State newborn screening (NBS) programs for heritable diseases and conditions provide vital health information that enables prevention and early detection of rare genetic conditions. Information management of the screening laboratory test orders and the reporting of laboratory is substantial challenge based on a variety of factors.
Data
ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research.
ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data.
ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example:
- Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
- Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
- Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
- Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
- Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.
Noteworthy
Reports
Displaying 321 - 330 of 628. 10 per page. Page 33.
Advanced SearchAdoption USA: A Chartbook Based on the 2007 National Survey of Adoptive Parents
Adoption USA presents findings from the first nationally representative survey of adoptive parents in the United States. About two percent of U.S. children joined their families through adoption.
Adoption USA. A Chartbook Based on the 2007 National Survey of Adoptive Parents
Authors: Sharon Vandivere and Karin Malm Child Trends Laura Radel
Identifying Opportunities to Maximize the Utility of Genomics Research Data Through Electronic Health Information Exchange
This report is a summary of the presentations and discussions at the workshop held by the Office of the Assistant Secretary for Planning and Evaluation, the National Cancer Institute, the Food and Drug Administration, and the Office of the National Coordination for Health Information Technology on October 15, 2009.
Substitutability Across Institutional Post-Acute Care Settings: 1998-2006
This report examines trends in the provision of post-acute care to beneficiaries with diagnoses indicating a need for complex medical care for the years 1998-2006, with special attention to changes in care provided by long-term care hospitals and hospital-based skilled nursing facilities.
Electronic Reporting in Pathology: Requirements and Limitations
This white paper originated in the fall of 2008 from work carried out by the Pathology Electronic Reporting Taskforce (PERT) of the College of American Pathologists (CAP). Under contract support from the Centers for Disease Control (CDC), the PERT was tasked to propose electronic implementations of the CAP Cancer Committee's reporting templates.
Evaluation of the Personal Health Record Pilot for Medicare Fee-For Service Enrollees from South Carolina
Contract No: HHSP23320045020XI Prepared for: Ms. Suzie Burke-Bebee U.S. Department of Health and Human Services Office of the Secretary Assistant Secretary for Planning and Evaluation Prepared by:
Literature Review
Literature Review and Environmental Scan: Evaluation of Personal Health Records Pilots for Fee-for-Service Medicare Enrollees
Evaluation of the Personal Health Record Pilot for Medicare Fee-For-Service Enrollees from South Carolina
This mostly qualitative study identified key usability and utility components of a personal health record (PHR) being used by an elderly population living in South Carolina.