Data & Statistical Policy

This brief describes how enhancing linked data infrastructure across health and human services programs can improve efficiency, increase transparency through strengthening outcomes research, and empower patients and families to make more informed choices.

This report and accompanying discussion by ASPE and NORC highlights the claims data limitations identified during the COVID-19 Public Health Emergency Health (PHE) and provides considerations to address these limitations. The report identifies that limitations related to claims data were existing issues, exacerbated by, but not unique to, the COVID-19 PHE.

In recent years several researchers and child welfare agencies have begun developing predictive risk models to support child welfare decision-making. Predictive analytics is a sophisticated form of risk modeling that uses historical data to understand relationships between myriad factors to estimate a probability score for the outcome of interest.

The Department of Health and Human Services (HHS) has several different policy groups such as the HHS Data Council, Data Governance Board, Evidence and Evaluation Policy Council, and the HHS AI Council that frequently use many terms related to data, but likely with inconsistent understanding of their definitions and how these terms should be used.

This posting includes a report prepared by the RAND Corporation, “State All Payer Claims Databases Understanding the Current Landscape and Challenges to Use,” which builds on a 2021 report “The History, Promise and Challenges of State All Payer Claims Databases.” The new report provides additional detail on the objectives of and use cases for APCDs, the current APCD landscape, and implementatio

This report analyzes newly-released data from CMS that provides information on changes in ownership among hospitals and skilled nursing facilities (SNFs), based on information reported to CMS through the Provider Enrollment, Chain, and Ownership System (PECOS).

The Child and Caregiver Outcomes Using Linked Data project provides technical assistance to states to develop state-specific datasets linking the Medicaid administrative claims of parents with the records of their children from the child welfare system. The data will be combined into a multi-state, de-identified data sets for secondary data analysis.

Summary of panel discussion concerning the challenges of measuring the impact of disease management programs, especially for individuals with multiple chronic conditions.