This tab within ASPE’s Patient-Centered Outcomes Research Trust Fund Reports website contains snapshots of active and completed projects currently in the OS PCORTF portfolio. Projects within the two categories (both active and complete) are arranged in reverse chronological order: the earliest awarded projects entered first (e.g., lower on the list) and the most recently awarded projects shown on top. Multi-agency projects are described and entered as a full single project, not separated by the awards to each agency. The project is located according to the date of the earliest agency’s award. Please note that future entries to the completed list may change the order since the award dates may not be in the same order as the completion dates. The rationale for this organization is to show the development of the projects over time. Please click on the bars below to show the completed projects and active projects.
Active Projects
- Data Linkage: Evaluating Privacy Preserving Record Linkage Methodology and Augmenting the National Hospital Care Survey with Medicaid Administrative Records
- Developing a Multi-State Network of Linked Pregnancy Risk Assessment Monitoring System (PRAMS) and Clinical Outcomes Data for Patient-Centered Outcomes Research
- Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions 2.0: Development of the Patient-Facing Application
- Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project 2.0
- Training Data for Machine Learning to Enhance Patient-Centered Outcomes Research (PCOR) Data Infrastructure
- A Synthetic Health Data Generation Engine to Accelerate Patient-Centered Outcomes Research
- Validating and Expanding Claims-Based Algorithms of Frailty and Functional Disability for Value-Based Care and Payment
- Bridging the PCOR Infrastructure and Technology Innovation through Coordinated Registry Networks (CRN) Community of Practice
- Surveillance Network: Maternal, Infant, and Child Health Outcomes Following Treatment of Opioid Use Disorder (OUD) During Pregnancy
- Linking State Medicaid and Child Welfare Data for Outcomes Research on Treatment for Opioid Use Disorder and Other Behavioral Health Issues
- Augmenting the National Hospital Care Survey (NHCS) Data through Linkages with Administrative Records: A Project
- Identifying Co-Occurring Disorders among Opioid Users Using Linked Hospital Care and Mortality Data: Capstone to an Existing FY18 OS-PCORTF Project
- NIDA’s AMNET: An Addiction Medicine Network to Address the United States Opioid Crisis
- Data Capacity for Patient-Centered Outcomes Research through Creation of an Electronic Care Plan for People with Multiple Chronic Conditions
- Making Electronic Health Record (EHR) Data More Available for Research and Public Health
- SHIELD- Standardization of Lab Data to Enhance Patient-Centered Outcomes Research and Value-Based Care
- Enhancing Patient-Centered Outcomes Research (PCOR): Creating a National Small-Area Social Determinants of Health Data Platform
- Assessing and Predicting Medical Needs in a Disaster
- Capstone for the Outcomes Measures Harmonization Project
- Emergency Medicine Opioid Data Infrastructure - Key Venue to Address Opioid Morbidity and Mortality
- Childhood Obesity Data Initiative (CODI): Integrated Data for Patient-Centered Outcomes Research Project
- Strengthening the Data Infrastructure for Outcomes Research on Mortality Associated with Opioid Poisonings
- Enhancing Identification of Opioid-Involved Health Outcomes Using Linked Hospital Care and Mortality Data
- Technologies for Donating Medicare Beneficiary Claims Data to Research Studies
- Developing a Strategically Coordinated Registry Network (CRN) for Women’s Health Technology
- Harmonization of Various Common Data Models and Open Standards for Evidence Generation
- Enhancing Data Resources for Researching Patterns of Mortality in Patient Centered Outcomes Research
- Advancing the Collection and Use of Patient-Reported Outcomes (PROs) through Health Information Technology (IT)
- Use of the ADAPTABLE Trial to Strengthen Methods to collect and Integrate Patient-reported Information with Other Data Sets and Assess Its Validity
- PCOR: Privacy and Security Blueprint, Legal Analysis and Ethics Framework for Data Use, & Use of Technology for Privacy
Completed Projects
- Standardization and Querying of Data Quality Metrics and Characteristics for Electronic Health Data
- Utilizing Data from Various Data Partners in a Distributed Manner
- Improving the Mortality Data Infrastructure for Patient-Centered Outcomes (PCOR)
- Development of a Natural Language Processing (NLP) Web Service for Public Health Use
- Security and Privacy Standards for Patient Matching, Linking and Aggregation
- Harmonization of Clinical Data Element Definitions for Outcome Measures in Registries
- Source Data Capture from Electronic Health Records: Using Standardized Clinical Research Data
- Creation of LOINC Equivalence Classes
- Cross Network Directory Service
- Collection of Patient-Provided Information through a Mobile Device Application for Use in Comparative Effectiveness and Drug Safety Research
- Conceptualizing a Data Infrastructure for the Capture and Use of Patient-Generated Health Data
- Improving Beneficiary Access to their Health Information through an Enhanced Blue Button Service
- Improving Beneficiary Access to Health Information: A Plan to Enhance “Blue Button”
- Strengthening and Expanding the Community Health Applied Research Network (CHARN) Registry to Conduct Patient-Centered Outcomes Research (PCOR)
- Creating the Foundational Building Blocks for the Learning Health Care System: Data Access Standards for Electronic Health Records (EHRs)
- Creating the Foundational Blocks for the Learning Health Care System: Structured Data Capture (SDC)
- Expanding Data Collection for the National Program of Cancer Registries (NPCR) for Comparative Effectiveness Research (CER)
- Comparative Effectiveness Research (CER) Inventory
- Beta Testing the Multi-Payer Claims Database (MPCD)
- Maintenance and Support of the Chronic Conditions Warehouse (CCW) for Comparative Effectiveness Research (CER)
- Development of Data Infrastructure for Use of Electronic Health Records (EHRs) in Comparative Effectiveness Research (CER)