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Intellectual & Developmental Disabilities (ID & DD)

Reports

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Report

Considerations for Building Federal Data Capacity for Patient-Centered Outcomes Research Related to Intellectual and Developmental Disabilities

October 13, 2021
This report describes the current state of Patient-Centered Outcomes Research (PCOR) data infrastructure resources related to Intellectual and Developmental Disabilities (ID/DD), highlights data issues in the ID/DD research landscape that require more research, and identifies opportunities to enhance data infrastructure to improve PCOR for ID/DD. Related Products:
ASPE Issue Brief

Child and Adolescent Mental Health During COVID-19: Considerations for Schools and Early Childhood Providers

September 24, 2021
COVID-19 pandemic’s social restrictions have prompted a surge in the mental health needs of children of all ages. Nationwide 4.3 million children/adolescents have been diagnosed with COVID-19 as of August 2021, and many of them have returned to early childhood and school settings. Schools and early childhood programs have long been essential settings for delivery of mental health services.

Caregiving and Intellectual and Developmental Disabilities and Dementia: Report of the Pre-Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities

July 31, 2017
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
ASPE Issue Brief

Caregiving for People with Non-Alzheimer's Dementias Issue Brief

June 30, 2017
This is the PDF version of a Reference Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).

An Estimate of the Number of Persons with Developmental Disabilities Receiving Supplemental Security Income Benefits and Their Characteristics

June 30, 1990
This paper was prepared as part of the Project to Design a Survey of Persons with Developmental Disabilities. The overall purpose of this project was to develop a national survey design that would provide data on a nationally representative sample of persons. This paper was conducted to develop a National Survey of Mentally Retarded and Developmentally Disabled Persons in Community Settings.