National Plan to Address Alzheimer's Disease: 2016 Update. Strategy 5.A: Enhance the Federal Government's Ability to Track Progress

08/01/2016

New Tool Enables Easier Tracking of NIH Research Milestones. NIH launched the Alzheimer's Disease Research Implementation Milestone Database, a user-friendly web-based tool to track NIH funding initiatives and activities, as well as those by 30 other funding agencies, targeting milestones aimed at achieving the Plan's ultimate research goal. This new data resource encourages funders to coordinate and collaborate to maximize the impact of their collective investment in dementia research. It provides the public an easy-to-use but comprehensive window into the full landscape of research funded by NIH and other AD/ADRD research organizations. Milestones currently track the entire AD/ADRD research landscape, including basic, translational, and clinical and health services research. The new AD/ADRD milestones from the National Institute of Neurological Disorders and Stroke (NINDS)-led summit in 2016 will be included once available.

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CDC Data Reports and Publications. CDC released two publications using surveillance data from the 2011-2012 BRFSS about increased confusion or memory loss. These findings highlight that individuals or others within their household may notice changes in memory and confusion over time. This is important because a diagnosis for AD/ADRD is often missed or delayed. Talking with a health care provider about such changes is important to begin determining the reason why the person is experiencing increased confusion or memory loss. These findings also expand what we know about the general public's perceptions about increased confusion or memory loss and its relationship to other physical and mental health issues.

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2015 and 2016 Behavioral Risk Factor Surveillance System Data. CDC worked with partners and revised the BRFSS Cognitive Decline and Caregiving Optimal Modules, which were approved as official optional modules beginning in 2015. In 2015, 35 states collected data using the Cognitive Decline Module and 24 states collected data using the Caregiving Module. There are 15 additional states collecting data using the Cognitive Decline Module, and 16 states collected data using the Caregiving Module. Findings from the 2015 cognitive and caregiving data will be released in late 2016.

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Diagnostic Coding for Dementia. HHS is working with VA and other federal partners to examine AD/ADRD diagnostic codes and coding practices for federal agencies to use in analyses of administrative data to enhance reporting. The work will help prioritize research, clinical services, and caregiving resources.

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Mapping Medicare Disparities Tool. The CMS Office of Minority Health released a new interactive tool to increase understanding of geographic disparities in chronic disease -- including AD/ADRD -- among Medicare beneficiaries. The tool stratifies fee-for-service Medicare data (chronic disease prevalence, cost, readmissions, etc.) by gender, race and ethnicity, age, and dual status, for users to visualize disparities on an interactive map. This helps prioritize research, quality improvement efforts, and can inform county, state, and national policy decisions that might impact health disparities.

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