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Advisory Council October 2018 Meeting Presentation: LTSS Federal Update

Friday, October 19, 2018

Printer Friendly Version in PDF Format (8 PDF pages)


Long-Term Services and Supports Federal Update


Administration for Community Living

  • 2018 Alzheimer' Disease Programs Initiative ($16,913,374)
    • Alaska Department of Health and Social Services (AK)
    • Oregon Department of Health Services (OR)
    • Pennsylvania Department of Aging (PA)
    • Rhode Island Division of Elderly Affairs (RI)
    • Alzheimer's and Dementia Care Services of Northwestern Ohio (OH)
    • Alzheimer's Orange County (CA)
    • Catholic Charities of Hawaii (HI)
    • Center for Excellence in Aging and Geriatric Health (VA)
    • County of Ventura (CA)
    • Easter Seals New Hampshire, Inc. (NH)
    • Jewish Family Service Association of Cleveland (OH)
    • Latino Alzheimer's and Memory Disorders Alliance (IL)
    • LiveWell Alliance, Inc. (CT)
    • ONEgeneration (CA)
    • Southeast Tennessee Development District (TN)
    • United Community Center, Inc. (WI)
    • University of Wyoming (WY)
    • WellMed Charitable Foundation (TX)
    • WISE & Healthy Aging (CA)
  • Additional 2018 Grants
    • National Alzheimer's Call Center
      • Alzheimer's Disease and Related Disorders Association, Inc.
      • $1,233,571
    • Strengthening the Financial Literacy & Preparedness of Family Caregivers
      • Alzheimer's Disease and Related Disorders Association, Inc.
      • $250,000
  • Contract
    • National Alzheimer's and Dementia Resource Center (NADRC)
      • RTI, International, Inc.
      • $1,699,564

Goal 4 -- Enhance public awareness and engagement -- educate public, work with state tribal and local governments to improve coordination and identify model initiatives to advance ADRD awareness and readiness

Administration on Aging

  • National Family Caregiver Support Program (NFCSP)
    • 2018 Funding increase of $30,000,000 to $180,000,000 ;
    • Statutory highest priority of services requirement is "diagnosis of Alzheimer's Disease or Related Disorder with neurological or organic brain dysfunction";
    • 62% of persons served are caregivers of individuals with a medical diagnosis of ADRD;
    • Outreach and awareness programming results in caregivers benefiting from ADRD training in 74.9% of participating providers;
    • Offer dementia specific evidence-based caregiver trainings and education interventions (i.e. Resources for Enhancing Alzheimer's Caregiver's Health (REACH) and SAVVY Caregiver).

Administration for Community Living

  • National Alzheimer's and Dementia Resource Center (NADRC) Webinar Series
    • Improving Healthcare for People Living with Dementia (9/12/18)
      • Presenters: Debra Cherry, Lora Connolly, Katie Scott
      • People Trained -- 557
    • First Responder Training and Programs to Support People with Dementia (8/7/18)
      • Presenters: Jessica Empeño and Molly Schroeder
      • People Trained -- 626
    • Addressing Health Disparities in People Living with Dementia (7/31/18)
      • Presenters: Andrea Garr, Dr. Lisa Barnes
      • People Trained -- 657

Goal 4 -- Enhance public awareness and engagement -- educate public, work with state tribal and local governments to improve coordination and identify model initiatives to advance ADRD awareness and readiness

  • Title VI National Conference
    • (August 2018)
    • Alzheimer's Disease and Related Dementia Sessions
      • Alzheimer's in Indian Country by the International Association for Indigenous Aging
      • Supporting Those Living With Dementia (n4a and the WI Dept. of Health)
      • Dementia Assistance for Elders by ACL, National Resource Center for Native Hawaiian Elders and the La Courte Oreilles tribe

Indian Health Service

  • Native Elders National Indian Council on Aging Biennial Meeting
    • September 2018
    • IHS Principal Deputy Director, RADM Michael Weahkee and Dr. Blythe Winchester, IHS Chief Clinical Consultant in Geriatrics and Palliative Care, participated in a panel discussion on Alzheimer's disease and related dementia to over 1000 Native Elders.

Recent Publication on Projections of Alzheimer's Disease

Article cover: Racial and ethnic estimates of Alzheimer's disease and related dementias in the United States (2015–2060) in adults aged greater than or equal to 65 years. CDC Graphic: new estimates of americans with alzheimer's disease and related dementias show racial and ethnic disparities.

Recent Publication on Older Adults

Article cover: CDC Grand Rounds: Promoting Well-Being and Independence in Older Adults. MMWR CDCMMWR - Sep 21
Americans are living longer. As the proportion of older adults in the population continues to increase so does the prevalence of #chronic diseases, like #Alzheimer's. For suggestions to help #OlderAdults improve quality of life, read the latest report:
MMWR Graphic: Suggestions to help older adults. CDC Graphic: Talk to your doctor if you experience symptoms.

Recent Publications on Caregiving

Article cover: The Economic Value of Informal Caregiving for Persons With Dementia: Results From 38 States, the District of Columbia, and Puerto Rico, 2015 and 2016 BRFSS. Article cover: Financial and Health Barriers and Caregiving-Related Difficulties Among Rural and Urban Caregivers.

Healthy Brain Initiative Road Map, 2018-2023

Publication cover: State and Local Public Health Partnerships to Address Dementia, The 2018- 2023 Road Map. Publication cover: Making Alzheimer’s Our Next Public Health Success Story.

Data for Action -- National Caregiving Infographic

CDC Infographic: Caregiving. CDC Infographic: Caregiving Surveillance.  

2018 Memory Sunday Highlights

  • 246 Congregations participated -- reaching approximately 75,000 congregational members
  • 6 in-person Memory Sunday events across the country reaching over 500 participants in Atlanta, Boston, Chattanooga, Seattle, Jacksonville, and Baltimore.
  • 650,000 media impressions across radio, print, and social media
  • 600+ downloads of Memory Sunday Toolkits and The Book of Alzheimer's
  • 95% of participating churches distributed materials
  • 43% hosted a special event or service for caregivers
  • 38% partnered with agencies to provide information on Alzheimer's and dementia
Poster: Memory Sunday June 10, 2018.