Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project

05/09/2019

Expand Availability of Data for Childhood Obesity Outcomes Research
Agency
  • Centers for Disease Control and Prevention (CDC)
Start Date
  • 5/30/2018
Functionality
  • Use of Clinical Data for Current Research
  • Standardized Collection of Standardized Clinical and Claims Data
  • Linking of Clinical and Other Data for Research

 

STATUS: Active Project

BACKGROUND

Currently, distributed PCOR networks routinely gather data collected in health care settings, and structure these data in a common way (i.e., with a Common Data Model (CDM)). These networks, though capable of combining patient-level health intervention and community-level data, lack coding for children’s data, so these types of linkages have been limited. By building linkages and more advanced tools, CODI will help researchers fill the evidence gaps identified by the U.S. Preventive Services Task Force (USPSTF) in 2017. These data will help researchers answer questions such as whether all children are being screened appropriately for obesity, whether disparities exist by demographic groups, and will assist in the identification of weight management programs (WMPs) that are most effective.

The project will pilot enhanced tools and services (e.g., patient record linkage and deduplication services) in the Colorado Health Observation Regional Data Service (CHORDS), a PCORnet Clinical Data Research Network (CDRN). CHORDS has initiatives to link patient health records to other data sources. To date, coding improvements and implementation of linkage services in large networks has been limited due to low resources for this purpose. The CODI project is designed to build data capacity of related research by linking data from health records such as weight height and blood pressure with WMP interventions and communities. This will expand the availability of data for childhood obesity PCOR that helps health professionals develop and tailor interventions that are specific to the needs of children.

PROJECT PURPOSE & GOALS

The purpose of this project is to link pediatric clinical EHR data, WMP intervention data, and community-level census information to expand the availability of data for researchers.

The objectives of the CODI project are:

  • Establish an end-user collaborative of 15 subject matter experts, childhood obesity researchers, and network representatives to capture the data needs of end-users and technical requirements needed to facilitate the exchange and linkage of the data identified.
  • Expand and standardize patient-level EHR and WMP intervention data, as well as community-level census data by expanding to capture CODI clinical and intervention data elements in the PCORnet CDM.
  • Identify and describe the current business and technical processes and tasks for capturing the required childhood obesity data within health care and WMP intervention workflows, and then design the future ideal processes for the CODI project.
  • Expand linkage and de-duplication tools for integrating childhood obesity data.
  • Pilot the enhanced CODI information technology services and implementation guide to test the ability to link and query data in CHORDS to produce datasets for PCOR researchers to analyze.