Data & Information Infrastructure

This report and dataset inventory identifies federally funded data linkages that may facilitate patient-centered outcomes research (PCOR) on economic outcomes for Medicare fee-for-service (FFS) beneficiaries.

The Department of Health and Human Services (HHS) has several different policy groups such as the HHS Data Council, Data Governance Board, Evidence and Evaluation Policy Council, and the HHS AI Council that frequently use many terms related to data, but likely with inconsistent understanding of their definitions and how these terms should be used.

This report describes insights gained from key informant interviews and an ASPE-hosted listening session on short-term opportunities for improving patient-centered outcomes research (PCOR) data infrastructure that addresses the needs of individuals with intellectual and developmental disabilities (ID/DD). Related Products:

This posting includes a report prepared by the RAND Corporation, “State All Payer Claims Databases Understanding the Current Landscape and Challenges to Use,” which builds on a 2021 report “The History, Promise and Challenges of State All Payer Claims Databases.” The new report provides additional detail on the objectives of and use cases for APCDs, the current APCD landscape, and implementatio

The 2021 Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS PCORTF) Annual Report Executive Summary and Full Report highlights the accomplishments of 34 multi-agency projects to build data capacity and support the mission of HHS to advance science and improve knowledge about the comparative effectiveness of health care interventions.

This compendium is an effort to understand and document the data collected by ACF that is or could be used for evidence-building purposes. It includes summaries of twelve major ACF administrative data sources and seven surveys.

This brief analyzes information on administrative data resources collected by the Administration for Children and Families (ACF). It explores how the data can be leveraged to improve evidence and research on ACF programs and beneficiaries. Key highlights include:

National health surveillance instruments are intended to monitor important health issues and health status of all populations in the United States. Several population subgroups present with disparities in health conditions and health care. To effectively create programs and policies to address these issues requires accurate identification of key population subgroups.

This report builds on a workshop sponsored by ASPE, titled Addressing the Opioid Epidemic: Harnessing the Power of Data for Patient-Centered Research in December 2018, which showcased projects working to build the data infrastructure for patient-centered outcomes research around opioids.

This brief summarizes the current set of federal performance indicators and provides key policy considerations for policymakers and administrators within federal and state agencies who are interested in building a framework for coordinated performance measurement.