TITLE: Hazardous Substances Emergency Events Surveillance OMB No. 0923-0008
ACRONYM: HSEES
AGENCY/PROGRAM: Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention
DESCRIPTION: HSEES collects information on uncontrolled or illegal releases or threatened releases of hazardous substances. Events involving petroleum and no other hazardous substances are not included. Events are included if (1) the amount of substance that was released (or that might have been released) needed (or would have needed) to be removed, cleaned up, or neutralized according to federal, state, or local law; or (2) there was only a threatened release of a substance, but the threat led to an action (for example, evacuation) that could have affected the health of employees, emergency responders, or the general public. Data is collected in states that are part of the cooperative agreement (currently 15). The surveillance system has four goals:
To describe the distribution and characteristics of hazardous substances emergencies.
To describe the morbidity and mortality experienced by employees, responders, and the general public as a result of hazardous substances releases.
To identify risk factors associated with the morbidity and mortality.
To identify strategies that might reduce future morbidity and mortality resulting from the release of hazardous substances.
Methods of data collection for this system include: Data is collected by the state health department in varied ways, including e-mail, phone, fax, photocopying of existing records. The data is then entered by the state using a standardized web-based database with a central repository at ATSDR.
Data are originally collected by State Health Department personnel on the HSEES award. They gather information from multiple sources including mandated reports from state and national sources, from local response agencies, responsible parties, health agencies, medai, etc.
Data are collected within 48 hours of the events happening. Initial information is entered immediate
RACE/ETHNICITY: This system captures events, not people. Race/ethnicity information of injured persons is not recorded.
STATUS: Started in 1990, this continuous data collection is active.
HOW TO ACCESS DATA: Present request to contact person. You can receive custom analysis or if eligible, raw data.
CONTACT PERSON: Maureen Orr, M.S.
Epidemiologist
ATSDR/DHS/ESB
Mailstop E-31
Atlanta, GA 30333
404-498-0559
Morr@cdc.gov
ACRONYM: HazDat
AGENCY/PROGRAM: Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention
DESCRIPTION: This system is a scientific and administrative database developed to provide rapid access to information on the release of hazardous substances from Superfund sites or from emergency events and on the effects of these substances on the health of human populations.
Methods of data collection for this system include: abstraction from source documents including, health assessments and consultations, health studies and toxicological profiles.
Data are originally collected by: Authors of the supporting documents.
Data are collected as needed for development of source documents.
RACE/ETHNICITY: Race and/or Ethnicity data are available. Categories include American Indian or Alaska Native, Black or African American, White, Asian or Pacific Islander, Multi-Racial. Ethnicity categories include Hispanic or Latino.
Socio-economic data includes education level and household income.
STATUS: Data entered into system on continual basis.
HOW TO ACCESS DATA: Data can be accessed online through the CDC mainframe or through reports. A subset of the data is available on the Internet.
CONTACT PERSON: Lori Franklin (System/Application)
(404) 498-1570
TITLE: National Exposure Registry
ACRONYM: NER
AGENCY/PROGRAM: Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention
DESCRIPTION: This system is a listing of persons (general population) with documented exposure to select hazardous substances (superfund related). All adverse health outcomes are monitored prospectively. Retrospective identification of adverse health outcomes (usually verified by medical records) is also part of the individual records. Survey data collected is maintained permanently and is available one year after completion of a new baseline or update.
Methods of data collection for this system include:
- telephone survey
- direct interview
Data are originally collected by:
- individuals by self-report
Data are collected every 2 years.
Files contain data on: Other socio-demographic variables collected in this system that may explain racial and/or ethnic disparities include:
- education
- occupation
RACE/ETHNICITY: Race and/or Ethnicity data are available. Categories include American Indian or Alaska Native, Black, White, Asian or Pacific Islander, Mixed White/Black, Mixed White/Chinese, Multi-Racial. Ethnicity categories include Hispanic, Mexican/American, Latin, Puerto Rican, Spanish-South American. Race data are collected for all persons responding to initial interview. Race is identified by self identification.
STATUS: This system collects data actively.
HOW TO ACCESS DATA: No data release policy specified. Interpreted results can be accessed through:
- internal reports
- external reports
- peer reviewed journals
- Internet
CONTACT PERSON: Caroline Cusack
(404) 498-0600
TITLE: Adult Spectrum of Disease
ACRONYM: ASD
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The objectives of the Adult Spectrum of Disease (ASD) project are to enumerate and characterize persons with human immunodeficiency virus (HIV) infection at various stages of immunologic function who received medical care at selected inpatient and outpatient facilities. The study universe is all persons with HIV infection who access selected hospitals, outpatient facilities, and HIV treatment facilities in the 10 selected project areas.
Data are collected continuously at 6-month intervals through abstraction of patient medical records.
HIV-infected women accessing the target facilities, as well as persons of racial and ethnic minority groups, are included in the survey. Some sites incorporate sampling schemes in order to limit new enrollees while best representing the demographic makeup of their respective MSA. The source of ASD data are the individual patient medical record, which is abstracted onto the CDC form 50.99A.
The database record unit is the CDC form 50.99A, which is updated every 6 months over a 42-month period.
These files contain data on: Functional/Health Status; Services Utilization; Age/Gender; Other Demographic/Sociocultural; Behavioral; Other (treatment, laboratory results, infections, etc.).
RACE/ETHNICITY: American Indian/Alaskan Native; Asian or Pacific Islander; Black, Not of Hispanic Origin; White, Not of Hispanic Origin; Hispanic
DATA LIMITATIONS: Race/ethnicity is abstracted from medical records without direct contact with the patient. The description is subject to the accuracy of the person posting the information to the record.
STATUS: Starting in January 1990, this continuous data collection is active.
AVAILABILITY: Numerous publications have been done from the ASD data set (over 15). We are also working on an MMWR surveillance summary examining trends in opportunistic illnesses and therapies that should be out in March 2003.
Currently, data for analysis are available internally at CDC or at the state and local health departments involved in the project (local data).
HOW TO ACCESS DATA: The Centers for Disease Control and Prevention (CDC) does not receive patient names or other personal identifiers that could reveal the patient's identity. Local project staff are well-versed in confidentiality procedures and must sign statements agreeing to adhere to specified confidentiality procedures. These data are for CDC internal use.
The software used to manage and analyze ASD data are extremely complex and requires an understanding of the software and the interpretation of the myriad of variables. ASD data are not available in public use data sets.
CONTACT PERSON: Mitchell Wolfe, MD, MPH
Center for HIV/AIDS, STD & TB Prevention
Division of HIV/AIDS Prevention
Centers for Disease Control and Prevention
Mailstop E-47, Corporate Square, Bldg. 8
Atlanta, GA 30333
(404) 639-8663 / fax (404) 639-2980
TITLE: Congenital Syphilis (CS) Cases Investigation and Report (Form CDC-73.126) (126)
ACRONYM: CSCIR
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The database derived from the Congenital Syphilis (CS) Cases Investigation and Report (Form CDC-73.126) provides detailed line-listed data on congenital syphilis cases, including mother's age and race/ethnicity, prenatal care status, infant's vital status, birth date, birth weight, clinical signs/symptoms, syphilis laboratory test results, and treatment status. Cases are reported to the Division of Sexually Transmitted Disease (STD) Prevention, Centers for Disease Control and Prevention (CDC), by the STD control programs and health departments in the 50 States, the District of Columbia, selected cities, and U.S. dependencies and possessions. Data are available in more complete format for 1991 through the present. This file contain data on: Age/Gender; Other Demographic/Sociocultural.
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic; Not of Hispanic Origin.
STATUS: Started in 1983, this continuous data collection is active.
HOW TO ACCESS DATA: Tabulations and/or graphs by race/ethnicity are published in the annual STD Surveillance Report produced by the Division of STD Prevention, Centers for Disease Control and Prevention.
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
mlf1@cdc.gov
TITLE: Gonococcal Isolate Surveillance Project (GISP): Demographic/Clinical Data and Antimicrobial Susceptibility Testing (Form CDC-73.60A,B)
ACRONYM: GISP
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The Gonococcal Isolate Surveillance Project (GISP) database is a sentinel surveillance system of 26 clinics for sexually transmitted diseases (STDs) and 5 regional laboratories. The database consists of line-listed data on the first 20 male cases per clinic per month with gonorrhea and antimicrobial test results. The 26 STD clinics and 5 regional laboratories are located in geographically diverse cities in the United States. Data are available for 1987 through the present. Data are sent on a monthly basis (laboratories send data quarterly). These files contain data on: Age/Gender; Other Demographic/Sociocultural.
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic; Not of Hispanic Origin.
DATA LIMITATIONS: The content and quality of demographic data vary across regions and from site to site. Data on race may not be collected at each site.
STATUS: Started in 1987, this monthly (laboratories send data quarterly) data collection is active.
HOW TO ACCESS DATA: Because of limitations and problems with missing race/ethnicity data by State and year, misleading results could be generated if a data set were provided. Tabulations are published in the annual STD Surveillance Report and the annual GISP Surveillance Report produced by the Division of STD Prevention, Centers for Disease Control and Prevention.
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
mlf1@cdc.gov
TITLE: HIV/AIDS Reporting System
ACRONYM: HARS
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers of Disease Control and Prevention
DESCRIPTION: The human immunodeficiency virus (HIV)/acquired immune deficiency syndrome (AIDS) surveillance system is conducted in all 50 States, 6 major cities, and the territories and possessions of the United States. It is a multipurpose surveillance system designed to monitor the total number of reported cases from public, private, and government reporting facilities. This ongoing surveillance system monitors the total number of AIDS cases reported from the areas noted above, adult/adolescent HIV cases in 34 States that require named HIV reporting, and in 1 State that requires reporting of pediatric HIV cases only. Data are used to assess trends by reporting areas, race/ethnicity, risk, age, and sex.
The universe to which the data apply are all reported AIDS cases in the 50 States, territories, and possessions and HIV cases in States that require reporting of persons with HIV (not AIDS). The database is cumulative, containing all case reports since 1981.
All AIDS and HIV cases, where authorized by state law, are reported under legal mandates and are not sampled. The source of data collection is the CDC form 50.42A for adults and form 50.42B for pediatric cases. Case reports are received from providers who voluntarily complete the CDC form and who report to the local surveillance program by phone with a surveillance representative completing the case report form and from surveillance representatives who abstract medical records in hospitals and private physicians offices to complete the case report form.
The record unit in the database is the individual HIV/AIDS case report form.
These files contain data on: Functional/Health Status; Services Utilization; Services Expenditure and Financing; Age/Gender; Other Demographic/Sociocultural; Behavioral; and Other
RACE/ETHNICITY: American Indian/Alaska Native; Asian or Pacific Islander; Black, Not of Hispanic Origin; White, Not of Hispanic Origin; Hispanic
DATA LIMITATIONS: In most instances, race/ethnicity data are abstracted directly from the patient's medical record. The surveillance representative seldom has the opportunity to confirm this information with the patient.
STATUS: Started in 1981, this continuous data collection is active.
HOW TO ACCESS DATA: Public use files, usable without restrictions. The Centers for Disease Control and Prevention does not receive patient names or information that could identify the individual patient. Local data displays with five cases or fewer are not included in the tabular distributions. National data releases aggregate key variables to preclude indirect identification of individuals reported with HIV/AIDS. Additionally, recipients of HIV/AIDS surveillance cooperative agreements are required to maintain secure and confidential case registries.
Available Data Products: Diskette: AIDS Public Information Data set (no charge)
Distributor of Public Use Files: National AIDS Clearinghouse
Centers for Disease Control and Prevention
P.O. Box 6003
Rockville, MD 20850
(800) 458-5231
CONTACT PERSON: Matthew McKenna , M.D., M.P.H.
Center HIV/AIDS, STD & TB Prevention
Division of HIV/AIDS Prevention
Centers for Disease Control and Prevention
1600 Clifton Road, Mailstop E-47
Atlanta, GA 30333
(404) 639-2050 / fax (404) 639-2029
TITLE: HIV Epidemiology Research Study
ACRONYM: HER
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The HIV Epidemiology Research (HER) Study is designed to learn about the effects of human immunodeficiency virus (HIV) infection on the physical, emotional, and social health of American women in order to assist the development and delivery of interventions that may improve the quality and duration of their lives. The study follows 920 HIV-infected women and 460 uninfected women reporting HIV risk behaviors in four cities with semi-annual interviews, physical examinations, and laboratory assessments. In addition, data are obtained from abstraction of hospital and outpatient medical records and from death certificates. The data collected from these visits and from nested substudies will allow investigators to assess the effects of HIV infection on the medical, mental health, behavioral, psychosocial, and life circumstances of women over time.
Enrollment began in April 1993. Eligibility requirements are to be ages 16-54, speak English or Spanish, be willing and able to give consent to participate, have no prior diagnosis of acquired immune deficiency syndrome (AIDS)-defining condition, and be HIV+ or HIV- by EIA+WB at entry.
These files contain data on: Functional/Health Status; Services Utilization; Services Expenditure and Financing; Socioeconomic; Age/Gender; Other Demographic /Sociocultural; Behavioral; and Other (laboratory data).
RACE/ETHNICITY: Native American; Asian; Black/African American; White; Hispanic/Latina; and Other.
STATUS: Started April 1993 to June 1996, this periodic (every 6 months) data collection is active.
HOW TO ACCESS DATA: Specific analysis requests may be made to investigators. All data access is controlled by an executive committee of investigators and funders. Release of defined data sets for nonpublication uses (e.g., estimating service needs for program design) are usually approved. Analysis for presentation or publication is usually through collaboration with study investigators.
CONTACT PERSON: Dawn K. Smith
Division of HIV/AIDS Prevention
Centers for Disease Control and Prevention
Mailstop E-45, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-6146 / fax (404) 639-6118
dks0@ncidhiv1.em.cdc.gov
TITLE: HIV Seroprevalence Among Intravenous Drug Users Entering Drug Treatment Programs, United States
ACRONYM:
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The objective of this study is to monitor human immunodeficiency virus (HIV) seroprevalence in intravenous drug users entering treatment. Information is obtained on about approximately 14,000 individuals per year entering treatment at 53 sentinel drug treatment centers located in 22 U.S. cities. Data collection for this ongoing activity began in 1988. These files contain data on: Age/Gender; Other (reason for visit/risk exposure).
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic (Mexican-American, Puerto Rican, Cuban); and Not of Hispanic Origin
STATUS: Started in 1988, this intermittent data collection is active.
HOW TO ACCESS DATA: Tabulations provided.
Available Data Products: Hard copy: National Serosurveillance Summary (Vol. 3) (no charge)
Distributor of Public Use Files: National AIDS Clearinghouse
Centers for Disease Control and Prevention
P.O. Box 6003
Rockville, MD 20850
(800) 458-5231
CONTACT PERSON: David Withum, MPH
Division of HIV/AIDS Prevention,
Centers for Disease Control and Prevention
Mailstop E-46, 1600 Clifton Rd., N.E.
Atlanta, GA 30333
(404) 639-2093 / fax (404) 639-2929
TITLE: HIV Seroprevalence in Sexually Transmitted Disease Clinics
ACRONYM:
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The purpose of this activity, being conducted in 121 sentinel sites in 46 cities in the United States, is to describe baseline human immunodeficiency virus (HIV) seroprevalence, monitor trends over time, and determine risk factors for HIV infection. Data collection began in 1988. Information is obtained on persons attending sexually transmitted disease clinics. Approximately 34% of the individuals are women. These files contain data on: Age/Gender; Other (reason for visit/risk exposure).
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic (Mexican-American, Puerto Rican, Cuban); and Not of Hispanic Origin.
STATUS: Started in 1988, this intermittent data collection is active.
HOW TO ACCESS DATA: Tabulations provided.
Available Data Products: Hard copy: National Serosurveillance Summary (Vol. 3) (no charge)
Distributor of Public Use Files: National AIDS Clearinghouse
Centers for Disease Control and Prevention
P.O. Box 6003
Rockville, MD 20850
(800) 458-5231
CONTACT PERSON: David Withum, MPH
Division of HIV/AIDS Prevention
Centers for Disease Control and Prevention
Mailstop E-46, 1600 Clifton Rd., N.E.
Atlanta, GA 30333
(404) 639-2090 / fax (404) 639-2029
TITLE: HIV Seroprevalence Survey of Childbearing Women
ACRONYM: SCBW
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The objective of this system is to determine the prevalence of human immunodeficiency virus (HIV) infection among women delivering live infants in the United States and provide information about the demographics, location, and seroprevalence trends of this population over time. The survey is based on HIV testing of leftover blood specimens collected on filter paper for routine newborn metabolic screening and on existing public health programs in all areas conducting the survey.
A sample of all live births in each State and territory participating in the Survey of Childbearing Women constitutes the study population. Forty-five States, the District of Columbia, Puerto Rico, and the Virgin Islands participate in the study. States not included are Idaho, North Dakota, South Dakota, Nebraska, and Vermont. Between January 1988 and December 1993, over 11 million unlinked specimens, representing nearly one-half of all live births during that period, were tested for maternal HIV antibody in state public health laboratories. Data collection and analysis are ongoing. These files contain data on:Age/Gender; and Other (reason for visit/risk exposure).
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic (Mexican-American, Puerto Rican, Cuban); and Not of Hispanic Origin.
STATUS: Started in 1988, this continuous data collection is active.
HOW TO ACCESS DATA: Tabulations provided.
Available Data Products: Hard copy: National Serosurveillance Summary (Vol. 3) (no charge)
Distributor of Public Use Files: National AIDS Clearinghouse
Centers for Disease Control and Prevention
P.O. Box 6003
Rockville, MD 20850
(800) 458-5231
CONTACT PERSON: David Withum, MPH
Division of HIV/AIDS Prevention
Centers for Disease Control and Prevention
Mailstop E-46, 1600 Clifton Rd., N.E.
Atlanta, GA 30333
(404) 639-2090 / fax (404) 639-2029
TITLE: HIV Serosurvey in Selected Tuberculosis Clinics
ACRONYM: N/A
AGENCY/PROGRAM: National Center for HIV/STD/TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: Selected tuberculosis clinics in seven cities conduct blinded human immunodeficiency virus (HIV) testing on clinic patients to determine the prevalence of HIV infection among tuberculosis (TB) patients. These surveys have been ongoing for several years.
These files contain data on: Functional/Health Status; Socioeconomic; Age/Gender; Other Demographic/Sociocultural; Behavioral; and Other (clinical history of tuberculosis).
RACE/ETHNICITY: American Indian/Alaskan Native; Asian or Pacific Islander; Black, Not of Hispanic Origin; White, Not of Hispanic Origin; Hispanic
DATA LIMITATIONS: There are no limitations in the use of some race/ethnicity categories.
STATUS: This continuous data collection is active.
HOW TO ACCESS DATA: Upon request, with special agreement with the user. The database does not contain any personal identifiers. No data will be released for an area with fewer than five cases per cell.
Data Media: Diskette; hard copy.
Distributor of Public Use Files: Ida M. Onorato, M.D.
DTBE/SEIB
Centers for Disease Control and Prevention
Mailstop E-10, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8116 / fax (404) 639-8604
CONTACT PERSON: Eugene McCray, M.D.
DTBE/SEIB, Centers for Disease Control and Prevention
Mailstop E-10, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8117 / fax (404) 638-8604
TITLE: Jail STD Prevalence Monitoring Project
ACRONYM: N/A
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The system compiles information on Sexually Transmitted Disease (STD) testing at juvenile detention centers and jails. Data are used to assess prevalence to monitor STD trends in persons entering corrections facilities. Data from late 1996 to 1998 are available.
Methods of data collection for this system include:
- Lab/jail data
Data are originally collected by:
- Jail system, health department
- Data are collected quarterly.
RACE/ETHNICITY: Race and/or Ethnicity data available (Categories for race include American Indian/Alaskan Native, Asian/Pacific Islander, Black, White, Other, and Unknown and categories for ethnicity include Hispanic, Non-Hispanic, and Unknown)
STATUS: This system collects data passively.
HOW TO ACCESS DATA: CDC internal use files only. Interpreted results can be accessed through: internal reports; external reports
CONTACT PERSON: Kristen Mertz, M.D.
kjm6@cdc.gov
(404)639-8371
TITLE: Pediatric Spectrum of HIV Disease, Centers for Disease Control and Prevention
ACRONYM: PSD
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The Pediatric Spectrum of HIV Disease was designed to characterize and follow trends in the pediatric human immunodeficiency virus (HIV) epidemic. It is an active epidemiological research project that enrolls children known to be HIV infected or born to infected mothers in six geographic locations. The project began in 1988, and more than 17,000 children have been enrolled and followed to date. Information is collected every 6 months on each enrolled child by review of all (inpatient and outpatient) medical records. The project enrolls all children identified as HIV-exposed (population-based sample). Data collected include HIV risk information, birth history, demographic information, acquired immune deficiency syndrome (AIDS)-defining conditions, nonspecific conditions that may be HIV-related, primary caretaker, laboratory data, HIV-related medications, selected immunizations, hospitalization information, and causes of death.
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian or Pacific Islander; Black; White; and Other.
Ethnicity categories are: Hispanic (country of birth recorded); and Not of Hispanic Origin.
DATA LIMITATIONS: Race is obtained from the medical record.
STATUS: Started in 1988, this continuous data collection is active.
HOW TO ACCESS DATA: Published in peer-reviewed journals.
No identifiers are received at the Centers for Disease Control and Prevention (CDC). Data covered by Section 308(d) of Public Health Service Act (42 USC 242m)
CONTACT PERSON: Kenneth L. Dominguez, MD MPH
Center for HIV/AIDS, STD and Tuberculosis Prevention
Centers for Disease Control and Prevention
Mailstop E-45, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-6133 / fax (404) 639-6127
TITLE: Regional Infertility Prevention Program - Chlamydia
ACRONYM: RIPP
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The purpose of this surveillance system is to monitor trends in prevalence of Chlamydia trachomatis among defined populations over time. Demographic, clinical findings, and behavioral risk factor data are collected on women screened for chlamydia in a variety of provider settings (family planning clinics, teen clinics, migrant health centers, jails, etc.) in all ten USPHS regions.
Depending on the USPHS Region, data are available beginning in 1988-present. Data are available quarterly, but prefer to analyze data on a yearly basis.
Methods of data collection for this system include:
- direct interview
- medical record abstraction
Data are originally collected by:
- private/doctors or nurses
- public health clinics
- public health laboratories
- state/local health departments
- managed care organizations
Data are collected quarterly and yearly.
RACE/ETHNICITY: All regions collect race data. Categories generally follow U.S. Census definitions. Most regions collect ethnicity data. The categories follow U.S. Census definitions. Beginning in 1999, all regions will collect both race and ethnicity and will follow current U.S. Census guidelines for category definitions. These data are collected by patient self-identification.
STATUS: Not known if system collects data actively or passively.
HOW TO ACCESS DATA: CDC internal use files only. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Weekly Reports
- peer reviewed journals
CONTACT PERSON: Debra Mosure
djm1@cdc.gov
(404)639-8371
TITLE: Report of Civilian Cases of Primary and Secondary Syphilis and Gonorrhea by Reporting Source, Sex, Race/Ethnicity and Age Group (Form CDC-9.2638)
ACRONYM: 2638
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease and Control Prevention
DESCRIPTION: The database derived from the Report of Civilian Cases of Primary and Secondary Syphilis and Gonorrhea (Form CDC9.2638) provides aggregate data on cases of gonorrhea and primary and secondary syphilis by sex, race/ethnicity, age group, and source (public, private). These cases are reported annually to the Division of Sexually Transmitted Disease (STD) Prevention by the STD control programs and health departments in the 50 States, District of Columbia, 6 major cities (Baltimore, Chicago, New York City, Los Angeles, Philadelphia, San Francisco), and U.S. dependencies and possessions. These files contain data on: Age/Gender.
RACE/ETHNICITY: American Indian/Alaskan Native; Asian or Pacific Islander; Black, Not of Hispanic Origin; White, Not of Hispanic Origin; Hispanic; and Other.
DATA LIMITATIONS: The percentage of cases for which race/ethnicity and age were unknown or unspecified differed considerably, depending on year and area.
STATUS: Started in 1981, this periodic (annual) data collection is active.
HOW TO ACCESS DATA: Tabulations provided.
Because of limitations and problems with missing race/ethnicity data by State and year, misleading results could be generated if a data set were provided. Tabulations by race/ethnicity are published in the annual STD Surveillance Report produced by the Division of STD Prevention, Centers for Disease Control and Prevention.
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
TITLE: Sexually Transmitted Diseases Management Information System
ACRONYM: STD*MIS
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: This CDC-developed software program may be requested by a state or local STD program to assist them in managing their STD data information needs. Use of STD*MIS will vary greatly among the many (>45 sites) STD programs currently using STD*MIS. The primary focus of this program is in addressing state and local morbidity, disease intervention, and surveillance data management needs. A National Electronic Telecommunications System for Surveillance (NETSS) export file for sending data to CDC, however, is included in STD*MIS.
Methods of data collection for this system include direct interview, notification of case(s)/events, laboratory surveillance. Data are originally collected by:
- individuals by self-report
- private/doctors or nurses
- hospitals
- public health clinics
- public health laboratories
- state/local health departments
- universities
- managed care organizations
Data are collected weekly. The purpose of data collection is to provide data to assist state and local health departments in implementing and managing an effective STD control program. The smallest unit of analysis is an individual case of disease. The system has been available in various versions since 1991. Information is available for an unlimited amount of time after collection.
RACE/ETHNICITY: Race and/or Ethnicity data available for each patient entered into the system. Race and Ethnicity are self-identified and are collected as two separate variables. Race categories are: 1 = American Indian; 2 = Asian/Pacific Islander; 3= Black; 4 = White; 8 = Other; 9 = Unknown. Ethnicity categories are: 1 = Hispanic; 2 = Non-Hispanic; and 9 = Unknown.
STATUS: This system collects data actively and passively.
HOW TO ACCESS DATA: Public use data files available. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Weekly Reports
- MMWR Surveillance Summaries
- MMWR Reports and Recommendations
- peer reviewed journals
- Internet
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
mlf1@cdc.gov
TITLE: Sexually Transmitted Disease Surveillance System (Form CDC-73.998)
ACRONYM: N/A
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: This system has collected monthly aggregate data on cases of primary and secondary and early latent syphilis since 1984 from 3,117 counties in the U.S., and seven major cities (Baltimore, Chicago, New York City, Los Angeles, Philadelphia, San Francisco, and Washington, D.C.)
Methods of data collection for this system include:
- notification of case(s)/events
Data are originally collected by:
- private/doctors or nurses
- hospitals
- public health clinics
- public health laboratories
- state/local health departments
Data are collected monthly.
RACE/ETHNICITY: Race and/or Ethnicity data not collected.
STATUS: This system collects data actively.
HOW TO ACCESS DATA: Public use data files available. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Surveillance Summaries
- MMWR Reports and Recommendations
- peer reviewed journals
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
mlf1@cdc.gov
TITLE: Sexually Transmitted Disease Surveillance System (Form CDC-73.688)
ACRONYM: N/A
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: This system has collected data quarterly since 1963 on cases of syphilis (all stages),Congenital Syphilis (before 1995), Gonorrhea, Chancroid and Chlamydia by gender and source (private providers and public clinics) in all 50 states, D.C., Pacific and Caribbean grantees and 63 cities with populations greater than 200,000.
Methods of data collection for this system include:
- notification of case(s)/events
Data are originally collected by:
- private/doctors or nurses
- hospitals
- public health clinics
- public health laboratories
- state/local health departments
Data are collected quarterly.
RACE/ETHNICITY: Race and/or Ethnicity data not collected.
STATUS: This system collects data actively.
HOW TO ACCESS DATA: Public use data files available. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Surveillance Summaries
- MMWR Reports and Recommendations
- peer reviewed journals
CONTACT PERSON: Melinda Flock
Division of STD Prevention
Centers for Disease Control and Prevention
Mailstop E-63, 1600 Clifton Rd.
Atlanta, GA 30333
(404) 639-8356 / fax (404) 639-8611
mlf1@cdc.gov
TITLE: Supplement to HIV/AIDS Surveillance
ACRONYM: SHAS
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: The purpose of the Supplement to HIV/AIDS Surveillance (SHAS) project is to obtain supplemental descriptive information on persons reported with human immunodeficiency virus (HIV)/acquired immune deficiency syndrome (AIDS) infection. SHAS is conducted by 19 state/local health departments. The target population is reported HIV/AIDS patients.
SHAS is an ongoing project which began in June of 1990. The sample varies with the availability of patients in the project area. Some of the smaller areas include as many reported patients as possible, whereas the larger projects interview a sample of reported patients. Availability depends on mortality status of the patient, permission from the patient to be interviewed, ability to locate and recruit the patient, and the ability of the patient to respond to the comprehensive interview.
The AIDS or HIV case report is the source for identifying potential interviewees. The data instrument is a questionnaire divided into multiple modules. The record unit in the database is the questionnaire.
These files contain data on: Sexual and Drug Use Behavior; Health Care Access; HIV Testing Patterns, Minority Health Issues; Utilization of and Adherence to Therapies for HIV and HIV-related Conditions; Disability Related to HIV Infection; and Reproductive/Gynecological History (women only).
RACE/ETHNICITY: Race categories are: American Indian/Alaskan Native; Asian (Chinese, Filipino, Japanese, Korean, Asian Indian, Vietnamese, Laotian, Thai, Cambodian, Pakistani, Indonesian, Hmong, Burmese Bangladesh, Sri Lankan, Malayan, Okinawan, Other Asian (specify), Unspecified ); Native Hawaiian or other Pacific Islander (Native Hawaiian, Samoan, Tongan, Tahitian, Guamanian or Chamorro, Northern Mariana, Palauan, Fijian, Other Pacific Islander (specify), Unspecified); Black; White; and Other.
Ethnicity categories are: Hispanic (Mexican, Puerto Rican, Cuban, Central American, South American, Dominican Republic, Spanish or Portugese, other-specify); and Not of Hispanic Origin.
DATA LIMITATIONS: Race and Ethnicity is based on self-identification.
STATUS: Starting in June 1990, this continuous data collection is active.
HOW TO ACCESS DATA: Tabulations/information provided upon request. Participating projects have access to their local data.
The Centers for Disease Control and Prevention does not receive names or personal identifiers which could reveal the identity of study participants. Data specific to geographic areas such as towns or counties must be aggregated if five or fewer cases were reported for the area.
CONTACT PERSON: Michael Campsmith
Centers for Disease Control and Prevention
National Center For HIV, STD, and TB Prevention
Division of HIV/AIDS Prevention, Surveillance & EPI
Surveillance Branch
Mailstop E47
Atlanta, GA 30333
(404) 639-5174
mcampsmith@cdc.gov
TITLE: Surveillance for Tuberculosis Infection in Health Care Workers
ACRONYM: StaffTRAK-TB
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: Participating hospitals test health care workers for TB infection routinely as per CDC infection control guidelines and report the results to CDC using CDC-developed software. Tuberculin skin test (TST) results are recorded in millimeters of induration. TST conversions are documented. Data are currently available from May 1995 through June 1998.
Methods of data collection for this system include:
- direct interview and self report.
- Data are originally collected by:
- Employee health and infection control staff in hospitals and health departments.
Data are collected monthly.
RACE/ETHNICITY: Race and/or Ethnicity data are collected by self-identification, and available in the following categories: Asian, Black, Hispanic, American Indian/Alaskan Native, White, and Other races. Other socio-demographic variables collected in this system that may explain racial and/or ethnic disparities include:
- occupation
- facility type
- geographic location (project area)
- BCG vaccination
- Country of birth
- household TB exposure
- gender
STATUS: This system collects data passively.
HOW TO ACCESS DATA: No data release policy specified. Interpreted results can be accessed through:
- internal reports
- peer reviewed journals
CONTACT PERSON: Eugene McCray
ecm1@cdc.gov
(404)639-8117
TITLE: Tuberculosis Information Management System
ACRONYM: TIMS
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: TIMS is a Windows-based client/server application that assists health departments and other facilities to manage Tb patients, to conduct Tb surveillance activities, and to manage Tb programs overall. TIMS provides for electronic transmission of Tb surveillance data (OMB No. 0920-0026) and program management reports to CDC from health departments of the 50 states, New York City, District of Columbia and seven U.S. Territories. Expanded TB surveillance data are available for all years since 1993. Individual cases may be analyzed to the county and/or city level. A preliminary national report of TB cases is published within 90 days of data collection and the final annual surveillance report within 180 days of data collection.
Methods of data collection for this system include:
- direct interview
notification of case(s)/events
Data are originally collected by:
- private/doctors or nurses
- hospitals
- public health clinics
- public health laboratories
- state/local health departments
Data are collected monthly.
RACE/ETHNICITY: Effective January 1, 2003: Race categories are: American Indian or Alaska Native; Asian;Black or African American; Native Hawaiian or Other Pacific Islander; and White. Multiple races may be selected.
Ethnicity categories are: Hispanic or Latino; Not Hispanic or Latino.
STATUS: This system collects data actively.
HOW TO ACCESS DATA: Public use data files available. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Weekly Reports
- MMWR Surveillance Summaries
- MMWR Reports and Recommendations
- peer reviewed journals
- Internet
CONTACT PERSONS: Business Steward (TIMS): Jose E. Becerra, M.D.,M.P.H.
jeb2@cdc.gov
Technical Steward (TIMS): Dave Elmore
TB Surveillance System: Marisa Moore, M.D.,M.P.H.
(404)639-8122
ACRONYM: YMS
AGENCY/PROGRAM: National Center for HIV, STD, and TB Prevention, Centers for Disease Control and Prevention
DESCRIPTION: System supports a category of surveys whose purpose is to assess HIV-1 seroprevalence, risk behaviors, and psychosocial factors associated with risk behaviors among young men who have sex with men and who attend public venues in seven metropolitan areas of the United States. Although survey periods have varied by area, data have been collected from 1994 - 2000.
Methods of data collection for this system include:
- direct interview
- Data are originally collected by:
- state/local health departments
- Community outreach
Data are collected monthly.
RACE/ETHNICITY: Race and ethnicity data are collected under the following categories: American Indian or Alaska Native; Asian or Asian American; Black or African American; Hispanic/Latino/Chicano; Native Hawaiian or Other Pacific Islander; and White. Other socio-demographic variables collected in this system that may explain racial or ethnic disparities include: education, work status, and income.
STATUS: This system collects data passively.
HOW TO ACCESS DATA: CDC internal use files only. Interpreted results can be accessed through:
- internal reports
- external reports
- MMWR Weekly Reports
- peer reviewed journals
CONTACT PERSONS: Linda Valleroy
lav0@cdc.gov
(404) 639-2084
Duncan Mackellar
dym4@cdc.gov
(404)639-6199