National Alzheimer's Project Act

07/01/2020

The National Alzheimer's Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other federal efforts to help change the trajectory of Alzheimer's disease and related dementias (AD/ADRD). The law calls for a National Plan for AD/ADRD with input from a public-private Advisory Council on Alzheimer's Research, Care and Services. The Advisory Council makes recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with AD/ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.

In order to inform the National Plan for AD/ADRD, HHS has partnered with the U.S. Department of Veterans Affairs (VA), the National Science Foundation (NSF), and the U.S. Department of Defense (DoD) to convene an Interagency Group on Alzheimer's Disease and Related Dementias. The group includes HHS representatives from the Office of the Assistant Secretary for Planning and Evaluation (ASPE), Office of the Assistant Secretary for Health (OASH), National Institute on Aging (NIA), Centers for Medicare & Medicaid Services (CMS), Centers for Disease Control and Prevention (CDC), Administration on Aging (AoA), Health Resources and Services Administration (HRSA), Agency for Healthcare Research and Quality (AHRQ), Substance Abuse and Mental Health Services Administration (SAMHSA), Food and Drug Administration (FDA), Indian Health Service (IHS), and Administration for Children and Families (ACF). The Interagency Group is working to carry out NAPA's charges to coordinate research and services across agencies, accelerate the development of AD/ADRD treatments, improve early diagnosis and coordination of care, reduce ethnic and racial disparities in rates of AD/ADRD, and coordinate with international efforts to fight these conditions. The Plan this group developed was presented to the Advisory Council for review, and updated annually.

WOULD YOU LIKE TO BE ALERTED WHEN NEW INFORMATION IS AVAILABLE? A Listserv is also available that will automatically email you a monthly message. To join, send an email to LISTSERV@LIST.NIH.GOV. Whatever email address the message is sent from will be what is used in the Listserv. The only thing that needs to be in the body of the message is:

subscribe NAPA-L your name
(your name, of course, being the name of the person joining)

Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.


What's New:

Resources on COVID-19 for Caregivers and Older Adults

Navigating COVID-19: Supporting Individuals With Dementia and Their Caregivers. Webinar information: https://www.resourcesforintegratedcare.com/Older_Adults/2020_Webinar/COVID-19_Supporting_Individuals_with_Dementia_and_Caregivers.

Emory University's Goizueta Alzheimer's Disease Research Center Fact Sheet for people providing informal care for persons living with Alzheimer's and related illnesses: http://alzheimers.emory.edu/documents/Caregiving%20COVID-19%20GADRC.pdf#Caregiving tips during COVID-19

Centers for Disease Control and Prevention (CDC) Guidance

COVID-19 and Down Syndrome (collaboration of several agencies)

Substance Abuse and Mental Health Services Administration Guidance: https://www.samhsa.gov/coronavirus

Federal Emergency Management Agency Coronavirus Rumor Control: https://www.fema.gov/Coronavirus-Rumor-Control

American Medical Association paper "The Dilemma of Coronavirus Disease 2019, Aging, and Cardiovascular Disease: Insights From Cardiovascular Aging Science": https://jamanetwork.com/journals/jamacardiology/article-abstract/2764300

NAPA Information

 

Although the 2017 Summit is over, the work has just begun. Continue to send your stories,
thoughts and recommendations to napa@hhs.gov,
with the Subject Line "Summit Comment".

The March 2020 Summit was canceled due to COVID-19, however there will be a Summit Virtual Meeting Series. The Series will divide the original Summit agenda into 3 meetings, set to occur July 10, July 21 and August 13. Registration is now open to participate in these virtual meetings at Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers Registration.

Find Information On:

  WHAT IS ALZHEIMER'S DISEASE & RELATED DEMENTIAS   ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, & SERVICES
  NATIONAL PLAN & OTHER NAPA DOCUMENTS   OTHER INFORMATION ON AD/ADRD