This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Caregiving, Formal & Informal
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Advanced SearchDementia Caregiving in the U.S.: Research Recommendations
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Caregiving and Intellectual and Developmental Disabilities and Dementia: Report of the Pre-Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
ASPE Issue Brief
Caregiving for People with Non-Alzheimer's Dementias Issue Brief
This is the PDF version of a Reference Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Informal Caregiving for Older Americans: An Analysis of the 2011 National Health and Aging Trends Study
Informal Caregiving for Older Americans: An Analysis of the 2011 National Health and Aging Trends Study Executive Summary April 2014 Brenda C. Spillman, Ph.D.Urban Institute Jennifer Wolff, Ph.D.
Informal Caregiving for Older Americans: An Analysis of the 2011 National Study of Caregiving
Office of the Assistant Secretary for Planning and Evaluation
Does High Caregiver Stress Lead to Nursing Home Entry?
Brenda C. Spillman and Sharon K. Long Urban Institute January 26, 2007 This report was prepared under contract #HHS-100-03-0011 between the U.S. Department of Health and Human Services (HHS), Office of Disability, Aging and Long-Term Care Policy (DALTCP) and the Urban Institute.
Recent Findings on Frontline Long-Term Care Workers: A Research Synthesis 1999-2003
The purpose of the synthesis paper is to review, summarize, and discuss the significance of available research findings on the frontline long-term care (LTC) workforce since 1999, in both home and community-based and nursing home settings. This paper provides an updated review of the status of empirical findings, focusing on what has been learned between 1999 and 2003.
Recruiting and Retaining a Quality Paraprofessional Long-Term Care Workforce: Building Collaboratives with the Nation's Workforce Investment System
This paper provides the fundamental context of both the long-term care sector and the workforce investment system in order to build understanding among members of each system. It is not intended to be comprehensive but to provide enough information to stimulate dialogue. Section II briefly describes the characteristics of the long-term care paraprofessional workforce.
Easing the Burden of Caregiving: The Effect of Consumer Direction on Primary Informal Caregivers in Arkansas
U.S. Department of Health and Human Services