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Advisory Council October 2019 Meeting Presentation: LTSS Federal Update

Monday, October 21, 2019

Printer Friendly Version in PDF Format (10 PDF pages)

 

Long-Term Services and Supports Federal Update

 

Administration for Community Living

 

Active Alzheimer’s Dementia Programs (October 2019)

United States Maps.
NAPA Goals 2 (A,C,E,F,H) 3 (A,B,C,D), 4 (A,B,C)

September 2019 Alzheimer’ Disease Programs Initiative (ADPI) Grants to States and Communities ($10,370,642)

  • Chinese American Service League (IL)
  • Community Research Resource Information & Services for Seniors (IL)
  • Durham Center for Senior Life (NC)
  • Hawaii Department of Health (HI)
  • Hospice of the Bluegrass, Inc. (KY)
  • MAC INCORPORATED (MD)
  • Maryland Department of Aging (MD)
  • Middle Alabama Area Agency on Aging (AL)
  • SeniorsPlus (ME)
  • South Carolina Department on Aging (SC)
  • Summit County Combined General Health District (OH)
  • Visiting Homemaker Service Passaic County (NJ)
  • Wisconsin Department of Health Services (WI)

NAPA Goals 2 (A,C,E,F,H) 3 (A,B,C,D), 4 (A,B,C)

September 2019 Alzheimer’ Disease Programs Initiative (ADPI) Grants to States and Communities Anticipated Outcomes

  • Improvement in the dementia capability of grantees and partners (using ACL Dementia Capability Assessment);
  • Increased access to services and supports for Improved Quality of Life;
  • Increases in the number of trainers trained in implementation of dementia specific evidence-based and evidence informed interventions;
    • Increases in the number of persons living with dementia and caregivers benefiting dementia specific evidence-based and evidence informed interventions;
  • Reduction in caregiver burden, stress and increased self-efficacy for caregivers of persons with ADRD;
  • Increases in number of dementia friendly communities;
  • Increased capacity to identify individuals with possible ADRD and their caregivers, and
  • Increased in availability of dementia-capable supports and services to underserved populations.

NAPA Goals 2 (A,C,E,F,H) 3 (A,B,C,D), 4 (A,B,C)

September 2019 Alzheimer’ Disease Programs Initiative (ADPI) Grants to States and Communities

  • Dementia specific evidence-based and evidence informed interventions including:
    • Benjamin Rose Institute Care Consultations (BRICC)
    • Music & Memory
    • New York University Caregiver Intervention (NYUCI)
    • Powerful Tools for Caregivers (PTC)
    • REACH II/Community
    • SAVVY Caregiver
    • STAR-C
    • Targeted Activities Program (TAP)
    • TCare
    • TimeSlips

NAPA Goals 2 (A,B,C,E,F,H) 3 (A,B,C,D), 4 (A,B,C)

RAISE Family Caregiving Advisory Council Update

  • First meeting: August 28 - 29, 2019 in Washington, DC
  • 15 voting Non-Federal members and 15 non-voting Federal Members
  • Established FOUR Sub-Committees
  • The RAISE ACT Family Caregiver Resource and Dissemination Center
    • The John A. Hartford Foundation
    • National Academy for State Health Policy

NAPA Goal 3

National Alzheimer’s and Dementia Resource Center 2019-2020 WEBINAR Series (Q1)

  • October 29, 2019--2-3 p.m. ET, Younger Onset Alzheimer’s Disease: Exploring the Emotional Experience and the Importance of Community, Presenter: Susan Frick
  • November 20, 2019-- 2-3 p.m. ET, The Power of Social Connection: Memory Cafés and Tête-à-Tête, Presenters: Beth Soltzberg and Maria Ordonez
  • January 8, 2020--1-2 p.m. ET, Innovative Approaches to Reach Underserved Populations Living with Dementia, Presenters: Debra Cherry and Kelli Barton
  • January 28, 2020--2-3 p.m. ET, Best Practice Caregiving and Choosing the Right Intervention to Serve People with Dementia and Caregivers, Presenters: David Bass and Heather Menne

https://nadrc.acl.gov/
NAPA Goals 2 (A,B,C,E,F,H) 3 (A,B,C), 4 (A,B,C)

  • New Resources
  • COMING SOON!
    • ACL Grantee Developed Resource Highlights and Compendium
  • September 2019 Release
    • Measuring the Impact of Dementia Friendly Education and Training Sessions: A Toolkit
    • Dementia Capable States and Communities: Lessons Learned from Administration on Aging Grantees Grantee Implemented Evidence-Based and Evidence Informed Interventions
    • Grantee Implemented Evidence-Based and Evidence Informed Interventions (update)

NAPA Goals 2 (A,B,C,E,F,H) 3 (A,B,C), 4 (A,B,C)

RERC on Enhancing Neurocognitive Health, Abilities, Networks, & Community Engagement (ENHANCE)

Enhancing Neurocognitive Health, Abilities, Networks & Community Engagement (ENHANCE)
Rehabilitation Engineering Research Center (RERC)
National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

  • Goal: Identify, develop, and evaluate technology solutions to support the ability of aging adults with a cognitive impairment (CI) to perform home living and community activities, and to enhance their independence and community living experience.
  • Partners: Weill Cornell Medicine (WCM), Florida State University (FSU), University of Illinois at Urbana Champaign (UIUC)
  • Funding: $4.6 million, 2019 - 2024

NAPA Goal 3

 

Centers for Disease Control and Prevention

 

NHANES DATA Report

  • Data from National Health and Nutrition Examination Survey
  • More than 3,000 adults >60 years
  • In-person cognitive performance testing
    • Immediate and delayed recall
    • Verbal fluency
    • Digit symbol substitution test
  • Subjective cognitive decline (SCD) status
  • Adults with SCD had lower average cognitive performance test scores
  • Adults with no SCD, in general, did NOT score poorly (lowest 25%) on these tests

"Cognitive Performance in Adults Aged 60 and Over: National Health and Nutrition Examination Survey, 2011-2014"https://www.cdc.gov/nchs/data/nhsr/nhsr126-508.pdf
NAPA Goal 5

Data for Action

  • Chronic Diseases and Cognitive Decline -- A Public Health Issue [NEW]
  • Subjective Cognitive Decline -- A Public Health Issue
  • Caregiving for Family and Friends -- A Public Health Issue
  • Coronary Heart Disease, Myocardial Infarction, and Stroke -- A Public Health Issue

https://www.cdc.gov/aging/publications/briefs.htm
NAPA Goal 5

BRFSS 2018 Data release

  • Subjective Cognitive Decline
    • 6 states conducted, including one new state
    • All 50 states plus DC and Puerto Rico at least once in 2015-2018
Subjective Cognitive Decline (SCD) Surveillance
United States Map showing SCD Surveillance in 2015 (35 states). 2016 (21 states), 2017 (10 states), 2018 (6 states).

https://www.cdc.gov/aging/healthybrain/brfss-faq-cognitive.htm
NAPA Goal 5

  • CAREGIVING
    • 5 states administered
    • 44 states plus DC and Puerto Rico at least once in 2015-2018
    • Data will be uploaded to Alzheimer’s Disease and Healthy Aging Data Portal and used to develop infographics in the coming months
Caregiving Surveillance
United States Map showing SCD Surveillance in 2015 (24 states). 2016 (21 states), 2017 (12 states), 2018 (5 states).

https://www.cdc.gov/aging/healthybrain/brfss-faq-caregiver.htm
NAPA Goal 5

PODCAST SERIES

  • Aging & Health Matters
    • Alzheimer’s Disease -- Genes Do Not Equal Destiny
    • Memory Loss is Not a Normal Part of Aging
    • Alzheimer’s Disease Deaths

https://tools.cdc.gov/medialibrary/index.aspx#/podcastseries/id/302101
NAPA Goal 4

NEW -- 30 SECOND VIDEO

https://www.cdc.gov/aging/publications/podcasts.htm?deliveryName=FCP_12_DM10086#videos
NAPA Goal 4

CDC is Bridging the Public Health Gap between Biomedical Research and Community Services

 

National healthy Brain Initiative

  • Notice of Funding Opportunity (NOFO) -- FY20
    • Five year, multi-component announcement for Alzheimer’s and related dementias (ADRD) public health activities. NOFO activities are expected to promote brain health, address cognitive impairment including ADRD, and support the needs of caregivers (unpaid persons providing care or assistance to someone with ADRD).
    • Component A
      • Fund an organization with national scope and reach within states, to develop and implement public health strategies guided by the Healthy Brain Initiative (HBI) Road Map Series.
    • Component B
      • Fund organizations to support populations with a high burden of Alzheimer’s disease and related dementias (ADRD).
    • Informational Call: Oct 29, 2019
      LOI (optional): Nov 12, 2019
      Application Deadline: Jan 8, 2020
      Questions: HBI_NOFO@cdc.gov
      For more information: https://www.cdc.gov/aging/funding/hbi/index.html

NAPA Goals 4 & 5

Stay Connected to CDC

THANK YOU!