Monday, October 21, 2019
Friendly Version in PDF Format (6 PDF pages)
National Plan to Address Alzheimer’s Disease: 2019 Update
Helen Lamont, Ph.D.
Office of Disability, Aging, and Long-Term Care Policy
National Plan
- Prevent and Effectively Treat Alzheimer’s Disease by 2025
- Optimize Care Quality and Efficiency
- Expand Supports for People with Alzheimer’s Disease and Their Families
- Enhance Public Awareness and Engagement
- Track Progress and Drive Improvement
Framework
- National Plan, not just a federal plan: Requires engagement of public and private sector stakeholders
- Balance work on treatments with care needed by people with the disease and their families now
- Progress report of completed and ongoing activities of the federal government and non-federal partners
- Long term goals, strategies to achieve those goals, and immediate actions
Implementing the National Plan
- Set Implementation Milestones Timeline
- Identify lead agencies and partners
- Implement many actions immediately
- Report progress to Advisory Council
- Update annually
2019 Update Development
- Report on progress and updated activities between July 2018 and July 2019
- Address recommendations Advisory Council adopted in July 2019
- HHS agencies and federal partners identified both next steps to actions on National Plan and new areas of work
- Most of the changes are updates and continuations
Goal 1: Prevent and Effectively Treat Alzheimer’s Disease by 2025
- Three new actions from the Department of Defense
- Action 1.A.8: Create and implement a strategic plan for the Congressionally Directed Medical Research Program’s Alzheimer’s research program
- Action 1.A.9: Develop and administer a scientific landscape survey for the Congressional Directed Medical Research Program’s Alzheimer’s research program
- Action 1.B.10: Expand research for care and support of individuals with cognitive and behavioral symptomatology related to both TBI and dementia
- Two new actions from the Department of Veterans Affairs
- Action 1.B.8: Convene a workshop on TBI and dementia
- Action 1.B.9: Joint VA-NIA career development award
Highlights of Updated Activities
- Expand clinical trial outreach
- Action 1.B.3: In 2019, NIA launched Alzheimer’s and Dementia Outreach, Recruitment, and Engagement Resources (ADORE)
- Action 1.B.4: NIA’s Alzheimer’s Clinical Trials Consortium (ACTC) network of 35 U.S. sites to develop and deploy best practices for recruiting and conducting clinical trials
- Expand research on intersection of Down syndrome and ADRD
- Action 1.B.7: 2018 NIH funded work to create a AD clinical trial network for adults with Down syndrome: The Alzheimer’s Clinical Trial Consortium - Down Syndrome Network (ACTC-DSN)
- Facilitate translation of research into public health practice
- Action 1.E.1: NIA AMP-AD public-private partnership now has a web-based interactive platform for sharing data to leverage analyses and discoveries
- Action 1.E.7: CDC issue maps on caregiving, risk reduction, early detection, data for action, and education of health professionals
Goal 2: Enhance Care Quality and Efficiency
- Fill gaps in dementia-capable systems
- Action 2.A.13: Target activities to support persons living alone with ADRD, individuals aging with IDD, and behavioral symptom management for family caregivers
- Encourage use of dementia care guidelines and measures
- Action 2.D.1: CMS is working on developing and implementing quality and outcome measure for HCBS programs
- Understand differences in reported diagnosis, Medicare claims, and cognitive assessment performance
- Action 2.B.5: Examine the extent to which these methods identify different populations to identify priorities for improving diagnosis and surveillance
- Explore payment and service options for duals
- Action 2.E.4: Analyze new payment and service options for Medicare-Medicaid dual eligible beneficiaries
- Action 2.G.3: Compare outcomes from dual eligible beneficiaries in integrated care models
- Action 2.G.4: Analyze pathways of eligibility for dually eligible beneficiaries
- Expand Health IT standards for care planning and interoperable information exchange between providers
- Action 2.G.2: Assesses the adequacy of HIT standards to support people with ADRD
Goal 3: Expand Supports for People with AD and Their Families
- Enhance access to evidence-based interventions for caregivers
- Action 3.B.2: Provide effective caregiver interventions through Alzheimer’s disease and related dementias-capable systems
- Explore options for supporting caregivers
- Action 3.B.6: Examine technological solutions to support family caregivers
- Action 3.B.8: Determine economic impacts of programs to support informal caregivers
- Assist in planning for future care needs
- Action 3.C.1: Understand the functional trajectories of people with Alzheimer’s disease and related dementias at the end of life
- Action 3.C.2: Understand the use of advance care planning for people with cognitive impairment
- Action 3.C.4: Understand the availability of caregivers for individuals with long-term services and supports needs
- Keep people with dementia safe from neglect and exploitation
- Action 3.D.5: Develop public-private partnerships to combat abuse and exploitation of Social Security beneficiaries
- Action 3.D.8: Identify research and policy priorities for addressing self-neglect
Goal 4: Enhance Public Awareness and Engagement
- Educate the public about Alzheimer’s disease and related dementia
- Action 4.A.2: Facilitate translation of data and surveillance to inform the public
- Coordinate internationally
- Action 4.C.1: Work with global partners to enhance collaboration
Goal 5: Improve Data to Track Progress
- Action 5.A.5: Summarize existing data on people with Alzheimer’s disease and related dementia and their caregivers
- Action 5.A.6: Provide analysis of BRFSS data on people with Alzheimer’s disease and their caregivers in user-friendly formats
- Action 5.B.3: Identify key indicators of progress on the National Plan