As the United States population ages, a larger proportion of individuals will likely need and use long-term services and supports (LTSS). Much of this support is provided by informal (i.e., unpaid) caregivers. For those that need paid LTSS, most Americans pay out-of-pocket. Some may do so until their personal resources are exhausted, and then rely on the Medicaid safety net.
People with Disabilities
Reports
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Assessing Outcomes Relevant for Patient-Centered Outcomes Research Among Adults Aged 18–64 with Disabilities and Federal Data Infrastructure Opportunities
This report and dataset inventory identifies individual-level measures for conducting patient-centered outcomes research (PCOR) relevant to adults with disabilities, aged 18–64 years.
Report
Updated Medicare FFS Telehealth Trends by Beneficiary Characteristics, Visit Specialty and State, 2019-2021
This research report updates prior reports on Medicare FFS telehealth trends during the COVID-19 public health emergency with data through end of 2021, by beneficiary characteristics, visit specialty and geography including by state. Medicare telehealth flexibilities during the COVID-19 pandemic continued to encourage use of telehealth among Medicare beneficiaries in 2021.
Report to Congress
22nd Welfare Indicators and Risk Factors Report to Congress
This report provides welfare dependence indicators through 2019 for most indicators and through 2020 for other indicators, reflecting changes that have taken place since enactment of the Personal Responsibility and Work Opportunity Reconciliation Act (PRWORA) in 1996.
Research Brief
Long-Term Services and Supports for Older Americans: Risks and Financing, 2022
This Brief presents information about the risk of needing care and associated costs to provide content for policymakers and others considering long-term care financing proposals. It revises a brief that was written in October 2020.
ASPE Issue Brief, Guide
Advancing Equity for Fathers in Human Services Programs
This practice guide is a resource for a broad range of human services programs aiming to be more inclusive of and responsive to fathers. Building on literature from the field and interviews with human services providers that engage fathers in services, this guide outlines strategies for advancing equity in human services programs:
Research Summary
The Affordable Care Act and Its Accomplishments
The Affordable Care Act (ACA) was signed into law on March 23, 2010. Since then, the law has led to an historic expansion of health insurance coverage across all states and all demographic groups within the U.S. This Briefing Book features key findings from two dozen reports published in 2021-2022.
Report
Medicare Beneficiaries’ Use of Telehealth in 2020: Trends by Beneficiary Characteristics and Location
This research report examines changes in Medicare fee-for-service Part B visits and use of telehealth in 2020 during the COVID-19 public health emergency (PHE) by beneficiary characteristics, provider specialty, and location. The analysis found that Medicare in-person visits dropped while telehealth visits increased significantly at the start of the pandemic.
ASPE Issue Brief
Health Insurance Coverage Among Working-Age Adults with Disabilities: 2010-2018
For working-age adults with disabilities, consistent access to health insurance may be critical to continuity of care and good health outcomes. We tracked changes in health insurance coverage for this population from 2010-2018.
Caregiving and Intellectual and Developmental Disabilities and Dementia: Report of the Pre-Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities
This is the PDF version of a Pre-Summit Activity Paper prepared for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers (also called the Research Summit on Dementia Care).