Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project 2.0

01/27/2021

Expand and Diversify Availability of Data for Childhood Obesity Outcomes Research
Agency
  • Centers for Disease Control and Prevention (CDC)
Start Date
  • 08/01/2020
Functionality
  • Use of Clinical Data for Current Research
  • Standardized Collection of Standardized Clinical and Claims Data
  • Linking of Clinical and Other Data for Research

 

STATUS: Active Project

BACKGROUND

Childhood obesity poses a grave risk to more than 14 million U.S. children. Research links obesity to lower educational attainment, poor quality of life, and diminished health. Researchers often lack access to data on factors that influence the effectiveness of interventions to prevent or treat childhood obesity and health outcomes. While existing patient-centered outcomes research (PCOR) networks within the PCORnet Clinical Data Research Network (CDRN) collect standardized data from a variety of healthcare settings, these efforts have largely focused on data for adult patients. Linked, longitudinal clinical and community child-specific data are needed to assess the appropriateness of childhood obesity screening programs and the effectiveness of pediatric weight management interventions (PWMIs), as well as sociodemographic factors that influence childhood obesity. In 2018, the OS-PCORTF funded the Childhood Obesity Data Initiative (CODI) 1.0 to build linkage capabilities, coding upgrades, and other enhancements into established PCOR networks to enhance the pediatric data available to researchers.

As a continuation CODI 1.0, this project will carry on the work of addressing data needs as it relates to childhood PWMIs. CODI 2.0 aims to further develop the existing CODI infrastructure for linking individual pediatric-level data across systems to prepare for implementation in diverse geographic areas and data networks. Additionally, CODI 2.0 will address issues of implementation, sustainability, and PCOR research capacity, enhancing the initiative’s technical capabilities and long-term feasibility. These improvements bolster the ability of research professionals to evaluate PWMIs and their corresponding outcomes and develop new guidance as it relates to personalized weight management interventions.

PROJECT PURPOSE & GOALS

CODI 2.0 seeks to augment current CODI infrastructure for wider deployment across diverse geographic areas and data networks.

The project objectives are to:

  • Establish a North Carolina Collaborative Working Group comprised of subject matter experts to advise and assist on matters such as project direction, development, and execution, and integrate the working group into the existing CODI collaborative governance to assist in the development of national CODI governance policies and procedures.

  • Scale-up existing PCOR capacity through inclusion of individual-level social determinants of health in linked data sets; craft implementation guidelines to promote adoption and use of project resources for alternative use by health researchers, scientists, and community partners; and enhance CODI infrastructure to reduce end-user implementation requirements and cost of populating common data models.

  • Integrate project infrastructure into a PCORnet participating network and develop a linked longitudinal data set including: childhood obesity-related risk factors, comorbid conditions, interventions and outcomes accessible by PCOR researchers.