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Advisory Council October 2019 Meeting Presentation: AD/ADRD Research Update

Monday, October 21, 2019

Printer Friendly Version in PDF Format (4 PDF pages)

Alzheimer’s Disease and Related Dementias Research Update

Richard J. Hodes, M.D.
Director, NIA

FY20 Budget Status

  • FY19 enacted level for NIA was $3.083B
    • Senate committee draft includes:
      • An additional $3B for NIH above FY19 funding levels
      • $3.606B (16.9% increase) for NIA; this figure includes $350M for AD/ADRD research
    • House passed bill (HR 2740) includes:
      • An additional $2B for NIH above FY19 funding levels
      • $3.356B (8.8% increase) for NIA
    • HR 4378 signed on 9/27/19 -- funds the Federal government (at FY19 levels) through November 21, 2019

Background

Funding Opportunity Title: NIA AD/ADRD Health Care Systems Research Collaboratory (U54 Clinical Trial Required)
https://grants.nih.gov/grants/guide/rfa-files/RFA-AG-19-009.html

Urgent Need to Improve and Transform Dementia Care

  • Initiated by NIH/NIA and awarded in September 2019
  • Goal: Strengthen the national capacity to implement cost-effective large-scale research studies that engage health care delivery organizations as research partners for people living with dementia (PLWD) and their caregivers (CGs)
  • Vision: Transform the delivery, quality, and outcomes of care provided to Americans living with dementia and their caregivers by accelerating the testing and adoption of evidence-based interventions within healthcare systems

What Will the NIA IMPACT Do?

  • Develop and disseminate technical, policy, and best practices
  • Enhance research development and investigator capacity:
    • Fund/guide pilot embedded pragmatic clinical trials (ePCTs), support transformation into full-scale ePCTs.
    • Resource for NIA-funded investigators conducting ePCTs in PLWD.
    • Support training through career award, workshops, and on-line modules.
  • Engage stakeholders

National Pilot Program to Improve Dementia Care

Flow chart of the Natoinal Pilot Program.
HCS = health care systems
ePCTs = embedded pragmatic clinical trials

Save the Date #1

Save the Date #2

  • NIH’s 2nd Inclusion Across the Lifespan Workshop
  • September 2-3, 2020
  • A Request for Information (RFI) will be published soon!