National Plan to Address Alzheimer's Disease: 2016 Update. Strategy 3.C: Assist Families in Planning for Future Care Needs

08/01/2016

Understanding How Families Find and Access Long-Term Services and Supports. Little is known about the processes that families and older adults go through to gather information, make decisions, and access long-term care when a loved one needs assistance such as after a dementia diagnosis. In 2015, ASPE undertook an exploratory qualitative research project to examine where families gather information, how they make decisions, how well these arrangements work, and how local factors influence this process. The project includes focus groups with caregivers in four communities in one state, as well as an environmental scan of the resources for finding LTSS in these communities. The findings will be available on the ASPE website in fall 2016.

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Review of Long-Term Care Financing and Service Delivery Models. ASPE is currently engaged in a project to develop a series of long-term care financing proposals, the purpose of which is to analyze ASPE's actuarial and micro-simulation modeling capabilities. A number of different options are being developed and then specified for modeling through other ASPE contracts. The work of this project builds upon previous ASPE efforts in this field, specifically work on the Community Living Assistance Services and Supports Act of the Affordable Care Act. The various proposals include both mandatory and voluntary options, and both front-end and catastrophic types of coverage. The options will be made public at an ASPE-sponsored meeting in August.

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