Unpaid caregivers play a vital role in supporting older adults and people with disabilities to remain in their homes and communities. They often face substantial financial and emotional strain from the burden of caregiving. In response, federal and state policymakers have advanced proposals to offer targeted tax relief to caregivers.
Age, Gender & Gender Identities
Reports
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Medicare Hospice Use Patterns Among Patients With Alzheimer’s Disease or Related Dementias Compared to Those With Other Terminal Diagnoses
This study examined how people with Alzheimer’s disease and related dementias (ADRD) use hospice compared with patients who have other terminal diagnoses, as well as how hospice characteristics shape those care patterns.
Research Brief
Title IV-E Prevention Services Make Up Less Than Two Percent of Overall Program Expenditure Reimbursement Claims: Many States Do Not Claim Expenses at All
This brief, focused on the Title IV-E Prevention Program, explores how states, territories, and Tribes have been engaging in the program since it began. The content highlights the Title IV-E Prevention Services Clearinghouse process, as well as information from jurisdictions’ prevention plans and claimed expenditures. Key findings include:
Report
Better Data for Maternal Health Research HHS Efforts to Strengthen Data Infrastructure for a Healthy America
This 2024 vignette provides examples of how a range of OS-PCORTF cross-agency projects are working to improve maternal health by 1)Reducing Preventable Pregnancy-Related Deaths and Improving Maternity Care 2) Studying Substance Use Treatment Outcomes for Pregnant Women 3) Representing all American Mothers and Children in Research Data
Report
Exploring Data Infrastructure Availability and Expansion Opportunities for Health Outcomes Research on Sickle Cell Disease
This report is to serve as a data source guide that helps policymakers and researchers understand the current data infrastructure landscape for SCD-focused health outcomes research. Specifically, the goals are to identify existing SCD data sources and data dashboards as well as key considerations to enhance data collection and use.
Report to Congress, Visualization
Welfare Indicators and Risk Factors, Twenty-Fourth Report to Congress
The Welfare Indicators Act of 1994 (Public Law 103-432) requires the Secretary of the Department of Health and Human Services to prepare an annual report to Congress on indicators and predictors of “welfare dependence.” That Act requires the report to include three programs: Temporary Assistance for Needy Families (TANF) program (which replaced the Aid to Families with Dependent Children (AFDC)
Report
Data Sources for Conducting Research on Doula Services and Related Outcomes
Improving maternal health in the U.S. requires strengthening care and support during pregnancy, childbirth, and the postpartum period. Doula services have shown promise in improving maternal and infant outcomes, yet more research is needed to understand these impacts.
Report
Longitudinal Analysis of Medical and Long-Term Services and Supports Use in the National Health and Aging Trends Study
This study examines the use of medical services and long-term services and supports by the population over age 65 over time.
ASPE Issue Brief
Use of Medicaid Personal Care Services in 2019 and 2020
This issue brief looks at changes in the utilization of personal care services among Medicaid beneficiaries from 2019 to 2020.
ASPE Data Point
U.S. Population Prevalence of Prescription Psychiatric Medication Use Among Children and Adolescents, 2006-2023
Recent federal policy discussions have renewed focus on psychiatric medication use among children and adolescents. Psychiatric medications represent one evidence-based component within a spectrum of effective treatments for pediatric mental illness, alongside psychotherapy, family-based interventions, and school supports.