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Considerations for Building Federal Data Capacity for Patient-Centered Outcomes Research Related to Intellectual and Developmental Disabilities

Publication Date

This report describes the current state of Patient-Centered Outcomes Research (PCOR) data infrastructure resources related to Intellectual and Developmental Disabilities (ID/DD), highlights data issues in the ID/DD research landscape that require more research, and identifies opportunities to enhance data infrastructure to improve PCOR for ID/DD.

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Files
Data Capacity for PCOR Related to Intellectual and Developmental Disabilities (pdf, 1.19 MB)
Topics
Aging & Disability | Intellectual & Developmental Disabilities (ID & DD)
Product Type
Report