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Disability

Reports

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Report

Framework for a Public Repository of Artificial Intelligence Training Datasets Using EHR Data for Comparative Effectiveness Research & A Pediatric ADHD Patient-Centered Outcomes Annotation Schema

Artificial intelligence (AI) tools, particularly those that use natural language processing (NLP), are becoming increasingly prominent in healthcare delivery. For these systems to operate safely and reliably in clinical settings, they require high-quality training datasets drawn from multiple sources, including electronic health record (EHR) data, that closely reflect real-world conditions.
Report

Harnessing the Value of Electronic Health Record Data for Research

The United States (U.S.) faces urgent health challenges, including poor maternal and childhood health outcomes, childhood obesity, opioid use disorder, cancer, and chronic conditions, which require personalized care tailored to each patient’s unique circumstances.
Report

Advancing an Operational Definition of Intellectual and Developmental Disabilities for Use in Research

Background. Accurately estimating the prevalence of intellectual and developmental disabilities (ID/DD) in the United States remains a challenge, with reported rates varying widely (3%-17%) based on the definitions and data sources used.
Report

Environmental Scan of Pathways to Economic Self-Sufficiency for People with Disabilities

In the U.S., about 11 percent of people ages 18 to 64 living in the community have a disability. Health conditions that cause disability can negatively affect the human capital development of children and the ability of adults to engage in the labor force.
Report

Identifying Disability with Medicaid Claims Data

Medicaid provides health insurance coverage and services and supports for people with disabilities, as well as groups of children and adults based on financial eligibility.
ASPE Issue Brief

Use of Medicaid Personal Care Services in 2019 and 2020

This issue brief looks at changes in the utilization of personal care services among Medicaid beneficiaries from 2019 to 2020.
ASPE Issue Brief, Report

Rebalancing of Medicaid-Funded Long-Term Services and Supports, 2016-2019

Shifting spending and delivery of long-term services and supports (LTSS) from institutions to the home and community is often referred to as rebalancing. This report and brief describe variation in LTSS rebalancing between 2016 and 2019 by enrollee age, health condition, and demographic factors.
ASPE Issue Brief, Report

Long-Term Services and Supports Reform

While the likelihood of needing any long-term services and supports (LTSS) is roughly a coin flip, the cost if one needs assistance for a long period of time can be catastrophic. For example, about one-in-five Americans turning age 65 today will have long-term care costs exceeding $200,000.
Report

Definitions and Occupational Characteristics of Direct Support Professionals

This study explores duties and activities that distinguish the DSP occupation from other direct care workforce occupations to inform the consideration of a DSP SOC code and other workforce data collection efforts. This study also identifies information beyond what is needed to create a DSP SOC code that states need on the DSP workforce to address policy and workforce planning activities.
Report to Congress

Children's Interagency Coordinating Council (CICC) FY 2024 Report to Congress

Congress has directed HHS to operate the Children’s Interagency Coordinating Council (CICC). The CICC is charged with fostering greater coordination and transparency on child policy across federal agencies and examining a broad array of cross-cutting issues affecting child poverty and child well-being.