Advisory Council April 2019 Meeting Agenda



Advisory Council on Alzheimer's Research, Care, and Services

April 29, 2019
9:00 am - 5:00 pm (Eastern Time)
Streamed live --

U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Room 800, H.H. Humphrey Building
Washington, DC 20201

Printer Friendly Version in PDF Format (2 PDF pages)


9:00 AM - 9:15 AM
Welcome and Charge for Meeting
Laura Gitlin, Chair
9:15 AM - 10:00 AM
Council Business: Measuring Progress, Recommendations, and Moonshot Updates
Laura Gitlin and Helen Lamont
  Implementing Person-Centered Planning to Support People Living with Cognitive Symptoms
Organized by Gary Epstein-Lubow, Clinical Care Subcommittee Chair
10:00 AM -- 11:00 AM
Session 1: Person-Centered Planning for People with Complex Conditions
National Center on Advancing Person-Centered Practices and Systems (NCAPPS) and NQF's Person-Centered Planning and Practice
Shawn Terrell, ACL
Driving Change: The Why and How of Advancing Person-Centered Outcome Measurement
Gretchen Alkema, The SCAN Foundation
Building Accountability for Person-Centered Planning: Performance Measurement and Accreditation
Jessica Briefer French, NCQA
11:00 AM -- 12:30 PM
Session 2: Practical Implementation of Person-Centered Planning for People Living with Cognitive Symptoms
Person-Centered Planning in Dementia Care
Soo Borson, University of Washington
Dementia Care Planning in Medicare: Use of the Care Planning Code
Matthew Baumgart, Alzheimer's Association
Care Planning and Health Information Technology -- Exemplars
Moderator: Arlene Bierman, AHRQ
   Dementia Care 3.0: Malaz Boustani
   Leveraging a Person-Centered Collaboration (PCC) platform: Connecting people and plans to ensure progress: Alexandra Greenhill
Discussion: Innovations in the Delivery of Dementia Care in a Rapidly Evolving Health Care Landscape
Brent Forester, McLean Hospital, Partners HealthCare, Harvard Medical School
12:30 PM -- 1:30 PM
1:30 PM -- 2:00 PM
Public Comments
2:00 PM -- 3:30 PM
Session 3: Addressing Details of Treatment, Including Antipsychotic Medication Use and Case Examples
Antipsychotic Prescribing in Community Settings
Matthew Goldman, SAMHSA
Anita Everett, SAMHSA
Shari Ling, CMS
Person-Centered Care: Panel Discussion
Moderator: Cynthia Huling Hummel
   Greg O'Brien, Author of On Pluto: Inside the Mind of Alzheimer's
   E. Jennifer Brown, Family Caregiver and Coordinator of Advocacy, New Jersey Council on Developmental Disabilities
   Shawn Terrell, ACL
3:30 PM -- 4:15 PM
Federal Workgroup Updates
Erin Long, Shari Ling, and Richard Hodes
4:15 PM
Summary and Adjourn

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