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Data

ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.

Reports

Displaying 61 - 70 of 612. 10 per page. Page 7.

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Guide

Tips on Equitable Communication

This tip sheet highlights the importance of using equitable communication and includes tips, guiding questions, and additional resources. The information is organized around three key strategies for equitable communication:
Guide

Guide on Advancing Equity by Incorporating Intersectionality in Research and Analysis

This guide explores intersectionality and why it is essential for advancing equity. It explores strategies for planning and conducting research with an intersectional lens, describes quantitative measures and methods to examine differences across groups of people with intersecting identities, and provides key considerations for using qualitative data to better understand intersectionality.
Guide

In-Depth Equity Assessment Guide

This tool describes how to conduct intensive equity assessments of existing programs, policies, and processes. The tool first describes the scoping work that needs to be done before conducting an equity assessment and then describes and provides guiding questions for each of the six steps in the in-depth equity assessment process. Those six steps are:
Report

Synthetic Data in Health Care: A Narrative Review

ASPE recently published a narrative review in PLOS Digital Health exploring how synthetic data are being used. Researchers searched published literature and known, publicly available synthetic datasets.
Guide

Equity Assessment Tip Sheet

This tool describes the six steps for conducting equity assessments and provides tips for completing each step. Although specific steps vary by equity assessment tool and context, core steps include:
Research Brief

Early Changes in Waivered Clinicians and Utilization of Buprenorphine for Opioid Use Disorder After Implementation of the 2021 HHS Buprenorphine Practice Guidelines

In April 2021 the U.S. Department of Health and Human Services (HHS) issued revised Practice Guidelines for the Administration of Buprenorphine for Treating Opioid Use Disorder (Practice Guideline).
Environmental Scan

Identifying Environmental Data, Barriers, and Opportunities for HSR and PCOR: Environmental Scan

The authors conducted a landscape scan to identify environmental data suitable for health services research (HSR) and patient centered outcomes research (PCOR). Additional research was done to uncover examples of and opportunities for data linkage with other HHS data.
Fact Sheet

Addressing the Opioid Overdose Crisis Through Better Data: Opioids Vignette

This updated 2022 vignette provides examples of how a range of Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) cross-agency projects are working to address the opioid overdose crisis by 1) Improving Timeliness and Quality of Outcomes Data 2) Building Capacity for Collection of Patient-Reported Outcomes 3) Building Linkages to Address Co-Morbidities
Fact Sheet

Enhancing Data Infrastructure to Improve Women’s Health Outcomes: Maternal Health Vignettes

This updated 2022 vignette provides examples of how a range of the Office of the Secretary Patient-Centered Outcomes Research (OS-PCORTF) cross-agency projects are working to improve maternal health by 1) Enhancing Women’s Health Data for Research 2) Adding Electronic Health Records to the Suite of Maternal Health Data for Research 3) Linking Maternal Survey Data with Other Health Data.
ASPE Issue Brief

National and State Estimates of Children Living with Parents Using Substances, 2015–2019

This brief presents estimates of the number and percentage of children whose parents engage in problematic substance use, including past-year substance use and SUD by substance type and child demographics. Key findings include: