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Marc A. Cohen, Ph.D. Vice President, LifePlans, Inc. President, Center for Health and Long-Term Care Research Maurice Weinrobe, Ph.D. Professor of Economics, Clark University
Marc A. Cohen, Ph.D. Vice President, LifePlans, Inc. President, Center for Health and Long-Term Care Research Maurice Weinrobe, Ph.D. Professor of Economics, Clark University Jessica Miller, M.S.
This booklet, developed by the U.S. Department of Health and Human Services (HHS) is about informal caregiving unpaid care given voluntarily to ill or disabled persons by their families and friends. Informal caregiving by families and friends is the backbone of America's long-term care system.
In Chapter 14 (United States), the long development of long-term care policy is described, giving particular emphasis to the functioning of the main programs introduced in the 1960s, and their progressive modification up to the 1990s. Finally, an outline is given of the main reform debates of the late 1980s and 1990s. [38 PDF pages]
The 1989 National Long Term Care Survey is the first nationally representative survey to collect data on weekly hours of assistance received by ADL and/or IADL disabled elders living in the community by individual caregivers, both formal and informal.
This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.