Data Sharing & Interoperability

This brief describes how enhancing linked data infrastructure across health and human services programs can improve efficiency, increase transparency through strengthening outcomes research, and empower patients and families to make more informed choices.

This brief examines the timing of Medicaid and Children’s Health Insurance Plan (CHIP) enrollment relative to timing of engagement with child welfare services for children in Florida and Kentucky. The analysis covers children involved in child welfare systems from 2017-2021.

Linking data across public systems is beneficial for a multitude of reasons including care coordination, improving research on populations engaged with multiple public services, and improving program integrity.

This two-pager describes several child welfare and Medicaid data linking projects and lessons learned from those projects. For example, the brief highlights key lessons such as the value in providing states with support in navigating data governance and in strengthening and harmonizing data infrastructure on child welfare service.

This paper provides an overview of Health Information Technology (HIT) adoption and utilization in long-term and post-acute care (LTPAC) settings. This study found that LTPAC have adopted electronic health records (EHRs) to support clinical and business needs. Interoperable exchange of health information however is not routine or widely used.

This report is the third in a series of reports commissioned by the Office of the Assistant Secretary for Planning and Evaluation (ASPE) from the RAND Corporation addressing state all payer claims databases (APCDs). APCDs include medical, pharmacy, and dental claims, as well as enrollment and provider files collected from private and public payers by states, usually as part of a State mandate.

The purpose of this project was to develop and test a suite of electronic Care Plan (eCP) tools for adults with multiple chronic conditions (MCC), including an eCP implementation guide specifying data standards and value sets for key use case conditions and two open-source eCP apps (one for patients and one for clinicians).

This is the final report of an AHRQ study to address the operational gap between CFIs and EFIs. This project focused on validating an established CFI using linked claims-EHR databases of multiple large health systems. The project provides a systematic approach that health systems can use to examine the quality of the EHR data and prepare it for the application of EFI measures.

This report provides information to state, tribal, and local child welfare and behavioral health agencies that are interested in linking their Medicaid and child welfare data.