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Advisory Council January 2019 Meeting Presentation: LTSS Federal Update

Monday, January 28, 2019

Printer Friendly Version in PDF Format (10 PDF pages)


Long-Term Services and Supports Federal Update


Administration for Community Living

Alzheimer's Disease Programs Initiative (ADPI)

  • 2019 States and Community Expansion Grants -- January 26
  • 2019 Grants to NEW States and Communities - UPCOMING

Grants to States and Communities Dementia Capability Assessment Improvement Scores

Domain Percentage Improvement
Identifying people with dementia 15%
Staff Training 2%
Providing Specialized Services 24%
Other Dementia Capability Activities 26%

Administration on Aging

States with Active ACL Alzheimer's ADRD Grants
(January 2019)
State map.

Handbook for Helping People Living Alone with Dementia Who Have No Known Support

  • Practical guidance and tools for helping persons living alone with no informal supports, including people with dementia who have a caregiver that cannot provide support.
    • Practical strategies for identifying people who are living alone without support, assessing risk, building trust, identifying family and friends willing to help,
    • determining decision-making capacity, options for helping the person maintain their independence, and
    • the basics of guardianship or conservatorship.

Working Together: How Community Organizations and First Responders Can Better Serve People Living with Dementia

  • Guide to assist community organizations in collaborating with first responders to better serve people living with dementia
    • Why this issue is gaining attention,
    • Strategies for building successful partnerships,
    • Types of programs that can benefit people living with dementia.
    • Resources:
      • Training materials
      • Sample policies
      • Tip sheets and more.

Disaster Planning Toolkit for People Living with Dementia

  • Tools to assist people living with dementia, their family members, and their caregivers understand what to expect in the event of a disaster and how to prepare for it. Comprised of seven tip sheets and checklists for persons living with dementia, their families, and others who interact with them, including friends and neighbors.
    • Planning for a Disaster
    • Important Contacts
    • Emergency Supplies Checklist
    • My Medical Conditions and Care Needs
    • Disaster Planning Tips for People Living Alone with Dementia
    • Planning for after a Disaster, and
    • Tips for Communication and Responding to Dementia Symptoms.

NADRC Webinar


  • October launch of redesigned Eldercare Locator website ( which includes:
    • A mobile-optimized design to easily access the Eldercare Locator on a computer, phone, or tablet
    • A geographical search bar allows visitors to search for local aging resources from any page on the site
  • New Materials
    • Caregiver Corner answering most frequently asked questions received by the Call Center
    • Learn More About section with information on popular topics like transportation, support services, elder rights, housing, health, and insurance and benefits.
  • Home for the Holidays Campaign
    • The 2018 Home for the Holidays public education campaign highlighted long-distance caregiving.
      • Caring Across the Miles: Resources for Long-Distance Caregivers, which provides tips, answers frequently asked questions and highlights local resources available to long-distance caregivers.

Long-Term Care Ombudsman Programs (OLTCOP)

  • Continue provision of training, technical assistance, to help states' Long-Term Care Ombudsman (LTCO) programs to better meet the needs of individuals living with dementia in long-term care facilities.
  • Awarded a supplemental grant for $70,000 to the National Ombudsman Resource Center (NORC) to address two critical issues in long-term care facility settings, involuntary discharges and opioids. The grant will address:
    • Nursing Home eviction and discharge -- LTCO programs in a learning collaborative receive TA to address individual and systemic approaches to remedy a commonly reported problem nursing facility residents bring to Ombudsman programs -- involuntary, facility-initiated discharge. Includea designated legal assistance programs serving the same geographic areas, to engage in peer-to-peer learning, and in-depth training to develop complaint advocacy and legal tools. The strategies and tools developed through this project will serve as a resource for all Ombudsman programs.
    • Opioid Use and Pain Management - The second prong of this grant will fund a short-term project to better understand long-term care facility residents' experiences with pain management. This will include an examination of the use of opioids, causes and results of opioid misuse, and how drug diversion, and other consequences of opioid misuse by others, can impact residents. Obtaining the perspective of people living in nursing homes and residential care communities will be an integral part of this project.


Centers for Disease Control and Prevention

Healthy Brain Initiative Road Map, 2018-2023
Framework: Essential Services of Public Health

HBI Road Map 2018-2023 Outer circle=Eliminate Health Disparities; Collaborate Across Multiple Sectors; Leverage Resources for Sustained Impact. Middle circle=Assure a Competent Workforce; Monitor and Evaluate; Educate and Empower the Nation; Develop Policies and Mobilize Partnerships. Circle center=Applied Research and Translation.
HBI Road Map 2018-2023 cover.

Healthy Brain Initiative Road Map, 2018-2023
New Products

Dissemination Guide Implementation Planning Guide
Dissemination Guide cover. Implementation Planning Guide cover.

Healthy Brain Initiative Road Map, 2018-2023
Issue Maps

Supporting Caregivers Caregiving Action Agenda Public Health Strategies
Supporting Caregivers cover. Caregiving Action Agenda cover. Public Health Strategies cover.
Supporting Caregivers Accelerating Risk Reduction Advancing Early Detection
Supporting Caregivers cover. Accelerating Risk Reduction cover. Advancing Early Detection cover.

Forthcoming: Road Map for Indian Country

American Indians and Alaska Natives: gains in longevity, but Elders with higher risks for dementia and heart disease

  • Available in Spring 2019
  • Tailored for Tribal and Native health leaders to engage their communities on Alzheimer's and other dementias
  • Suggest public health responses to
    • Reduce risk for cognitive decline
    • Advance early detection
    • Support caregivers
    • Monitor and evaluate

Data for Action
New Data Briefs

Subjective Cognitive Decline Caregiving for Family and Friends
Subjective Cognitive Decline cover. Caregiving for Family and Friends cover.

Stay Connected to CDC

Newsletter Subscription New Homepage
Newsletter Subscription screenshot. New Homepage screenshot.