Publication Date
This report is to serve as a data source guide that helps policymakers and researchers understand the current data infrastructure landscape for SCD-focused health outcomes research. Specifically, the goals are to identify existing SCD data sources and data dashboards as well as key considerations to enhance data collection and use. This report is intended to inform federal, academic, and independent researchers on relevant resources for SCD-focused health outcomes research. Furthermore, considerations in this report can guide future SCD data infrastructure investments.
Files
Document
NCE SCD Report (pdf, 1.5 MB)
Topics
Health Information Technology (HIT)
| Administrative Data
| Big Data
| Data & Information Infrastructure
| Data Sharing & Interoperability
| Demographic Data
| Health Outcomes
| Survey Data
| Chronic Conditions & Illnesses
| Patient-Centered Outcomes Research
Product Type
Report
Populations
Children
| Men
| Women
| Black & African American People
| Hispanic, Latino, Latina, & Latinx People
| Racial & Ethnic Groups