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Advisory Council July 2019 Meeting Presentation: Dementia Research, Care, and Services

Monday, July 29, 2019

Printer Friendly Version in PDF Format (11 PDF pages)

 

Dementia Research, Care, and Services: Indicators of Progress

Emma Nye and Helen Lamont
Office of the Assistant Secretary for Planning and Evaluation

Choosing indicators

  • Asked federal partners to identify important indicators of progress
  • Both qualitative and quantitative
  • Not all indictors available since 2011
  • Recognition of importance of measuring progress
  • Many indicators align with multiple action steps in the National Plan

Aligning Indicators to the National Plan

  • Used Driver Diagram to map indicators to National Plan
  • Not every Strategy or Action item can be measured quantitatively
  • Think about changing the National Plan to encourage measurement
Action Number Action Description
(from Plan)		 Method of Action Lead Agency Partner(s) Project Completion Date/Status Activities in 2017 and 2018 Pertinent Indicators
Strategy 2.H: Improve Care for Populations Disproportionally Affected by Alzheimer's Disease and Related Dementias and for Populations Facing Care Challenges
2.H.1 Create funding opportunities for organizations to improve care for these specific populations. Fund dementia-capable systems to implement new programs designed to provide more effective services to: (1) individuals living alone in the community with dementia; (2) individuals with IDD who have or are at risk of developing dementia; (3) caregivers who need behavioral symptom management training or expert consultations to help them care for family members. ACL   Ongoing ACL awarded 11 community-based grants in 2017 for a total of 43 projects in 28 states and Puerto Rico awarded since 2014. ACL anticipates awarding additional grants in 2018. Note that future grants are contingent on availability of funding.
  • Number of programs implementing evidence-based and evidence informed interventions awarded since 2011
  • Persons with dementia and caregivers served for grants awarded 2011 and later. (ACL)
  • Improvement in dementia capability of programs funded since 2017 (we implemented the Dementia Capability Assessment in 2017, with first data in Fall 2018) (ACL)
  • Minority and rural/urban status for grants awarded 2015 and later. (ACL)

 

National Institutes of Health

Line Chart: Amount Spent by Category per Year in Millions.
1.B: Expand research aimed at preventing and treating Alzheimer's disease and related dementias

 

Line Chart: Number of Projects Funded per Year.
1.B: Expand research aimed at preventing and treating Alzheimer's disease and related dementias

 

Line Chart: Clinical Projects Funded per Year.
1.B.3: Increase enrollment in clinical trials and other clinical research through community, national, and international outreach.
1.B.5: Conduct clinical trials on the most promising pharmacologic interventions.
1.B.6: Continue clinical trials on the most promising lifestyle interventions.

 

Bar Chart: Total NIA/NINDS AD/ADRD Awardees FY 2015-2018. Total Awardees (847); New to the Field (308, 36%); ESI and NI (236, 28%).
New to the Field (NTF) Definition: Awardees with no AD/ADRD award or application prior to FY2015 from NIH

 

Department of Veterans Affairs

Line Chart: Number of VA Office of Research and Development-Funded Dementia Research Projects Reported in National Institute on Aging (NIA) International Alzheimer’s and Related Dementias Research Portfolio per Year.
1.B.3: Increase enrollment in clinical trials and other clinical research through community, national, and international outreach.
1.B.5: Conduct clinical trials on the most promising pharmacologic interventions.
1.B.6: Continue clinical trials on the most promising lifestyle interventions.

 

Line Chart: Total Number of Veterans Health Administration Employees Completing Selected Dementia Training Programs.
2.A.4: Develop and disseminate a voluntary unified primary care AD/ADRD curriculum.
2.A.15: Disseminate CMS Hand-in-Hand dementia training materials in VA CLCs.

 

Line Chart: Total Number of Veterans Health Administration Staff Certified in Resources for Enhancing All Caregivers Health in VA Caregiver Support Intervention.
3.B: Enable family caregivers to continue to provide care while maintaining their own health and well-being.

 

Line Chart: Total number of Dementia Caregivers Served in Resources for Enhancing All Caregivers Health in VA Caregiver Support Intervention.
Strategy 3.B: Enable family caregivers to continue to provide care while maintaining their own health and well-being

 

National Science Foundation

Line Chart: Total Number of Grants Awarded.
1.B: Expand research aimed at preventing and treating Alzheimer's disease.

 

Line Chart: Total Amount Awarded through Grants in Millions.
1.B: Expand research aimed at preventing and treating Alzheimer's disease.

 

Health Resources and Services Administration

Line Chart: Total Number of Interprofessional Continuing Education Sessions Provided on Alzheimer's Disease.
1.E.1: Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings.
2.A.1: Educate health care providers
2.A.2: Encourage providers to pursue careers in geriatric specialties.
2.A.3: Strengthen state aging, public health, and IDD workforces.
2.A.4: Develop and disseminate a voluntary unified primary care AD/ADRD curriculum.
2.C.1: Educate physicians and other health care providers about accessing LTSS.
2.D.3: Clarify and disseminate information on privacy, autonomy, and safety issues for physicians.

 

Line Chart: Total Number of Trainees Participating in Interprofessional Continuing Education on Alzheimer's Disease.
1.E.1: Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings.
2.A.1: Educate health care providers
2.A.2: Encourage providers to pursue careers in geriatric specialties.
2.A.3: Strengthen state aging, public health, and IDD workforces.
2.A.4: Develop and disseminate a voluntary unified primary care AD/ADRD curriculum.
2.C.1: Educate physicians and other health care providers about accessing LTSS.
2.D.3: Clarify and disseminate information on privacy, autonomy, and safety issues for physicians.

 

Line Chart: Total Number of Caregivers Who Received Dementia Education and Support.
2.A.5: Ensure aging and public health network providers have access to research-based up-to-date information on AD/ADRD.
3.B.9: Develop and disseminate information to caregivers on AD/ADRD and caregiving.

 

Centers for Disease Control & Prevention

Line Chart: Total Number of Alzheimer's Association Professional Development Travel Scholarships Awarded.
1.E.1: Leverage public and private collaborations to facilitate dissemination, translation, and implementation of research findings.
2.A.1: Educate health care providers
2.A.2: Encourage providers to pursue careers in geriatric specialties.
2.A.3: Strengthen state aging, public health, and IDD workforces.

 

  • Develop and Facilitate Implementation of National Priorities for State and Local Public Health every five years for dementia, brain health, and caregiving.
    • 2013: Released the 2nd Healthy Brain Initiative Road Map for State and Local Public Health
      • 35 actions aligned with 4 Essential Services of Public Health.
    • 2018: Released the 3rd Healthy Brain Initiative Road Map for State and Local Public Health
      • 25 actions aligned with 4 Essential Services of Public Health and a newly added focus on caregiving.
  • Develop and Facilitate Implementation of National Priorities for Public Health within Indian County for dementia, brain health, and caregiving
    • 2019: Released the 1st Healthy Brain Initiative Road Map for Indian Country
      • 8 actions aligned with 3 Essential Services of Public Health.

 

Administration for Community Living

Line Chart: Total Number of Programs Implementing Evidence-based and Evidence-informed Interventions Awarded Since 2011.
2.F.1: Implement and evaluate new care models to support effective care transitions for people with AD/ADRD.
2.H.1: Create funding opportunities for organizations to improve care for these specific populations.
2.H.3: Target resources towards the IDD and dementia population.
3.B.1: Develop and disseminate evidence- based interventions for people with AD/ADRD and their caregivers.
3.B.2: Provide effective caregiver interventions through AD-capable systems.

 

Line Chart: Total Number of Persons With Dementia and Caregivers Served for Grants Awarded Since 2011.
3.A.1: Distribute materials to caregivers.
3.B.1: Develop and disseminate evidence- based interventions for people with AD/ADRD and their caregivers.
3.B.2: Provide effective caregiver interventions through AD-capable systems.

 

Line Chart: Annual Percentage of Minority Status for Grants Awarded Since 2015.
3.A: Ensure receipt of culturally sensitive education, training, and support materials

 

QUESTIONS?