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Research Summit on Dementia Care 2020: Stakeholder Groups

2020 Stakeholder Groups

 

FAMILY CAREGIVERS

PAYER

PERSONS LIVING WITH DEMENTIA

  • Stakeholder Group Paper: Persons Living with Dementia Stakeholder Workgroup Research Recommendations (added July 2020)

SERVICE PROVIDERS

WORKFORCE DEVELOPMENT

Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.

 

FAMILY CAREGIVERS

Co-chairs

Lisa Gwyther
Durham, North Carolina

Ann Cheslaw
Santa Monica, California

 
 

Members

Jacquie Alexander-Sykes
Los Angeles, California

Chuck Anastasia
Bristol, Rhode Island

Karen Appert
Winston-Salem, North Carolina

Venoreen Browne-Boatswain
Plymouth, Minnesota

Liliana Rodriguez Cracraft
Houston, Texas

Richard Gamez
Houston, Texas

Adele Gorelick
Bethesda, Maryland

Ron Hendler
Mariottsville, Maryland

Mary Hogan
Eliot, Maine

Janna Kaplan
Boston, Massachusetts

Carol O'Malia
Dallas. Pennsylvania

Sowande Tichawonna
Washington, D.C.

Lynda Wagner
Bismarck, North Dakota

Sonia Waidelich
Bloomsburg, Pennsylvania

Eileen Weber
Los Angeles, California

STAKEHOLDER GROUP PAPER: Family Caregiver Stakeholder Workgroup Research Recommendations
This report is a summary of the research recommendations that were developed as a result of meetings with the members of the Family Caregiver Stakeholder workgroup. [PDF Version]

 

PAYER

Co-chairs

Elizabeth Goodman
AHIP

Alice Bonner
Johns Hopkins University School of Nursing

 
 

Members

Shari Ling
Centers for Medicare & Medicaid Services

Jennifer Egan
Centers for Medicare & Medicaid Services

Ellen Blackwell
Centers for Medicare & Medicaid Services

Debra Cherry
Alzheimer’s Los Angeles

Soo Borson
University of Washington

Michael Monson
Centene Corporation

Robyn Stone
Leading Age

Helen Lamont
U.S. Department of Health and Human Services

Katie Maslow
Gerontological Society of America

Susan Cooley
U.S. Department of Veteran’s Affairs

 
 

 
 

STAKEHOLDER GROUP PAPER: Payer Stakeholder Workgroup Research Recommendations
This report is a summary of the research recommendations that were developed as a result of meetings with the members of the Payer Stakeholder workgroup. [PDF Version]

 

PERSONS LIVING WITH DEMENTIA

Co-chairs

Gary Epstein-Lubow
Brown University

Monica Moreno
Alzheimer's Association

 
 

Members

Arthena Caston
Macon, Georgia

David Elliott
Piedmont, California

Bonnie Erickson
Billings, Montana

Keith Moreland
Anderson, South Carolina

Ed Patterson
Clermont, Florida

Laurie Scherrer
Oley, Pennsylvania

Chris Shwilk
Carlisle, Pennsylvania

 
 

 
 

STAKEHOLDER GROUP PAPER: Persons Living with Dementia Stakeholder Workgroup Research Recommendations
This report is a summary of the research recommendations that were developed as a result of meetings with the members of the Persons Living with Dementia Stakeholder workgroup. [PDF Version]

 

SERVICE PROVIDERS

Co-chairs

Doug Pace
Alzheimer's Association

Sarah Lock
AARP

 
 

Members

Lisa Baron
Memory Care Home Solutions

Basia Belza
University of Washington

Ellen Blackwell
CMS

Alice Bonner
Institute for Healthcare Improvement

Malaz Boustani
University of Indiana

Kelly Carney
ACTS Retirement-Life Communities

Molly Carpenter
Home Instead Senior Care

Jennifer Carson
University of Reno

Deke Cateau
AG Rhodes Health & Rehab

Jill Cigliana
Memory Care Home Solutions

Patrick Doyle
Brightview Senior Living

Jonathan Evans
AMDA

Maribeth Gallagher
Hospice of the Valley

Carolyn Hoff
National Association of Activity Professionals

Juliet Holt-Klinger
Brookdale Senior Living

Matthew Janicki
University of Illinois at Chicago

Keith Jardine
Comfort Keepers

Amy McLean
Hospice of the Valley

Jewel Mullen
University of Texas at Austin

Lori Nisson
Banner Alzheimer’s Institute

Kelly Pappa
Duncaster

Lindsay Schwartz
AHCA/NCAL

Katie Tardiff
Seniorlink

 
 

STAKEHOLDER GROUP PAPER: Service Providers Stakeholder Workgroup Research Recommendations
This report is a summary of the research recommendations that were developed as a result of meetings with the members of the Service Providers Stakeholder workgroup. [PDF Version]

 

WORKFORCE DEVELOPMENT

Co-chairs

Joan Weiss, PhD, RN
HRSA

Nina Tumosa, PhD
HRSA

Robert Espinoza, MPA
PHI

Members

Libbie Bragg, PhD, RN
Xavier University

Jennifer Craft Morgan, PhD
Georgia State University

Jason Flatt, PhD, MPH
University of Nevada, Las Vegas

Eleanor McConnell, PhD, RN
Duke University

Grace Whiting, JD
National Alliance for Caregiving

 
 

STAKEHOLDER GROUP PAPER: Workforce Development Stakeholder Workgroup Research Recommendations
This report is a summary of the research recommendations that were developed as a result of meetings with the members of the Workforce Development Stakeholder workgroup. [PDF Version]

 

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