| Validating and Expanding Claims-Based Algorithms of Frailty and Functional Disability for Value-Based Care and Payment | Office of the Assistant Secretary for Planning and Evaluation Agency for Healthcare Research and Quality Centers for Disease Control and Prevention Centers for Medicare and Medicaid Services | FY 2019 |
| Multistate Emergency Medical Services (EMS) and Medicaid Dataset (MEMD): A Linked Dataset for Patient-Centered Outcomes Research | Office of the Assistant Secretary for Planning and Evaluation- Office of Behavioral Health, Disability, and Aging Policy (ASPE-BHDAP) | FY 2021 |
| Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions 2.0: Development of the Patient-Facing Application | National Institutes of Health Agency for Healthcare Research and Quality | FY 2020 |
| A National COVID-19 Longitudinal Research Database Linked to Centers for Medicare and Medicaid (CMS) Data | National Institutes of Health (NIH)/National Center for Advancing Translational Sciences (NCATS) | FY 2021 |
| Compendium of Policies on Use of Linkable Mortality Data for PCOR in the Nation's 57 Mortality-Reporting Jurisdictions | Office of the Assistant Secretary for Planning and Evaluation (ASPE)/Office of Behavioral Health, Disability, and Aging
National Institutes of Health (NIH)/National Institute of Mental Health (NIMH) | FY 2023 |
| Child and Caregiver Outcomes Using Linked Data (CCOULD) | Office of the Assistant Secretary for Planning and Evaluation | FY 2019 |
| Making Electronic Health Record (EHR) Data More Available for Research and Public Health | Centers for Disease Control and Prevention | FY 2019 |
| Data Linkage: Evaluating Privacy Preserving Record Linkage Methodology and Augmenting the National Hospital Care Survey with Medicaid Administrative Records | Centers for Disease Control and Prevention | FY 2020 |
| Developing a Multi-State Network of Linked Pregnancy Risk Assessment Monitoring System (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes Research | Centers for Disease Control and Prevention | FY 2020 |
| CURE ID: Aggregating and Analyzing COVID-19 Treatments from EHRs & Registries Globally | Food and Drug Administration (FDA) | FY 2021 |
| MAT-LINK2: Expansion of MATernaL and Infant NetworK to Understand Outcomes Associated with Treatment for Opioid Use Disorder during Pregnancy | Centers for Disease Control and Prevention | FY 2021 |
| Severe Maternal Morbidity and Mortality-Electronic Health Record (EHR) Data Infrastructure | National Institutes of Health | FY 2021 |
| Human-Centered Design Study on Federal Data Access and Acquisition Processes of CMS Data | Centers for Medicare and Medicaid Services (CMS) | FY 2022 |
| Enhancing Identification of Opioid-Involved Health Outcomes Using Linked Hospital Care and Mortality Data | Centers for Disease Control and Prevention | FY 2019 |
| Surveillance Network: Maternal, Infant, and Child Health Outcomes Following Treatment of Opioid Use Disorder (OUD) During Pregnancy | Centers for Disease Control and Prevention | FY 2019 |
| Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions | National Institutes of Health Agency for Healthcare Research and Quality | FY 2019 |
| AMNET: An Addiction Medicine Network to Address the United States Opioid Crisis | National Institutes of Health | FY 2019 |
| Augmenting the National Hospital Care Survey (NHCS) Data through Linkages with Administrative Records | Centers for Disease Control and Prevention | FY 2019 |
| Enhancing Patient-Centered Outcomes Research (PCOR): Creating a National Small-Area Social Determinants of Health Data Platform | Centers for Disease Control and Prevention | FY 2019 |
| Bridging the PCOR Infrastructure and Technology Innovation through Coordinated Registry Networks (CRN) Learning Community | Food and Drug Administration | FY 2019 |
| Training Data for Machine Learning to Enhance Patient-Centered Outcomes Research (PCOR) Data Infrastructure | Office of the National Coordinator for Health Information Technology
National Institutes of Health/National Library of Medicine | FY 2019 |
| Enhancing Data Resources for Researching Patterns of Mortality in Patient-Centered Outcomes Research | Centers for Disease Control and Prevention Food and Drug Administration Centers for Medicare and Medicaid Services | FY 2017 |
| A Synthetic Health Data Generation Engine to Accelerate Patient-Centered Outcomes Research | Office of the National Coordinator for Health Information Technology | FY 2019 |
| SHIELD - Standardization of Lab Data to Enhance Patient-Centered Outcomes Research and Value-Based Care | Food and Drug Administration | FY 2019 |
| Identifying Co-Occurring Disorders among Opioid Users Using Linked Hospital Care and Mortality Data: Capstone to an Existing FY18 OS-PCORTF Project | Centers for Disease Control and Prevention | FY 2019 |
| Assessing and Predicting Medical Needs in a Disaster | Office of the Assistant Secretary for Preparedness and Response Agency for Healthcare Research and Quality | FY 2018 |
| Emergency Medicine Opioid Data Infrastructure - Key Venue to Address Opioid Morbidity and Mortality | National Institutes of Health | FY 2018 |
| Capstone for the Outcomes Measures Harmonization Project | Agency for Healthcare Research and Quality | FY 2018 |
| Strengthening the Data Infrastructure for Outcomes Research on Mortality Associated with Opioid Poisonings | Centers for Disease Control and Prevention | FY 2018 |
| Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project | Centers for Disease Control and Prevention | FY 2018 |
| Technologies for Donating Medicare Beneficiary Claims Data to Research Studies | Centers for Medicare and Medicaid Services (CMS) National Institutes of Health | FY 2017 |
| Developing a Strategically Coordinated Registry Network (CRN) for Women’s Health Technology | Food and Drug Administration National Institutes of Health
Office of the National Coordinator for Health Information Technology | FY 2017 |
| Harmonization of Various Common Data Models and Open Standards for Evidence Generation | Food and Drug Administration National Institutes of Health Office of the National Coordinator for Health Information Technology | FY 2017 |
| Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT) | Agency for Healthcare Research and Quality Office of the National Coordinator for Health Information Technology | FY 2017 |
| PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for Privacy | Centers for Disease Control and Prevention
Office of the National Coordinator for Health Information Technology | FY 2015 |
| Use of the ADAPTABLE Trial to Strengthen Methods to Collect and Integrate Patient-reported Information with Other Data Sets and Assess Its Validity | National Institutes of Health | FY 2016 |
| Standardization and Querying of Data Quality Metrics and Characteristics for Electronic Health Data | Food and Drug Administration | FY 2016 |
| Utilizing Data from Various Data Partners in a Distributed Manner | Food and Drug Administration | FY 2015 |
| Improving the Mortality Data Infrastructure for Patient-Centered Outcomes (PCOR) | Centers for Disease Control and Prevention | FY 2015 |
| Development of a Natural Language Processing (NLP) Web Service for Public Health Use | Centers for Disease Control and Prevention Food and Drug Administration | FY 2016 |
| Security and Privacy Standards for Patient Matching, Linking and Aggregation | Office of the National Coordinator for Health Information Technology | FY 2015 |
| Harmonization of Clinical Data Element Definitions for Outcome Measures in Registries | Agency for Healthcare Research and Quality | FY 2016 |
| Source Data Capture from Electronic Health Records: Using Standardized Clinical Research Data | Food and Drug Administration | FY 2016 |
| Creation of LOINC Equivalence Classes | National Institutes of Health | FY 2016 |
| Cross Network Directory Service | Food and Drug Administration | FY 2015 |
| Collection of Patient-Provided Information through a Mobile Device Application for Use in Comparative Effectiveness and Drug Safety Research | Food and Drug Administration | FY 2015 |
| Conceptualizing a Data Infrastructure for the Capture and Use of Patient-Generated Health Data | Office of the National Coordinator for Health Information Technology | FY 2015 |
| Improving Beneficiary Access to their Health Information through an Enhanced Blue Button Service | Centers for Medicare and Medicaid Services | FY 2016 |
| Improving Beneficiary Access to Health Information: A Plan to Enhance “Blue Button” | Centers for Medicare and Medicaid Services | FY 2014 |
| Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct | Patient-Centered Outcomes Research (PCOR) Health Resources & Services Administration | FY 2014 |
| Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs) | Office of the National Coordinator for Health Information Technology | FY 2013 |
| Creating the Foundational Blocks for the Learning Health Care System: Structured Data Capture (SDC) | Office of the National Coordinator for Health Information Technology | FY 2013 |
| Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER) | Centers for Disease Control and Prevention | FY 2013 |
| Comparative Effectiveness Research (CER) Inventory | Assistant Secretary for Planning and Evaluation | FY 2012 |
| Beta Testing the Multi-Payer Claims Database (MPCD) | Assistant Secretary for Planning and Evaluation | FY 2012 |
| Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER) | Centers for Medicare and Medicaid Services | FY 2012 |
| Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER) | Office of the National Coordinator for Health Information Technology National Institutes of Health | FY 2012 |
