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Explore the OS-PCORTF Project Profiles

Project profiles of all active and completed projects within the OS-PCORTF can be found below, including links to the products they have produced.

Note: Projects are displayed in reverse chronological order (most recent projects are at the top of the list). Multi-agency projects (i.e., funds awarded to more than one agency) are listed as a single project.

Active Projects

(Arranged in Order Funded)

Project TitleImplementing AgencyFY Funded
Medical Expenditure Panel Survey (MEPS) Enhancements on Burdens and Economic Impacts of Medical CareAgency for Healthcare Research and Quality (AHRQ)FY 2024
Establishing the Governance, Legal and Analytical Framework for a Federated Linked Data System: Creating a New Data Research EnvironmentNational Institutes of Health (NIH)/National Cancer Institute (NCI)FY 2024
Capturing the Full Trajectory of Patient-Centered Cancer Care Via Enhanced Data LinkagesNational Institutes of Health (NIH)/National Cancer Institute (NCI)
National Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS)
FY 2023
Code Map Services for Interoperability of Common Data Models and Data StandardsNational Institutes of Health/Center for Advancing Translational Sciences (NIH/NCATS)
Food and Drug Administration (FDA)
FY 2023
Small-Area Community SDOH Data: Enhancements and Linkages to Inform ActionAgency for Healthcare Research and Quality (AHRQ)FY 2022
Expanding Climate Change and Health Data Infrastructure to Advance Health Interventions: Linking Health and Environmental Data to Improve Patient and Community HealthNational Institutes of Health (NIH)/National Institute of Environmental Health Sciences (NIEHS)FY 2023
Utilizing Natural Language Processing and Machine Learning to Enhance the Identification of Stimulant and Opioid-Involved Health Outcomes in the National Hospital Care SurveyCenters for Disease Control and Prevention (CDC)/
National Center for Health Statistics (NCHS)
FY 2023
Linking the National Survey of Children’s Health Longitudinal Cohort and Medicaid Claims Data to Explore Pediatric COVID-19Health Resources and Services Administration (HRSA)/
Maternal and Child Health Bureau (MCHB)
FY 2023
Improving Quality of Care & Outcomes Data for Pregnant Medicaid Beneficiaries & Newborn InfantsCenters for Medicare & Medicaid Services (CMS)FY 2023
Engaging People with Intellectual and Developmental Disabilities to Enhance Functional Disability Representation in Point of Care SettingsCenters for Disease Control and Prevention (CDC)/
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
FY 2023
Linking Federally Qualified Health Center EHR and TMSIS ImplementingCenters for Disease Control and Prevention (CDC)
Office of the Assistant Secretary for Planning and Evaluation (ASPE)
FY 2023
Compendium of Policies on Use of Linkable Mortality Data for PCOR in the Nation's 57Mortality-Reporting JurisdictionsOffice of the Assistant Secretary for Planning and Evaluation (ASPE)/Office of Behavioral Health, Disability, and Aging
National Institutes of Health (NIH)/National Institute of Mental Health (NIMH)
FY 2023
Panoramic View of Patient Care Through Data Innovations and Linkages ImplementingAgency for Healthcare Research and Quality (AHRQ)FY 2023
Data Infrastructure Supporting Research on Refugee Medicaid Service Utilization and OutcomesAdministration for Children and Families (ACF)FY 2023
Digitizing Consent and Regulatory Metadata Towards Streamlining Governance of Pediatric COVID-19 Research Data LinkagesNational Institutes of Health/Eunice Kennedy Shriver National Institute of Child Health and Human Development at the National Institutes of Health (NIH/NICHD)FY 2022
Human-Centered Design Study on Federal Data Access and Acquisition Processes of CMS DataCenters for Medicare and Medicaid Services (CMS)FY 2022
Evaluation of Privacy-Preserving Record Linkage Solutions to Broaden Linkage Capabilities in Support of Patient-Centered Outcomes Research ObjectivesNational Center for Health Statistics at the Centers for Disease Control and Prevention (NCHS-CDC)FY 2022
A National COVID-19 Longitudinal Research Database Linked to Centers for Medicare and Medicaid (CMS) DataNational Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS)FY 2021
Using Machine Learning Techniques to Enable Health Information Exchange to Support COVID-19-Focused Patient-Centered Outcomes Research (PCOR)Office of the National Coordinator for Healthcare Technology (ONC)FY 2021
Building Infrastructure and Evidence for COVID-19 Related Research, Using Integrated Data from National Center for Health Statistics (NCHS) Data Linkage ProgramNational Center for Health Statistics at the Centers for Disease Control and Prevention (NCHS-CDC)FY 2021
Multistate Emergency Medical Services (EMS) and Medicaid Dataset (MEMD): A Linked Dataset for Patient-Centered Outcomes ResearchOffice of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP)FY 2021
Making Medicaid Data More Accessible Through Common Data Models and FHIR APIs

Food and Drug Administration (FDA)

National Institutes of Health/National Library of Medicine (NIH/NLM)

FY 2021
Understanding COVID-19 Trajectory and Outcomes in the Context of Multiple Chronic Conditions (MCC) through e-Care Plan Development

Agency for Healthcare Research and Quality (AHRQ)

National Institutes of Health/National Institute of Diabetes and Digestive and Kidney Diseases (NIH/NIDDK)

FY 2021
Dataset on Intellectual and Developmental Disabilities: Linking Data to Enhance Person-Centered Outcomes ResearchOffice of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP)FY 2021
CURE ID: Aggregating and Analyzing COVID-19 Treatments from EHRs & Registries GloballyFood and Drug Administration (FDA)FY 2021
Severe Maternal Morbidity and Mortality-Electronic Health Record (EHR) Data InfrastructureNational Institutes of HealthFY 2021
MAT-LINK2: Expansion of MATernaL and Infant NetworK to Understand Outcomes Associated with Treatment for Opioid Use Disorder during PregnancyCenters for Disease Control and PreventionFY 2021
Enhancing Surveillance of Maternal Health Clinical Practices and Outcomes with Federally Qualified Health Centers’ (FQHCs) Electronic Health Records Visit DataCenters for Disease Control and PreventionFY 2021
Data Linkage: Evaluating Privacy Preserving Record Linkage Methodology and Augmenting the National Hospital Care Survey with Medicaid Administrative RecordsCenters for Disease Control and PreventionFY 2020
Developing a Multi-State Network of Linked Pregnancy Risk Assessment Monitoring System (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes ResearchCenters for Disease Control and PreventionFY 2020
Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions 2.0: Development of the Patient-Facing Application

National Institutes of Health

Agency for Healthcare Research and Quality

FY 2020
Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project 2.0Centers for Disease Control and PreventionFY 2020
Validating and Expanding Claims-Based Algorithms of Frailty and Functional Disability for Value-Based Care and Payment

Office of the Assistant Secretary for Planning and Evaluation

Agency for Healthcare Research and Quality

Centers for Disease Control and Prevention

Centers for Medicare and Medicaid Services

FY 2019
Surveillance Network: Maternal, Infant, and Child Health Outcomes Following Treatment of Opioid Use Disorder (OUD) During PregnancyCenters for Disease Control and PreventionFY 2019
Linking State Medicaid and Child Welfare Data for Outcomes Research on Treatment for Opioid Use Disorder and Other Behavioral Health IssuesOffice of the Assistant Secretary for Planning and EvaluationFY 2019
NIDA’s AMNET: An Addiction Medicine Network to Address the United States Opioid CrisisNational Institutes of HealthFY 2019
Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions

National Institutes of Health

Agency for Healthcare Research and Quality

FY 2019
Making Electronic Health Record (EHR) Data More Available for Research and Public HealthCenters for Disease Control and PreventionFY 2019

Completed Projects

(Arranged in Order Completed)

Project TitleImplementing AgencyFY Funded
Enhancing Identification of Opioid-Involved Health Outcomes Using Linked Hospital Care and Mortality DataCenters for Disease Control and PreventionFY 2019
Augmenting the National Hospital Care Survey (NHCS) Data through Linkages with Administrative RecordsCenters for Disease Control and PreventionFY 2019
Enhancing Patient-Centered Outcomes Research (PCOR): Creating a National Small-Area Social Determinants of Health Data PlatformCenters for Disease Control and PreventionFY 2019
Bridging the PCOR Infrastructure and Technology Innovation through Coordinated Registry Networks (CRN) Learning CommunityFood and Drug AdministrationFY 2019
Training Data for Machine Learning to Enhance Patient-Centered Outcomes Research (PCOR) Data InfrastructureOffice of the National Coordinator for Health Information Technology

National Institutes of Health/National Library of Medicine
FY 2019
Enhancing Data Resources for Researching Patterns of Mortality in Patient-Centered Outcomes Research

Centers for Disease Control and Prevention

Food and Drug Administration

Centers for Medicare and Medicaid Services

FY 2017
A Synthetic Health Data Generation Engine to Accelerate Patient-Centered Outcomes ResearchOffice of the National Coordinator for Health Information TechnologyFY 2019
SHIELD - Standardization of Lab Data to Enhance Patient-Centered Outcomes Research and Value-Based CareFood and Drug AdministrationFY 2019
Identifying Co-Occurring Disorders among Opioid Users Using Linked Hospital Care and Mortality Data: Capstone to an Existing FY18 OS-PCORTF ProjectCenters for Disease Control and PreventionFY 2019
Assessing and Predicting Medical Needs in a Disaster

Office of the Assistant Secretary for Preparedness and Response

Agency for Healthcare Research and Quality

FY 2018
Emergency Medicine Opioid Data Infrastructure - Key Venue to Address Opioid Morbidity and MortalityNational Institutes of HealthFY 2018
Capstone for the Outcomes Measures Harmonization ProjectAgency for Healthcare Research and QualityFY 2018
Strengthening the Data Infrastructure for Outcomes Research on Mortality Associated with Opioid PoisoningsCenters for Disease Control and PreventionFY 2018
Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research ProjectCenters for Disease Control and PreventionFY 2018
Technologies for Donating Medicare Beneficiary Claims Data to Research Studies

Centers for Medicare and Medicaid Services (CMS)

National Institutes of Health

FY 2017
Developing a Strategically Coordinated Registry Network (CRN) for Women’s Health Technology

Food and Drug Administration

National Institutes of Health
Office of the National

Coordinator for Health Information Technology

FY 2017
Harmonization of Various Common Data Models and Open Standards for Evidence Generation

Food and Drug Administration

National Institutes of Health

Office of the National Coordinator for Health Information Technology

FY 2017
Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)

Agency for Healthcare Research and Quality

Office of the National Coordinator for Health Information Technology

FY 2017
PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for PrivacyCenters for Disease Control and Prevention
Office of the National Coordinator for Health Information Technology
FY 2015
Use of the ADAPTABLE Trial to Strengthen Methods to Collect and Integrate Patient-reported Information with Other Data Sets and Assess Its ValidityNational Institutes of HealthFY 2016
Standardization and Querying of Data Quality Metrics and Characteristics for Electronic Health DataFood and Drug AdministrationFY 2016
Utilizing Data from Various Data Partners in a Distributed MannerFood and Drug AdministrationFY 2015
Improving the Mortality Data Infrastructure for Patient-Centered Outcomes (PCOR)Centers for Disease Control and PreventionFY 2015
Development of a Natural Language Processing (NLP) Web Service for Public Health Use

Centers for Disease Control and Prevention

Food and Drug Administration

FY 2016
Security and Privacy Standards for Patient Matching, Linking and AggregationOffice of the National Coordinator for Health Information TechnologyFY 2015
Harmonization of Clinical Data Element Definitions for Outcome Measures in RegistriesAgency for Healthcare Research and QualityFY 2016
Source Data Capture from Electronic Health Records: Using Standardized Clinical Research DataFood and Drug AdministrationFY 2016
Creation of LOINC Equivalence ClassesNational Institutes of HealthFY 2016
Cross Network Directory ServiceFood and Drug AdministrationFY 2015
Collection of Patient-Provided Information through a Mobile Device Application for Use in Comparative Effectiveness and Drug Safety ResearchFood and Drug AdministrationFY 2015
Conceptualizing a Data Infrastructure for the Capture and Use of Patient-Generated Health DataOffice of the National Coordinator for Health Information TechnologyFY 2015
Improving Beneficiary Access to their Health Information through an Enhanced Blue Button ServiceCenters for Medicare and Medicaid ServicesFY 2016
Improving Beneficiary Access to Health Information: A Plan to Enhance “Blue Button”Centers for Medicare and Medicaid ServicesFY 2014
Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct 

Patient-Centered Outcomes Research (PCOR)

Health Resources & Services Administration

FY 2014
Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs)Office of the National Coordinator for Health Information TechnologyFY 2013
Creating the Foundational Blocks for the Learning Health Care System: Structured Data Capture (SDC)Office of the National Coordinator for Health Information TechnologyFY 2013
Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER)Centers for Disease Control and PreventionFY 2013
Comparative Effectiveness Research (CER) InventoryAssistant Secretary for Planning and EvaluationFY 2012
Beta Testing the Multi-Payer Claims Database (MPCD)Assistant Secretary for Planning and EvaluationFY 2012
Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER)Centers for Medicare and Medicaid ServicesFY 2012
Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER)

Office of the National Coordinator for Health Information Technology

National Institutes of Health

FY 2012