National Plan to Address Alzheimer's Disease: 2016 Update. Strategy 2.D: Identify High-Quality Dementia Care Guidelines and Measures Across Care Settings

08/01/2016

National Research Summit on Care and Services for Persons with Dementia, Family Members, and Caregivers. Under the auspices of the NAPA Advisory Council, planning has now begun for a National Research Summit on Care and Services for Persons with Dementia, Family Members, and Caregivers. A steering committee has been appointed, and a draft goal for the summit has been proposed, as follows: "To accelerate the development, evaluation, translation, implementation, and scaling up of strategies to improve quality of care and outcomes across settings, including quality of life and the lived experience of persons with dementia, family members, and caregivers." Cross-cutting themes for the summit include: (1) diversity in care settings, culture, race and ethnicity, socioeconomic status, and health literacy; (2) health disparities across care settings; and (3) etiologies and stages of disease.

The steering committee is focusing first on prioritizing key research questions to be addressed at the Summit and effective ways to involve persons with dementia, family caregivers, care providers, researchers, advocates, and others who have a stake in the development of better care and outcomes for persons with dementia and the role research can play in achieving that goal. No date or location has been set for the Summit, but it is likely to be convened in 2017 in Washington, DC.

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Clarify and Disseminate Information on Privacy, Autonomy, and Safety Issues for Physicians. Based on the recommendation of the Advisory Council to clarify information on privacy, HHS will develop information for physicians on privacy, autonomy, and safety issues. This resource will help providers better understand these issues and the balance between safety, privacy, and autonomy. HHS will disseminate this information through the trainings provided by the GWEP awardees in Action 2.A.1.

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CMS Quality Strategy. CMS updated its Quality Strategy, which guides all agency components toward the common goal of health system transformation. There is a new emphasis on person-centered care and partnership with providers across all health care settings.

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National Quality Forum -- Home and Community-Based Services. CMS continues its work with the National Quality Forum (NQF) and its HHS partners to finalize a conceptual framework for HCBS quality measurement, and a standard definition for HCBS to cross public and private payers. NQF performed an environmental scan of existing HCBS measures and concepts, and is identifying gaps and promising HCBS quality measures.

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Nursing Home Compare Quality Measures. CMS added the following six new measures to Nursing Home Compare:

  1. Percentage of short-stay residents who were successfully discharged to the community (claims-based).
  2. Percentage of short-stay residents who have had an outpatient emergency department visit (claims-based).
  3. Percentage of short-stay residents who were re-hospitalized after a nursing home admission.
  4. Percentage of short-stay residents who made improvements in function (Minimum Data Set [MDS]-based).
  5. Percentage of long-stay residents whose ability to move independently worsened (MDS-based).
  6. Percentage of long-stay residents who received an anti-anxiety or hypnotic medication (MDS-based).

     

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Dementia Caregiving Network. The Dementia Caregiving Network (DCN) is an interprofessional Hartford Change AGEnts Initiative working to achieve improvements in services, supports, and care for persons with dementia and their family caregivers. The DCN is part of the Hartford Change AGEnts Initiative, which is headquartered at GSA and is supported by the John A. Hartford Foundation. Since January 2014, DCN has identified core concepts that define or influence practice change activities in dementia caregiving. One project involves developing a database of existing caregiver support interventions for agencies to access to determine which programs to adapt. Another project involves identifying ways to modify electronic records to identify families of persons with dementia. Yet another project involves evaluating and critiquing existing measurement sets. Finally, another project involves advancing a model for care management through managed care organizations.

For more information, see:

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