Web-based Information Exchange and Information Services Concept to Support the Exchange of Newborn Screening Information

State newborn screening (NBS) programs for heritable diseases and conditions provide vital health information that enables prevention and early detection of rare genetic conditions. Information management of the screening laboratory test orders and the reporting of laboratory is substantial challenge based on a variety of factors. Advances in health information technology have been advanced through recent work by the Department of Health and Human Services that may ultimately lead to improved program performance. This report assesses the applicability of a service oriented architecture approach to NBS data management to support broad needs in patient care, quality improvement, public health reporting, and clinical research. [22 PDF pages]