National Plan to Address Alzheimer's Disease: 2016 Update. Strategy 2.C: Educate and Support People with Alzheimer's Disease and Their Families upon Diagnosis

08/01/2016

Educate Physicians and Other Health Care Providers About Accessing Long-Term Services and Supports. One barrier to counseling and support is that health care providers are not aware of available services or how to access them. To address this barrier, HRSA is partnering with federal agencies, public and private entities, and providers of health and LTSS to educate these providers, direct services workers, and patients, families, and caregivers about available services and supports for people with AD/ADRD, as well as their caregivers. These activities will continue as part of the training in Action 2.A.1.

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Medicaid Health Homes. CMS issued a State Medicaid Directors Letter and general Fact Sheet guidance on the optional Home Health benefit that states can use to target services to people with AD/ADRD.

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State-of-the-Science Review of Determinants of Behavioral Symptoms. Dr. Ann Kolanowski has assembled a team to examine the social, environmental, personal and genetic determinants of behavioral symptoms in dementia and produce a state-of-the-science review of this literature for the American Academy of Nursing. An understanding of the evidence, and the socio-political climate in which it is being developed, is foundational to the development and implementation of safe and effective responses to behavioral and psychological symptoms of dementia (BPSD). In this paper, senior interdisciplinary scientists will present a comprehensive synthesis of the current evidence for the determinants of BPSD using a guiding framework developed by team members. Kolanowski's team will discuss the policy implications of this work, consistent with the recommendations of the 2015 White House Conference on Aging and the 2015 National Plan Update.

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Massive Online Open Course (MOOC) on Coursera -- Living with Dementia: Impact on Individuals, Families. This free course involves five self-paced modules which examine the psychological, social, and economic impacts on persons and their families as well as society at-large. Developed by Dr. Laura Gitlin of Johns Hopkins University, the course is for anyone (researchers, health professionals, students, families) who want to understand dementia and its impact on everyday life and evidence-based approaches to support families. Offered twice so far, over 50,000 individuals from over 169 countries participated. Videos were viewed over 300,000 times. The course will move to an open access format such that it will be continuously offered. It will be available on Coursera in the fall of 2016.

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New York State Programs for Alzheimer's Disease and Other Dementias. In 2015, NYSDOH's Alzheimer's Disease Program implemented a new $25 million strategy to support people with AD/ADRD and their caregivers. This represents the single largest state investment in these services in history and will make a significant difference in the lives of the targeted population. The initiative is based on evidence that demonstrates that providing an array of caregiver services in the community helps avoid unnecessary hospitalizations and emergency room visits, delays nursing home placement, and improves caregiver burden and mental health outcomes. All of the projects within the initiative are participating in a comprehensive evaluation to measure the impact on caregivers throughout the state.

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