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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 1 - 10 of 695. 10 per page. Page 1.

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Report

Longitudinal Maternal & Infant Health Information for Research FHIR Implementation Guide: Maternal Mental Health Use Case

Building on a previously funded OS-PCORTF initiative, this project piloted a new maternal mental health use case for the Longitudinal Maternal & Child Health Information for Research Fast Healthcare Interoperability Resources® (FHIR) Implementation Guide.
ASPE Data Point

The U.S. Age-Adjusted Death Rate Reached a Record Low in 2025: What Drove the Decline?

KEY POINTSCDC reported a provisional 2025 age-adjusted death rate of 689.2 deaths per 100,000 population, the lowest ever reported death rate and 4.6% below the final 2024 rate of 722.1 deaths per 100,000 population.CDC notes that the published 2024
ASPE Issue Brief

Project Update: Child Welfare and Health Infrastructure for Linking and Data Analysis of Resources, Effectiveness, and Needs Initiative

This brief describes progress in the Child Welfare and Health Infrastructure for Linking and Data Analysis of Resources, Effectiveness, and Needs (CHILDREN) Initiative, which is in its fourth year. At this time, four jurisdictions participate in the CHILDREN Initiative: District of Columbia, Iowa, Oklahoma, and Wyoming.
ASPE Issue Brief

Financing Medicaid Through Provider Taxes on Hospitals: Spillover Effects on Employment-Based Coverage Premiums

KEY POINTSThe average state provider tax law, which typically taxed a hospital up to 3.5 percent of net patient revenue, resulted in an increase in ESI premiums of 1.5-1.7 percent, plus any spillover effect on interstate markets for provider resources.
ASPE Data Point

Health and Economic Benefits Associated with Increased Kidney Transplantation Following the Advancing American Kidney Health Initiative in 2019

KEY POINTSAnnual growth in the number of kidney transplants began to accelerate in 2019.
Research Brief

Children in Child Welfare are More Likely to be Prescribed Psychotropic Medication than Other Children on Medicaid: Findings from Florida and Kentucky

The use of psychotropic medications in children is a complex issue for parents, caregivers, health care professionals, researchers, and policymakers. Psychotropic medications are used to treat behavioral health conditions. When these medications are prescribed appropriately, they can be effective in managing behavioral health symptoms.
Report

Evidence-Based Measures for Chronic Disease Outcomes: A Review of Available Measures for Emergent HIV Therapies

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Report

Evidence-Based Measures for Chronic Disease Outcomes: A Review of Available Measures for Emergent Sickle Cell Disease Therapies

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Report

Market Forces in Medicare Reimbursement: Traditional Medicare, Medicare Advantage, and Provider Resource Constraints

EXECUTIVE SUMMARYMedicare reimbursement is administered, but it is not insulated from markets for provider labor, capital, facilities, and technology. Traditional Medicare payment formulas incorporate market-basket input prices, geographic wage indexes, case mix, and quality adjustments; total spending also depends on utilization.