INTRODUCTION to Directory of Data Resources
OFFICE OF THE SECRETARY
Office for Civil Rights
Office of the Assistant Secretary for Planning and Evaluation
- National Study of Assisted Living for the Frail Elderly
- National Survey of Homeless Assistance Providers and Clients
- Congressionally Mandated Evaluation of the State Children's Health Insurance Program (SCHIP)
ADMINISTRATION FOR CHILDREN AND FAMILIES
- Emergency Temporary Assistance for Needy Families Data Report System (ETDR)
- Federal Child Care Information System (FCCIS)
- Head Start Program Information Report (HSPIR)
- The Adoption and Foster Care Analysis and Reporting System (AFCARS)
- The National Child Abuse and Neglect Data Systems (NCANDS)
- Runaway and Homeless Youth Management Information System (RHYMIS)
- University Affiliated Programs National Information and Reporting System (NIRS)
- Annual Survey of Refugees
- The Department of Energy's 2001 Residential Energy Consumption Survey (2001 RECS)
- Head Start Family and Child Experiences Survey (FACES)
- The Bureau of the Census' March Current Population Survey (March CPS)
- Refugee Arrivals Data System
ADMINISTRATION ON AGING
CENTERS FOR MEDICARE & MEDICAID SERVICES
- Enrollment DataBase (EDB)
- Health Insurance Skeleton Eligibility Write-Off (HISKEW) File
- National Claims History (NCH) 100% Nearline File
- National Claims History (NCH) Standard Analytical Files (SAF)
- End Stage Renal Disease (ESRD) Program Management and Medical Information System (PMMIS)
- State MSIS Reports
- Medicaid Statistical Information System Personal Summary File (MSIS Personal Summary File)
- Medicare Current Beneficiary Survey (MCBS)
- Medicare Provider Analysis and Review (MEDPAR) File
- Consumer Assessment of Health Plans Study - Medicare Satisfaction Survey (CAHPS)
- Continuous Medicare History Sample File (CMHS)
- Hospice Standard Analytical File (Hospice SAF)
- State Medicaid Research Files and Medicaid Analytic eXtract (Medicaid Analytic eXtract is the new name beginning with CY 1999 data) (SMRF/MAX)
- Minimum Data Set (MDS)
- Surveillance, Epidemiology, and End Results - Medicare Linked Database (SEER-Medicare)
- The Outcome and Assessment Information Set (OASIS)
AGENCY FOR HEALTHCARE RESEARCH AND QUALITY
- Consumer Assessment of Health Plans Survey (CAHPS)
- Healthcare Cost and Utilization Project (HCUP)
- HIV Cost and Services Utilization Study (HCSUS)
- Medical Expenditure Panel Survey -Household and Medical Provider Components (MEPS, MEPS-HC and MEPS-MPC)
- Medical Expenditure Panel Survey (MEPS NHC)
- Medical Expenditure Panel Survey - Insurance Component (MEPS IC)
- HIV Research Network (HIVRN)
CENTERS FOR DISEASE CONTROL AND PREVENTION
Agency for Toxic Substances and Disease Registry
- Hazardous Substances Emergency Events Surveillance OMB No. 0923-0008 (HSEES)
- The HazDat System (HazDat)
- National Exposure Registry (NER)
Center for Human Immunodeficiency Virus (HIV)/Acquired Immune Deficiency Syndrome (AIDS), Sexually Transmitted Disease (STD), and Tuberculosis Prevention
- Adult Spectrum of Disease (ASD)
- Congenital Syphilis (CS) Cases Investigation and Report (Form CDC-73.126)(126)
- Gonococcal Isolate Surveillance Project (GISP); Demographic/Clinical Data and Antimicrobial Susceptibility Testing (Form CDC-73.60A,B)(GISP)
- HIV/AIDS Reporting System (HARS)
- HIV Epidemiology Research (HER) Study
- HIV Seroprevalence Among Intravenous Drug Users Entering Drug Treatment Programs, United States
- HIV Seroprevalence in Sexually Transmitted Disease Clinics
- HIV Seroprevalence Survey of Childbearing Women (SCBW)
- HIV Serosurvey in Selected Tuberculosis Clinics
- Jail STD Prevalence Monitoring Project
- Pediatric Spectrum of HIV Disease (PSD)
- Regional Infertility Prevention Program - Chlamydia
- Report of Civilian Cases of Primary and Secondary Syphilis and Gonorrhea by Reporting Source, Sex, Race/Ethnicity and Age Group (Form CDC-9.2638)(2638)
- Sexually Transmitted Diseases Management Information System (STD*MIS)
- Sexually Transmitted Disease Surveillance System (Form CDC-73.998)
- Sexually Transmitted Disease Surveillance System (Form CDC-73.688)
- Supplement to HIV/AIDS Surveillance (SHAS)
- Surveillance for Tuberculosis Infection in Health Care Workers (StaffTRAK-TB)
- Tuberculosis Information Management System (TIMS)
- Young Men's Survey (YMS)
Epidemiology Program Office
- 122 Cities Mortality Reporting System (122 MRS)
- Haemophilus Influenzae Surveillance System
- Morbidity and Mortality Weekly Report
- Morbidity and Mortality Weekly Report Annual Summary
National Center of Chronic Disease Prevention and Health Promotion
- Behavioral Risk Factor Surveillance System (BRFSS)
- Minimum Data Elements (National Breast/Cervical Cancer Early Detection)
- National Program of Cancer Registries (NCPR)
- Pediatric Nutrition Surveillance System (PedNSS)
- Pregnancy Nutrition Surveillance System (PNSS)
- Pregnancy Risk Assessment Monitoring System (PRAMS)
- Youth Risk Behavior Surveillance System (YRBSS)
National Center for Environmental Health
National Center for Health Statistics
- Hispanic Health and Nutrition Examination Survey, 1982-84 (HHANES)
- National Health Interview Survey (NHIS)
- National Health Examination Surveys: I (1960-62) (NHES I); II (1963-65) (NHES II); III (1966-70) (NHES III)
- The First National Health and Nutrition Examination Survey 1971-74 (NHANES I) and the National Health and Nutrition Augmentation Survey of Adults 25-74 Years of Age, 1974-75 (NHANES I Augmentation)
- The Second National Health and Nutrition Examination Survey, 1976-80 (NHANES II)
- The Third National Health and Nutrition Examination Survey, 1988-94 (NHANES III)
- NHANES I Epidemiologic Follow Up Study (NHEFS)
- National Ambulatory Medical Care Survey (NAMCS)
- National Hospital Ambulatory Medical Care Survey (NHAMCS)
- National Survey of Ambulatory Surgery (NSAS)
- National Health Provider Inventory (previously called National Master Facility Inventory) (NHPI)
- National Home and Hospice Care Survey (NHHCS)
- National Hospital Discharge Survey (NHDS)
- National Nursing Home Survey (NNHS)
- 1988 National Maternal and Infant Health Survey (1988 NMIHS)
- 1991 Longitudinal Follow Up to the National Maternal Infant Health Survey
- National Survey of Family Growth (NSFG)
- National Vital Statistics System - Fetal Death Statistics
- National Vital Statistics System - Linked Birth-Infant Data Set
- National Vital Statistics System - Natality
- National Vital Statistics System - Mortality
- National Mortality Follow Back Survey (1993) (NMFS)
- State And Local Area Integrated Telephone Survey (SLAITS)
- The National Health And Nutrition Examination Survey, 1999+
- National Asthma Survey (NAS)
- National Survey of Children's Health (NSCH)
National Center for Infectious Diseases
- Active Bacterial Core Surveillance
- Acute Surveillance for Cryptosporidium and Cyclospora via FoodNet
- Cholera
- Creutzfeldt-Jakob Disease Surveillance System
- Enterovirus Surveillance System
- Foodborne Diseases Active Surveillance Network
- Hemophilia Surveillance System
- Imported Dengue (ABC's)
- Laboratory Surveillance of Cryptosporidium and Malaria via PHLIS
- Minimal Data Set for Hemophilia
- National Antimicrobial Resistance Monitoring System (NARMS)
- National Bacterial Meningitis Reporting System
- National Campylobacter Surveillance System
- National Malaria Surveillance System
- National Nosocomial Infections Surveillance System (NNIS)
- National Salmonella System (NSSS)
- National Surveillance of Dialysis-Associated Diseases in U.S. (NSD)
- National Surveillance System for Hospital Health Care Workers (NaSH)
- National Surveillance for Domestic Arboviral Encephalitis Cases in Humans
- Parasitic Diseases Drug Service
- Plague
- Public Health Laboratory Information System (PHLIS)
- Sentinel Site Laboratory-Based Surveillance for Cyclospora
- Sentinel Counties Study of Viral Hepatitis
- Statistical Outbreak Detection Algorithm (SODA)
- Streptococcus Pneumoniae and Haemophilus Influenzae
- Surveillance for Giardia
- Surveillance for Pneumocystis Carinii Pneumonia Treatment Failures
- Surveillance for Trichinosis and Cryptosporidium
- Unexplained Deaths and Serious Illnesses Surveillance
- Universal Data Collection and Serum Specimen Collection System
- U.S. Influenza Sentinel Physician Surveillance Network
- Viral Hepatitis Surveillance Program (VHSP)
- Waterborne Diseases Outbreak Surveillance System (WBDOSS)
National Center for Injury Prevention and Control
- Firearm Injury Surveillance Study
- National Electronic Injury Surveillance System (NEISS) All Injury Program (AIP)
- Traumatic Brain Injury Surveillance System
- State-Based Emergency Department Injury Surveillance
National Immunization Program
- Diphtheria Antitoxin
- National Congenital Rubella Syndrome Registry (NCRSR)
- National Immunization Provider Record Check Study (NIPRCS)
- National Immunization Survey (NIS)
- Perinatal Hepatitis B Prevention Data Management System
- Pertussis
- Tetanus
- Vaccine Adverse Event Reporting System (VAERS)
- Vaccine Safety Datalink Project
National Institute for Occupational Safety and Health
- Adult Blood-Lead Epidemiology and Surveillance Program (ABLES)
- Alaska Occupational Injury Surveillance System
- Alaska Trauma Registry, Work-Related Injury Surveillance
- Coal Workers' X-Ray Surveillance Program (CWXSP)
- Fatality Assessment and Control Evaluation (FACE)
- Hearing Conservation and Audiometric Database Analysis System (HC&ADBA)
- National Agricultural Workers Survey (NAWS) Youth Injury and Farm Worker
- National Coal Workers' Autopsy Study (NCWAS)
- National Occupational Mortality Surveillance System (NOMS)
- National Surveillance of Nonfatal Occupational Injury
- National Surveillance System for Pneumoconiosis Mortality (NSSPM)
- National Traumatic Occupational Facilities Surveillance System (NTOF)
- Sentinel Event Notification Systems for Occupational Risks - Silicosis (SENSOR Silicosis)
- Sentinel Event Notification Systems for Occupational Risks - Work-Related Asthma (SENSOR WRA)
FOOD AND DRUG ADMINISTRATION
Center for Drug Evaluation and Research
Center for Food Safety and Applied Nutrition
- Consumer Survey of Cosmetic Usage Patterns (CSCUP)
- Food Label Use and Nutrition Education Survey (FLUNES)
- Health and Diet Survey (HDS)
- Weight Loss Practices Survey (WLPS)
HEALTH RESOURCES AND SERVICES ADMINISTRATION
Bureau of Health Professions
Bureau of Primary Health Care
HIV/AIDS Bureau
- AIDS Education and Training Centers
- Dental Reimbursement Program-HIV/AIDS
- Organ Transplantation
- Ryan White Comprehensive Aids Resources Emergency (CARE) Act of 1990, Care Act Data Report (CADR) System
Maternal and Child Health Bureau
INDIAN HEALTH SERVICE
Office of Public Health
- American Indian and Alaska Native Linked Birth/Infant Death Record Database (AIAN-LBID)
- American Indian and Alaska Native Mortality Database (AIAN-MORT)
- American Indian and Alaska Native Natality Database (AIAN-NATAL)
- Indian Health Service Ambulatory Patient Care System (IHS-APCS)
- Indian Health Service Dental Services Reporting System (IHS-DSRS)
- Indian Health Service Inpatient Care System (IHS-ICS)
- Indian Health Service Patient Registration System (IHS-PTREG)
- Indian Health Service Population Estimates and Projections (IHS-PEP)
NATIONAL INSTITUTES OF HEALTH
National Cancer Institute
- National Longitudinal Mortality Study-National Death Index Record Linkage (NLMS)
- Public-Use-Data on Cancer Incidence and Survival from the Surveillance, Epidemiology and End Results (SEER) Program of the National Cancer Institute (SEER Public-Use CD-ROM)
- Tobacco Use Supplement to the Current Population Survey (TUS-CPS)
National Heart, Lung, and Blood Institute
- Atherosclerosis Risk in Communities Study (ARIC)
- Cardiovascular Health Study (CHS)
- Coronary Artery Risk Development in Young Adults (CARDIA)
- Honolulu Heart Program (HHP)
- National Longitudinal Mortality Study (NLMS)
- Puerto Rico Heart Health Program (PRHHP)
- The NHLBI Growth and Health Study (NGHS)
National Institute on Aging
- Asset and Health Dynamics Among the Oldest Old Study(AHEAD)
- Established Populations for Epidemiologic Studies of the Elderly (EPESE)
- Health and Retirement Study (HRS)
- Longitudinal Studies on Aging (LSOA)
- National Long-Term Care Survey (NLTCS)
- Women's Health and Aging Study (WHAS)
National Institute of Allergy and Infectious Diseases
- National Cooperative Inner City Asthma Study, Phase I (NCICAS)
- National Cooperative Inner City Asthma Study, Phase II (NCICAS)
National Institute on Alcohol Abuse and Alcoholism
- National Longitudinal Alcohol Epidemilogic Survey (NLAES)
- National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)
National Institute of Mental Health
- Epidemiologic Catchment Area Program (ECA)
- National Comorbidity Survey- Replication, National Survey of African American Mental Health, and National Latino and Asian American Study (NCS-R, NSAA, and NLAAS)
- Treatment of Depression Collaborative Research Program (TDCRP)
National Institute for Child Health and Human Development
- Current Population Survey - Nativity Supplement (CPS)
- Mexican-American Study Project - Follow Up
- National Longitudinal Study of Adolescent Health (AddHEALTH)
- National Survey of Adolescent Males (NSAM)
- New Immigrant Survey - A Pilot Study
- New Immigrant Study (NIS)
- Puerto Rican Maternal and Infant Health Project (PRMIHP)
SUBSTANCE ABUSE AND MENTAL HEALTH SERVICES ADMINISTRATION
Center for Mental Health Services
- CMHS Client/Patient Sample Survey (CPSS)
- Inventory of Mental Health Organizations and General Hospital Mental Health Services (IMHO/GHMHS)
- Survey of MentaSurvey of Mental Health Organizations, General Hospital Mental Health Services, and Managed Care Organizations Survey (SMHO)
- 1988 Inventory of Mental Health Services in State Adult Correctional Facilities
Office of Applied Studies
- Alcohol and Drug Services Survey (ADSS)
- Drug Abuse Warning Network (DAWN)
- Drug and Alcohol Services Information System (DASIS)
- Drug Services Research Survey (DSRS)
- National Household Survey on Drug Abuse (NHSDA)
- Services Research Outcome Study (SROS)
Center for Substance Abuse Treatment
APPENDIX
- Appendix A: Reporting Form