second phase of the effort is focused on strategies to increase penetration of REACH in the communities where there are certified coaches and on building additional, sustainable options for evidence-based caregiver support services. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.B.8) |
Provide education on respite for caregivers of people with Alzheimer's disease. | ACL |
July 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.8) |
Provide education on respite for caregivers of people with Alzheimer's disease. | ACL | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.8) |
Provide education on respite for caregivers of people with Alzheimer's disease. | ACL |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.B.8) |
Determine economic impacts of programs to support informal caregivers. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 3.B.8) |
Determine economic impacts of programs to support informal caregivers. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 3.B.8) |
Determine economic impacts of programs to support informal caregivers. | HHS/ASPE |
ASPE completed a study on the economic impacts of programs to support informal caregivers. This research aims to provide a framework for policy makers to begin estimating costs and benefits of policies and programs aimed to help caregivers, including, for example, respite care, paid family leave, and workplace flexibility policies. A report will be posted shortly. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.B.9) |
Develop and disseminate information to caregivers on Alzheimer's disease and related dementias and caregiving. | CDC |
CDC highlights the need for care planning for those with AD and their caregivers. Care plans can reduce emergency room visits, hospitalizations, and improve overall medical management for people with a chronic health condition, like Alzheimer's disease resulting in better quality of life for all care recipients.
Annually ACL, through the National Alzheimer's and Dementia Resource Center and its grant programs, continues to develop and make available web content on issues relevant to paid and unpaid caregivers. 2018 tools for caregivers include a handbook for caregivers helping people living alone with no known supports, a toolkit to aide caregivers and persons with dementia in preparing for disasters, as well as a toolkit for first responders working with persons with dementia. Guide for Professionals on Practical Strategies for Persons with Dementia Living Alone |
| NATIONAL PLAN 2019 UPDATE (Action 3.B.7) |
Develop and disseminate information to caregivers on Alzheimer's disease and related dementias and caregiving. | CDC |
CDC has developed a downloadable care planning tool to assist people with Alzheimer's disease and related dementias and their caregivers. Care plans can reduce emergency room visits, hospitalizations, and improve overall medical management for people with a chronic health condition, like Alzheimer's disease and related dementias resulting in better quality of life for all care recipients. CDC has developed a series of web features on topics including helping people with Alzheimer's disease and related dementias and their caregivers stay physically active, care plans for older adults and their caregivers; and the truth about aging and dementia.
Annually ACL, through NADRC and its grant programs, continues to develop and make available web content on issues relevant to paid and unpaid caregivers. In addition to hosting 10 webinars on a broad range of Alzheimer's disease and related dementias topics, NADRC has developed several resources:
Available resources |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.B.10) |
Share information on caregiver support services between the Aging Network and VA. | ACL/AoA |
June 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.10) |
Share information on caregiver support services between the Aging Network and VA. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.10) |
Share information on caregiver support services between the Aging Network and VA. | ACL/AoA |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.B.11) |
Pilot evidence-based interventions for caregivers in Indian Country. | IHS |
June 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 3.B.11) |
Pilot evidence-based interventions for caregivers in Indian Country. | IHS, ACL/AoA |
Pilot programs in progress and will be assessed over 2014. |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.11) |
Pilot evidence-based interventions for caregivers in Indian Country. | IHS, ACL/AoA |
Pilot programs in progress and will be assessed over 2014. |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.14) |
Develop resources to encourage collaboration between VHA and State Lifespan Respite programs. | ACL/AOA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.14) |
Develop resources to encourage collaboration between VHA and State Lifespan Respite programs. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.15) |
Educate family caregivers about how to engage in disaster preparedness planning. | HHS/ASPR | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.15) |
Educate family caregivers about how to engage in disaster preparedness planning. | HHS/ASPR | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.B.16) |
Enhance understanding of state regulations on residential care and adult day health services. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 3.B.16) |
Enhance understanding of state regulations on residential care and adult day health services. | HHS/ASPE |
Regulatory Review of Adult Day Services: Final Report Compendium of Residential Care and Assisted Living Regulations and Policy available fall 2015. |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.B.8) |
Develop a program to support enhanced financial literacy and preparedness of family caregivers. | ACL |
Family caregivers often lack adequate information and resources to properly manage the financial concerns of their loved ones. ACL introduced a new program to address the need to advance the understanding financial literacy of family caregivers. The program will address that need through development and testing new interventions, as well as identification and dissemination of best practices. |
STRATEGY 3.C: Assist Families in Planning for Future Care Needs
Below are the Actions that have been listed under Strategy 3.C since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 3.C Narrative links | |||
| 2019 Strategy 3.C | 2018 Strategy 3.C | 2017 Strategy 3.C | 2016 Strategy 3.C |
| 2015 Strategy 3.C | 2014 Strategy 3.C | 2013 Strategy 3.C | 2012 Strategy 3.C |
3.C Actions Table of Contents
- Examine awareness of long-term care needs and barriers to planning for these needs.
- Expand long-term care awareness efforts.
- Understand functional trajectories of people with Alzheimer's disease and related dementias at the end of life.
- Understand how families find and access long-term services and supports.
- Understand long-term care financing and service delivery models.
- Understanding the availability of caregivers for individuals with Long-term services and supports needs.
- Understand the future of Medicaid long-term services and supports.
- Understand the risks and costs of cognitive impairments.
- Understand the use of advance care planning for people with cognitive impairment, including Alzheimer's disease and related dementias.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 3.C.1) |
Examine awareness of long-term care needs and barriers to planning for these needs. | HHS/ASPE |
January 2013; April 2013; August 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.C.1) |
Examine awareness of long-term care needs and barriers to planning for these needs. | HHS/ASPE |
January 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 3.C.1) |
Examine awareness of long-term care needs and barriers to planning for these needs. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 3.C.1) |
Examine awareness of long-term care needs and barriers to planning for these needs. | HHS/ASPE |
Survey has been completed, and results are being analyzed. Colloquium to be held in early summer 2015 to release data and results. |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.C.1) |
Understand how families find and access long-term services and supports. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 3.C.1) |
Understand how families find and access long-term services and supports. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.C.1) |
Understand the future of Medicaid long-term services and supports. | HHS/ASPE |
This report examines the role of long-term services and supports in Medicaid. It also examines how sociodemographic changes are likely to affect the demand for long-term services and supports in the future, and as a result, Medicaid use and expenditures. The report shows: the demand for long-term services and supports is likely to increase dramatically; long-term services and supports is a major part of the Medicaid program, accounting for about a 3rd of total expenditures, and Medicaid is the dominant payer of long-term services and supports. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.C.2) |
Expand long-term care awareness efforts. | AoA |
June 2012; December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.C.2) |
Expand long-term care awareness efforts. | ACL |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.C.2) |
Expand long-term care awareness efforts. | ACL |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.C.2) |
Expand long-term care awareness efforts. | ACL |
For more information: |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.C.2) |
Understand long-term care financing and service delivery models. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 3.C.2) |
Understand long-term care financing and service delivery models. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.C.2) |
Understand functional trajectories of people with Alzheimer's disease and related dementias at the end of life. | HHS/ASPE |
This project is a follow-on the Institute of Medicine's work on advanced dementia in 2015-2016. ASPE is working on a project to understanding how the functional trajectories of people with dementia differ from those without dementia in the last few years of life, as well how these trajectories vary based on other characteristics. The project will also examine corresponding differences in health care utilization in the last few years of life to determine if there are differences between people with and without dementia. |
| NATIONAL PLAN 2019 UPDATE (Action 3.C.1) |
Understand the functional trajectories of people with Alzheimer's disease and related dementias at the end of life. | ASPE |
In late 2019, ASPE will release a report and issue brief describing the differences in functional trajectories in the last 4 years of life between people with dementia and people without dementia. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.C.2) |
Understand the use of advance care planning for people with cognitive impairment, including Alzheimer's disease and related dementias. | ASPE |
ASPE has a project underway evaluating the use of ACP among individuals with traditional Medicare, who have cognitive impairment, including Alzheimer's disease and related dementias. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.C.3) |
Understand the risks and costs of cognitive impairments. | ASPE |
Findings from this project are expected in 2020. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.C.4) |
Understanding the availability of caregivers for individuals with Long-term services and supports needs. | ASPE |
Findings from this project are expected in 2020. |
STRATEGY 3.D: Maintain the Dignity, Safety and Rights of People with Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 3.D since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 3.D Narrative links | |||
| 2019 Strategy 3.D | 2018 Strategy 3.D | 2017 Strategy 3.D | 2016 Strategy 3.D |
| 2015 Strategy 3.D | 2014 Strategy 3.D | 2013 Strategy 3.D | 2012 Strategy 3.D |
3.D Actions Table of Contents
- Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries.
- Educate fiduciaries about managing the finances of people with Alzheimer's disease.
- Educate law enforcement about interacting with Alzheimer's disease and related dementias.
- Educate legal professionals about working with people with Alzheimer's disease.
- Enhance training to prevent abuse in long-term care setting.
- Expand access to treatment for people with mental health and substance use disorders.
- Expand coverage of behavioral health services via employment-based health plans and health insurance.
- Identify research and policy priorities for addressing self-neglect.
- Improve the ability of Alzheimer's disease information and referral systems to identify abuse or neglect.
- Improve the ability of legal services to address the needs of people with Alzheimer's disease and related dementias.
- Incorporate elder abuse awareness into Aging Network activities.
- Monitor, report, and reduce inappropriate use of antipsychotics in nursing homes.
- Translate and disseminate information on abuse of people with dementia.
- Work with communities to develop best practices for protecting people with Alzheimer's disease and related dementias.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 3.D.1) |
Educate legal professionals about working with people with Alzheimer's disease. | AoA |
August 2012; October 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.D.1) |
Educate legal professionals about working with people with Alzheimer's disease. | ACL/AoA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.1) |
Educate legal professionals about working with people with Alzheimer's disease. | ACL/AoA |
Training materials |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.1) |
Educate legal professionals about working with people with Alzheimer's disease. | ACL/AoA |
Training materials |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.D.2) |
Monitor, report, and reduce inappropriate use of anti-psychotics in nursing homes. | CMS |
December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 3.D.2) |
Monitor, report and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.2) |
Monitor, report and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
Information for Ombudsman Program For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.2) |
Monitor, report and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
Information for Ombudsman Program For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.1) |
Monitor, report and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
CMS continues to make progress on the National Partnership to Improve Dementia Care. In 2011 quarter 4, 23.9% of long-stay nursing home residents were receiving an antipsychotic medication; since then there has been a decrease of 28.8% to a national prevalence of 17% in 2015 quarter 4. Success has varied by state and CMS region, with some states and regions having seen a reduction of greater than 20%. Information for Ombudsman Program For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.1) |
Monitor, report and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
CMS continues to make progress on the National Partnership to Improve Dementia Care. For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.1) |
Monitor, report, and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
The Partnership met its goal of reducing the national prevalence of antipsychotic use in long-stay nursing home residents by 30% by the end of 2016 and recently announced a new goal of a 15% reduction by the end of 2019 for long-stay residents in those homes with currently limited reduction rates (late adopters). CMS continues to conduct Focused Dementia Care Surveys, first initiated in 2014, to assist in determining compliance with areas such as quality dementia care, the use of non-pharmacological approaches, and utilization of antipsychotic medications. These focused reviews examine the process for prescribing antipsychotic medications and assess compliance with other federal requirements related to dementia care practices in nursing homes. CMS has launched Civil Money Penalty Reinvestment Program, a 3-year effort to drive improvements in quality of life and quality of care for nursing home residents. Civil Money Penalty Reinvestment Program is funded by the federal portion of CMP funds to conduct activities that support and protect nursing home residents. This program will build on other CMS initiatives, such as the National Partnership. A multi-pronged approach, that focuses on those homes that have been identified as late adopters, is being utilized. Through this effort, CMS will provide technical assistance, as well as use a Breakthrough Community collaborative model. |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.1) |
Monitor, report, and reduce inappropriate use of antipsychotics in nursing homes. | CMS |
The Partnership met its goal of reducing the national prevalence of antipsychotic use in long-stay nursing home residents by 30% by the end of 2016 and recently announced a new goal of a 15% reduction by the end of 2019 for long-stay residents in those homes with currently limited reduction rates (late adopters). CMS also worked with SAMHSA to issue guidance on community antipsychotic prescribing. CMS continues CMPRP, an effort to drive improvements in quality of life and quality of care for nursing home residents. CMPRP is funded by the federal portion of CMP funds to conduct activities that support and protect nursing home residents. This program builds on other CMS initiatives such as the National Partnership. A multi-pronged approach that focuses on those homes that have been identified as late adopters is being utilized. CMS also hosts regular Medicare Learning Network calls, some to address dementia-related issues.
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.4) |
Incorporate elder abuse awareness into aging network activities. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.4) |
Incorporate elder abuse awareness into Aging Network activities. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.4) |
Incorporate elder abuse awareness into Aging Network activities. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.2) |
Incorporate elder abuse awareness into Aging Network activities. | ACL/AoA | |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.2) |
Incorporate elder abuse awareness into Aging Network activities. | ACL/AoA | |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.2) |
Incorporate elder abuse awareness into Aging Network activities. | ACL |
ACL continues to fund programs designed to address elder abuse. National Center on Elder Abuse is funded by ACL and, through their programs, addresses all facets of elder abuse. |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.2) |
Incorporate elder abuse awareness into Aging Network activities. | ACL |
ACL continues to fund programs designed to address elder abuse. NCEA is funded by ACL and, through their programs, addresses all facets of elder abuse. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.3) |
Enhance training to prevent abuse in long-term care setting. | ACL/AoA |
June 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.3) |
Enhance training to prevent abuse in long-term care setting. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.3) |
Enhance training to prevent abuse in long-term care setting. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.5) |
Translate and disseminate information on abuse of people with dementia. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.5) |
Translate and disseminate information on abuse of people with dementia. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.5) |
Translate and disseminate information on abuse of people with dementia. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.3) |
Translate and disseminate information on abuse of people with dementia. | ACL/AoA |
Conducted NIH Workshop on Multiple Approaches to Understanding and Preventing Elder Abuse |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.3) |
Translate and disseminate information on abuse of people with dementia. | ACL/AoA |
In 2016, NIH published an Age Page on Elder Abuse to educate the public and disseminate information about types of elder abuse, dealing with caregiver stress, and how to help. |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.3) |
Translate and disseminate information on abuse of people with dementia. | ACL |
ACL continues to fund programs designed to address elder abuse. National Center on Elder Abuse is funded by ACL and, through their programs, addresses all facets of elder abuse, including the abuse of individuals living with dementia. In 2016, NIH published an Age Page on Elder Abuse to educate the public and disseminate information about types of elder abuse, dealing with caregiver stress, and how to help. |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.3) |
Translate and disseminate information on abuse of people with dementia. | ACL |
ACL continues to fund programs designed to address elder abuse. NCEA is funded by ACL and, through their programs, addresses all facets of elder abuse, including the abuse of individuals living with dementia. NIA produces online and print content on Elder Abuse including a new infographic to educate the public and disseminate information about types of elder abuse, dealing with caregiver stress, and how to help. NIA is actively seeking research in this area. New and ongoing FOAs:
|
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.6) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.6) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease. | ACL/AoA |
Grants were awarded in July 2013. National Long-Term Care Ombudsman program held a webinar on legal issues related to nursing facility discharge. |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.6) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease. | ACL/AoA |
Grants were awarded in July 2013. National Long-Term Care Ombudsman program held a webinar on legal issues related to nursing facility discharge. |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.4) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease and related dementias. | ACL/AoA |
New contract for the National Center on Law and Elder Rights and new grants are available under the Model Approaches program |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.4) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease and related dementias. | ACL/AoA |
New contract for the National Center on Law and Elder Rights and new grants are available under the Model Approaches program. |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.4) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease and related dementias. | ACL |
ACL grants to states and communities include pilot programs designed to make dementia-capable legal services available to persons with dementia and their caregivers. Program participants are providing dementia training to legal services providers, as well as implementing voucher programs to aide in advance planning. In 2017, National Alzheimer's and Dementia Resource Center designed and published Living with Dementia: Advance Planning Guides (4 guides) for Persons with Dementia and Caregivers ACL's National Alzheimer's and Dementia Resource Center continues to work closely with the American Bar Association's Commission on Law and Aging in the development of resources that support persons with dementia and their caregivers in legal matters. ACL funds the National Center on Law and Elder Rights and grants under the Model Approaches program. |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.4) |
Improve the ability of legal services to address the needs of people with Alzheimer's disease and related dementias. | ACL |
ACL grants to states and communities include pilot programs designed to make dementia-capable legal services available to persons with dementia and their caregivers. Program participants are providing dementia training to legal services providers, as well as implementing voucher programs to aide in advance planning. In 2018, NADRC partnered with the ABA Commission on Law and Aging to develop the Handbook for Helping People Living Alone with Dementia Who Have No Known Support. Among other things it provides practical guidance as well as tools for helping a person living alone who does not have informal supports. The Handbook includes practical strategies for identifying people who are living alone without support, assessing risk, building trust, identifying family and friends willing to help, determining decision making capacity, options for helping the person maintain their independence, and the basics of guardianship or conservatorship. In 2017, NADRC designed and published Living with Dementia: Advance Planning Guides (4 guides) for Persons with Dementia and Caregivers. ACL's NADRC continues to work closely with the ABA's Commission on Law and Aging in the development of resources that support persons with dementia and their caregivers in legal matters. ACL funds the National Center on Law and Elder Rights and grants under the Model Approaches program. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE (Action 3.D.9) |
Educate law enforcement about interacting with Alzheimer's disease. | DoJ | |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.6) |
Educate law enforcement about interacting with Alzheimer's disease and related dementias. | DoJ |
March 2016: Launch of 10 regional Elder Justice Task Forces. These teams will bring together federal, state and local prosecutors, law enforcement, and agencies that provide services to the elderly, to coordinate and enhance efforts to pursue nursing homes that provide grossly substandard care to their residents. |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.6) |
Educate law enforcement about interacting with Alzheimer's disease and related dementias. | DoJ |
March 2016: Launch of 10 regional Elder Justice Task Forces. These teams will bring together federal, state and local prosecutors, law enforcement, and agencies that provide services to the elderly, to coordinate and enhance efforts to pursue nursing homes that provide grossly substandard care to their residents. |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.6) |
Educate law enforcement about interacting with Alzheimer's disease and related dementias. | DoJ |
March 2016: Launch of 10 regional Elder Justice Task Forces. These teams will bring together federal, state and local prosecutors, law enforcement, and agencies that provide services to the elderly, to coordinate and enhance efforts to pursue nursing homes that provide grossly substandard care to their residents. As part of their funded grans, several ACL Alzheimer's Disease Initiative-Specialized Supportive Services community projects are training law enforcement and other first responders. 1 grantee created a series well received law enforcement training videos to address wandering, driving and encountering disoriented individuals on "house calls". For more information: |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.5) |
Educate law enforcement about interacting with Alzheimer's disease and related dementias. | DoJ |
March 2016: Launch of 10 regional Elder Justice Task Forces. These teams bring together federal, state and local prosecutors, law enforcement, and agencies that provide services to the elderly, to coordinate and enhance efforts to pursue nursing homes that provide grossly substandard care to their residents. As part of their funded grants, several ACL ADI-SSS community projects are training law enforcement and other first responders. One grantee created a series well-received law enforcement training videos to address wandering, driving and encountering disoriented individuals on "house calls". |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 3.D.9) |
Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries. | SSA, ACL | |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.8) |
Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries. | SSA | |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.5) |
Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries. | SSA |
Volunteer Representative Payee Pilot Program results include the development and testing of protocols and materials to assist in the identification and training of individuals to serve as volunteer representative payees. Once the modules are complete, SSA will conduct a media campaign to build awareness of the pilot's results. |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.5) |
Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries. | SSA |
Volunteer Representative Payee Pilot Program results include the development and testing of protocols and materials to assist in the identification and training of individuals to serve as volunteer representative payees. Once the modules are complete, SSA will conduct a media campaign to build awareness of the pilot's results. |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.5) |
Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries. | SSA |
Volunteer Representative Payee Pilot Program results include the development and testing of protocols and materials to assist in the identification and training of individuals to serve as volunteer representative payees. SSA conducted a media campaign to build awareness of the pilot's results. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.7) |
Improve the ability of Alzheimer's disease information and referral systems to identify abuse or neglect. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.7) |
Improve the ability of Alzheimer's disease information and referral systems to identify abuse or neglect. | ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 3.D.8) |
Educate fiduciaries about managing the finances of people with Alzheimer's disease. | CFPB |
October 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.D.8) |
Educate fiduciaries about managing the finances of people with Alzheimer's disease. | CFPB |
Lay fiduciary guides |
| NATIONAL PLAN 2015 UPDATE (Action 3.D.7) |
Educate fiduciaries about managing the finances of people with Alzheimer's disease. | CFPB |
Lay fiduciary guides |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE (Action 3.D.10) |
Work with communities to develop best practices for protecting people with Alzheimer's disease. | DoJ | |
| NATIONAL PLAN 2016 UPDATE (Action 3.D.7) |
Work with communities to develop best practices for protecting people with Alzheimer's disease and related dementias. | DoJ |
DoJ Elder Abuse Information |
| NATIONAL PLAN 2017 UPDATE (Action 3.D.7) |
Work with communities to develop best practices for protecting people with Alzheimer's disease and related dementias. | DoJ |
DoJ Elder Abuse Information |
| NATIONAL PLAN 2018 UPDATE (Action 3.D.7) |
Work with communities to develop best practices for protecting people with Alzheimer's disease and related dementias. | DoJ |
DoJ Elder Abuse Information |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.6) |
Work with communities to develop best practices for protecting people with Alzheimer's disease and related dementias. | DoJ |
DoJ Elder Abuse Information |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.D.8) |
Expand access to treatment for people with mental health and substance use disorders. | HHS/ASPE, SAMHSA |
Mental Health and Substance Use Disorder Parity Task Force Mental Health and Substance Use Disorder Parity Task Force--Final Report Work will continue on this issue will continue under numerous other agencies referenced in the Final Report |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.D.8) |
Expand coverage of behavioral health services via employment-based health plans and health insurance. | HHS/ASPE |
ASPE, along with representatives from CMS, SAMHSA, DoL, Treasury, and OPM held a series of public listening sessions on parity implementation in order to develop an Action Plan for Enhanced Enforcement of Mental Health and Substance Use Disorder Coverage. |
| NATIONAL PLAN 2019 UPDATE (Action 3.D.7) |
Expand coverage of behavioral health services via employment-based health plans and health insurance. | ASPE |
ASPE, along with representatives from CMS, SAMHSA, DoL, Treasury, and OPM held a series of public listening sessions on parity implementation in order to develop an Action Plan for Enhanced Enforcement of Mental Health and Substance Use Disorder Coverage. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 3.D.8) |
Identify research and policy priorities for addressing self-neglect. | ASPE |
A summary of the expert meeting will be posted on the ASPE website in 2020. |
STRATEGY 3.E: Assess and Address the Housing Needs of People with Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 3.E since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 3.E Narrative links | |||
| 2019 Strategy 3.E | 2018 Strategy 3.E | 2017 Strategy 3.E | 2016 Strategy 3.E |
| 2015 Strategy 3.E | 2014 Strategy 3.E | 2013 Strategy 3.E | 2012 Strategy 3.E |
3.E Actions Table of Contents
- Assess utilization of home health benefits.
- Evaluate Support And Services at Home program.
- Examine patterns of housing and services.
- Explore affordable housing models.
- Understand and analyze unlicensed care homes.
- Understand use of Medicare and Medicaid funded health services among older adults in HUD-assisted housing.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 3.E.1) |
Explore affordable housing models. | HHS/ASPE, HUD |
November 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.E.1) |
Explore affordable housing models. | HHS/ASPE, HUD |
December 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.E.1) |
Explore affordable housing models. | HHS/ASPE, HUD |
The first report from this project |
| NATIONAL PLAN 2015 UPDATE (Action 3.E.1) |
Explore affordable housing models. | HHS/ASPE, HUD |
The Value Added of Linking Publicly Assisted Housing for Low-Income Older Adults with Enhanced Services: A Literature Syntheses and Environmental Scan SASH Evaluation: First Annual Report |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.E.1) |
Understand use of Medicare and Medicaid funded health services among older adults in HUD-assisted housing. | HHS/ASPE, HUD |
Part 1: Picture of Housing and Health: Medicare and Medicaid use of Older Adults in HUD-Assisted Housing Part 2: Publication expected later in 2016. |
| NATIONAL PLAN 2017 UPDATE (Action 3.E.1) |
Understand use of Medicare and Medicaid funded health services among older adults in HUD-assisted housing. | HHS/ASPE, HUD |
Picture of Housing and Health: Medicare and Medicaid use of Older Adults in HUD-Assisted Housing Picture of Housing and Health Part 2: Medicare and Medicaid Use Among Older Adults in HUD-Assisted Housing, Controlling for Confounding Factors |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.E.2) |
Evaluate SASH program. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 3.E.2) |
Evaluate SASH program. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 3.E.1) |
Evaluate SASH program. | HHS/ASPE |
ASPE and HUD continue to evaluate the SASH program in Vermont. Early findings show a promising model of coordinated health and supportive services within affordable housing settings. Latest report HUD Article |
| NATIONAL PLAN 2019 UPDATE (Action 3.E.1) |
Evaluate the SASH program. | ASPE |
New ASPE SASH reports:
The HUD Cityscape paper on SASH: The Impact of the Vermont Support and Services at Home Program on Healthcare Expenditures |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 3.E.2) |
Examine patterns of housing and services. | HHS/ASPE, NCHS |
March 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 3.E.2) |
Examine patterns of housing and services. | HHS/ASPE, NCHS |
July 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 3.E.2) |
Examine patterns of housing and services. | HHS/ASPE, CDC/NCHS |
Data brief |
| NATIONAL PLAN 2015 UPDATE (Action 3.E.2) |
Examine patterns of housing and services. | HHS/ASPE, CDC/NCHS |
Data brief |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 3.E.2) |
Assess utilization of home health benefits. | HHS/ASPE |
ASPE continues to study the growth in use of the Medicare home health benefit by community-admitted users. The Medicare home health payment policy for fee-for-service has undergone several changes in the past decades. There have also been overall increases in Medicare home health utilization. Growth in utilization has been particularly strong for community-admitted users (those individuals for whom home health episodes are not preceded by a hospitalization or post-acute care. MedPAC has suggested that this is indicative of the fact that some beneficiaries may be using the home health benefit as a long-term care benefit. Several alternative explanations for the growth of the community-admitted users are plausible. Indeed, a recent Academy Health meeting on post-acute care noted that as the American population ages, those with chronic conditions will likely cycle between post-acute care and chronic care services. This research will focus on detailed beneficiary characteristics and the trajectory of care of the community-admitted users to clarify the source of the growth in the benefit for this group of beneficiaries using home health, identify possible gaps in care or inefficient use of services, and inform benefit design. |
| NATIONAL PLAN 2019 UPDATE (Action 3.E.2) |
Assess utilization of home health benefits. | ASPE |
ASPE is now working on research to better understand trends in home health care use in Medicare Advantage compared to traditional Medicare. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 3.E.3) |
Understand and analyze unlicensed care homes. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 3.E.3) |
Understand and analyze unlicensed care homes. | HHS/ASPE |
For more information: |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
GOAL 4: Enhance Public Awareness and Engagement
Below are the Strategies and Actions that have been listed under Goal 4 since 2012.
| GOAL 4 Narrative Links | |||
| 2019 Goal 4 | 2018 Goal 4 | 2017 Goal 4 | 2016 Goal 4 |
| 2015 Goal 4 | 2014 Goal 4 | 2013 Goal 4 | 2012 Goal 4 |
STRATEGY 4.A: Educate the Public about Alzheimer's Disease and Related Dementias
Below are the Actions that have been listed under Strategy 4.A since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 4.A Narrative links | |||
| 2019 Strategy 4.A | 2018 Strategy 4.A | 2017 Strategy 4.A | 2016 Strategy 4.A |
| 2015 Strategy 4.A | 2014 Strategy 4.A | 2013 Strategy 4.A | 2012 Strategy 4.A |
4.A Actions Table of Contents
- Dementia Chart Book.
- Design and conduct a national education and outreach initiative.
- Enhance public outreach about Alzheimer's disease and related dementias.
- Expand access to treatment for people with mental health and substance use disorders.
- Facilitate translation of data and surveillance to inform the public.
- Publish a pamphlet to provide the public with information on dementia.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | AoA |
July 2012; January 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | ACL |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | ACL | |
| NATIONAL PLAN 2015 UPDATE (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | CDC |
CDC in partnership with the Balm in Gilead is educating African Americans about cognition and brain health through faith-based organizations and medical organizations. Additionally, Healthy Brain Research Network is conducting a series of focus groups to test educational messages in racially, ethnically, and geographically diverse samples. |
| NATIONAL PLAN 2017 UPDATE (Action 4.A.1) |
Design and conduct a national education and outreach initiative. | CDC |
CDC in partnership with the Balm in Gilead is educating African Americans about cognition and brain health through faith-based organizations and medical organizations. Additionally, Healthy Brain Research Network is conducting a series of focus groups to test educational messages in racially, ethnically, and geographically diverse samples. |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 4.A.2) |
Enhance public outreach about Alzheimer's disease. | ACL, NIH/NIA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.A.2) |
Enhance public outreach about Alzheimer's disease. | ACL, NIH/NIA |
For more information: |
| NATIONAL PLAN 2015 UPDATE (Action 4.A.2) |
Enhance public outreach about Alzheimer's disease. | ACL/AoA NIH/NIA |
NIH/NIA Alzheimer's Disease Education and Referral center For more information: |
| NATIONAL PLAN 2016 UPDATE (Action 4.A.2) |
Enhance public outreach about Alzheimer's disease and related dementias. | ACL/AoA NIH/NIA |
NIA operates Alzheimer's Disease Education and Referral center, the primary Federal Government resource for information about Alzheimer's disease and related dementias, research, and caregiving. The Alzheimer's Disease Education and Referral center educates the public about the latest research findings and provides evidence-based information online, in print and via a call center. Information about Alzheimer's disease and related dementias, participation in clinical trials, and caregiving is freely available. NIA promotes Alzheimer's Disease Education and Referral center's resources through outreach in the research and care communities and through the media and advocacy organizations, via weekly e-alerts to more than 50,000 subscribers, and social media outreach to more than 10,000 followers. For more information: |
| NATIONAL PLAN 2017 UPDATE (Action 4.A.2) |
Enhance public outreach about Alzheimer's disease and related dementias. | ACL/AoA, NIH/NIA |
NIA operates the Alzheimer's Disease Education and Referral center, the primary Federal Government resource for information about Alzheimer's disease and related dementias, research, and caregiving. The Alzheimer's Disease Education and Referral center educates the public about the latest research findings and provides evidence-based information online, in print and via a call center. Information about Alzheimer's disease and related dementias, participation in clinical trials, and caregiving is freely available. NIA promotes Alzheimer's Disease Education and Referral center's resources through outreach in the research and care communities and through the media and advocacy organizations, via weekly e-alerts to more than 50,000 subscribers, and social media outreach to more than 10,000 followers. Beginning in 2017, NIA will manage alzheimers.gov to continue to expand public outreach about Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2018 UPDATE (Action 4.A.1) |
Enhance public outreach about Alzheimer's disease and related dementias. | ACL, NIH/NIA |
Through its grant and resource center programs, ACL continues to build awareness of Alzheimer's disease and related dementias. All ACL grantees include awareness and outreach in their programs. Numerous grantee programs include dementia-friendly community activities in their projects, partnering with established Alzheimer's disease and related dementias stakeholders, as well as training volunteer educators of community organizations including, but not limited to, faith-based organizations, business leaders and grass roots volunteer organizations like Rotary clubs. NIA operates the Alzheimer's Disease Education and Referral center, the primary Federal Government resource for information about Alzheimer's disease and related dementias, research, and caregiving. The Alzheimer's Disease Education and Referral center educates the public about the latest research findings and provides evidence-based information online, in print and via a call center. Information about Alzheimer's disease and related dementias, participation in clinical trials, and caregiving is freely available. NIA promotes Alzheimer's Disease Education and Referral center's resources through outreach in the research and care communities and through media and advocacy organizations, via weekly e-alerts to more than 50000 subscribers, and social media outreach to more than 10000 followers. For more information: |
| NATIONAL PLAN 2019 UPDATE (Action 4.A.1) |
Enhance public outreach about Alzheimer's disease and related dementias. | ACL, NIH/NIA |
Through its grant and resource center programs, ACL continues to build awareness of Alzheimer's disease and related dementias. All ACL grantees include awareness and outreach in their programs. Numerous grantee programs include dementia-friendly community activities in their projects, partnering with established Alzheimer's disease and related dementias stakeholders, as well as training volunteer educators of community organizations including, but not limited to, faith-based organizations, business leaders and grass roots volunteer organizations like Rotary Clubs. ACL's NADRC website is an establish hub for resources to support community outreach and education efforts. The website offers a broad range of resources to support the development and implementation of community-based Alzheimer's disease and related dementias education programs. NIA operates the ADEAR Center, the primary Federal Government resource for information about Alzheimer's disease and related dementias, research, and caregiving. The ADEAR Center educates the public about the latest research findings and provides evidence-based information online, in print and via a call center. Information about Alzheimer's disease and related dementias, participation in clinical trials, and caregiving is freely available. NIA promotes ADEAR's resources through outreach in the research and care communities and through media and advocacy organizations, via weekly e-alerts to more than 50,000 subscribers, and social media outreach to more than 10,000 followers. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE (Action 4.A.4) |
Dementia Chart Book. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 4.A.2) |
Dementia Chart Book. | HHS/ASPE |
ASPE completed a chart book, "Older Adults with Dementia and Their Caregivers in 2015: Key Indicators from the National Health and Aging Trends Study", which describes the population of community-dwelling people with dementia in the United States and their caregivers. Dementia was more prevalent among people who were over age 80, had lower educational attainment, and were not non-Hispanic White. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE (Action 4.A.3) |
Expand access to treatment for people with mental health and substance use disorders. | HHS/ASPE |
Presidential Memorandum--Mental Health and Substance Use Disorder Parity Task Force |
| NATIONAL PLAN 2017 UPDATE (Action 4.A.3) |
Expand access to treatment for people with mental health and substance use disorders. | HHS/ASPE |
Presidential Memorandum--Mental Health and Substance Use Disorder Parity Task Force |
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 4.A.3) |
Facilitate translation of data and surveillance to inform the public. | CDC |
CDC supports the Alzheimer's Association to develop, using Behavioral Risk Factor Surveillance System data, several fact sheets and infographics using the most current data. These resources are made available on the Alzheimer's Association website, and distributed to a national network of state Alzheimer's Association offices, public health professionals, and decision makers. These resources are updated annually, as new data becomes available. By creating easy-to-read, visually appealing materials, uptake of knowledge is facilitated. CDC also supported the Alzheimer's Association to develop a Needs Assessment Toolkit that serves as Guidance and Resources for state Public Health Agencies on Comprehensive Needs Assessments Related to Alzheimer's and Other Dementias. This document aims to increase the use of information and insights to appropriately respond to the growing public health burden associated with Alzheimer's disease and other dementias through comprehensive needs assessments. These are at the core of a state's ability to effectively use information to develop, implement, and maintain state plans that are focused either exclusively on Alzheimer's disease and related dementias, or more broadly on the incorporation of cognitive health and impairment into other state public health plans. Public health agencies have a high level of expertise related to developing and conducting needs assessments. This toolkit has been developed to help states leverage their expertise in conducting needs assessments to enhance their ability to gather and use information specifically related to Alzheimer's disease and related dementias. |
| NATIONAL PLAN 2019 UPDATE (Action 4.A.2) |
Facilitate translation of data and surveillance to inform the public. | CDC |
CDC partnered with the Alzheimer's Association to develop, using BRFSS data, several fact sheets and infographics. CDC has also developed additional infographics co-branded with the Alzheimer's Association as well as IHS. These resources are marketed on their website, and distributed to a national network of state Alzheimer's Association offices, public health professionals, and decision makers. These resources are updated annually, as new data becomes available. By creating easy-to-read, visually appealing materials, uptake of knowledge is facilitated. In 2019, CDC translated the national caregiving and subjective cognitive decline infographics in to Spanish and develop corresponding infographics for African American, AI/AN, and Hispanic adults. State of Aging and Health in America: Data Brief Series are topic-specific documents focusing on public health issues related to older adults developed by CDC and NACDD. These briefs provide public health professionals with the most recent data available on health and aging-related conditions, including the importance of brain health, the management of chronic conditions, and caregiving burdens, to help identify needs and mitigate the future effects of a growing older population. The briefs also provide data by important breakdowns such as by state, age, gender, and ethnicity which can be useful for states and other stakeholders in making informed decisions and policies related to these issues. CDC also supported the Alzheimer's Association to develop a Needs Assessment Toolkit that serves as Guidance and Resources for state Public Health Agencies on Comprehensive Needs Assessments Related to Alzheimer's disease and related dementias. This document aims to increase the use of information and insights to appropriately respond to the growing public health burden associated with Alzheimer's disease and related dementias through comprehensive needs assessments. These are at the core of a state's ability to effectively use information to develop, implement, and maintain state plans that are focused either exclusively on Alzheimer's disease and related dementias, or more broadly on the incorporation of cognitive health and impairment into other state public health plans. Public health agencies have a high level of expertise related to developing and conducting needs assessments. This toolkit has been developed to help states leverage their expertise in conducting needs assessments to enhance their ability to gather and use information specifically related to Alzheimer's disease and related dementias. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 4.A.4) |
Publish a pamphlet to provide the public with information on dementia. | NIH/NIA, NIH/NINDS |
NINDS and NIA have updated and published "The Dementias: Hope Through Research," a pamphlet that is meant to provide the general public with in-depth information about Alzheimer's disease and related dementias, including common symptoms, diagnosis, and available therapies. |
| NATIONAL PLAN 2019 UPDATE | |||
STRATEGY 4.B: Work with State, Tribal, and Local Governments to Improve Coordination and Identify Model Initiatives to Advance Alzheimer's Disease and Related Dementias Awareness and Readiness across the Government
Below are the Actions that have been listed under Strategy 4.B since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 4.B Narrative links | |||
| 2019 Strategy 4.B | 2018 Strategy 4.B | 2017 Strategy 4.B | 2016 Strategy 4.B |
| 2015 Strategy 4.B | 2014 Strategy 4.B | 2013 Strategy 4.B | 2012 Strategy 4.B |
4.B Actions Table of Contents
- Build upon lessons learned to improve the dementia-capability of state and local service systems.
- Continue to convene federal partners.
- Convene leaders from state, Tribal, and local governments.
- Develop and update a public health Road Map for assisting state, Tribal, and local health departments in prioritizing actions.
- Facilitate translation of data and surveillance into public health practice and the public.
- Facilitate translation of findings into public Health Practice for State and Local Health departments and their partners.
- Facilitate translation of findings into public health practice in Tribal communities.
- Get Tribal input on Alzheimer's disease and related dementias and support improved coordination between Indian Health Service, Tribal, and Urban Indian Health programs and the Tribal Aging Network.
- Support improved coordination between IHS, Tribal, and Urban Indian Health programs and the Tribal Aging Network around 4 person-centered goals.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 4.B.1) |
Convene leaders from state, Tribal, and local governments. | OEA, IHS |
October 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 4.B.1) |
Convene leaders from state, Tribal, and local governments. | IEA |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 4.B.1) |
Convene leaders from state, Tribal, and local governments. | IEA | |
| NATIONAL PLAN 2015 UPDATE (Action 4.B.1) |
Convene leaders from state, Tribal, and local governments. | IEA | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 4.B.2) |
Continue to convene federal partners. | HHS/ASPE |
December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 4.B.2) |
Continue to convene federal partners. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.B.2) |
Continue to convene federal partners. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 4.B.2) |
Continue to convene federal partners. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 4.B.1) |
Continue to convene federal partners. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 4.B.1) |
Continue to convene federal partners. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2018 UPDATE (Action 4.B.1) |
Continue to convene federal partners. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2019 UPDATE (Action 4.B.1) |
Continue to convene federal partners. | ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 4.B.3) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL/AoA |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.B.3) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL/AoA |
Alzheimer's Disease Supportive Services Program learning collaborative results |
| NATIONAL PLAN 2015 UPDATE (Action 4.B.3) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL/AoA |
Alzheimer's Disease Supportive Services Program learning collaborative results |
| NATIONAL PLAN 2016 UPDATE (Action 4.B.2) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL/AoA |
Alzheimer's Disease Supportive Services Program learning collaborative results Alzheimer's Disease Supportive Services Program and Alzheimer's Disease Initiative-Specialized Supportive Services grantees and their Resource Center provide new and improved resources every year. |
| NATIONAL PLAN 2017 UPDATE (Action 4.B.2) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL/AoA |
Alzheimer's Disease Supportive Services Program learning collaborative results Alzheimer's Disease Supportive Services Program and Alzheimer's Disease Initiative-Specialized Supportive Services grantees and their Resource Center provide new and improved resources every year. |
| NATIONAL PLAN 2018 UPDATE (Action 4.B.2) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL |
ACL's grants to states and communities (Alzheimer's Disease Supportive Services Program, Alzheimer's Disease Initiative-Specialized Supportive Services and Alzheimer's Disease Programs Initiative) and the National Alzheimer's and Dementia Resource Center provide new and improved resources every year. |
| NATIONAL PLAN 2019 UPDATE (Action 4.B.2) |
Build upon lessons learned to improve the dementia-capability of state and local service systems. | ACL |
HHS will improve the dementia-capability of state and community service systems through the ACL's ADPI and NADRC. ACL and NADRC have developed the Dementia Capability Assessment Tool designed to measure the dementia-capability of the LTSS in various organizations and measure improvement over time. ADPI grantees, partners and other collaborators will work in peer-led groups on specific activities to make state and local-level improvements related to dementia-capability. The peer-led groups will develop practical tools to promote the adoption of dementia-capable practices at the state and local-levels. HHS will help states and communities meet the needs of people with Alzheimer's disease and related dementias through an expanded Dementia Capability Toolkit and other, related resources. Additional materials will result from similar program activities. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 4.B.4) |
Get Tribal input on Alzheimer's disease. | IHS |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.B.4) |
Get Tribal input on Alzheimer's disease. | IHS | |
| NATIONAL PLAN 2015 UPDATE (Action 4.B.4) |
Get Tribal input on Alzheimer's disease. | IHS | |
| NATIONAL PLAN 2016 UPDATE (Action 4.B.3) |
Get Tribal input on Alzheimer's disease and related dementias. | IHS | |
| NATIONAL PLAN 2017 UPDATE (Action 4.B.3) |
Get Tribal input on Alzheimer's disease and related dementias, and support improved coordination between IHS, Tribal, and Urban Indian Health programs and the Tribal Aging Network around 4 person-centered goals. | IHS, ACL/AoA |
Alzheimer's Association meetings with the United South and Eastern Tribes and with the Northwest Portland Area Indian Health Board. Tribal representation on the Alzheimer's Association/CDC Health Brain Initiatives Road Map. |
| NATIONAL PLAN 2018 UPDATE (Action 4.B.3) |
Get Tribal input on Alzheimer's disease and related dementias, and support improved coordination between IHS, Tribal, and Urban Indian Health programs and the Tribal Aging Network around 4 person-centered goals. | IHS, ACL |
Alzheimer's Association meetings with the United South and Eastern Tribes and with the Northwest Portland Area Indian Health Board. Tribal representation on the Alzheimer's Association/CDC Health Brain Initiatives Road Map. |
| NATIONAL PLAN 2019 UPDATE (Action 4.B.3) |
Get Tribal input on Alzheimer's disease and related dementias and support improved coordination between IHS, Tribal, and Urban Indian Health programs and the Tribal Aging Network. | ASPE, VA |
HHS will solicit input from Tribal leaders on the impact of Alzheimer's disease and related dementias on Indian Country during the annual Tribal Consultation process and through broader meetings and convenings. HHS will use these opportunities to convene leaders and solicit input on the needs related to recognition, diagnosis, and support for individuals with dementia and their families. Alzheimer's Association has started meetings with the United South and Eastern tribes and with the Northwest Portland Area Indian Health Board. There has been increased Tribal representation on the Alzheimer's Association/CDC HBI Road Map for Indian Country work. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 4.B.5) |
Support improved coordination between IHS, Tribal, and Urban Indian health programs and the Tribal Aging Network around 4 person-centered goals. | IHS, ACL/AoA | |
| NATIONAL PLAN 2015 UPDATE (Action 4.B.5) |
Support improved coordination between IHS, Tribal, and urban Indian Health programs and the Tribal Aging Network around 4 person-centered goals. | IHS, ACL/AoA | |
| NATIONAL PLAN 2016 UPDATE (Action 4.B.4) |
Support improved coordination between IHS, Tribal, and Urban Indian Health programs and the Tribal Aging Network around 4 person-centered goals. | IHS, ACL/AoA | |
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 4.B.4) |
Facilitate translation of data and surveillance into public health practice and the public. | CDC |
CDC supports the Alzheimer's Association to develop, using Behavioral Risk Factor Surveillance System data, several fact sheets and infographics using the most current data. These resources are made available on the Alzheimer's Association website, and distributed to a national network of state Alzheimer's Association offices, public health professionals, and decision makers. These resources are updated annually, as new data becomes available. By creating easy-to-read, visually appealing materials, uptake of knowledge is facilitated. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 4.B.5) |
Facilitate translation of findings into public Health Practice for State and Local Health departments and their partners. | CDC |
CDC supports the Alzheimer's Association to co-develop the 3rd in a series of HBI Road Maps to advance cognitive health as an integral component of public health. This "Healthy Brain Initiative State and Local Public Health Partnerships to Address Dementia, The 2018-2023 Road Map", outlines how state and local public health agencies and their partners can continue to promote cognitive health, address cognitive impairment for people living in the community, and help meet the needs of caregivers. 25 specific actions are proposed in 4 traditional domains of public health: educate and empower, develop policies and mobilize partnerships, assure a competent workforce, and monitor and evaluate. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE (Action 4.B.6) |
Facilitate translation of findings into public Health Practice in Tribal Communities. | CDC |
In conjunction with the Alzheimer's Association and other partners, CDC is developing a special edition of the "Public Health Road Map for Tribal Communities: The Healthy Brain Initiative Road Map for Indian Country". The original Road Map focuses on issues pertinent to state and local public health agencies and their partners. A companion Road Map for Indian Country has been designed specifically for public health systems serving American Indians and Alaskan Natives. |
| NATIONAL PLAN 2019 UPDATE (Action 4.B.5) |
Facilitate translation of findings into public health practice in Tribal communities. | CDC |
In conjunction with the Alzheimer's Association and other partners, CDC is developing a special edition of the Public Health Road Map for Tribal Communities, the HBI Road Map for Indian Country. The original Road Map focuses on issues pertinent to state and local public health agencies and their partners. A companion Road Map for Indian Country has been designed specifically for public health systems serving AI/AN adults. Additionally, there are several companion materials to support brain health in Tribal communities developed by CDC in partnership with ASTHO and Alzheimer's Association. CDC and Alzheimer's Association, in collaboration with IHS, also produced infographics sharing data from the 2015-2017 BRFSS describing caregiving and subjective cognitive declines among AI/AN adults. State of Aging and Health in America: Data Brief Series, developed in collaboration with NACDD and CDC are topic-specific documents focusing on public health issues related to older adults. These briefs provide public health professionals with the most recent data available on health and aging-related conditions, including the importance of brain health, the management of chronic conditions, and caregiving burdens, to help identify needs and mitigate the future effects of a growing older population. The briefs also provide data by important breakdowns such as by state, age, gender, and ethnicity which can be useful for states and other stakeholders in making informed decisions and policies related to these issues. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 4.B.4) |
Develop and update a public health Road Map for assisting state, Tribal, and local health departments in prioritizing actions. | CDC |
CDC supported the Alzheimer's Association to co-develop the third in a series of HBI Road Maps to advance cognitive health as an integral component of public health. This HBI State and Local Public Health Partnerships to Address Dementia. The 2018-2023 Road Map outlines how state and local public health agencies and their partners can continue to promote cognitive health, address cognitive impairment for people living in the community, and help meet the needs of caregivers. 25 specific actions are proposed in 4 traditional domains of public health: educate and empower, develop policies and mobilize partnerships, assure a competent workforce, and monitor and evaluate. In collaboration with the Alzheimer's Association and numerous partners, the Road Map for Indian Country was released in 2019 and disseminated to multiple stakeholders and Tribal leaders. This Road Map for Indian Country has been designed specifically for public health systems serving AI/ANs and Native Hawaiians. |
STRATEGY 4.C: Coordinate United States Efforts with Those of the Global Community
Below are the Actions that have been listed under Strategy 4.C since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 4.C Narrative links | |||
| 2019 Strategy 4.C | 2018 Strategy 4.C | 2017 Strategy 4.C | 2016 Strategy 4.C |
| 2015 Strategy 4.C | 2014 Strategy 4.C | 2013 Strategy 4.C | 2012 Strategy 4.C |
4.C Actions Table of Contents
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
United States will participate in legacy meetings throughout 2014. The United States will host the final legacy meeting in February 2015. |
| NATIONAL PLAN 2015 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
United States participated in legacy meetings throughout 2014. United States hosted the final legacy meeting in February 2015, and was represented at the WHO dementia meeting in Geneva in March 2015. |
| NATIONAL PLAN 2016 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
United States participated in legacy meetings throughout 2014. United States hosted the final legacy meeting in February 2015, and was represented at the WHO Dementia meeting in Geneva in March 2015. |
| NATIONAL PLAN 2017 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
United States participated in legacy meetings throughout 2014. United States hosted the final legacy meeting in February 2015, and was represented at the WHO Dementia meeting in Geneva in March 2015. |
| NATIONAL PLAN 2018 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | HHS/ASPE |
United States participated in legacy meetings throughout 2014. United States hosted the final legacy meeting in February 2015, and was represented at the WHO Dementia meeting in Geneva in March 2015. International work in the dementia space is on hold pending administration priorities. |
| NATIONAL PLAN 2019 UPDATE (Action 4.C.1) |
Work with global partners to enhance collaboration. | ASPE |
The United States participated in the WHO's GDO in 2019. |
GOAL 5: Improve Data to Track Progress
Below are the Strategies and Actions that have been listed under Goal 5 since 2012.
| GOAL 5 Narrative Links | |||
| 2019 Goal 5 | 2018 Goal 5 | 2017 Goal 5 | 2016 Goal 5 |
| 2015 Goal 5 | 2014 Goal 5 | 2013 Goal 5 | 2012 Goal 5 |
STRATEGY 5.A: Enhance the Federal Government's Ability to Track Progress
Below are the Actions that have been listed under Strategy 5.A since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 5.A Narrative links | |||
| 2019 Strategy 5.A | 2018 Strategy 5.A | 2017 Strategy 5.A | 2016 Strategy 5.A |
| 2015 Strategy 5.A | 2014 Strategy 5.A | 2013 Strategy 5.A | 2012 Strategy 5.A |
5.A Actions Table of Contents
- Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and related dementias for federal agencies to use in analyses of administrative data.
- Develop and disseminate measures of awareness of Alzheimer's disease and related dementias.
- Identify major policy research needs.
- Identify needed changes or additions to data.
- Make needed improvements to data.
- Provide analysis of Behavioral Risk Factor Surveillance System data on Alzheimer's disease and related dementias and their caregivers in user-friendly formats.
- Summarize data on cognitive impairment across states.
- Summarize existing data on people with Alzheimer's disease and related dementias and their caregivers.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 5.A.1) |
Identify major policy research needs. | HHS/ASPE |
September 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 5.A.1) |
Identify major policy research needs. | HHS/ASPE |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 5.A.1) |
Identify major policy research needs. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.1) |
Identify major policy research needs. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 5.A.2) |
Identify needed changes or additions to data. | HHS/ASPE |
December 2012 |
| NATIONAL PLAN 2013 UPDATE (Action 5.A.2) |
Identify needed changes or additions to data. | HHS/ASPE |
October 2013 |
| NATIONAL PLAN 2014 UPDATE (Action 5.A.2) |
Identify needed changes or additions to data. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.2) |
Identify needed changes or additions to data. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.1) |
Identify needed changes or additions to data. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.1) |
Identify needed changes or additions to data. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.1) |
Identify needed changes or additions to data. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2019 UPDATE (Action 5.A.1) |
Identify needed changes or additions to data. | ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 5.A.3) |
Make needed improvements to data. | HHS/ASPE |
December 2014 |
| NATIONAL PLAN 2013 UPDATE (Action 5.A.3) |
Make needed improvements to data. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 5.A.3) |
Make needed improvements to data. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.3) |
Make needed improvements to data. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.2) |
Make needed improvements to data. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.2) |
Make needed improvements to data. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.2) |
Make needed improvements to data. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2019 UPDATE (Action 5.A.2) |
Make needed improvements to data. | ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 5.A.4) |
Summarize data on cognitive impairment across states. | CDC |
Summer 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 5.A.4) |
Summarize data on cognitive impairment across states. | CDC | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.4) |
Summarize data on cognitive impairment across states. | CDC | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.3) |
Summarize data on cognitive impairment across states. | CDC |
The 2013 data was recently analyzed and state-specific reports were developed and released. 2015 data was collected in 35 states and releases will begin in fall 2016. |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.3) |
Summarize data on cognitive impairment and caregiving across states. | CDC |
Behavioral Risk Factor Surveillance System Data and Data for Action. CDC worked with partners and revised the Behavioral Risk Factor Surveillance System Cognitive Decline and Caregiving Optional Modules, which were approved as official optional modules beginning in 2015. In 2015 and 2016, 51 states collected data using the Cognitive Decline Module and 40 states collected data using the Caregiving Module. Additional states are collecting data using the Cognitive Caregiving Modules in 2017. Findings from the 2015 cognitive and caregiving data are publically available on CDC's Healthy Aging Data Portal and fact sheets and infographics were developed for each participating states. Findings from 2016 Behavioral Risk Factor Surveillance System will be released late in 2017. CDC supported the development and collection of subjective cognitive decline and cognitive functioning data from the in-person NHANES are publically available for download and analysis. These data were collected in adults 60 years and older as part of the 2011-2012 and 2013-2014 data collection cycles. The data included in this release include results from 3 tests of cognitive function: CERAD. For more information: |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.3) |
Summarize data on cognitive impairment and caregiving across states. | CDC |
CDC worked with partners and revised the Behavioral Risk Factor Surveillance System Cognitive Decline and Caregiving Optional Modules, which were approved as official optional modules beginning in 2015. In 2015 and 2016, 51 states and territories collected data using the Cognitive Decline Module and 40 states collected data using the Caregiving Module. Additional states are collecting data using the Cognitive Caregiving Modules in 2017. Findings from the 2015 cognitive and caregiving data are publically available on CDC's Healthy Aging Data Portal and fact sheets and infographics were developed for each participating states. Findings from 2016 Behavioral Risk Factor Surveillance System will be released late in 2017
CDC supported the development and collection of subjective cognitive decline and cognitive functioning data from the in-person NHANES, which are publically available for download and analysis. These data were collected in adults 60 years and older as part of the 2011-2012 and 2013-2014 data collection cycles. The data included in this release include results from 3 tests of cognitive function: the CERAD Word Learning subtest, a test of Animal Fluency, and the Digit Symbol Substitution Test. Cognitive Functioning (CFQ_H 2013-2014) Cognitive Functioning (CFQ_G 2011-2012) |
| NATIONAL PLAN 2019 UPDATE (Action 5.A.3) |
Summarize data on cognitive impairment across states. | CDC |
CDC worked with partners and revised the BRFSS Cognitive Decline and Caregiver Optional Modules, which were approved as official optional modules beginning in 2015. In 2015 and 2016, 51 states and territories collected data using the Cognitive Decline Module and 40 states collected data using the Caregiver Module. Additional states collected data using the Cognitive Decline and Caregiver Modules in 2017. Findings from the 2015 cognitive and caregiving data are publicly available on CDC's Healthy Aging Data Portal and fact sheets and infographics were developed for each participating state. Findings from the 2017 BRFSS were released in late 2018 and national infographics with aggregated 2015-2017 data were developed for both the Cognitive Decline and Caregiver Modules. Additionally, state-specific infographics with the most recent year of data for both modules was released. State of Aging and Health in America: Data Brief Series, developed by CDC in collaboration with NACDD, are topic-specific documents focusing on public health issues related to older adults. These briefs provide public health professionals with the most recent data available on health and aging-related conditions, including the importance of brain health, the management of chronic conditions, and caregiving burdens, to help identify needs and mitigate the future effects of a growing older population. The briefs also provide data by important breakdowns such as by state, age, gender, and ethnicity which can be useful for states and other stakeholders in making informed decisions and policies related to these issues.
CDC supported the development and collection of subjective cognitive decline and cognitive functioning data from the in-person NHANES, which are publically available for download and analysis. These data were collected in adults 60 years and older as part of the 2011-2012 and 2013-2014 data collection cycles. The data included in this release include results from 3 tests of cognitive function: the CERAD Word Learning subtest, a test of Animal Fluency, and the Digit Symbol Substitution Test. Results from these tests were released by CDC in September 2019. Additionally, CDC is supporting cognitive testing utilizing the MoCA in additional years of NHANES data collection for both 2019-2020 and 2021-2022 data collection cycles. Cognitive Functioning (CFQ_H 2013-2014) Cognitive Functioning (CFQ_G 2011-2012) |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE (Action 5.A.5) |
Develop and disseminate measures of awareness of Alzheimer's disease. | CDC |
October 2014 |
| NATIONAL PLAN 2014 UPDATE (Action 5.A.5) |
Develop and disseminate measures of awareness of Alzheimer's disease. | CDC | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.5) |
Develop and disseminate measures of awareness of Alzheimer's disease. | CDC | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.4) |
Develop and disseminate measures of awareness of Alzheimer's disease. | CDC | |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.4) |
Develop and disseminate measures of awareness of Alzheimer's disease and related dementias. | CDC |
CDC is examining the validity of subjective cognitive questions used in national surveys by comparing self-rated perceptions of cognitive functioning to functional measures. The report will be released in 2018. |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.4) |
Develop and disseminate measures of awareness of Alzheimer's disease. | CDC |
CDC is examining the validity of subjective cognitive questions used in national surveys by comparing self-rated perceptions of cognitive functioning to functional measures. The report will be released in 2019. |
| NATIONAL PLAN 2019 UPDATE (Action 5.A.4) |
Develop and disseminate measures of awareness of Alzheimer's disease and related dementias. | CDC |
CDC is examining the validity of subjective cognitive questions used in national surveys by comparing self-rated perceptions of cognitive functioning to functional measures. The report will be released in 2019 in collaboration with NCHS. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 5.A.6) |
Summarize existing data on people with Alzheimer's disease and their caregivers. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.6) |
Summarize existing data on people with Alzheimer's disease and their caregivers. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.5) |
Summarize existing data on people with Alzheimer's disease and related dementias and their caregivers. | HHS/ASPE |
CDC is developing a brief report/fact sheet summarizing results from 2011-2013 Behavioral Risk Factor Surveillance System caregiver module with respect to those caring for person with Alzheimer's disease and related dementias. The documents will be released in late 2016. Results from the 24 states who administered the Behavioral Risk Factor Surveillance System caregiving module in 2015 will begin to be released in late 2016. |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.5) |
Summarize existing data on people with Alzheimer's disease and related dementias and their caregivers. | HHS/ASPE |
CDC's Healthy Aging Data Portal. The portal was updated with CDC Updates Public Data Portal on the Health of Older Adults. CDC recently updated the Healthy Aging Data Portal, which provides access to a range of national, regional, and state data on older adults. This resource was developed by the National Center for Chronic Disease Prevention and Health Promotion. It allows users to examine data on key indicators of health and well-being for older Americans, such as tobacco and alcohol use, screenings and vaccinations, and mental and cognitive health. 2015 Behavioral Risk Factor Surveillance System data, including data on cognitive decline from 35 states and data on caregivers from 24 states. Portal users can retrieve CDC data by indicator or by geographic area, and then use these data to develop reports and create customized maps, charts, and graphics. Public health professionals can use the data to create a snapshot of the health of older adults in their states, which can help them prioritize and evaluate public health interventions. |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.5) |
Summarize existing data on people with Alzheimer's disease and related dementias and their caregivers. | CDC |
CDC's Healthy Aging Data Portal, which provides access to a range of national, regional, and state data on older adults, was updated with the Public Data Portal on the Health of Older Adults. This resource was developed by the National Center for Chronic Disease Prevention and Health Promotion. It allows users to examine data on key indicators of health and well-being for older Americans, such as tobacco and alcohol use, screenings and vaccinations, and mental and cognitive health. 2016 Behavioral Risk Factor Surveillance System data, including data on cognitive decline from 49 states, DC and Puerto Rico and data on caregivers from 38 states, DC and Puerto Rico is now available. Portal users can retrieve CDC data by indicator or by geographic area, and then use these data to develop reports and create customized maps, charts, and graphics. Public health professionals can use the data to create a snapshot of the health of older adults in their states, which can help them prioritize and evaluate public health interventions. |
| NATIONAL PLAN 2019 UPDATE (Action 5.A.5) |
Summarize existing data on people with Alzheimer's disease and related dementias and their caregivers. | CDC |
CDC's AD and Healthy Aging Data Portal, which provides access to a range of national, regional, and state data on older adults, was updated with the Public Data Portal on the Health of Older Adults. This resource was developed by the National Center for Chronic Disease Prevention and Health Promotion. It allows users to examine data on key indicators of health and well-being for older Americans, such as tobacco and alcohol use, screenings and vaccinations, and mental and cognitive health. 2015-2017 BRFSS data, includes data on cognitive decline from 49 states, D.C., and Puerto Rico and data on caregivers from 44 states, D.C., and Puerto Rico Portal users can retrieve CDC data by indicator or by geographic area, and then use these data to develop reports and create customized maps, charts, and graphics. Public health professionals can use the data to create a snapshot of the health of older adults in their states, which can help them prioritize and evaluate public health interventions. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE (Action 5.A.7) |
Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and dementia for federal agencies to use in analyses of administrative data. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.A.7) |
Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and dementia for federal agencies to use in analyses of administrative data. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.A.6) |
Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and related dementias for federal agencies to use in analyses of administrative data. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 5.A.6) |
Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and related dementias for federal agencies to use in analyses of administrative data. | HHS/ASPE | |
| NATIONAL PLAN 2018 UPDATE (Action 5.A.6) |
Develop a consistent set of ICD-9/ICD-10 codes for Alzheimer's disease and related dementias for federal agencies to use in analyses of administrative data. | CMS |
The workgroup has established a cross-walk of diagnostic code sets across agencies as a precursor to defining common code set or sets. This may be seen as a harmonization exercise across multiple code sets, with the proposed use of the code set (e.g., research, clinical improvement) determining selection. |
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 5.A.6) |
Provide analysis of BRFSS data on Alzheimer's disease and related dementias and their caregivers in user-friendly formats. | CDC |
CDC partnered with NACDD to create a series of data briefs addressing topic-specific public health issues related to older adults. 2 of these data briefs include Caregiving for Family and Friends and Subjective Cognitive Decline. Each brief includes the most recent and relevant data available, including the importance of brain health, the management of chronic conditions and other age-related conditions. Each brief concludes with action items that give specific direction on actions that can be taken to make positive change. |
STRATEGY 5.B: Monitor Progress on the National Plan
Below are the Actions that have been listed under Strategy 5.B since 2012. Action numbers have changed since 2012 (as completed or cancelled Actions were removed from the Plan narrative), so Actions are grouped by Action Description. The Action number is in parentheses with the Plan year.
| STRATEGY 5.B Narrative links | |||
| 2019 Strategy 5.B | 2018 Strategy 5.B | 2017 Strategy 5.B | 2016 Strategy 5.B |
| 2015 Strategy 5.B | 2014 Strategy 5.B | 2013 Strategy 5.B | 2012 Strategy 5.B |
5.B Actions Table of Contents
- Designate responsibility for action implementation.
- Identify key indicators of progress on the National Plan.
- Track National Plan progress.
- Update the National Plan annually.
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
|---|---|---|---|
| NATIONAL PLAN 2012 (Action 5.B.1) |
Designate responsibility for action implementation. | HHS/ASPE |
Completed |
| NATIONAL PLAN 2013 UPDATE (Action 5.B.1) |
Designate responsibility for action implementation. | HHS/ASPE |
Completed |
| NATIONAL PLAN 2014 UPDATE (Action 5.B.1) |
Designate responsibility for action implementation. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.B.1) |
Designate responsibility for action implementation. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE | |||
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 5.B.2) |
Track Plan progress. | HHS/ASPE, CDC |
May 2012; July 2012; January 2013; July 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 5.B.2) |
Track Plan progress. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 5.B.2) |
Track Plan progress. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.B.2) |
Track Plan progress. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.B.1) |
Track Plan progress. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 5.B.1) |
Track Plan progress. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2018 UPDATE (Action 5.B.1) |
Track Plan progress. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond |
| NATIONAL PLAN 2019 UPDATE (Action 5.B.1) |
Track National Plan progress. | ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 (Action 5.B.3) |
Update the National Plan annually. | HHS/ASPE |
June 2013 |
| NATIONAL PLAN 2013 UPDATE (Action 5.B.3) |
Update the National Plan Annually. | HHS/ASPE |
Ongoing |
| NATIONAL PLAN 2014 UPDATE (Action 5.B.3) |
Update the National Plan annually. | HHS/ASPE | |
| NATIONAL PLAN 2015 UPDATE (Action 5.B.3) |
Update the National Plan annually. | HHS/ASPE | |
| NATIONAL PLAN 2016 UPDATE (Action 5.B.2) |
Update the National Plan annually. | HHS/ASPE | |
| NATIONAL PLAN 2017 UPDATE (Action 5.B.2) |
Update the National Plan annually. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| NATIONAL PLAN 2018 UPDATE (Action 5.B.2) |
Update the National Plan annually. | HHS/ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond |
| NATIONAL PLAN 2019 UPDATE (Action 5.B.2) |
Update the National Plan annually. | ASPE |
This work will continue throughout the duration of the NAPA legislation and beyond. |
| PLAN YEAR | ACTION DESCRIPTION | LEAD AGENCY | ACTIVITIES |
| NATIONAL PLAN 2012 | |||
| NATIONAL PLAN 2013 UPDATE | |||
| NATIONAL PLAN 2014 UPDATE | |||
| NATIONAL PLAN 2015 UPDATE | |||
| NATIONAL PLAN 2016 UPDATE | |||
| NATIONAL PLAN 2017 UPDATE | |||
| NATIONAL PLAN 2018 UPDATE | |||
| NATIONAL PLAN 2019 UPDATE (Action 5.B.3) |
Identify key indicators of progress on the National Plan. | ASPE |
This work will begin in late 2019. |