This page provides the material available for the Advisory Council meetings held in 2017.
October 27, 2017 -- Advisory Council Meeting #26
ThIS meeting was held on Friday, October 27, 2017, in Washington, DC. The Advisory Council welcomed its new members and invited them to share their experiences and where they see the Council going over the length of their terms. The Advisory Council also spent some time discussing the process of developing recommendations and how those recommendations relate to the National Plan. The Council then spent much of the meeting discussing the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, held on October 16-17. Material available from this meeting is listed below:
General Material:
Handouts:
- National Plan to Address Alzheimer's Disease: 2017 Update
- Public Members of the Advisory Council on Alzheimer's Research, Care and Services: 2017 Recommendations
Presentation Slides:
- 2017 National Plan
- Clinical Care Subcommittee
- Clinical Subcommittee Update
- Developing, Sustaining and Taking Innovations to Scale
- Discussion of Future Meetings
- IADRP Background
- Long-Term Services and Supports Committee Update
- Overview of the NAPA Legislation and the Charge to the Council
- Overview of the National Plan and the Process for Recommendations
- Research Progress for Alzheimer's Disease and Related Dementias
- Research Summit on Dementia Care Overview and Recommendations
Videos:
- Welcome through Overviews
- Subcommittees and Fed Workgroups and Future Meeting Discussion
- Care Summit Overview and Presentation of Recommendations
- Discussion through lunch
- Public Comments
- Marie Schall Presentation and 2017 National Plan Discussion
- Federal Workgroup Updates through adjourn
July 28, 2017 -- Advisory Council Meeting #25
ThIS meeting was held on Friday, July 28, 2017, in Washington, DC. The Advisory Council spent the morning discussing information gaps across the three areas of research, clinical care, and long-term services and supports. There was also a presentation on the recently released National Academy of Sciences, Engineering, and Medicine (NASEM) report on preventing cognitive decline. Additional presentations included a presentation on planning and progress towards the October Care and Services Summit and federal workgroup updates. Material available from this meeting is listed below:
General Material:
Presentation Slides:
- 2017 National Plan Update and Non-Federal Recommendations
- Care Summit Update
- Clinical Services Subcommittee Federal Update
- CommunityRx for Community-Residing People with Dementia and Their Caregivers
- Dementia Caregiving in the U.S.
- Development of the FY 19 NIH Bypass Budget for ADRD
- Implications of a Biologically Based Definition of Alzheimer's Disease
- Increasing Opportunities for Choice and Control for Persons with Dementia
- Interventions to Prevent or Slow Cognitive Decline, MCI and Dementia in Individuals without Dementia
- Living Alone With Dementia
- LTSS Committee Update
- Managing Chronic Conditions in People Living with Dementia
- Many Challenges of Alzheimer's Disease
- Preventing Cognitive Decline and Dementia: A Way Forward
Videos:
- Welcome thru Clinical Care
- LTSS Research
- Public Comments thru Federal Workgroup Updates
- Recommendations thru Adjourn
April 17, 2017 -- Advisory Council Meeting #24
This meeting was held on Monday, April 17, 2017, in Washington, DC. The Advisory Council spent the majority of the April meeting considering recommendations made by each of the three subcommittees for updates to the 2017 National Plan. Afternoon presentations included a presentation on results from a research project on dementia care components, planning progress towards a Care and Services Summit, and federal workgroup updates. Material available from this meeting is listed below:
General Material:
Handouts:
Presentation Slides:
- 2017 Research Subcommittee Recommendations
- Alzheimer's and Related Dementias Research: Budget and FOAs
- Care Summit Update
- Clinical Care Subcommittee Report
- Clinical Services Subcommittee Federal Update
- Examining Models of Dementia Care
- LTSS Committee Update
- LTSS Subcommittee Recommendations
Videos:
- Welcome, LTSS, and Clinical Care Recommendations
- Research Recommendations, Council Discussion/Vote, Overview of Legislative Processes
- Public Comments and Examining Models of Dementia Care
- Care Summit Update and Federal Workgroup Updates
February 3, 2017 -- Advisory Council Meeting #23
This meeting was held on Friday, February 3, 2017, in Washington, DC. The theme of this Advisory Council meeting was clinical trials for Alzheimer's disease and related dementias and recruitment challenges. Additional afternoon presentations included updates on progress towards a Care and Services Summit, federal workgroup updates, and preparation for the Advisory Council's 2017 Recommendations, due in April 2017. Material available from this meeting is listed below:
General Material:
Handouts:
Presentation Slides:
- 2017 Recommendations
- Alzheimer's Association TrialMatch
- Care Summit Update
- Clinical Services Subcommittee Update
- Clinical Studies Recruitment Strategy
- Development and Use of Registries
- LTSS Committee Update
- NINDS Update
- Randomized Controlled Trials
- Strategies to Facilitate Recruitment and Screening
- Transforming Alzheimer's Disease Therapy Development
- Transforming National Recruitment Strategy
Videos:
- Welcome thru Perspectives
- Rachel, Jessica, George Presentations
- Keith Presentation and Panel Discussion
- Public Comments
- Care Summit and Milestones
- Federal Workgroups and Adjourn
Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.