February 3, 2017
9:00 am - 4:30 pm (Eastern Time)
Streamed live -- http://www.hhs.gov/live
U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Great Hall, H.H. Humphrey Building
Washington, DC 20201
Printer Friendly Version in PDF Format (2 PDF pages)
| 9:00 am - 9:15 am |
Welcome and Charge for the Meeting Ron Petersen, Chair |
|---|---|
| Morning Session Clinical Trials in Alzheimer's Disease and Related Dementias: Recruitment Challenges |
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| 9:15 am - 9:30 am |
Overview Ronald Petersen |
| 9:30 am - 9:45 am |
FDA Perspective Billy Dunn (FDA) |
| 9:45 am - 10:00 am |
NIA Perspective Laurie Ryan (NIA) |
| 10:00 am - 10:15 am |
Alzheimer's Patient and Caregiver-Powered Research Network Rachel Nosheny (University of California, San Francisco) |
| 10:15 am - 10:30 am |
BAI's Alzheimer's Prevention Registry and GeneMatch Program Jessica Langbaum (Banner Phoenix) |
| 10:30 am - 10:45 am |
Global Alzheimer's Platform (GAP) George Vradenburg (UsAgainst Alzheimer's) |
| 10:45 am - 11:00 am |
Alzheimer's Association TrialMatch Keith Fargo (Alzheimer's Association |
| 11:00 am - 12:00 pm |
Panel Discussion |
| 12:00 pm - 1:00 pm |
LUNCH BREAK |
| 1:00 pm - 2:00 pm |
Public Comments |
| 2:00 pm - 2:30 pm |
Care Summit Update Katie Maslow Laura Gitlin |
| 2:30 pm - 3:00 pm |
2016 ADRD Milestones Roderick Corriveau |
| 3:00 pm - 3:30 pm |
Federal Workgroup Updates Erin Long Shari Ling Richard Hodes |
| 3:30 pm - 4:00 pm |
2017 Recommendations Rohini Khillan |
| 4:00 pm |
Adjourn |
February 3, 2017 -- Advisory Council Meeting #23
The meeting was held on Friday, February 3, 2017, in Washington, DC. The theme of this Advisory Council meeting was clinical trials for Alzheimer's disease and related dementias and recruitment challenges. Additional afternoon presentations included updates on progress towards a Care and Services Summit, federal workgroup updates, and preparation for the Advisory Council's 2017 Recommendations, due in April 2017. Material available from this meeting is listed below and is also available at https://aspe.hhs.gov/advisory-council-alzheimers-research-care-and-services-meetings#Feb2017.
Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.
General Information
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Agenda -- [HTML Version] [PDF Version]
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Meeting Announcement -- [HTML Version] [PDF Version]
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Meeting Summary -- [HTML Version] [PDF Version]
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Public Comments -- [HTML Version]
Handouts
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Panelist Bios -- [HTML Version] [PDF Version]
Presentation Slides
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2017 Recommendations -- [HTML Version] [PDF Version]
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Alzheimer's Association TrialMatch -- [HTML Version] [PDF Version]
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Clinical Services Subcommittee Federal Update -- [HTML Version] [PDF Version]
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Clinical Studies Recruitment Strategy -- [HTML Version] [PDF Version]
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Development and Use of Registries to Accelerate Enrollment into Alzhiemer's Trials -- [HTML Version] [PDF Version]
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Long-Term Services and Supports Committee Update -- [HTML Version] [PDF Version]
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National Recruitment Strategy -- [HTML Version] [PDF Version]
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NINDS Update -- [HTML Version] [PDF Version]
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Randomized Controlled Trials for Alzheimer's Disease -- [HTML Version] [PDF Version]
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Strategies to Facilitate Recruitment and Screening for Alzheimer's Clinical Trials -- [HTML Version] [PDF Version]
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Transforming AD Therapy Development -- [HTML Version] [PDF Version]
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Update National Research Summit on Care, Services and Supports for Persons with Dementia and Their Caregivers -- [HTML Version] [PDF Version]