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The 1989 National Long Term Care Survey is the first nationally representative survey to collect data on weekly hours of assistance received by ADL and/or IADL disabled elders living in the community by individual caregivers, both formal and informal.
The Office of the Assistant Secretary for Planning and Evaluation sponsored an expert meeting to advise DALTCP on policy issues and available data related to several populations of persons with disabilities: working age adults, children, persons age 65 and older, and special populations (e.g., persons with developmental disabilities, persons with mental illness).
A REVIEW OF FAMILY PRESERVATION AND FAMILY REUNIFICATION PROGRAMS By Westat, Inc. in association with James Bell Associates, Inc., and The Chapin Hall Center for Children at the University of Chicago May 30, 1995 For the Office of the Assistant Secretary for Planning and Evaluation U.S. Department of Health and Human Services
by Julia H. Littell and John R. Schuerman Westat, Inc., in association with James Bell Associates, and the Chapin Hall Center for Children at the University of Chicago. A part of the National Evaluation of Family Preservation Servcies For the Office of the Assistant Secretary for Planning and Evaluation Department of Health and Human Services
A large minority of Americans (42.7 million or 17.2%) have disabilities, 12.7 million of whom need long-term care. About 29.7% of all people with disabilities and 5% of the entire population need long-term care.
Most adults with disabilities are in their working (not their elderly) years. According to the 1990 Survey of Income and Program Participation, among the civilian non-institutionalized population, 20,266,000 adults in their working years (18-64) and 15,413,000 elderly persons (65+) reported a disability.