Skip to main content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Data & Information Infrastructure

Reports

Displaying 1 - 10 of 75. 10 per page. Page 1.

Advanced Search
Fact Sheet

Addressing the Opioid Overdose Crisis Through Better Data: Opioids Vignette

November 23, 2022
This updated 2022 vignette provides examples of how a range of Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) cross-agency projects are working to address the opioid overdose crisis by 1) Improving Timeliness and Quality of Outcomes Data 2) Building Capacity for Collection of Patient-Reported Outcomes3) Building Linkages to Address Co-Morbidities
Fact Sheet

Enhancing Data Infrastructure to Improve Women’s Health Outcomes: Maternal Health Vignettes

November 16, 2022
This updated 2022 vignette provides examples of how a range of the Office of the Secretary Patient-Centered Outcomes Research (OS-PCORTF) cross-agency projects are working to improve maternal health by 1) Enhancing Women’s Health Data for Research 2) Adding Electronic Health Records to the Suite of Maternal Health Data for Research 3) Linking Maternal Survey Data with Other Health Data.
Report

Medicare Data Linkages for Conducting Patient-Centered Outcomes Research on Economic Outcomes

October 13, 2022
This report and dataset inventory identifies federally funded data linkages that may facilitate patient-centered outcomes research (PCOR) on economic outcomes for Medicare fee-for-service (FFS) beneficiaries.
Guide

Glossary of Common Data-Related Terms

October 5, 2022
The Department of Health and Human Services (HHS) has several different policy groups such as the HHS Data Council, Data Governance Board, Evidence and Evaluation Policy Council, and the HHS AI Council that frequently use many terms related to data, but likely with inconsistent understanding of their definitions and how these terms should be used.
Report

Improving Data Infrastructure for Patient-Centered Outcomes Research for People with Intellectual and Developmental Disabilities

July 26, 2022
This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD). Related Products:
Report

Linking State Health Care Data to Inform Policymaking: Opportunities and Challenges

June 24, 2022
This posting includes a report prepared by the RAND Corporation, “State All Payer Claims Databases Understanding the Current Landscape and Challenges to Use,” which builds on a 2021 report “The History, Promise and Challenges of State All Payer Claims Databases.” The new report provides additional detail on the objectives of and use cases for APCDs, the current APCD landscape, and implementati
Report

Building the Data Capacity for Patient-Centered Outcomes Research: The 2021 Annual Report Executive Summary and Full Report

June 3, 2022
The 2021 Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS PCORTF) Annual Report Executive Summary and Full Report highlights the accomplishments of 34 multi-agency projects to build data capacity and support the mission of HHS to advance science and improve knowledge about the comparative effectiveness of health care interventions.

Leveraging ACF Administrative Data for Evidence and Research

April 23, 2020
This brief analyzes information on administrative data resources collected by the Administration for Children and Families (ACF). It explores how the data can be leveraged to improve evidence and research on ACF programs and beneficiaries. Key highlights include:
Report

A Compendium of Administrative and Survey Data Resources in the Administration for Children and Families

April 23, 2020
This compendium is an effort to understand and document the data collected by ACF that is or could be used for evidence-building purposes. It includes summaries of twelve major ACF administrative data sources and seven surveys.

AI AN Data Capacity

February 6, 2020
National health surveillance instruments are intended to monitor important health issues and health status of all populations in the United States. Several population subgroups present with disparities in health conditions and health care. To effectively create programs and policies to address these issues requires accurate identification of key population subgroups.