Advisory Council October 2017 Meeting Presentation: National Plan Overview and Recommendations Process

10/27/2017

ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, AND SERVICES

Friday, October 27, 2017

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Overview of the National Plan and the Process for Recommendations

Rohini Khillan
Office of Disability, Aging, and Long-Term Care Policy
HHS Office of the Assistant Secretary for Planning and Evaluation

The National Plan

  • This National Plan is designed to address the major challenges presented by Alzheimer's disease and related dementias:
    • Continued research on ADRD to find pharmacological or other interventions to definitively prevent, treat, or cure the disease.
    • Developing quality measures to assess dementia care and to improve the training of the health and long-term care workforce -- both paid and unpaid caregivers
    • Caring for and supporting family members and other unpaid caregivers, who take on the responsibility of caring for a loved one with ADRD, need services and support.
    • Coordinating and tracking public and private sector progress

Goals of the National Plan

  1. Prevent and effectively treat AD by 2025
  2. Enhance care quality and efficiency
  3. Expand supports for people with AD and families.
  4. Enhance public awareness/engagement
  5. Improve data to track progress

Annual Revision of the National Plan

  • NAPA requires that the Plan be updated annually through 2025
  • For the 2013 revision a set of milestones to assess progress was recommended
    • Short term
    • Intermediate
    • Long term
    • We have been assessing progress on these milestones annually

Creating the National Plan

  1. The federal workgroups meet to discuss recommendations made by the Council and to discuss how they may fit into work that has been in done in the relevant goals/strategy areas in the past year
  2. Agencies write up a short description of what was completed and what is ongoing, and any recommendations that have been addressed given legislative, regulatory, and budgetary constraints. 
  3. Agencies also look through the implementation milestones and mark what was completed, ongoing, and expected dates of completion
  4. These write-ups are sent to ASPE to combine and format for publication of the Plan
  5. ASPE puts together the Plan and it is sent back to all the agencies for clearance to make sure everything is accurate and up to date
  6. The Plan is sent through HHS clearance
  7. The Plan goes to the Secretary, who signs off, and it is then sent to Congress with a letter of introduction from the Secretary

Format

  • Increased Accessibility: Based on feedback from the public and discussions with federal members that the previous Plan format is hard to read and getting longer and more complicated as we add more activities
  • Reads more like a progress report, rather than a list of activities
  • Combines the old “Highlights” section with the Plan generally
  • Still organized by Goals and Strategies
  • Includes links to completed reports

2017 Recommendations

  • Compiled by the three subcommittees (Research, Clinical Care, and Long-Term Services and Supports) during their meetings in between larger Council meetings
  • Recommendations were voted on by all the non-federal members at the April 2017 Meeting
  • Subcommittee chairs wrote a brief overview as an introduction, Chair provided a cover letter
  • Recommendations were sent to the Secretary and Congress in June

Recommendations vs. Plan

  • Recommendations are the issues and gaps identified by the non-federal members of the Council that they think should be addressed
  • The National Plan is the government’s yearly progress report on what federal agencies have accomplished on dementia
  • If there are Recommendations made by the Council that can be addressed by the federal agencies, they become action items in the National Plan
  • As a way of measuring our progress and

Discussion


October 27, 2017 -- Advisory Council Meeting #26

The meeting was held on Friday, October 27, 2017, in Washington, DC. The Advisory Council welcomed its new members and invited them to share their experiences and where they see the Council going over the length of their terms. The Advisory Council also spent some time discussing the process of developing recommendations and how those recommendations relate to the National Plan. The Council then spent much of the meeting discussing the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, held on October 16-17. Material available from this meeting is listed below and at https://aspe.hhs.gov/advisory-council-alzheimers-research-care-and-services-meetings#Oct2017.

Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.


 

General Information

 

Handouts

 

Presentation Slides

 

Videos

  • Welcome through Overviews -- [Video]

  • Subcommittees and Fed Workgroups and Future Meeting Discussion -- [Video]

  • Care Summit Overview and Presentation of Recommendations -- [Video]

  • Discussion through lunch -- [Video]

  • Public Comments -- [Video]

  • Marie Schall Presentation and 2017 National Plan Discussion -- [Video]

  • Federal Workgroup Updates through adjourn -- [Video]


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