NATIONAL PLAN TO ADDRESS ALZHEIMER'S DISEASE: 2017 UPDATE. Strategy 2.C: Educate and Support People with Alzheimer's Disease and Related Dementias and Their Families upon Diagnosis

09/01/2017

Educate Physicians and Other Health Care Providers About Accessing Long-Term Services and Supports. One barrier to counseling and support is that health care providers are not aware of available services and how to access them. To address this need, HRSA is collaborating with federal partners, public and private entities, the health care provider community, and community-based organizations to effectively educate primary care providers and other health care practitioners, direct services workers, and patients, families, and caregivers about and services and supports available to assist persons living with dementia, as well as their caregivers. All 44 GWEPs provide this training and 32 GWEPs partner with the Alzheimer's Association. For example, the Alzheimer's Association in St. Louis, Missouri, is providing Baseball Reminiscence Leagues for persons with a dementia diagnosis. The Gateway GWEP, which created the original Baseball Reminiscence League for veterans, now refers persons with a dementia diagnosis and an interest in baseball to these specialized support groups as part of their current GWEP/Alzheimer's Associations partnership.

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Massive Online Open Course on Coursera - Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies. This free course involves five self-paced modules which examine the psychological, social, and economic impacts on persons and their families as well as society at-large. Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with AD and other neurocognitive disorders. The course will move to an open access format such that it will be continuously offered. It will be available on Coursera in the summer of 2017.

For more information, see:

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New York State Programs for Alzheimer's Disease and Other Dementias. In 2015, NYSDOH's Alzheimer's Disease Program implemented a new $25 million strategy to support people with AD/ADRD and their caregivers, and the programs continue to make progress into 2017. This initiative represented the single largest state investment in these services in the state's history and made a significant difference in the lives of the targeted population. The initiative is based on evidence that demonstrates that providing an array of caregiver services in the community helps avoid unnecessary hospitalizations and emergency room visits, delays nursing home placement, and improves caregiver burden and mental health outcomes. All of the projects within the initiative are participating in a comprehensive evaluation to measure the impact on caregivers throughout the state.

For more information, see:

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Association for Fronto-Temporal Dementia Travel Grants. AFTD offers modest financial assistance for people with FTD and caregivers interested in attending an FTD education conference. In FY 2016, AFTD awarded 60 Comstock Travel Grants to help people defray the costs of travel and lodging to attend an FTD focused education conference.

For more information, see:

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