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ASPE uses and produces data as key components of its work. ASPE studies and assesses data and how it is captured, managed, analyzed and protected, including the interplay of the sources, systems, standards for data that support policy, practice and research. 

ASPE also co-chairs the HHS Data Council, which is the principal internal advisory body to the Secretary on health and human services data policy. The Council coordinates data policy activities in HHS, including the development and implementation of an HHS data strategy, and conducts research to improve long-term collection and use of HHS data. 

ASPE’s work involves many types of data produced by HHS and other governmental programs and other partners. For example: 

  • Through its Foundations for Evidence-Based Policies Act of 2018 (“Evidence Act”) and Data Council responsibilities, ASPE leads HHS efforts to improve the quality and accessibility of its data assets.
  • Through its investments under the aegis of the Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF), ASPE supports interoperability through such products as linked datasets involving mortality data, HL7 implementation guides in support of FHIR for research use of electronic health records, claims and other data, and natural language processing approaches.
  • Through the use of ASPE-developed supplemental data tables, ASPE has developed issue brief series examining options before and after the passage of the American Rescue Plan Act of 2021 (ARP).
  • Through its issue briefs such as this brief on Medicare Telehealth utilization trends, ASPE provides unique and timely data and analyses on important policy issues.
  • Pursuant to the Social Security Act, ASPE annually calculates and publishes the Federal Medical Assistance Percentage (FMAP), enhanced Federal Medicaid Assistance Percentage (e-FMAP), and disaster-recovery FMAP for all states, the District of Columbia, and territories. The FMAP is used to determine federal funding for Medicaid/CHIP, Temporary Assistance for Needy Families (TANF) Contingency Funds, and other public programs. The FY 2022 FMAP notice was published in the Federal Register on November 30, 2020.


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Confidentiality of Electronic Health Data: Methods for Protecting Personally Identifiable Information

January 1990 through March 1996 448 Selected Citations Prepared by

HHS Plan for Integration of Surveys

Highlights The IssueHHS has a considerable investment in surveys and other data systems to support broad analytic and program objectives. These range from monitoring of the population and health system, to supporting biomedical, epidemiological, and health services research, to supporting the management and evaluation of HHS programs.

Core Dataset Project: Child Welfare Service Histories

By Robert Goerge, John Van Voorhis, Lisa Sanfilippo, and Allen Harden Chapin Hall Center for Children at the University of Chicago April 8, 1996

Performance Improvement 1996

ForewordThe Department of Health and Human Services (HHS) promotes and protects the health and well-being of all Americans and provides world leadership in biomedical and public health sciences.

Report on Study Methods: Analysis of the Effect of Regulation on the Quality of Care in Board and Care Homes

The goals of this project were to describe the quality of care in board and care homes and how it varies across licensure and regulatory systems. Accomplishment of these objectives required a study design that incorporated several activities, including a major collection of new data. This report provides a detailed discussion of methods used in this project. [66 PDF pages]

A Description of Board and Care Facilities, Operators, and Residents

This is the second in a series of four reports that summarize study findings and methods. This report presents descriptive findings on the characteristics of board and care facilities, operators, staff, and residents. Section 2 briefly describes the study design and sampling and analytic methodology; more detailed discussion is presented in the Technical Report Study Methods.

Report on the Effects of Regulation on Quality of Care: Analysis of the Effect of Regulation on the Quality of Care in Board and Care Homes

This report presents the analysis of the effect of regulation and licensure on the quality of care in board and care homes.

Directive 95/ /EC of the European Parliament and of the Council of the European Union

European Union Restreint ECO 291 CODEC 92 Common Position (EC) No /95 Adopted by the Council on 20 February 1995 With a View to Adopting Directive 94/ /EC of the European Parliament and of the Council on the Protection of Individuals With Regard to the Processing of Personal Data And on the Free Movement of Such Data