This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Office of Behavioral Health, Disability, and Aging Policy (BHDAP)
The Office of Behavioral Health, Disability, and Aging Policy (BHDAP) focuses on policies and programs that support the independence, productivity, health and well-being, and long-term care needs of people with disabilities, older adults, and people with mental and substance use disorders.
Note: BHDAP was previously known as the Office of Disability, Aging, and Long-Term Care Policy (DALTCP). Only our office name has changed, not our mission, portfolio, or policy focus.
The Division of Behavioral Health Policy is responsible for the analysis, coordination, research and evaluation of policies related to mental and substance use disorders, also referred to as behavioral health. The division is the focal point for policy development and analysis related to the financing, access/delivery, organization, and quality of services for people with mental and substance use disorders, including those supported or financed by Medicaid, Medicare, and the Substance Abuse and Mental Health Services Administration (SAMHSA).
The Division of Long-Term Services and Supports is responsible for the analysis, coordination, and research and evaluation of policies related to institutional and community-based long-term care and supportive services, including formal and informal caregiving. The Division is the focal point for policy development and analysis related to the financing, delivery, organization, and quality of long-term care services and supports, including those supported or financed by private insurers, Medicaid, Medicare, and the Administration for Community Living (ACL).
The Division of Disability and Aging Policy is responsible for policy and data development, coordination, research and evaluation of policies and programs focused on the functioning and well-being of persons with disabilities and older adults. The Division is the focal point for crosscutting disability and aging collaboration within the Department and across other federal agencies. Alzheimer’s disease and related dementias and intellectual and developmental disabilities, including Autism Spectrum Disorder, are notable areas of engagement and expertise.
Helpful Information:
Reports
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Advanced SearchData User's Guide for the Public Use File of the Survey of Long-Term Care Awareness and Planning: Appendix A. Survey of Long-Term Care Awareness and Planning Questionnaire
This is the full instrument for the Survey of Long-Term Care Awareness and Planning, and Appendix A of the report "Data User's Guide for the Public Use File of the Survey of Long-Term Care Awareness and Planning".
Data User's Guide for the Public Use File of the Survey of Long-Term Care Awareness and Planning
With the aging of the population, the demand and need for long-term care (LTC) is certain to grow, and with it public and private expenditures. Unlike medical care, where insurance is common, few people have private LTC insurance, and Medicare does not cover LTC. Many older adults pay for LTC out of their income and personal savings until they qualify for Medicaid.
Data User's Guide for the Public Use File of the Survey of Long-Term Care Awareness and Planning: Appendix B. Codebook for Survey of Long-Term Care Awareness and Planning
This is the Codebook for the Survey of Long-Term Care Awareness and Planning public use file, and Appendix B of the report "Data User's Guide for the Public Use File of the Survey of Long-Term Care Awareness and Planning". The Codebook contains every variable name, its label, and unweighted and weighted frequencies.
ASPE Issue Brief
Caregiving for People with Non-Alzheimer's Dementias Issue Brief
This is the PDF version of a Reference Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Evaluation of the Medicaid Health Home Option for Beneficiaries with Chronic Conditions: Evaluation of Outcomes of Selected Health Home Programs, Annual Report - Year Five
Medicaid health homes, authorized by Section 1945 of the Social Security Act, allows states to coordinate care and integrate services for Medicaid beneficiaries with multiple chronic physical, mental, or behavioral health conditions.
The Use of Assistive Technology to Reduce Caregiver Burden
This is the PDF version of a Reference Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Research on Care Coordination for People with Dementia and Family Caregivers
This is the PDF version of a Session Background Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).
Support and Services at Home (SASH) Evaluation: Highlights from the First Four Years Research Summary
This Research Summary describes the primary features of the SASH program and summarizes the main findings of the evaluation to date. [7 PDF pages]
Research on Supportive Approaches for Family and Other Caregivers
This is the PDF version of a Session Background Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).