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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 1 - 10 of 546. 10 per page. Page 1.

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Fact Sheet

Addressing the Opioid Overdose Crisis Through Better Data: Opioids Vignette

November 23, 2022
This updated 2022 vignette provides examples of how a range of Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) cross-agency projects are working to address the opioid overdose crisis by 1) Improving Timeliness and Quality of Outcomes Data 2) Building Capacity for Collection of Patient-Reported Outcomes3) Building Linkages to Address Co-Morbidities
Fact Sheet

Enhancing Data Infrastructure to Improve Women’s Health Outcomes: Maternal Health Vignettes

November 16, 2022
This updated 2022 vignette provides examples of how a range of the Office of the Secretary Patient-Centered Outcomes Research (OS-PCORTF) cross-agency projects are working to improve maternal health by 1) Enhancing Women’s Health Data for Research 2) Adding Electronic Health Records to the Suite of Maternal Health Data for Research 3) Linking Maternal Survey Data with Other Health Data.
ASPE Issue Brief

National and State Estimates of Children Living with Parents Using Substances, 2015–2019

November 14, 2022
This brief presents estimates of the number and percentage of children whose parents engage in problematic substance use, including past-year substance use and SUD by substance type and child demographics. Key findings include:
ASPE Issue Brief

Racial/Ethnic Differences in Children’s Mental Health Services Use Before and During the COVID-19 Pandemic Issue Brief

November 9, 2022
Using a national Medicaid database, the report shows significant racial/ethnic disparities in mental health service use among children during the COVID-19 pandemic.
Report

Avoiding Racial Bias in Child Welfare Agencies' Use of Predictive Risk Modeling

November 9, 2022
In recent years several researchers and child welfare agencies have begun developing predictive risk models to support child welfare decision-making. Predictive analytics is a sophisticated form of risk modeling that uses historical data to understand relationships between myriad factors to estimate a probability score for the outcome of interest.
Report

Medicare Data Linkages for Conducting Patient-Centered Outcomes Research on Economic Outcomes

October 13, 2022
This report and dataset inventory identifies federally funded data linkages that may facilitate patient-centered outcomes research (PCOR) on economic outcomes for Medicare fee-for-service (FFS) beneficiaries.
Report

Linking Medicaid Claims, Birth Certificates, and Other Sources to Advance Maternal and Infant Health

October 13, 2022
Medicaid pays for nearly half of all births in the United States, including most births by Black and Hispanic pregnant population.
ASPE Issue Brief

Reductions in Deaths and Hospitalizations Associated with COVID-19 Vaccinations Among Medicare Beneficiaries: Full Year 2021 Estimates

October 7, 2022
This study updates ASPE’s previous analysis of the associations between COVID-19 hospitalizations and deaths among Medicare beneficiaries and COVID-19 vaccination rates, with full year data through the end of 2021.
Guide

Glossary of Common Data-Related Terms

October 5, 2022
The Department of Health and Human Services (HHS) has several different policy groups such as the HHS Data Council, Data Governance Board, Evidence and Evaluation Policy Council, and the HHS AI Council that frequently use many terms related to data, but likely with inconsistent understanding of their definitions and how these terms should be used.
ASPE Issue Brief

Equitable Evaluation Series: Principles of Equitable Communication

October 5, 2022
The U.S. Department of Health and Human Services (HHS) enhances the health and well-being of all Americans by advancing equity, addressing social determinants of health, and supporting underserved communities.