Caregivers

  U.S. Department of Health and Human Services

This booklet, developed by the U.S. Department of Health and Human Services (HHS) is about informal caregiving — unpaid care given voluntarily to ill or disabled persons by their families and friends. Informal caregiving by families and friends is the backbone of America's long-term care system.

U.S. Department of Health and Human Services The Impact of Female Caregivers' Employment Status on Patterns of Formal and Informal Eldercare

U.S. Department of Health and Human Services

The 1989 National Long Term Care Survey is the first nationally representative survey to collect data on weekly hours of assistance received by ADL and/or IADL disabled elders living in the community by individual caregivers, both formal and informal.

U.S. Department of Health and Human Services Use of the 1989 National Long-Term Care Survey for Examining Cognitive Impairment Eligibility Criteria

Three studies sponsored by HHS confirm previous research linking health impairment levels, advanced age, and various indicators of caregivers' physical burden and emotional stress with individual caregivers' decisions to stop giving care and increased likelihood of nursing home placement.

This study investigated factors associated with the decisions of principal informal caregivers of the activity of daily living (ADL) dependent elderly living in the community to end caregiving. Data were from the 1982 National Long-Term Care Survey (NLTCS), the 1982 Informal Caregiver Survey and 1984 NLTCS Longitudinal Follow-up.

U.S. Department of Health and Human Services